Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party
The EBMT (European Blood and Marrow Transplantation Society) aims to connect patients, the scientific community, and other stakeholders to improve hematopoietic stem cell transplantation and cellular therapy outcomes. We performed a cross-sectional online survey to understand the perceptions regardi...
Gespeichert in:
| Veröffentlicht in: | Bone marrow transplantation (Basingstoke) 2024-09, Vol.59 (9), p.1286-1294 |
|---|---|
| Hauptverfasser: | , , , , , , , , , , , , , , , , , , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | 1294 |
|---|---|
| container_issue | 9 |
| container_start_page | 1286 |
| container_title | Bone marrow transplantation (Basingstoke) |
| container_volume | 59 |
| creator | Schoemans, Hélène Burns, Linda J. Liptrott, Sarah J. Murray, John Kenyon, Michelle Barata, Anna Bolaños, Natacha Scholl, Isabelle Hamilton, Betty Phelan, Rachel Buchbinder, David Penack, Olaf Moiseev, Ivan Boreland, William Peczynski, Christophe De Geest, Sabina Sureda, Anna Snowden, John A. Shaw, Bronwen Peric, Zinaida Kroeger, Nicolaus |
| description | The EBMT (European Blood and Marrow Transplantation Society) aims to connect patients, the scientific community, and other stakeholders to improve hematopoietic stem cell transplantation and cellular therapy outcomes. We performed a cross-sectional online survey to understand the perceptions regarding Patient Reported Outcomes (PROs) and Patient Active Involvement in Research (PAIR) in over 800 stakeholders (
n
= 813). Patients (
n
= 278) and health care professionals (HCPs) (
n
= 351) were compared. We observed high openness for EBMT PRO collection (
n
= 680, 84.5% across stakeholders’ groups; patients
n
= 256, 93.1% versus HCPs
n
= 273, 78.4% [
p
|
| doi_str_mv | 10.1038/s41409-024-02290-7 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_3070797672</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>3099947080</sourcerecordid><originalsourceid>FETCH-LOGICAL-c256t-b1cb4fde096c898901bada8095aec587a4b2a207403d2c1ebeb8c75fcb4be6063</originalsourceid><addsrcrecordid>eNp9kctu1TAQhi0EoofCC7BAlpBQN4Fx4vjCrlTlIhXBoqwjx5mcpk3sYDugvFUfEZ-eA0hUYmH5Mt__j0c_Ic8ZvGZQqTeRMw66gJLnVWoo5AOyYVyKoq5E_ZBsoBSqqCqhj8iTGK8BGOdQPyZHlVIaas435ParSQO6RNFtzRan3XFw9Aonk_zsB0yDpTHhRC2OI03BuDiPxqUs844a1x0KVxjMvL6lhsYl_MCVtuvukZ6_-3xJ5_tNkok3tPfBIn11z9b6aR4He3eJ9KcPN4PbZpeQ1qfkUW_GiM8O-zH59v788uxjcfHlw6ez04vClrVIRctsy_sOQQurdJ6WtaYzCnRt0NZKGt6WpgTJoepKy7DFVllZ91nVogBRHZOTve8c_PcFY2qmIe5GNQ79EpsKJEgthSwz-vIf9NovweXfZUprzSUoyFS5p2zwMQbsmzkMkwlrw6DZ5dns82xyns1dno3MohcH66WdsPsj-R1gBqo9EHPJbTH87f0f218AxK_F</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>3099947080</pqid></control><display><type>article</type><title>Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party</title><source>MEDLINE</source><source>SpringerNature Journals</source><creator>Schoemans, Hélène ; Burns, Linda J. ; Liptrott, Sarah J. ; Murray, John ; Kenyon, Michelle ; Barata, Anna ; Bolaños, Natacha ; Scholl, Isabelle ; Hamilton, Betty ; Phelan, Rachel ; Buchbinder, David ; Penack, Olaf ; Moiseev, Ivan ; Boreland, William ; Peczynski, Christophe ; De Geest, Sabina ; Sureda, Anna ; Snowden, John A. ; Shaw, Bronwen ; Peric, Zinaida ; Kroeger, Nicolaus</creator><creatorcontrib>Schoemans, Hélène ; Burns, Linda