‘We no longer experience the same pain’: a cross-sectional study assessing the impact of Heart and Sole Africa's podoconiosis prevention education program

‘We no longer experience the same pain’: a cross-sectional study assessing the impact of Heart and Sole Africa's podoconiosis prevention education program

Abstract Background Podoconiosis is a non-infectious neglected tropical disease caused by long-term exposure to irritant volcanic soils. It results in severe physical, psychological and financial consequences. Heart and Sole Africa (HASA) is a non-governmental, community-based organization providing...

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Veröffentlicht in:Transactions of the Royal Society of Tropical Medicine and Hygiene 2024-08, Vol.118 (8), p.520-526
Hauptverfasser: Gebreselassie, Agazi Fitsum, Shimelash, Natnael, Kallon, Ahamed, Mkondo, George, Huston, Tonya, Schurer, Janna M
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container_end_page 526
container_issue 8
container_start_page 520
container_title Transactions of the Royal Society of Tropical Medicine and Hygiene
container_volume 118
creator Gebreselassie, Agazi Fitsum
Shimelash, Natnael
Kallon, Ahamed
Mkondo, George
Huston, Tonya
Schurer, Janna M
description Abstract Background Podoconiosis is a non-infectious neglected tropical disease caused by long-term exposure to irritant volcanic soils. It results in severe physical, psychological and financial consequences. Heart and Sole Africa (HASA) is a non-governmental, community-based organization providing management to podoconiosis patients in Rwanda. We sought to analyze the impact of their program on the lives of patients. Methods Quantitative surveys recorded the participants’ demographics, adherence to HASA's management recommendations and changes in quality of life (QOL). Qualitative questions were used to gather respondent perspectives on HASA programming. Results We interviewed 127 patients from HASA's Musanze (n=47) and Burera (n=80) clinics. Almost all participants (98.4%) reported statistically significant (p80%. Qualitative feedback identified specific challenges to adherence and recognition of program success in symptom management. Conclusions Our study demonstrated the value of community-based podoconiosis programming in improving the lives of patients. Practices such as regular feet washing, emollient application, shoe wearing and limb raising can result in a marked reduction of morbidity. Our findings support the argument for scaling up these management practices across Rwanda.
doi_str_mv 10.1093/trstmh/trae007
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It results in severe physical, psychological and financial consequences. Heart and Sole Africa (HASA) is a non-governmental, community-based organization providing management to podoconiosis patients in Rwanda. We sought to analyze the impact of their program on the lives of patients. Methods Quantitative surveys recorded the participants’ demographics, adherence to HASA's management recommendations and changes in quality of life (QOL). Qualitative questions were used to gather respondent perspectives on HASA programming. Results We interviewed 127 patients from HASA's Musanze (n=47) and Burera (n=80) clinics. Almost all participants (98.4%) reported statistically significant (p&lt;0.01) improvements in their QOL, and more than one-half (51.2%) had a favorable adherence score of &gt;80%. Qualitative feedback identified specific challenges to adherence and recognition of program success in symptom management. Conclusions Our study demonstrated the value of community-based podoconiosis programming in improving the lives of patients. Practices such as regular feet washing, emollient application, shoe wearing and limb raising can result in a marked reduction of morbidity. Our findings support the argument for scaling up these management practices across Rwanda.</description><identifier>ISSN: 0035-9203</identifier><identifier>ISSN: 1878-3503</identifier><identifier>EISSN: 1878-3503</identifier><identifier>DOI: 10.1093/trstmh/trae007</identifier><identifier>PMID: 38465481</identifier><language>eng</language><publisher>England: Oxford University Press</publisher><ispartof>Transactions of the Royal Society of Tropical Medicine and Hygiene, 2024-08, Vol.118 (8), p.520-526</ispartof><rights>The Author(s) 2024. Published by Oxford University Press on behalf of Royal Society of Tropical Medicine and Hygiene. 2024</rights><rights>The Author(s) 2024. 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Conclusions Our study demonstrated the value of community-based podoconiosis programming in improving the lives of patients. Practices such as regular feet washing, emollient application, shoe wearing and limb raising can result in a marked reduction of morbidity. Our findings support the argument for scaling up these management practices across Rwanda.</abstract><cop>England</cop><pub>Oxford University Press</pub><pmid>38465481</pmid><doi>10.1093/trstmh/trae007</doi><tpages>7</tpages><orcidid>https://orcid.org/0000-0002-1622-2834</orcidid></addata></record>
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title ‘We no longer experience the same pain’: a cross-sectional study assessing the impact of Heart and Sole Africa's podoconiosis prevention education program
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