Sociodemographic and clinical indicators of children and young people with cerebral palsy and reported unmet social needs
Aim To determine the frequency, type, clinical, and sociodemographic associations of unmet social needs in children with cerebral palsy (CP). Method We conducted a cross‐sectional study of parents and carers of children with CP attending a specialist hospital clinic between July and September 2022....
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| Veröffentlicht in: | Developmental medicine and child neurology 2025-02, Vol.67 (2), p.245-253 |
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| creator | Yeoh, Amelia Ostojic, Katarina Berg, Alison Garg, Arvin Mcintyre, Sarah Scott, Timothy Eapen, Valsamma Woolfenden, Sue Paget, Simon Azmatullah, Sheikh Berg, Alison Burnett, Heather Cadiri, Mariyam Calderan, Jack Chambers, Georgina Dale, Russell Dee‐Price, Betty‐Jean Rojas, Delfina Diaz Eapen, Valsamma Henry, Georgina Karem, Isra Lingam, Raghu Martin, Tanya Masi, Anne McIntyre, Sarah Mimmo, Laurel Mohamed, Masyitah Olaso, Anne Ostojic, Katarina Paget, Simon Scarcella, Mick Scott, Timothy Shiva, Shaini Smithers‐Sheedy, Hayley Stojanovic, Vesna Strnadová, Iva Hoek, Debbie Hoek, Matthew Vasquez, Joyce Wilkinson, Alunya Woodbury, Mackenzie Woolfenden, Sue Zacharko, Janet Zwi, Karen |
| description | Aim
To determine the frequency, type, clinical, and sociodemographic associations of unmet social needs in children with cerebral palsy (CP).
Method
We conducted a cross‐sectional study of parents and carers of children with CP attending a specialist hospital clinic between July and September 2022. Unmet social needs were self‐identified using a survey, guided by the WE CARE survey instrument and adapted to the local context. Sociodemographic and clinical data were obtained from medical records. We performed descriptive analysis of participants' unmet social needs, sociodemographic factors, and clinical factors, and examined for associations using a χ2 test and logistic regression.
Results
A total of 105 parents and carers completed the survey. Of these, 68 (64.8%) reported one or more unmet social need, with 24 (22.9%) reporting three or more unmet needs. A higher number (three or more) of unmet needs was associated with Gross Motor Function Classification System levels IV and V (odds ratio [OR] = 3.77, 95% confidence interval [CI] = 1.44–9.86) and intellectual disability (OR = 4.63, 95% CI = 1.61–13.31), but were not significant when corrected for neighbourhood socioeconomic disadvantage. The greatest socioeconomic disadvantage was associated with housing concerns (p = 0.002), food (p = 0.026), and financial insecurity (p = 0.02).
Interpretation
Unmet social needs are experienced by most families of children with CP. This study highlights the importance of systematic pathways to identify and address unmet social needs. |
| doi_str_mv | 10.1111/dmcn.16041 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_3083680927</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>3083680927</sourcerecordid><originalsourceid>FETCH-LOGICAL-c2881-fb8639e2b244da8fe97e80c017f2aad65621268361f2f05bc8f79e999df265d3</originalsourceid><addsrcrecordid>eNp90MFu3CAQBmBUpepu0l76ABHHqJITwDaGY7Vpm0ib5NDcLQxDlsgGF2yt_PYlu9sew2UOfPOP9CP0lZJrmt-NGbS_ppxU9ANa04rLQjSVPENrQigrKGdshc5TeiWElLyuPqFVKUkpRS3XaPkdtAsGhvAS1bhzGitvsO6dd1r12HmT5xRiwsFivXO9ieAPZgmzf8EjhLEHvHfTDmuI0MW8Nao-LQcUYQxxAoNnP8CEUz6W_z2ASZ_RR5sdfDnNC_T888fz5q7YPv2633zfFpoJQQvbCV5KYB2rKqOEBdmAIJrQxjKlDK85o4yLklPLLKk7LWwjQUppLOO1KS_Q1TF2jOHPDGlqB5c09L3yEObUliTvCiJZk-m3I9UxpBTBtmN0g4pLS0n71nT71nR7aDrjy1Pu3A1g_tN_1WZAj2DveljeiWpvHzaPx9C_agyK1A</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>3083680927</pqid></control><display><type>article</type><title>Sociodemographic