Knowledge gaps in health‐related quality of life research performed in children with bleeding disorders – A scoping review

Introduction Bleeding disorders (BDs) may influence health‐related quality of life (HRQoL) in children and caregivers. Measuring HRQoL gives insight into domains requiring support and provides an opportunity to evaluate the effects of novel therapies. Aim To gain insight in the current body of liter...

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Veröffentlicht in:	Haemophilia : the official journal of the World Federation of Hemophilia 2024-03, Vol.30 (2), p.295-305
Hauptverfasser:	Huisman, Elise J., Mussert, Caroline, Bai, Guannan, Raat, Hein, Cnossen, Marjon H.
Format:	Artikel
Sprache:	eng
Schlagworte:	Bleeding blood coagulation disorders [MESH] child [MESH] Children haemophilia [MESH] Hemophilia Population studies Quality of life quality of life [MESH] Questionnaires research design [MESH] review [MESH] Statistical analysis Statistics
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