Mental Health Support Is an Unmet Need for Long-term Burn Survivors: A Web-based Survey
Abstract A National Trauma Research Action Plan identified the involvement of burn survivors as critical informants to determine the direction of research. This study employed a web-based survey to identify care gaps in a sample of burn survivors. We surveyed burn survivors from around the United St...
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Veröffentlicht in: | Journal of burn care & research 2024-09, Vol.45 (5), p.1130-1138 |
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creator | Ramsey, Walter A Cobler-Lichter, Michael D O’Neil, Christopher F Ishii, Mary Satahoo, Shevonne S Kaufman, Joyce I Pizano, Louis R Koru-Sengul, Tulay Szapocznik, Jose Schulman, Carl I |
description | Abstract
A National Trauma Research Action Plan identified the involvement of burn survivors as critical informants to determine the direction of research. This study employed a web-based survey to identify care gaps in a sample of burn survivors. We surveyed burn survivors from around the United States through social media and email contact with the Phoenix Society for Burn Survivors. We elicited demographic info, burn history, and unmet needs. Statistical analysis was performed to test our hypothesis that lack of access to mental health support/professionals would be identified as an unmet need in long-term burn survivors. Of 178 survey respondents, most were at least 10 years removed from the date of their burn injury (n = 94, 53%). Compared with those less than 3 years from their burn injury, individuals greater than 10 years were at least 5 times more likely to note a lack of access to mental health support [11–20 years OR 8.7, P < .001; >20 years OR 5.7, P = .001]. About 60% of Spanish speakers reported lack of support group access was among their greatest unmet needs, compared with 37% of English speakers (P = .184). This study highlights the need for ongoing access to mental health resources in burn survivors. Our findings emphasize that burn injury is not just an acute ailment, but a complex condition that evolves into a chronic disease. Additional studies should focus on the experiences of Spanish-speaking burn survivors, given small sample size leading to a likely clinically significant but not statistically different lack of access to support groups. |
doi_str_mv | 10.1093/jbcr/irae085 |
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A National Trauma Research Action Plan identified the involvement of burn survivors as critical informants to determine the direction of research. This study employed a web-based survey to identify care gaps in a sample of burn survivors. We surveyed burn survivors from around the United States through social media and email contact with the Phoenix Society for Burn Survivors. We elicited demographic info, burn history, and unmet needs. Statistical analysis was performed to test our hypothesis that lack of access to mental health support/professionals would be identified as an unmet need in long-term burn survivors. Of 178 survey respondents, most were at least 10 years removed from the date of their burn injury (n = 94, 53%). Compared with those less than 3 years from their burn injury, individuals greater than 10 years were at least 5 times more likely to note a lack of access to mental health support [11–20 years OR 8.7, P < .001; >20 years OR 5.7, P = .001]. About 60% of Spanish speakers reported lack of support group access was among their greatest unmet needs, compared with 37% of English speakers (P = .184). This study highlights the need for ongoing access to mental health resources in burn survivors. Our findings emphasize that burn injury is not just an acute ailment, but a complex condition that evolves into a chronic disease. Additional studies should focus on the experiences of Spanish-speaking burn survivors, given small sample size leading to a likely clinically significant but not statistically different lack of access to support groups.</description><identifier>ISSN: 1559-047X</identifier><identifier>ISSN: 1559-0488</identifier><identifier>EISSN: 1559-0488</identifier><identifier>DOI: 10.1093/jbcr/irae085</identifier><identifier>PMID: 38758544</identifier><language>eng</language><publisher>US: Oxford University Press</publisher><subject>Adult ; Aged ; Burns - psychology ; Burns - therapy ; Female ; Health Services Needs and Demand ; Humans ; Internet ; Male ; Mental Health Services ; Middle Aged ; Needs Assessment ; Surveys and Questionnaires ; Survivors - psychology ; United States</subject><ispartof>Journal of burn care & research, 2024-09, Vol.45 (5), p.1130-1138</ispartof><rights>The Author(s) 2024. Published by Oxford University Press on behalf of the American Burn Association. All rights reserved. For commercial re-use, please contact reprints@oup.com for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact journals.permissions@oup.com. 2024</rights><rights>The Author(s) 2024. Published by Oxford University Press on behalf of the American Burn Association. All rights reserved. For commercial re-use, please contact reprints@oup.com for reprints and translation rights for reprints. All other permissions can be obtained through our RightsLink service via the Permissions link on the article page on our site—for further information please contact journals.permissions@oup.com.