and clinical indicators of children and young people with cerebral palsy and reported unmet social needs</title><source>MEDLINE</source><source>Wiley Online Library Journals Frontfile Complete</source><creator>Yeoh, Amelia ; Ostojic, Katarina ; Berg, Alison ; Garg, Arvin ; Mcintyre, Sarah ; Scott, Timothy ; Eapen, Valsamma ; Woolfenden, Sue ; Paget, Simon ; Azmatullah, Sheikh ; Berg, Alison ; Burnett, Heather ; Cadiri, Mariyam ; Calderan, Jack ; Chambers, Georgina ; Dale, Russell ; Dee‐Price, Betty‐Jean ; Rojas, Delfina Diaz ; Eapen, Valsamma ; Henry, Georgina ; Karem, Isra ; Lingam, Raghu ; Martin, Tanya ; Masi, Anne ; McIntyre, Sarah ; Mimmo, Laurel ; Mohamed, Masyitah ; Olaso, Anne ; Ostojic, Katarina ; Paget, Simon ; Scarcella, Mick ; Scott, Timothy ; Shiva, Shaini ; Smithers‐Sheedy, Hayley ; Stojanovic, Vesna ; Strnadová, Iva ; Hoek, Debbie ; Hoek, Matthew ; Vasquez, Joyce ; Wilkinson, Alunya ; Woodbury, Mackenzie ; Woolfenden, Sue ; Zacharko, Janet ; Zwi, Karen</creator><creatorcontrib>Yeoh, Amelia ; Ostojic, Katarina ; Berg, Alison ; Garg, Arvin ; Mcintyre, Sarah ; Scott, Timothy ; Eapen, Valsamma ; Woolfenden, Sue ; Paget, Simon ; Azmatullah, Sheikh ; Berg, Alison ; Burnett, Heather ; Cadiri, Mariyam ; Calderan, Jack ; Chambers, Georgina ; Dale, Russell ; Dee‐Price, Betty‐Jean ; Rojas, Delfina Diaz ; Eapen, Valsamma ; Henry, Georgina ; Karem, Isra ; Lingam, Raghu ; Martin, Tanya ; Masi, Anne ; McIntyre, Sarah ; Mimmo, Laurel ; Mohamed, Masyitah ; Olaso, Anne ; Ostojic, Katarina ; Paget, Simon ; Scarcella, Mick ; Scott, Timothy ; Shiva, Shaini ; Smithers‐Sheedy, Hayley ; Stojanovic, Vesna ; Strnadová, Iva ; Hoek, Debbie ; Hoek, Matthew ; Vasquez, Joyce ; Wilkinson, Alunya ; Woodbury, Mackenzie ; Woolfenden, Sue ; Zacharko, Janet ; Zwi, Karen ; EPIC‐CP GROUP</creatorcontrib><description>Aim
To determine the frequency, type, clinical, and sociodemographic associations of unmet social needs in children with cerebral palsy (CP).
Method
We conducted a cross‐sectional study of parents and carers of children with CP attending a specialist hospital clinic between July and September 2022. Unmet social needs were self‐identified using a survey, guided by the WE CARE survey instrument and adapted to the local context. Sociodemographic and clinical data were obtained from medical records. We performed descriptive analysis of participants' unmet social needs, sociodemographic factors, and clinical factors, and examined for associations using a χ2 test and logistic regression.
Results
A total of 105 parents and carers completed the survey. Of these, 68 (64.8%) reported one or more unmet social need, with 24 (22.9%) reporting three or more unmet needs. A higher number (three or more) of unmet needs was associated with Gross Motor Function Classification System levels IV and V (odds ratio [OR] = 3.77, 95% confidence interval [CI] = 1.44–9.86) and intellectual disability (OR = 4.63, 95% CI = 1.61–13.31), but were not significant when corrected for neighbourhood socioeconomic disadvantage. The greatest socioeconomic disadvantage was associated with housing concerns (p = 0.002), food (p = 0.026), and financial insecurity (p = 0.02).
