Measuring the unmet needs of American military Veterans and their caregivers: Survey protocol of the HERO CARE survey
Background Empowering Veterans to age in place is a Department of Veterans Affairs priority. Family or unpaid caregivers play an important role in supporting Veterans to achieve this goal. Effectively meeting the needs of Veterans and caregivers requires identifying unmet needs and relevant gaps in...
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| Veröffentlicht in: | Journal of the American Geriatrics Society (JAGS) 2023-12, Vol.71 (12), p.3814-3825 |
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| creator | Dang, Stuti Garcia‐Davis, Sandra Noël, Polly H. Hansen, Jared Brintz, Benjamin J. Munoz, Richard Valencia Rodrigo, Willy Marcos Rupper, Rand Bouldin, Erin D. Trivedi, Ranak Penney, Lauren S. Pugh, Mary Jo Kinosian, Bruce Intrator, Orna Leykum, Luci K. |
| description | Background
Empowering Veterans to age in place is a Department of Veterans Affairs priority. Family or unpaid caregivers play an important role in supporting Veterans to achieve this goal. Effectively meeting the needs of Veterans and caregivers requires identifying unmet needs and relevant gaps in resources to address those needs.
Methods
Using a modified Socio‐Ecological Model, we developed a prospective longitudinal panel design survey. We randomly selected 20,000 community‐dwelling Veterans enrolled in the Veterans Health Administration (VHA), across five VHA sites. We oversampled Veterans with a higher predicted 2‐year long‐term institutional care (LTIC) risk. Veterans were mailed a packet containing a Veteran survey and a caregiver survey, to be answered by their caregiver if they had one. The Veteran survey assessed the following health‐related domains: physical, mental, social determinants of health, and caregiver assistance. Caregivers completed questions regarding their demographic factors, caregiving activities, impact of caregiving, use of VA and non‐VA services, and caregiver support resources. Follow‐up surveys will be repeated twice at 12‐month intervals for the same respondents. This article describes the HERO CARE survey protocol, content, and response rates.
Results
We received responses from 8,056 Veterans and 3,579 caregivers between July 2021 and January 2022, with 95.6% being received via mail. Veteran respondents were mostly males (96.5%), over 65 years of age (94.9%), married (55.0%), Non‐Hispanic White (75.2%), and residing in urban areas (80.7%).
Conclusions
This longitudinal survey is unique in its comprehensive assessment of domains relevant to older Veterans stratified by LTIC risk and their caregivers, focusing on social determinants, caregiver support, and the use of caregiver support resources. Survey data will be linked to Centers for Medicare & Medicaid Services and VA data. The results of this study will inform better planning of non‐institutional care services and policy for Veterans and their caregivers. |
| doi_str_mv | 10.1111/jgs.18577 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_2864158785</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2901904136</sourcerecordid><originalsourceid>FETCH-LOGICAL-c3887-63199b0fbf4732a8694322360de2f738bd892ee194a34f96cc8b5293760fc3043</originalsourceid><addsrcrecordid>eNp1kclOwzAURS0EgjIs-AFkiQ0sAh4Sx2ZXVWUSCIlpaznOS3GVAewE1L_HpcACibfx5vjovXsR2qfkhMY5nc_CCZVZnq-hEc04S7KUZutoRAhhiRQ03ULbIcwJoYxIuYm2eC6U5FyM0HALJgzetTPcvwAe2gZ63AKUAXcVHjfgnTUtblzteuMX-Bl68KYN2LTl8ofz2BoPM_cOPpzhh8G_wwK_-q7vbFcvHUvt5fT-Dk_G91McvoBdtFGZOsDe97uDns6nj5PL5Obu4moyvkkslzJPBKdKFaQqqjTnzEihUs4YF6QEVuVcFqVUDICq1PC0UsJaWWRMxetIZTlJ-Q46WnnjQm8DhF43Llioa9NCNwTNpIhJyVxmET38g867wbdxO80UoYqklItIHa8o67sQPFT61bsmBqMp0csudOxCf3UR2YNv41A0UP6SP-FH4HQFfLgaFv-b9PXFw0r5CZrZkdg</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2901904136</pqid></control><display><type>article</type><title>Measuring the unmet needs of American military Veterans and their caregivers: Survey protocol of the HERO CARE survey</title><source>Wiley Online Library Journals Frontfile Complete</source><creator>Dang, Stuti ; Garcia‐Davis, Sandra ; Noël, Polly H. ; Hansen, Jared ; Brintz, Benjamin J. ; Munoz, Richard ; Valencia Rodrigo, Willy Marcos ; Rupper, Rand ; Bouldin, Erin D. ; Trivedi, Ranak ; Penney, Lauren S. ; Pugh, Mary Jo ; Kinosian, Bruce ; Intrator, Orna ; Leykum, Luci K.