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c210t-1b7825a2478451f45903fc6a3989643f0059891b2eaad629ebf127cf033eb6e83</cites><orcidid>0000-0002-0443-2068 ; 0000-0002-3832-1753 ; 0000-0002-1459-0342 ; 0000-0001-8899-4350 ; 0000-0003-0974-8405 ; 0009-0001-5936-2773 ; 0000-0002-3864-0789 ; 0000-0002-7650-4294 ; 0000-0003-1948-4319</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,1584,27923,27924</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/38758544$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Ramsey, Walter A</creatorcontrib><creatorcontrib>Cobler-Lichter, Michael D</creatorcontrib><creatorcontrib>O’Neil, Christopher F</creatorcontrib><creatorcontrib>Ishii, Mary</creatorcontrib><creatorcontrib>Satahoo, Shevonne S</creatorcontrib><creatorcontrib>Kaufman, Joyce I</creatorcontrib><creatorcontrib>Pizano, Louis R</creatorcontrib><creatorcontrib>Koru-Sengul, Tulay</creatorcontrib><creatorcontrib>Szapocznik, Jose</creatorcontrib><creatorcontrib>Schulman, Carl I</creatorcontrib><title>Mental Health Support Is an Unmet Need for Long-term Burn Survivors: A Web-based Survey</title><title>Journal of burn care & research</title><addtitle>J Burn Care Res</addtitle><description>Abstract
A National Trauma Research Action Plan identified the involvement of burn survivors as critical informants to determine the direction of research. This study employed a web-based survey to identify care gaps in a sample of burn survivors. We surveyed burn survivors from around the United States through social media and email contact with the Phoenix Society for Burn Survivors. We elicited demographic info, burn history, and unmet needs. Statistical analysis was performed to test our hypothesis that lack of access to mental health support/professionals would be identified as an unmet need in long-term burn survivors. Of 178 survey respondents, most were at least 10 years removed from the date of their burn injury (n = 94, 53%). Compared with those less than 3 years from their burn injury, individuals greater than 10 years were at least 5 times more likely to note a lack of access to mental health support [11–20 years OR 8.7, P < .001; >20 years OR 5.7, P = .001]. About 60% of Spanish speakers reported lack of support group access was among their greatest unmet needs, compared with 37% of English speakers (P = .184). This study highlights the need for ongoing access to mental health resources in burn survivors. Our findings emphasize that burn injury is not just an acute ailment, but a complex condition that evolves into a chronic disease. Additional studies should focus on the experiences of Spanish-speaking burn survivors, given small sample size leading to a likely clinically significant but not statistically different lack of access to support groups.</description><subject>Adult</subject><subject>Aged</subject><subject>Burns - psychology</subject><subject>Burns - therapy</subject><subject>Female</subject><subject>Health Services Needs and Demand</subject><subject>Humans</subject><subject>Internet</subject><subject>Male</subject><subject>Mental Health Services</subject><subject>Middle Aged</subject><subject>Needs Assessment</subject><subject>Surveys and Questionnaires</subject><subject>Survivors - psychology</subject><subject>United States</subject><issn>1559-047X</issn><issn>1559-0488</issn><issn>1559-0488</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2024</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp90MFPwjAUBvDGaATRm2fTmx6ctGu7dd6QqJCgHpTgbWnHq45s62w3Ev57R0COnt6Xl1--w4fQJSV3lCRsuNKZG-ZOAZHiCPWpEElAuJTHhxx_9tCZ9ytCOCexOEU9JmMhBed9tHiBqlEFnoAqmm_83ta1dQ2eeqwqPK9KaPArwBIb6_DMVl9BA67ED62rOuvW-do6f49HeAE60Mp3cvuGzTk6MarwcLG_AzR_evwYT4LZ2_N0PJoFWUhJE1Ady1CokMeSC2q4SAgzWaRYIpOIM0OI6BLVISi1jMIEtKFhnBnCGOgIJBugm11v7exPC75Jy9xnUBSqAtv6lBERRZFgNOno7Y5mznrvwKS1y0vlNikl6XbKdDtlup-y41f75laXsDzgv-06cL0Dtq3_r_oF0lR8fw</recordid><startdate>20240906</startdate><enddate>20240906</enddate><creator>Ramsey, Walter A</creator><creator>Cobler-Lichter, Michael D</creator><creator>O’Neil, Christopher F</creator><creator>Ishii, Mary</creator><creator>Satahoo, Shevonne S</creator><creator>Kaufman, Joyce I</creator><creator>Pizano, Louis R</creator><creator>Koru-Sengul, Tulay</creator><creator>Szapocznik, Jose</creator><creator>Schulman, Carl I</creator><general>Oxford University Press</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-0443-2068</orcidid><orcidid>https://orcid.org/0000-0002-3832-1753</orcidid><orcidid>https://orcid.org/0000-0002-1459-0342</orcidid><orcidid>https://orcid.org/0000-0001-8899-4350</orcidid><orcidid>https://orcid.org/0000-0003-0974-8405</orcidid><orcidid>https://orcid.org/0009-0001-5936-2773</orcidid><orcidid>https://orcid.org/0000-0002-3864-0789</orcidid><orcidid>https://orcid.org/0000-0002-7650-4294</orcidid><orcidid>https://orcid.org/0000-0003-1948-4319</orcidid></search><sort><creationdate>20240906</creationdate><title>Mental