Interpretation
Unmet social needs are experienced by most families of children with CP. This study highlights the importance of systematic pathways to identify and address unmet social needs.</description><identifier>ISSN: 0012-1622</identifier><identifier>ISSN: 1469-8749</identifier><identifier>EISSN: 1469-8749</identifier><identifier>DOI: 10.1111/dmcn.16041</identifier><identifier>PMID: 39039859</identifier><language>eng</language><publisher>England</publisher><subject>Adolescent ; Caregivers ; Cerebral Palsy - epidemiology ; Child ; Child, Preschool ; Cross-Sectional Studies ; Female ; Health Services Needs and Demand - statistics & numerical data ; Humans ; Male ; Needs Assessment ; Parents ; Sociodemographic Factors ; Socioeconomic Factors</subject><ispartof>Developmental medicine and child neurology, 2025-02, Vol.67 (2), p.245-253</ispartof><rights>2024 Mac Keith Press.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c2881-fb8639e2b244da8fe97e80c017f2aad65621268361f2f05bc8f79e999df265d3</cites><orcidid>0000-0002-0234-1541 ; 0009-0000-3698-2059 ; 0000-0001-6605-3330 ; 0000-0002-6954-5071 ; 0000-0001-6436-4936 ; 0000-0001-6296-8306</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fdmcn.16041$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fdmcn.16041$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/39039859$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Yeoh, Amelia</creatorcontrib><creatorcontrib>Ostojic, Katarina</creatorcontrib><creatorcontrib>Berg, Alison</creatorcontrib><creatorcontrib>Garg, Arvin</creatorcontrib><creatorcontrib>Mcintyre, Sarah</creatorcontrib><creatorcontrib>Scott, Timothy</creatorcontrib><creatorcontrib>Eapen, Valsamma</creatorcontrib><creatorcontrib>Woolfenden, Sue</creatorcontrib><creatorcontrib>Paget, Simon</creatorcontrib><creatorcontrib>Azmatullah, Sheikh</creatorcontrib><creatorcontrib>Berg, Alison</creatorcontrib><creatorcontrib>Burnett, Heather</creatorcontrib><creatorcontrib>Cadiri, Mariyam</creatorcontrib><creatorcontrib>Calderan, Jack</creatorcontrib><creatorcontrib>Chambers, Georgina</creatorcontrib><creatorcontrib>Dale, Russell</creatorcontrib><creatorcontrib>Dee‐Price, Betty‐Jean</creatorcontrib><creatorcontrib>Rojas, Delfina Diaz</creatorcontrib><creatorcontrib>Eapen, Valsamma</creatorcontrib><creatorcontrib>Henry, Georgina</creatorcontrib><creatorcontrib>Karem, Isra</creatorcontrib><creatorcontrib>Lingam, Raghu</creatorcontrib><creatorcontrib>Martin, Tanya</creatorcontrib><creatorcontrib>Masi, Anne</creatorcontrib><creatorcontrib>McIntyre, Sarah</creatorcontrib><creatorcontrib>Mimmo, Laurel</creatorcontrib><creatorcontrib>Mohamed, Masyitah</creatorcontrib><creatorcontrib>Olaso, Anne</creatorcontrib><creatorcontrib>Ostojic, Katarina</creatorcontrib><creatorcontrib>Paget, Simon</creatorcontrib><creatorcontrib>Scarcella, Mick</creatorcontrib><creatorcontrib>Scott, Timothy</creatorcontrib><creatorcontrib>Shiva, Shaini</creatorcontrib><creatorcontrib>Smithers‐Sheedy, Hayley</creatorcontrib><creatorcontrib>Stojanovic, Vesna</creatorcontrib><creatorcontrib>Strnadová, Iva</creatorcontrib><creatorcontrib>Hoek, Debbie</creatorcontrib><creatorcontrib>Hoek, Matthew</creatorcontrib><creatorcontrib>Vasquez, Joyce</creatorcontrib><creatorcontrib>Wilkinson, Alunya</creatorcontrib><creatorcontrib>Woodbury, Mackenzie</creatorcontrib><creatorcontrib>Woolfenden, Sue</creatorcontrib><creatorcontrib>Zacharko, Janet</creatorcontrib><creatorcontrib>Zwi, Karen</creatorcontrib><creatorcontrib>EPIC‐CP GROUP</creatorcontrib><title>Sociodemographic and clinical indicators of children and young people with cerebral palsy and reported unmet social needs</title><title>Developmental medicine and child neurology</title><addtitle>Dev Med Child Neurol</addtitle><description>Aim
To determine the frequency, type, clinical, and sociodemographic associations of unmet social needs in children with cerebral palsy (CP).
