Communication of individuals with CDKL5 deficiency disorder as observed by caregivers: A descriptive qualitative study

CDKL5 deficiency disorder (CDD) is a genetically caused developmental epileptic encephalopathy that causes severe communication impairments. Communication of individuals with CDD is not well understood in the literature and currently available measures are not well validated in this population. Accu...

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Veröffentlicht in:	American journal of medical genetics. Part A 2024-07, Vol.194 (7), p.e63570-n/a
Hauptverfasser:	Keeley, Jessica, Benson‐Goldberg, Sofia, Saldaris, Jacinta, Lariviere, Judy, Leonard, Helen, Marsh, Eric D., Demarest, Scott T., Benke, Tim A., Jacoby, Peter, Downs, Jenny
Format:	Artikel
Sprache:	eng
Schlagworte:	Caregivers CDD CDKL5 deficiency disorder Clinical medicine Clinical trials Communication Deficiency diseases descriptive qualitative Encephalopathy Epilepsy Qualitative research
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