J. ; Liptrott, Sarah J. ; Murray, John ; Kenyon, Michelle ; Barata, Anna ; Bolaños, Natacha ; Scholl, Isabelle ; Hamilton, Betty ; Phelan, Rachel ; Buchbinder, David ; Penack, Olaf ; Moiseev, Ivan ; Boreland, William ; Peczynski, Christophe ; De Geest, Sabina ; Sureda, Anna ; Snowden, John A. ; Shaw, Bronwen ; Peric, Zinaida ; Kroeger, Nicolaus</creatorcontrib><description>The EBMT (European Blood and Marrow Transplantation Society) aims to connect patients, the scientific community, and other stakeholders to improve hematopoietic stem cell transplantation and cellular therapy outcomes. We performed a cross-sectional online survey to understand the perceptions regarding Patient Reported Outcomes (PROs) and Patient Active Involvement in Research (PAIR) in over 800 stakeholders (
n
= 813). Patients (
n
= 278) and health care professionals (HCPs) (
n
= 351) were compared. We observed high openness for EBMT PRO collection (
n
= 680, 84.5% across stakeholders’ groups; patients
n
= 256, 93.1% versus HCPs
n
= 273, 78.4% [
p
< 0.001]) and PAIR (
n
= 702, 87.3% across stakeholder groups; patients
n
= 256, 92.4% versus HCPs
n
= 296, 85.8% [
p
= 0.009]), with a significantly higher proportion of patients expressing interest compared to HCPs. Priority domains for PROs data-collection identified were the assessment of symptom experience, psychosocial and cognitive functioning. The most important issues for patients specifically were the data-collection of PROs reflecting cognitive function, the option of reporting data at home, the importance of identifying actionable targets to improve their recovery, and receiving feedback on their input when participating in research projects. Our multistakeholder approach suggests an added value to embracing patient engagement in the development of meaningful research and service design within the transplantation and cellular therapy community.
Graphical abstract</description><identifier>ISSN: 0268-3369</identifier><identifier>ISSN: 1476-5365</identifier><identifier>EISSN: 1476-5365</identifier><identifier>DOI: 10.1038/s41409-024-02290-7</identifier><identifier>PMID: 38890544</identifier><language>eng</language><publisher>London: Nature Publishing Group UK</publisher><subject>692/308/174 ; 692/308/2779 ; Adult ; Bone marrow transplantation ; Cell Biology ; Cell therapy ; Cell- and Tissue-Based Therapy - methods ; Cognitive ability ; Cross-Sectional Studies ; Data collection ; Data recovery ; Female ; Hematology ; Hematopoietic Stem Cell Transplantation - methods ; Hematopoietic stem cells ; Humans ; Internal Medicine ; Male ; Medicine ; Medicine & Public Health ; Middle Aged ; Patient Participation ; Patient Reported Outcome Measures ; Patients ; Public Health ; Research projects ; Stem cell transplantation ; Stem Cells ; Surveys ; Surveys and Questionnaires ; Therapy ; Transplantation</subject><ispartof>Bone marrow transplantation (Basingstoke), 2024-09, Vol.59 (9), p.1286-1294</ispartof><rights>The Author(s), under exclusive licence to Springer Nature Limited 2024. Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law.</rights><rights>2024. The Author(s), under exclusive licence to Springer Nature Limited.