Method
We conducted a cross‐sectional study of parents and carers of children with CP attending a specialist hospital clinic between July and September 2022. Unmet social needs were self‐identified using a survey, guided by the WE CARE survey instrument and adapted to the local context. Sociodemographic and clinical data were obtained from medical records. We performed descriptive analysis of participants' unmet social needs, sociodemographic factors, and clinical factors, and examined for associations using a χ2 test and logistic regression.
Results
A total of 105 parents and carers completed the survey. Of these, 68 (64.8%) reported one or more unmet social need, with 24 (22.9%) reporting three or more unmet needs. A higher number (three or more) of unmet needs was associated with Gross Motor Function Classification System levels IV and V (odds ratio [OR] = 3.77, 95% confidence interval [CI] = 1.44–9.86) and intellectual disability (OR = 4.63, 95% CI = 1.61–13.31), but were not significant when corrected for neighbourhood socioeconomic disadvantage. The greatest socioeconomic disadvantage was associated with housing concerns (p = 0.002), food (p = 0.026), and financial insecurity (p = 0.02).
Interpretation
Unmet social needs are experienced by most families of children with CP. This study highlights the importance of systematic pathways to identify and address unmet social needs.</description><subject>Adolescent</subject><subject>Caregivers</subject><subject>Cerebral Palsy - epidemiology</subject><subject>Child</subject><subject>Child, Preschool</subject><subject>Cross-Sectional Studies</subject><subject>Female</subject><subject>Health Services Needs and Demand - statistics & numerical data</subject><subject>Humans</subject><subject>Male</subject><subject>Needs Assessment</subject><subject>Parents</subject><subject>Sociodemographic Factors</subject><subject>Socioeconomic Factors</subject><issn>0012-1622</issn><issn>1469-8749</issn><issn>1469-8749</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2025</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp90MFu3CAQBmBUpepu0l76ABHHqJITwDaGY7Vpm0ib5NDcLQxDlsgGF2yt_PYlu9sew2UOfPOP9CP0lZJrmt-NGbS_ppxU9ANa04rLQjSVPENrQigrKGdshc5TeiWElLyuPqFVKUkpRS3XaPkdtAsGhvAS1bhzGitvsO6dd1r12HmT5xRiwsFivXO9ieAPZgmzf8EjhLEHvHfTDmuI0MW8Nao-LQcUYQxxAoNnP8CEUz6W_z2ASZ_RR5sdfDnNC_T888fz5q7YPv2633zfFpoJQQvbCV5KYB2rKqOEBdmAIJrQxjKlDK85o4yLklPLLKk7LWwjQUppLOO1KS_Q1TF2jOHPDGlqB5c09L3yEObUliTvCiJZk-m3I9UxpBTBtmN0g4pLS0n71nT71nR7aDrjy1Pu3A1g_tN_1WZAj2DveljeiWpvHzaPx9C_agyK1A</recordid><startdate>202502</startdate><enddate>202502</enddate><creator>Yeoh, Amelia</creator><creator>Ostojic, Katarina</creator><creator>Berg, Alison</creator><creator>Garg, Arvin</creator><creator>Mcintyre, Sarah</creator><creator>Scott, Timothy</creator><creator>Eapen, Valsamma</creator><creator>Woolfenden, Sue</creator><creator>Paget, Simon</creator><creator>Azmatullah, Sheikh</creator><creator>Berg, Alison</creator><creator>Burnett, Heather</creator><creator>Cadiri, Mariyam</creator><creator>Calderan, Jack</creator><creator>Chambers, Georgina</creator><creator>Dale, Russell</creator><creator>Dee‐Price, Betty‐Jean</creator><creator>Rojas, Delfina