Parental impact during and after neonatal intensive care admission

Parents play a pivotal role in neurodevelopmental outcomes of their children in the neonatal intensive care unit (NICU) and beyond. Integration of parents in clinical care and research is synergistic. Engaged parents yield more comprehensive clinical care and more robust and meaningful research prod...

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Veröffentlicht in:Seminars in perinatology 2024-08, Vol.48 (5), p.151926, Article 151926
Hauptverfasser: Guez-Barber, Danielle, Pilon, Betsy
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container_title Seminars in perinatology
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creator Guez-Barber, Danielle
Pilon, Betsy
description Parents play a pivotal role in neurodevelopmental outcomes of their children in the neonatal intensive care unit (NICU) and beyond. Integration of parents in clinical care and research is synergistic. Engaged parents yield more comprehensive clinical care and more robust and meaningful research products. Subsequently, successful clinical and research efforts improve outcomes for children. We review strategies for parental integration into NICU clinical care and research, including parental involvement in therapeutic interventions and neurodevelopmental care, and effective communication strategies for clinicians and researchers. We discuss challenges in neonatal trials and emphasize the need for building a culture of research, collaborative partnerships with patient advocacy organizations, and ongoing support beyond the NICU. Overall, we call for recognizing and fostering the impactful role of parents as teammates with clinicians and researchers in optimizing neurodevelopmental outcomes in the NICU and beyond.
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subjects Communication
Family-centered care
Family-integrated care
Humans
Infant, Newborn
Intensive Care Units, Neonatal
Intensive Care, Neonatal - methods
Neonatal clinical trials
Neurodevelopmental outcomes
NICU
Parents
Parents - psychology
Patient advocacy
Professional-Family Relations
title Parental impact during and after neonatal intensive care admission
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