Parental impact during and after neonatal intensive care admission
Parents play a pivotal role in neurodevelopmental outcomes of their children in the neonatal intensive care unit (NICU) and beyond. Integration of parents in clinical care and research is synergistic. Engaged parents yield more comprehensive clinical care and more robust and meaningful research prod...
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Veröffentlicht in: | Seminars in perinatology 2024-08, Vol.48 (5), p.151926, Article 151926 |
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creator | Guez-Barber, Danielle Pilon, Betsy |
description | Parents play a pivotal role in neurodevelopmental outcomes of their children in the neonatal intensive care unit (NICU) and beyond. Integration of parents in clinical care and research is synergistic. Engaged parents yield more comprehensive clinical care and more robust and meaningful research products. Subsequently, successful clinical and research efforts improve outcomes for children. We review strategies for parental integration into NICU clinical care and research, including parental involvement in therapeutic interventions and neurodevelopmental care, and effective communication strategies for clinicians and researchers. We discuss challenges in neonatal trials and emphasize the need for building a culture of research, collaborative partnerships with patient advocacy organizations, and ongoing support beyond the NICU. Overall, we call for recognizing and fostering the impactful role of parents as teammates with clinicians and researchers in optimizing neurodevelopmental outcomes in the NICU and beyond. |
doi_str_mv | 10.1016/j.semperi.2024.151926 |
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Overall, we call for recognizing and fostering the impactful role of parents as teammates with clinicians and researchers in optimizing neurodevelopmental outcomes in the NICU and beyond.</description><subject>Communication</subject><subject>Family-centered care</subject><subject>Family-integrated care</subject><subject>Humans</subject><subject>Infant, Newborn</subject><subject>Intensive Care Units, Neonatal</subject><subject>Intensive Care, Neonatal - methods</subject><subject>Neonatal clinical trials</subject><subject>Neurodevelopmental outcomes</subject><subject>NICU</subject><subject>Parents</subject><subject>Parents - psychology</subject><subject>Patient advocacy</subject><subject>Professional-Family Relations</subject><issn>0146-0005</issn><issn>1558-075X</issn><issn>1558-075X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2024</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNqFkM1OwzAQhC0EoqXwCKAcuaSsY8e1Twgq_qRKcACJm-U4G-SqcYKdVOLtSUnhymml1czO7EfIOYU5BSqu1vOIdYvBzTPI-JzmVGXigExpnssUFvn7IZkC5SIFgHxCTmJcAzCuKByTCZNKcKX4lNy-mIC-M5vE1a2xXVL2wfmPxPgyMVWHIfHYePMj8B366LaY2MGTmLJ2MbrGn5Kjymwinu3njLzd370uH9PV88PT8maV2oyzLqWQUS5BIHCWMSULQRkvmbJoZFkVOTXDTlVqYZAJWRhZFQshTSZYJqnIGZuRy_FuG5rPHmOnhwIWNxszVOyjZrAQQJUc0mYkH6U2NDEGrHQbXG3Cl6agd_j0Wu_x6R0-PeIbfBf7iL6osfxz_fIaBNejAIdHtw6Djtaht1i6gLbTZeP-ifgGYKOCtw</recordid><startdate>202408</startdate><enddate>202408</enddate><creator>Guez-Barber, Danielle</creator><creator>Pilon, Betsy</creator><general>Elsevier Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>202408</creationdate><title>Parental impact during and after neonatal intensive care admission</title><author>Guez-Barber, Danielle ; Pilon, Betsy</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c243t-10214806e0432398b6134d39cea8dfb51a98b9f97ae368ba8fb768a2632816533</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2024</creationdate><topic>Communication</topic><topic>Family-centered care</topic><topic>Family-integrated care</topic><topic>Humans</topic><topic>Infant, Newborn</topic><topic>Intensive Care Units, Neonatal</topic><topic>Intensive Care, Neonatal - methods</topic><topic>Neonatal clinical trials</topic><topic>Neurodevelopmental outcomes</topic><topic>NICU</topic><topic>Parents</topic><topic>Parents - psychology</topic><topic>Patient advocacy</topic><topic>Professional-Family Relations</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Guez-Barber, Danielle</creatorcontrib><creatorcontrib>Pilon, Betsy</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Seminars in perinatology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Guez-Barber, Danielle</au><au>Pilon, Betsy</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Parental impact during and after neonatal intensive care admission</atitle><jtitle>Seminars in perinatology</jtitle><addtitle>Semin Perinatol</addtitle><date>2024-08</date><risdate>2024</risdate><volume>48</volume><issue>5</issue><spage>151926</spage><pages>151926-</pages><artnum>151926</artnum><issn>0146-0005</issn><issn>1558-075X</issn><eissn>1558-075X</eissn><abstract>Parents play a pivotal role in neurodevelopmental outcomes of their children in the neonatal intensive care unit (NICU) and beyond. 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subjects | Communication Family-centered care Family-integrated care Humans Infant, Newborn Intensive Care Units, Neonatal Intensive Care, Neonatal - methods Neonatal clinical trials Neurodevelopmental outcomes NICU Parents Parents - psychology Patient advocacy Professional-Family Relations |
title | Parental impact during and after neonatal intensive care admission |
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