Diaz</creator><creator>Eapen, Valsamma</creator><creator>Henry, Georgina</creator><creator>Karem, Isra</creator><creator>Lingam, Raghu</creator><creator>Martin, Tanya</creator><creator>Masi, Anne</creator><creator>McIntyre, Sarah</creator><creator>Mimmo, Laurel</creator><creator>Mohamed, Masyitah</creator><creator>Olaso, Anne</creator><creator>Ostojic, Katarina</creator><creator>Paget, Simon</creator><creator>Scarcella, Mick</creator><creator>Scott, Timothy</creator><creator>Shiva, Shaini</creator><creator>Smithers‐Sheedy, Hayley</creator><creator>Stojanovic, Vesna</creator><creator>Strnadová, Iva</creator><creator>Hoek, Debbie</creator><creator>Hoek, Matthew</creator><creator>Vasquez, Joyce</creator><creator>Wilkinson, Alunya</creator><creator>Woodbury, Mackenzie</creator><creator>Woolfenden, Sue</creator><creator>Zacharko, Janet</creator><creator>Zwi, Karen</creator><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-0234-1541</orcidid><orcidid>https://orcid.org/0009-0000-3698-2059</orcidid><orcidid>https://orcid.org/0000-0001-6605-3330</orcidid><orcidid>https://orcid.org/0000-0002-6954-5071</orcidid><orcidid>https://orcid.org/0000-0001-6436-4936</orcidid><orcidid>https://orcid.org/0000-0001-6296-8306</orcidid></search><sort><creationdate>202502</creationdate><title>Sociodemographic and clinical indicators of children and young people with cerebral palsy and reported unmet social needs</title><author>Yeoh, Amelia ; Ostojic, Katarina ; Berg, Alison ; Garg, Arvin ; Mcintyre, Sarah ; Scott, Timothy ; Eapen, Valsamma ; Woolfenden, Sue ; Paget, Simon ; Azmatullah, Sheikh ; Berg, Alison ; Burnett, Heather ; Cadiri, Mariyam ; Calderan, Jack ; Chambers, Georgina ; Dale, Russell ; Dee‐Price, Betty‐Jean ; Rojas, Delfina Diaz ; Eapen, Valsamma ; Henry, Georgina ; Karem, Isra ; Lingam, Raghu ; Martin, Tanya ; Masi, Anne ; McIntyre, Sarah ; Mimmo, Laurel ; Mohamed, Masyitah ; Olaso, Anne ; Ostojic, Katarina ; Paget, Simon ; Scarcella, Mick ; Scott, Timothy ; Shiva, Shaini ; Smithers‐Sheedy, Hayley ; Stojanovic, Vesna ; Strnadová, Iva ; Hoek, Debbie ; Hoek, Matthew ; Vasquez, Joyce ; Wilkinson, Alunya ; Woodbury, Mackenzie ; Woolfenden, Sue ; Zacharko, Janet ; Zwi, Karen</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c2881-fb8639e2b244da8fe97e80c017f2aad65621268361f2f05bc8f79e999df265d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2025</creationdate><topic>Adolescent</topic><topic>Caregivers</topic><topic>Cerebral Palsy - epidemiology</topic><topic>Child</topic><topic>Child, Preschool</topic><topic>Cross-Sectional Studies</topic><topic>Female</topic><topic>Health Services Needs and Demand - statistics & numerical data</topic><topic>Humans</topic><topic>Male</topic><topic>Needs Assessment</topic><topic>Parents</topic><topic>Sociodemographic Factors</topic><topic>Socioeconomic Factors</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Yeoh, Amelia</creatorcontrib><creatorcontrib>Ostojic, Katarina</creatorcontrib><creatorcontrib>Berg, Alison</creatorcontrib><creatorcontrib>Garg, Arvin</creatorcontrib><creatorcontrib>Mcintyre, Sarah</creatorcontrib><creatorcontrib>Scott, Timothy</creatorcontrib><creatorcontrib>Eapen, Valsamma</creatorcontrib><creatorcontrib>Woolfenden, Sue</creatorcontrib><creatorcontrib>Paget, Simon</creatorcontrib><creatorcontrib>Azmatullah, Sheikh</creatorcontrib><creatorcontrib>Berg, Alison</creatorcontrib><creatorcontrib>Burnett, Heather</creatorcontrib><creatorcontrib>Cadiri, Mariyam</creatorcontrib><creatorcontrib>Calderan, Jack</creatorcontrib><creatorcontrib>Chambers, Georgina</creatorcontrib><creatorcontrib>Dale, Russell</creatorcontrib><creatorcontrib>Dee‐Price, Betty‐Jean</creatorcontrib><creatorcontrib>Rojas, Delfina