Health-related quality of life of adults with spinal muscular atrophy: insights from a nationwide patient registry in Germany

Purpose Spinal muscular atrophy (SMA) is a rare, autosomal-recessive disease characterized by progressive muscular atrophy and weakness resulting in substantial disability and short life expectancy. The objective of this cross-sectional study was to assess health-related quality of life (HRQoL) of a...

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Veröffentlicht in:	Quality of life research 2024-07, Vol.33 (7), p.1949-1959
Hauptverfasser:	Landfeldt, Erik, Leibrock, Berenike, Hussong, Justine, Thiele, Simone, Walter, Maggie C., Moehler, Eva, Zemlin, Michael, Dillmann, Ulrich, Flotats-Bastardas, Marina
Format:	Artikel
Sprache:	eng
Schlagworte:	Adult Atrophy Cross-Sectional Studies Female Germany Health Status Humans Male Medicine Medicine & Public Health Middle Aged Muscular Atrophy, Spinal - psychology Public Health Quality of life Quality of Life - psychology Quality of Life Research Registries Sociology Surveys and Questionnaires Well being Young Adult
Online-Zugang:	Volltext
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