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c256t-b1cb4fde096c898901bada8095aec587a4b2a207403d2c1ebeb8c75fcb4be6063</cites><orcidid>0000-0001-9458-8025 ; 0000-0001-5252-9991 ; 0000-0001-9499-6002 ; 0000-0002-1859-6178 ; 0000-0001-5103-9966 ; 0000-0002-7568-8239 ; 0000-0002-1238-6970 ; 0000-0002-3829-0088 ; 0000-0003-1341-4424 ; 0000-0003-3317-1896</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1038/s41409-024-02290-7$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1038/s41409-024-02290-7$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,780,784,27924,27925,41488,42557,51319</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/38890544$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Schoemans, Hélène</creatorcontrib><creatorcontrib>Burns, Linda J.</creatorcontrib><creatorcontrib>Liptrott, Sarah J.</creatorcontrib><creatorcontrib>Murray, John</creatorcontrib><creatorcontrib>Kenyon, Michelle</creatorcontrib><creatorcontrib>Barata, Anna</creatorcontrib><creatorcontrib>Bolaños, Natacha</creatorcontrib><creatorcontrib>Scholl, Isabelle</creatorcontrib><creatorcontrib>Hamilton, Betty</creatorcontrib><creatorcontrib>Phelan, Rachel</creatorcontrib><creatorcontrib>Buchbinder, David</creatorcontrib><creatorcontrib>Penack, Olaf</creatorcontrib><creatorcontrib>Moiseev, Ivan</creatorcontrib><creatorcontrib>Boreland, William</creatorcontrib><creatorcontrib>Peczynski, Christophe</creatorcontrib><creatorcontrib>De Geest, Sabina</creatorcontrib><creatorcontrib>Sureda, Anna</creatorcontrib><creatorcontrib>Snowden, John A.</creatorcontrib><creatorcontrib>Shaw, Bronwen</creatorcontrib><creatorcontrib>Peric, Zinaida</creatorcontrib><creatorcontrib>Kroeger, Nicolaus</creatorcontrib><title>Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party</title><title>Bone marrow transplantation (Basingstoke)</title><addtitle>Bone Marrow Transplant</addtitle><addtitle>Bone Marrow Transplant</addtitle><description>The EBMT (European Blood and Marrow Transplantation Society) aims to connect patients, the scientific community, and other stakeholders to improve hematopoietic stem cell transplantation and cellular therapy outcomes. We performed a cross-sectional online survey to understand the perceptions regarding Patient Reported Outcomes (PROs) and Patient Active Involvement in Research (PAIR) in over 800 stakeholders (
n
= 813). Patients (
n
= 278) and health care professionals (HCPs) (
n
= 351) were compared. We observed high openness for EBMT PRO collection (
n
= 680, 84.5% across stakeholders’ groups; patients
n
= 256, 93.1% versus HCPs
n
= 273, 78.4% [
p
< 0.001]) and PAIR (
n
= 702, 87.3% across stakeholder groups; patients
n
= 256, 92.4% versus HCPs
n
= 296, 85.8% [
p
= 0.009]), with a significantly higher proportion of patients expressing interest compared to HCPs. Priority domains for PROs data-collection identified were the assessment of symptom experience, psychosocial and cognitive functioning. The most important issues for patients specifically were the data-collection of PROs reflecting cognitive function, the option of reporting data at home, the importance of identifying actionable targets to improve their recovery, and receiving feedback on their input when participating in research projects. Our multistakeholder approach suggests an added value to embracing patient engagement in the development of meaningful research and service design within the transplantation and cellular therapy community.