Diaz</creatorcontrib><creatorcontrib>Eapen, Valsamma</creatorcontrib><creatorcontrib>Henry, Georgina</creatorcontrib><creatorcontrib>Karem, Isra</creatorcontrib><creatorcontrib>Lingam, Raghu</creatorcontrib><creatorcontrib>Martin, Tanya</creatorcontrib><creatorcontrib>Masi, Anne</creatorcontrib><creatorcontrib>McIntyre, Sarah</creatorcontrib><creatorcontrib>Mimmo, Laurel</creatorcontrib><creatorcontrib>Mohamed, Masyitah</creatorcontrib><creatorcontrib>Olaso, Anne</creatorcontrib><creatorcontrib>Ostojic, Katarina</creatorcontrib><creatorcontrib>Paget, Simon</creatorcontrib><creatorcontrib>Scarcella, Mick</creatorcontrib><creatorcontrib>Scott, Timothy</creatorcontrib><creatorcontrib>Shiva, Shaini</creatorcontrib><creatorcontrib>Smithers‐Sheedy, Hayley</creatorcontrib><creatorcontrib>Stojanovic, Vesna</creatorcontrib><creatorcontrib>Strnadová, Iva</creatorcontrib><creatorcontrib>Hoek, Debbie</creatorcontrib><creatorcontrib>Hoek, Matthew</creatorcontrib><creatorcontrib>Vasquez, Joyce</creatorcontrib><creatorcontrib>Wilkinson, Alunya</creatorcontrib><creatorcontrib>Woodbury, Mackenzie</creatorcontrib><creatorcontrib>Woolfenden, Sue</creatorcontrib><creatorcontrib>Zacharko, Janet</creatorcontrib><creatorcontrib>Zwi, Karen</creatorcontrib><creatorcontrib>EPIC‐CP GROUP</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Developmental medicine and child neurology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Yeoh, Amelia</au><au>Ostojic, Katarina</au><au>Berg, Alison</au><au>Garg, Arvin</au><au>Mcintyre, Sarah</au><au>Scott, Timothy</au><au>Eapen, Valsamma</au><au>Woolfenden, Sue</au><au>Paget, Simon</au><au>Azmatullah, Sheikh</au><au>Berg, Alison</au><au>Burnett, Heather</au><au>Cadiri, Mariyam</au><au>Calderan, Jack</au><au>Chambers, Georgina</au><au>Dale, Russell</au><au>Dee‐Price, Betty‐Jean</au><au>Rojas, Delfina Diaz</au><au>Eapen, Valsamma</au><au>Henry, Georgina</au><au>Karem, Isra</au><au>Lingam, Raghu</au><au>Martin, Tanya</au><au>Masi, Anne</au><au>McIntyre, Sarah</au><au>Mimmo, Laurel</au><au>Mohamed, Masyitah</au><au>Olaso, Anne</au><au>Ostojic, Katarina</au><au>Paget, Simon</au><au>Scarcella, Mick</au><au>Scott, Timothy</au><au>Shiva, Shaini</au><au>Smithers‐Sheedy, Hayley</au><au>Stojanovic, Vesna</au><au>Strnadová, Iva</au><au>Hoek, Debbie</au><au>Hoek, Matthew</au><au>Vasquez, Joyce</au><au>Wilkinson, Alunya</au><au>Woodbury, Mackenzie</au><au>Woolfenden, Sue</au><au>Zacharko, Janet</au><au>Zwi, Karen</au><aucorp>EPIC‐CP GROUP</aucorp><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Sociodemographic and clinical indicators of children and young people with cerebral palsy and reported unmet social needs</atitle><jtitle>Developmental medicine and child neurology</jtitle><addtitle>Dev Med Child Neurol</addtitle><date>2025-02</date><risdate>2025</risdate><volume>67</volume><issue>2</issue><spage>245</spage><epage>253</epage><pages>245-253</pages><issn>0012-1622</issn><issn>1469-8749</issn><eissn>1469-8749</eissn><abstract>Aim
To determine the frequency, type, clinical, and sociodemographic associations of unmet social needs in children with cerebral palsy (CP).