</creator><creatorcontrib>Dang, Stuti ; Garcia‐Davis, Sandra ; Noël, Polly H. ; Hansen, Jared ; Brintz, Benjamin J. ; Munoz, Richard ; Valencia Rodrigo, Willy Marcos ; Rupper, Rand ; Bouldin, Erin D. ; Trivedi, Ranak ; Penney, Lauren S. ; Pugh, Mary Jo ; Kinosian, Bruce ; Intrator, Orna ; Leykum, Luci K. ; Elizabeth Dole Center of Excellence for Veteran and Caregiver Research Team ; the Elizabeth Dole Center of Excellence for Veteran and Caregiver Research Team</creatorcontrib><description>Background
Empowering Veterans to age in place is a Department of Veterans Affairs priority. Family or unpaid caregivers play an important role in supporting Veterans to achieve this goal. Effectively meeting the needs of Veterans and caregivers requires identifying unmet needs and relevant gaps in resources to address those needs.
Methods
Using a modified Socio‐Ecological Model, we developed a prospective longitudinal panel design survey. We randomly selected 20,000 community‐dwelling Veterans enrolled in the Veterans Health Administration (VHA), across five VHA sites. We oversampled Veterans with a higher predicted 2‐year long‐term institutional care (LTIC) risk. Veterans were mailed a packet containing a Veteran survey and a caregiver survey, to be answered by their caregiver if they had one. The Veteran survey assessed the following health‐related domains: physical, mental, social determinants of health, and caregiver assistance. Caregivers completed questions regarding their demographic factors, caregiving activities, impact of caregiving, use of VA and non‐VA services, and caregiver support resources. Follow‐up surveys will be repeated twice at 12‐month intervals for the same respondents. This article describes the HERO CARE survey protocol, content, and response rates.
Results
We received responses from 8,056 Veterans and 3,579 caregivers between July 2021 and January 2022, with 95.6% being received via mail. Veteran respondents were mostly males (96.5%), over 65 years of age (94.9%), married (55.0%), Non‐Hispanic White (75.2%), and residing in urban areas (80.7%).
Conclusions
This longitudinal survey is unique in its comprehensive assessment of domains relevant to older Veterans stratified by LTIC risk and their caregivers, focusing on social determinants, caregiver support, and the use of caregiver support resources. Survey data will be linked to Centers for Medicare & Medicaid Services and VA data. The results of this study will inform better planning of non‐institutional care services and policy for Veterans and their caregivers.</description><identifier>ISSN: 0002-8614</identifier><identifier>ISSN: 1532-5415</identifier><identifier>EISSN: 1532-5415</identifier><identifier>DOI: 10.1111/jgs.18577</identifier><identifier>PMID: 37698336</identifier><language>eng</language><publisher>Hoboken, USA: John Wiley & Sons, Inc</publisher><subject>Caregivers ; Elder care ; Longitudinal studies ; long‐term institutional care (LTIC) ; Older people ; survey ; Surveys ; unmet needs ; Veterans</subject><ispartof>Journal of the American Geriatrics Society (JAGS), 2023-12, Vol.71 (12), p.3814-3825</ispartof><rights>Published 2023. This article is a U.S. Government work and is in the public domain in the USA. published by Wiley Periodicals LLC on behalf of The American Geriatrics Society.