Graphical abstract</description><subject>692/308/174</subject><subject>692/308/2779</subject><subject>Adult</subject><subject>Bone marrow transplantation</subject><subject>Cell Biology</subject><subject>Cell therapy</subject><subject>Cell- and Tissue-Based Therapy - methods</subject><subject>Cognitive ability</subject><subject>Cross-Sectional Studies</subject><subject>Data collection</subject><subject>Data recovery</subject><subject>Female</subject><subject>Hematology</subject><subject>Hematopoietic Stem Cell Transplantation - methods</subject><subject>Hematopoietic stem cells</subject><subject>Humans</subject><subject>Internal Medicine</subject><subject>Male</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Middle Aged</subject><subject>Patient Participation</subject><subject>Patient Reported Outcome Measures</subject><subject>Patients</subject><subject>Public Health</subject><subject>Research projects</subject><subject>Stem cell transplantation</subject><subject>Stem Cells</subject><subject>Surveys</subject><subject>Surveys and Questionnaires</subject><subject>Therapy</subject><subject>Transplantation</subject><issn>0268-3369</issn><issn>1476-5365</issn><issn>1476-5365</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2024</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kctu1TAQhi0EoofCC7BAlpBQN4Fx4vjCrlTlIhXBoqwjx5mcpk3sYDugvFUfEZ-eA0hUYmH5Mt__j0c_Ic8ZvGZQqTeRMw66gJLnVWoo5AOyYVyKoq5E_ZBsoBSqqCqhj8iTGK8BGOdQPyZHlVIaas435ParSQO6RNFtzRan3XFw9Aonk_zsB0yDpTHhRC2OI03BuDiPxqUs844a1x0KVxjMvL6lhsYl_MCVtuvukZ6_-3xJ5_tNkok3tPfBIn11z9b6aR4He3eJ9KcPN4PbZpeQ1qfkUW_GiM8O-zH59v788uxjcfHlw6ez04vClrVIRctsy_sOQQurdJ6WtaYzCnRt0NZKGt6WpgTJoepKy7DFVllZ91nVogBRHZOTve8c_PcFY2qmIe5GNQ79EpsKJEgthSwz-vIf9NovweXfZUprzSUoyFS5p2zwMQbsmzkMkwlrw6DZ5dns82xyns1dno3MohcH66WdsPsj-R1gBqo9EHPJbTH87f0f218AxK_F</recordid><startdate>20240901</startdate><enddate>20240901</enddate><creator>Schoemans, Hélène</creator><creator>Burns, Linda J.</creator><creator>Liptrott, Sarah J.</creator><creator>Murray, John</creator><creator>Kenyon, Michelle</creator><creator>Barata, Anna</creator><creator>Bolaños, Natacha</creator><creator>Scholl, Isabelle</creator><creator>Hamilton, Betty</creator><creator>Phelan, Rachel</creator><creator>Buchbinder, David</creator><creator>Penack, Olaf</creator><creator>Moiseev, Ivan</creator><creator>Boreland, William</creator><creator>Peczynski, Christophe</creator><creator>De Geest, Sabina</creator><creator>Sureda, Anna</creator><creator>Snowden, John A.</creator><creator>Shaw, Bronwen</creator><creator>Peric, Zinaida</creator><creator>Kroeger, Nicolaus</creator><general>Nature Publishing Group UK</general><general>Nature Publishing Group</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QO</scope><scope>7QP</scope><scope>7T5</scope><scope>7U9</scope><scope>8FD</scope><scope>FR3</scope><scope>H94</scope><scope>K9.</scope><scope>M7N</scope><scope>P64</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0001-9458-8025</orcidid><orcidid>https://orcid.org/0000-0001-5252-9991</orcidid><orcidid>https://orcid.org/0000-0001-9499-6002</orcidid><orcidid>https://orcid.org/0000-0002-1859-6178</orcidid><orcidid>https://orcid.org/0000-0001-5103-9966</orcidid><orcidid>https://orcid.org/0000-0002-7568-8239</orcidid><orcidid>https://orcid.org/0000-0002-1238-6970</orcidid><orcidid>https://orcid.org/0000-0002-3829-0088</orcidid><orcidid>https://orcid.org/0000-0003-1341-4424</orcidid><orcidid>https://orcid.org/0000-0003-3317-1896</orcidid></search><sort><creationdate>20240901</creationdate><title>Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party</title><author>Schoemans, Hélène ; Burns, Linda J. ; Liptrott, Sarah J. ; Murray, John ; Kenyon, Michelle ; Barata, Anna ; Bolaños, Natacha ; Scholl, Isabelle ; Hamilton, Betty ; Phelan, Rachel ; Buchbinder, David ; Penack, Olaf ; Moiseev, Ivan ; Boreland, William ; Peczynski, Christophe ; De Geest, Sabina ; Sureda, Anna ; Snowden, John A. ; Shaw, Bronwen ; Peric, Zinaida ; Kroeger, Nicolaus</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c256t-b1cb4fde096c898901bada8095aec587a4b2a207403d2c1ebeb8c75fcb4be6063</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2024</creationdate><topic>692/308/174</topic><topic>692/308/2779</topic><topic>Adult</topic><topic>Bone marrow transplantation</topic><topic>Cell Biology</topic><topic>Cell therapy</topic><topic>Cell- and Tissue-Based Therapy - methods</topic><topic>Cognitive ability</topic><topic>Cross-Sectional Studies</topic><topic>Data collection</topic><topic>Data recovery</topic><topic>Female</topic><topic>Hematology</topic><topic>Hematopoietic Stem Cell Transplantation - methods</topic><topic>Hematopoietic stem cells</topic><topic>Humans</topic><topic>Internal Medicine</topic><topic>Male</topic><topic>Medicine</topic><topic>Medicine & Public Health</topic><topic>Middle Aged</topic><topic>Patient Participation</topic><topic>Patient Reported Outcome Measures</topic><topic>Patients</topic><topic>Public Health</topic><topic>Research projects</topic><topic>Stem cell transplantation</topic><topic>Stem Cells</topic><topic>Surveys</topic><topic>Surveys and Questionnaires</topic><topic>Therapy</topic><topic>Transplantation</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Schoemans, Hélène</creatorcontrib><creatorcontrib>Burns, Linda J.</creatorcontrib><creatorcontrib>Liptrott, Sarah J.</creatorcontrib><creatorcontrib>Murray, John</creatorcontrib><creatorcontrib>Kenyon, Michelle</creatorcontrib><creatorcontrib>Barata, Anna</creatorcontrib><creatorcontrib>Bolaños, Natacha</creatorcontrib><creatorcontrib>Scholl, Isabelle</creatorcontrib><creatorcontrib>Hamilton, Betty</creatorcontrib><creatorcontrib>Phelan, Rachel</creatorcontrib><creatorcontrib>Buchbinder, David</creatorcontrib><creatorcontrib>Penack, Olaf</creatorcontrib><creatorcontrib>Moiseev, Ivan</creatorcontrib><creatorcontrib>Boreland, William</creatorcontrib><creatorcontrib>Peczynski, Christophe</creatorcontrib><creatorcontrib>De Geest, Sabina</creatorcontrib><creatorcontrib>Sureda, Anna</creatorcontrib><creatorcontrib>Snowden, John A.</creatorcontrib><creatorcontrib>Shaw, Bronwen</creatorcontrib><creatorcontrib>Peric, Zinaida</creatorcontrib><creatorcontrib>Kroeger, Nicolaus</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Biotechnology Research Abstracts</collection><collection>Calcium & Calcified Tissue Abstracts</collection><collection>Immunology Abstracts</collection><collection>Virology and AIDS Abstracts</collection><collection>Technology Research Database</collection><collection>Engineering Research Database</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Algology Mycology and Protozoology Abstracts (Microbiology C)</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>MEDLINE - Academic</collection><jtitle>Bone marrow transplantation (Basingstoke)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Schoemans, Hélène</au><au>Burns, Linda J.</au><au>Liptrott, Sarah J.</au><au>Murray, John</au><au>Kenyon, Michelle</au><au>Barata, Anna</au><au>Bolaños, Natacha</au><au>Scholl, Isabelle</au><au>Hamilton, Betty</au><au>Phelan, Rachel</au><au>Buchbinder, David</au><au>Penack, Olaf</au><au>Moiseev, Ivan</au><au>Boreland, William</au><au>Peczynski, Christophe</au><au>De Geest, Sabina</au><au>Sureda, Anna</au><au>Snowden, John A.</au><au>Shaw, Bronwen</au><au>Peric, Zinaida</au><au>Kroeger, Nicolaus</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party</atitle><jtitle>Bone marrow transplantation (Basingstoke)</jtitle><stitle>Bone Marrow Transplant</stitle><addtitle>Bone Marrow Transplant</addtitle><date>2024-09-01</date><risdate>2024</risdate><volume>59</volume><issue>9</issue><spage>1286</spage><epage>1294</epage><pages>1286-1294</pages><issn>0268-3369</issn><issn>1476-5365</issn><eissn>1476-5365</eissn><abstract>The EBMT (European Blood and Marrow Transplantation Society) aims to connect patients, the scientific community, and other stakeholders to improve hematopoietic stem cell transplantation and cellular therapy outcomes. We performed a cross-sectional online survey to understand the perceptions regarding Patient Reported Outcomes (PROs) and Patient Active Involvement in Research (PAIR) in over 800 stakeholders (