Method
We conducted a cross‐sectional study of parents and carers of children with CP attending a specialist hospital clinic between July and September 2022. Unmet social needs were self‐identified using a survey, guided by the WE CARE survey instrument and adapted to the local context. Sociodemographic and clinical data were obtained from medical records. We performed descriptive analysis of participants' unmet social needs, sociodemographic factors, and clinical factors, and examined for associations using a χ2 test and logistic regression.
Results
A total of 105 parents and carers completed the survey. Of these, 68 (64.8%) reported one or more unmet social need, with 24 (22.9%) reporting three or more unmet needs. A higher number (three or more) of unmet needs was associated with Gross Motor Function Classification System levels IV and V (odds ratio [OR] = 3.77, 95% confidence interval [CI] = 1.44–9.86) and intellectual disability (OR = 4.63, 95% CI = 1.61–13.31), but were not significant when corrected for neighbourhood socioeconomic disadvantage. The greatest socioeconomic disadvantage was associated with housing concerns (p = 0.002), food (p = 0.026), and financial insecurity (p = 0.02).
Interpretation
Unmet social needs are experienced by most families of children with CP. This study highlights the importance of systematic pathways to identify and address unmet social needs.</abstract><cop>England</cop><pmid>39039859</pmid><doi>10.1111/dmcn.16041</doi><tpages>9</tpages><orcidid>https://orcid.org/0000-0002-0234-1541</orcidid><orcidid>https://orcid.org/0009-0000-3698-2059</orcidid><orcidid>https://orcid.org/0000-0001-6605-3330</orcidid><orcidid>https://orcid.org/0000-0002-6954-5071</orcidid><orcidid>https://orcid.org/0000-0001-6436-4936</orcidid><orcidid>https://orcid.org/0000-0001-6296-8306</orcidid></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0012-1622 |
| ispartof | Developmental medicine and child neurology, 2025-02, Vol.67 (2), p.245-253 |
| issn | 0012-1622 1469-8749 1469-8749 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_3083680927 |
| source | MEDLINE; Wiley Online Library Journals Frontfile Complete |
| subjects | Adolescent Caregivers Cerebral Palsy - epidemiology Child Child, Preschool Cross-Sectional Studies Female Health Services Needs and Demand - statistics & numerical data Humans Male Needs Assessment Parents Sociodemographic Factors Socioeconomic Factors |
| title | Sociodemographic and clinical indicators of children and young people with cerebral palsy and reported unmet social needs |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-02-12T16%3A40%3A21IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_cross&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Sociodemographic%20and%20clinical%20indicators%20of%20children%20and%20young%20people%20with%20cerebral%20palsy%20and%20reported%20unmet%20social%20needs&rft.jtitle=Developmental%20medicine%20and%20child%20neurology&rft.au=Yeoh,%20Amelia&rft.aucorp=EPIC%E2%80%90CP%20GROUP&rft.date=2025-02&rft.volume=67&rft.issue=2&rft.spage=245&rft.epage=253&rft.pages=245-253&rft.issn=0012-1622&rft.eissn=1469-8749&rft_id=info:doi/10.1111/dmcn.16041&rft_dat=%3Cproquest_cross%3E3083680927%3C/proquest_cross%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=3083680927&rft_id=info:pmid/39039859&rfr_iscdi=true |