Health Support Is an Unmet Need for Long-term Burn Survivors: A Web-based Survey</title><author>Ramsey, Walter A ; Cobler-Lichter, Michael D ; O’Neil, Christopher F ; Ishii, Mary ; Satahoo, Shevonne S ; Kaufman, Joyce I ; Pizano, Louis R ; Koru-Sengul, Tulay ; Szapocznik, Jose ; Schulman, Carl I</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c210t-1b7825a2478451f45903fc6a3989643f0059891b2eaad629ebf127cf033eb6e83</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2024</creationdate><topic>Adult</topic><topic>Aged</topic><topic>Burns - psychology</topic><topic>Burns - therapy</topic><topic>Female</topic><topic>Health Services Needs and Demand</topic><topic>Humans</topic><topic>Internet</topic><topic>Male</topic><topic>Mental Health Services</topic><topic>Middle Aged</topic><topic>Needs Assessment</topic><topic>Surveys and Questionnaires</topic><topic>Survivors - psychology</topic><topic>United States</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Ramsey, Walter A</creatorcontrib><creatorcontrib>Cobler-Lichter, Michael D</creatorcontrib><creatorcontrib>O’Neil, Christopher F</creatorcontrib><creatorcontrib>Ishii, Mary</creatorcontrib><creatorcontrib>Satahoo, Shevonne S</creatorcontrib><creatorcontrib>Kaufman, Joyce I</creatorcontrib><creatorcontrib>Pizano, Louis R</creatorcontrib><creatorcontrib>Koru-Sengul, Tulay</creatorcontrib><creatorcontrib>Szapocznik, Jose</creatorcontrib><creatorcontrib>Schulman, Carl I</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of burn care & research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Ramsey, Walter A</au><au>Cobler-Lichter, Michael D</au><au>O’Neil, Christopher F</au><au>Ishii, Mary</au><au>Satahoo, Shevonne S</au><au>Kaufman, Joyce I</au><au>Pizano, Louis R</au><au>Koru-Sengul, Tulay</au><au>Szapocznik, Jose</au><au>Schulman, Carl I</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Mental Health Support Is an Unmet Need for Long-term Burn Survivors: A Web-based Survey</atitle><jtitle>Journal of burn care & research</jtitle><addtitle>J Burn Care Res</addtitle><date>2024-09-06</date><risdate>2024</risdate><volume>45</volume><issue>5</issue><spage>1130</spage><epage>1138</epage><pages>1130-1138</pages><issn>1559-047X</issn><issn>1559-0488</issn><eissn>1559-0488</eissn><abstract>Abstract
A National Trauma Research Action Plan identified the involvement of burn survivors as critical informants to determine the direction of research. This study employed a web-based survey to identify care gaps in a sample of burn survivors. We surveyed burn survivors from around the United States through social media and email contact with the Phoenix Society for Burn Survivors. We elicited demographic info, burn history, and unmet needs. Statistical analysis was performed to test our hypothesis that lack of access to mental health support/professionals would be identified as an unmet need in long-term burn survivors. Of 178 survey respondents, most were at least 10 years removed from the date of their burn injury (n = 94, 53%). Compared with those less than 3 years from their burn injury, individuals greater than 10 years were at least 5 times more likely to note a lack of access to mental health support [11–20 years OR 8.7, P < .001; >20 years OR 5.7, P = .001]. About 60% of Spanish speakers reported lack of support group access was among their greatest unmet needs, compared with 37% of English speakers (P = .184). This study highlights the need for ongoing access to mental health resources in burn survivors. Our findings emphasize that burn injury is not just an acute ailment, but a complex condition that evolves into a chronic disease. Additional studies should focus on the experiences of Spanish-speaking burn survivors, given small sample size leading to a likely clinically significant but not statistically different lack of access to support groups.</abstract><cop>US</cop><pub>Oxford University Press</pub><pmid>38758544</pmid><doi>10.1093/jbcr/irae085</doi><tpages>9</tpages><orcidid>https://orcid.org/0000-0002-0443-2068</orcidid><orcidid>https://orcid.org/0000-0002-3832-1753</orcidid><orcidid>https://orcid.org/0000-0002-1459-0342</orcidid><orcidid>https://orcid.org/0000-0001-8899-4350</orcidid><orcidid>https://orcid.org/0000-0003-0974-8405</orcidid><orcidid>https://orcid.org/0009-0001-5936-2773</orcidid><orcidid>https://orcid.org/0000-0002-3864-0789</orcidid><orcidid>https://orcid.org/0000-0002-7650-4294</orcidid><orcidid>https://orcid.org/0000-0003-1948-4319</orcidid></addata></record> |
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subjects | Adult Aged Burns - psychology Burns - therapy Female Health Services Needs and Demand Humans Internet Male Mental Health Services Middle Aged Needs Assessment Surveys and Questionnaires Survivors - psychology United States |
title | Mental Health Support Is an Unmet Need for Long-term Burn Survivors: A Web-based Survey |
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