</rights><rights>Published 2023. This article is a U.S. Government work and is in the public domain in the USA. Journal of the American Geriatrics Society published by Wiley Periodicals LLC on behalf of The American Geriatrics Society.</rights><rights>Published 2023. This article is a U.S. Government work and is in the public domain in the USA.Journal of the American Geriatrics Societypublished by Wiley Periodicals LLC on behalf of The American Geriatrics Society. This article is published under http://creativecommons.org/licenses/by-nc-nd/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3887-63199b0fbf4732a8694322360de2f738bd892ee194a34f96cc8b5293760fc3043</citedby><cites>FETCH-LOGICAL-c3887-63199b0fbf4732a8694322360de2f738bd892ee194a34f96cc8b5293760fc3043</cites><orcidid>0000-0001-7550-309X ; 0000-0003-2098-6340 ; 0000-0002-7203-3229</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fjgs.18577$$EPDF$$P50$$Gwiley$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fjgs.18577$$EHTML$$P50$$Gwiley$$Hfree_for_read</linktohtml><link.rule.ids>314,777,781,1412,27905,27906,45555,45556</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/37698336$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Dang, Stuti</creatorcontrib><creatorcontrib>Garcia‐Davis, Sandra</creatorcontrib><creatorcontrib>Noël, Polly H.</creatorcontrib><creatorcontrib>Hansen, Jared</creatorcontrib><creatorcontrib>Brintz, Benjamin J.</creatorcontrib><creatorcontrib>Munoz, Richard</creatorcontrib><creatorcontrib>Valencia Rodrigo, Willy Marcos</creatorcontrib><creatorcontrib>Rupper, Rand</creatorcontrib><creatorcontrib>Bouldin, Erin D.</creatorcontrib><creatorcontrib>Trivedi, Ranak</creatorcontrib><creatorcontrib>Penney, Lauren S.</creatorcontrib><creatorcontrib>Pugh, Mary Jo</creatorcontrib><creatorcontrib>Kinosian, Bruce</creatorcontrib><creatorcontrib>Intrator, Orna</creatorcontrib><creatorcontrib>Leykum, Luci K.</creatorcontrib><creatorcontrib>Elizabeth Dole Center of Excellence for Veteran and Caregiver Research Team</creatorcontrib><creatorcontrib>the Elizabeth Dole Center of Excellence for Veteran and Caregiver Research Team</creatorcontrib><title>Measuring the unmet needs of American military Veterans and their caregivers: Survey protocol of the HERO CARE survey</title><title>Journal of the American Geriatrics Society (JAGS)</title><addtitle>J Am Geriatr Soc</addtitle><description>Background
Empowering Veterans to age in place is a Department of Veterans Affairs priority. Family or unpaid caregivers play an important role in supporting Veterans to achieve this goal. Effectively meeting the needs of Veterans and caregivers requires identifying unmet needs and relevant gaps in resources to address those needs.
Methods
Using a modified Socio‐Ecological Model, we developed a prospective longitudinal panel design survey. We randomly selected 20,000 community‐dwelling Veterans enrolled in the Veterans Health Administration (VHA), across five VHA sites. We oversampled Veterans with a higher predicted 2‐year long‐term institutional care (LTIC) risk. Veterans were mailed a packet containing a Veteran survey and a caregiver survey, to be answered by their caregiver if they had one. The Veteran survey assessed the following health‐related domains: physical, mental, social determinants of health, and caregiver assistance. Caregivers completed questions regarding their demographic factors, caregiving activities, impact of caregiving, use of VA and non‐VA services, and caregiver support resources. Follow‐up surveys will be repeated twice at 12‐month intervals for the same respondents. This article describes the HERO CARE survey protocol, content, and response rates.
Results
We received responses from 8,056 Veterans and 3,579 caregivers between July 2021 and January 2022, with 95.6% being received via mail. Veteran respondents were mostly males (96.5%), over 65 years of age (94.9%), married (55.0%), Non‐Hispanic White (75.2%), and residing in urban areas (80.7%).