n
= 813). Patients (
n
= 278) and health care professionals (HCPs) (
n
= 351) were compared. We observed high openness for EBMT PRO collection (
n
= 680, 84.5% across stakeholders’ groups; patients
n
= 256, 93.1% versus HCPs
n
= 273, 78.4% [
p
< 0.001]) and PAIR (
n
= 702, 87.3% across stakeholder groups; patients
n
= 256, 92.4% versus HCPs
n
= 296, 85.8% [
p
= 0.009]), with a significantly higher proportion of patients expressing interest compared to HCPs. Priority domains for PROs data-collection identified were the assessment of symptom experience, psychosocial and cognitive functioning. The most important issues for patients specifically were the data-collection of PROs reflecting cognitive function, the option of reporting data at home, the importance of identifying actionable targets to improve their recovery, and receiving feedback on their input when participating in research projects. Our multistakeholder approach suggests an added value to embracing patient engagement in the development of meaningful research and service design within the transplantation and cellular therapy community.
Graphical abstract</abstract><cop>London</cop><pub>Nature Publishing Group UK</pub><pmid>38890544</pmid><doi>10.1038/s41409-024-02290-7</doi><tpages>9</tpages><orcidid>https://orcid.org/0000-0001-9458-8025</orcidid><orcidid>https://orcid.org/0000-0001-5252-9991</orcidid><orcidid>https://orcid.org/0000-0001-9499-6002</orcidid><orcidid>https://orcid.org/0000-0002-1859-6178</orcidid><orcidid>https://orcid.org/0000-0001-5103-9966</orcidid><orcidid>https://orcid.org/0000-0002-7568-8239</orcidid><orcidid>https://orcid.org/0000-0002-1238-6970</orcidid><orcidid>https://orcid.org/0000-0002-3829-0088</orcidid><orcidid>https://orcid.org/0000-0003-1341-4424</orcidid><orcidid>https://orcid.org/0000-0003-3317-1896</orcidid></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0268-3369 |
| ispartof | Bone marrow transplantation (Basingstoke), 2024-09, Vol.59 (9), p.1286-1294 |
| issn | 0268-3369 1476-5365 1476-5365 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_3070797672 |
| source | MEDLINE; SpringerNature Journals |
| subjects | 692/308/174 692/308/2779 Adult Bone marrow transplantation Cell Biology Cell therapy Cell- and Tissue-Based Therapy - methods Cognitive ability Cross-Sectional Studies Data collection Data recovery Female Hematology Hematopoietic Stem Cell Transplantation - methods Hematopoietic stem cells Humans Internal Medicine Male Medicine Medicine & Public Health Middle Aged Patient Participation Patient Reported Outcome Measures Patients Public Health Research projects Stem cell transplantation Stem Cells Surveys Surveys and Questionnaires Therapy Transplantation |
| title | Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-01T03%3A21%3A12IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_cross&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Patient%20engagement%20in%20hematopoietic%20stem%20cell%20transplantation%20and%20cell%20therapy:%20a%20survey%20by%20the%20EBMT%20patient%20engagement%20task%20force%20&%20transplantation%20complications%20working%20party&rft.jtitle=Bone%20marrow%20transplantation%20(Basingstoke)&rft.au=Schoemans,%20H%C3%A9l%C3%A8ne&rft.date=2024-09-01&rft.volume=59&rft.issue=9&rft.spage=1286&rft.epage=1294&rft.pages=1286-1294&rft.issn=0268-3369&rft.eissn=1476-5365&rft_id=info:doi/10.1038/s41409-024-02290-7&rft_dat=%3Cproquest_cross%3E3099947080%3C/proquest_cross%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=3099947080&rft_id=info:pmid/38890544&rfr_iscdi=true |