Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for adult screening

As population-based screening programs to identify genetic conditions in adults using genomic sequencing (GS) are increasingly available, validated patient-centered outcome measures are needed to understand participants’ experience. We aimed to develop and validate an instrument to assess the percei...

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Veröffentlicht in:	Genetics in medicine 2024-11, Vol.26 (11), p.101240, Article 101240
Hauptverfasser:	Smith, Hadley Stevens, Rubanovich, Caryn Kseniya, Robinson, Jill Oliver, Levchenko, Ariel N., Classen, Sarah A., Malek, Janet, Buchanan, Adam H., Biesecker, Barbara, Brothers, Kyle B., Wilfond, Benjamin S., Rini, Christine, Bloss, Cinnamon S., McGuire, Amy L., Knight, Sara J.
Format:	Artikel
Sprache:	eng
Schlagworte:	Adult Aged Assessment Female Genetic Testing - methods Genomic sequencing Genomics - methods Humans Implementation science Male Measurement Middle Aged Psychometrics - methods Reproducibility of Results Surveys and Questionnaires Utility Young Adult
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