Conclusions
This longitudinal survey is unique in its comprehensive assessment of domains relevant to older Veterans stratified by LTIC risk and their caregivers, focusing on social determinants, caregiver support, and the use of caregiver support resources. Survey data will be linked to Centers for Medicare & Medicaid Services and VA data. The results of this study will inform better planning of non‐institutional care services and policy for Veterans and their caregivers.</description><subject>Caregivers</subject><subject>Elder care</subject><subject>Longitudinal studies</subject><subject>long‐term institutional care (LTIC)</subject><subject>Older people</subject><subject>survey</subject><subject>Surveys</subject><subject>unmet needs</subject><subject>Veterans</subject><issn>0002-8614</issn><issn>1532-5415</issn><issn>1532-5415</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>24P</sourceid><sourceid>WIN</sourceid><recordid>eNp1kclOwzAURS0EgjIs-AFkiQ0sAh4Sx2ZXVWUSCIlpaznOS3GVAewE1L_HpcACibfx5vjovXsR2qfkhMY5nc_CCZVZnq-hEc04S7KUZutoRAhhiRQ03ULbIcwJoYxIuYm2eC6U5FyM0HALJgzetTPcvwAe2gZ63AKUAXcVHjfgnTUtblzteuMX-Bl68KYN2LTl8ofz2BoPM_cOPpzhh8G_wwK_-q7vbFcvHUvt5fT-Dk_G91McvoBdtFGZOsDe97uDns6nj5PL5Obu4moyvkkslzJPBKdKFaQqqjTnzEihUs4YF6QEVuVcFqVUDICq1PC0UsJaWWRMxetIZTlJ-Q46WnnjQm8DhF43Llioa9NCNwTNpIhJyVxmET38g867wbdxO80UoYqklItIHa8o67sQPFT61bsmBqMp0csudOxCf3UR2YNv41A0UP6SP-FH4HQFfLgaFv-b9PXFw0r5CZrZkdg</recordid><startdate>202312</startdate><enddate>202312</enddate><creator>Dang, Stuti</creator><creator>Garcia‐Davis, Sandra</creator><creator>Noël, Polly H.</creator><creator>Hansen, Jared</creator><creator>Brintz, Benjamin J.</creator><creator>Munoz, Richard</creator><creator>Valencia Rodrigo, Willy Marcos</creator><creator>Rupper, Rand</creator><creator>Bouldin, Erin D.</creator><creator>Trivedi, Ranak</creator><creator>Penney, Lauren S.</creator><creator>Pugh, Mary Jo</creator><creator>Kinosian, Bruce</creator><creator>Intrator, Orna</creator><creator>Leykum, Luci K.</creator><general>John Wiley & Sons, Inc</general><general>Wiley Subscription Services, Inc</general><scope>24P</scope><scope>WIN</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QP</scope><scope>7TK</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0001-7550-309X</orcidid><orcidid>https://orcid.org/0000-0003-2098-6340</orcidid><orcidid>https://orcid.org/0000-0002-7203-3229</orcidid></search><sort><creationdate>202312</creationdate><title>Measuring the unmet needs of American military Veterans and their caregivers: Survey protocol of the HERO CARE survey</title><author>Dang, Stuti ; Garcia‐Davis, Sandra ; Noël, Polly H. ; Hansen, Jared ; Brintz, Benjamin J. ; Munoz, Richard ; Valencia Rodrigo, Willy Marcos ; Rupper, Rand ; Bouldin, Erin D. ; Trivedi, Ranak ; Penney, Lauren S. ; Pugh, Mary Jo ; Kinosian, Bruce ; Intrator, Orna ; Leykum, Luci K.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3887-63199b0fbf4732a8694322360de2f738bd892ee194a34f96cc8b5293760fc3043</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>Caregivers</topic><topic>Elder care</topic><topic>Longitudinal studies</topic><topic>long‐term institutional care (LTIC)</topic><topic>Older people</topic><topic>survey</topic><topic>Surveys</topic><topic>unmet needs</topic><topic>Veterans</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Dang, Stuti</creatorcontrib><creatorcontrib>Garcia‐Davis, Sandra</creatorcontrib><creatorcontrib>Noël, Polly H.</creatorcontrib><creatorcontrib>Hansen, Jared</creatorcontrib><creatorcontrib>Brintz, Benjamin J.</creatorcontrib><creatorcontrib>Munoz, Richard</creatorcontrib><creatorcontrib>Valencia Rodrigo, Willy Marcos</creatorcontrib><creatorcontrib>Rupper, Rand</creatorcontrib><creatorcontrib>Bouldin, Erin D.</creatorcontrib><creatorcontrib>Trivedi, Ranak</creatorcontrib><creatorcontrib>Penney, Lauren S.</creatorcontrib><creatorcontrib>Pugh, Mary Jo</creatorcontrib><creatorcontrib>Kinosian, Bruce</creatorcontrib><creatorcontrib>Intrator, Orna</creatorcontrib><creatorcontrib>Leykum, Luci K.</creatorcontrib><creatorcontrib>Elizabeth Dole Center of Excellence for Veteran and Caregiver Research Team</creatorcontrib><creatorcontrib>the Elizabeth Dole Center of Excellence for Veteran and Caregiver Research Team</creatorcontrib><collection>Wiley Online Library Open Access</collection><collection>Wiley Online Library Free Content</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Calcium & Calcified Tissue Abstracts</collection><collection>Neurosciences Abstracts</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of the American Geriatrics Society (JAGS)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Dang, Stuti</au><au>Garcia‐Davis, Sandra</au><au>Noël, Polly H.</au><au>Hansen, Jared</au><au>Brintz, Benjamin J.</au><au>Munoz, Richard</au><au>Valencia Rodrigo, Willy Marcos</au><au>Rupper, Rand</au><au>Bouldin, Erin D.</au><au>Trivedi, Ranak</au><au>Penney, Lauren S.</au><au>Pugh, Mary Jo</au><au>Kinosian, Bruce</au><au>Intrator, Orna</au><au>Leykum, Luci K.</au><aucorp>Elizabeth Dole Center of Excellence for Veteran and Caregiver Research Team</aucorp><aucorp>the Elizabeth Dole Center of Excellence for Veteran and Caregiver Research Team</aucorp><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Measuring the unmet needs of American military Veterans and their caregivers: Survey protocol of the HERO CARE survey</atitle><jtitle>Journal of the American Geriatrics Society (JAGS)</jtitle><addtitle>J Am Geriatr Soc</addtitle><date>2023-12</date><risdate>2023</risdate><volume>71</volume><issue>12</issue><spage>3814</spage><epage>3825</epage><pages>3814-3825</pages><issn>0002-8614</issn><issn>1532-5415</issn><eissn>1532-5415</eissn><abstract>Background
Empowering Veterans to age in place is a Department of Veterans Affairs priority. Family or unpaid caregivers play an important role in supporting Veterans to achieve this goal. Effectively meeting the needs of Veterans and caregivers requires identifying unmet needs and relevant gaps in resources to address those needs.
Methods
Using a modified Socio‐Ecological Model, we developed a prospective longitudinal panel design survey. We randomly selected 20,000 community‐dwelling Veterans enrolled in the Veterans Health Administration (VHA), across five VHA sites. We oversampled Veterans with a higher predicted 2‐year long‐term institutional care (LTIC) risk. Veterans were mailed a packet containing a Veteran survey and a caregiver survey, to be answered by their caregiver if they had one. The Veteran survey assessed the following health‐related domains: physical, mental, social determinants of health, and caregiver assistance. Caregivers completed questions regarding their demographic factors, caregiving activities, impact of caregiving, use of VA and non‐VA services, and caregiver support resources. Follow‐up surveys will be repeated twice at 12‐month intervals for the same respondents. This article describes the HERO CARE survey protocol, content, and response rates.
Results
We received responses from 8,056 Veterans and 3,579 caregivers between July 2021 and January 2022, with 95.6% being received via mail. Veteran respondents were mostly males (96.5%), over 65 years of age (94.9%), married (55.0%), Non‐Hispanic White (75.2%), and residing in urban areas (80.7%).
Conclusions
This longitudinal survey is unique in its comprehensive assessment of domains relevant to older Veterans stratified by LTIC risk and their caregivers, focusing on social determinants, caregiver support, and the use of caregiver support resources. Survey data will be linked to Centers for Medicare & Medicaid Services and VA data. The results of this study will inform better planning of non‐institutional care services and policy for Veterans and their caregivers.</abstract><cop>Hoboken, USA</cop><pub>John Wiley & Sons, Inc</pub><pmid>37698336</pmid><doi>10.1111/jgs.18577</doi><tpages>12</tpages><orcidid>https://orcid.org/0000-0001-7550-309X</orcidid><orcidid>https://orcid.org/0000-0003-2098-6340</orcidid><orcidid>https://orcid.org/0000-0002-7203-3229</orcidid><oa>free_for_read</oa></addata></record> |
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| ispartof | Journal of the American Geriatrics Society (JAGS), 2023-12, Vol.71 (12), p.3814-3825 |
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| source | Wiley Online Library Journals Frontfile Complete |
| subjects | Caregivers Elder care Longitudinal studies long‐term institutional care (LTIC) Older people survey Surveys unmet needs Veterans |
| title | Measuring the unmet needs of American military Veterans and their caregivers: Survey protocol of the HERO CARE survey |
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