‘It is a life changing experience’: The experiences of living kidney donors who live in rural Australia
Introduction A growing body of research has examined the physical, psychological, social and financial impacts of living kidney donation. However, little is known about the unique experiences or additional burdens faced by living donors from regional or remote locations. Objective To explore the exp...
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| Veröffentlicht in: | The Australian journal of rural health 2023-10, Vol.31 (5), p.866-877 |
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| container_title | The Australian journal of rural health |
| container_volume | 31 |
| creator | Skaczkowski, Gemma Barrett, Alison Olver, Ian Dollman, James Gunn, Kate M. |
| description | Introduction
A growing body of research has examined the physical, psychological, social and financial impacts of living kidney donation. However, little is known about the unique experiences or additional burdens faced by living donors from regional or remote locations.
Objective
To explore the experiences of living kidney donors who live outside metropolitan centres and to determine how support services could be orientated to better meet their unique needs.
Design/Setting/Participants
Seventeen living kidney donors participated in semistructured telephone interviews. Qualitative data were analysed using thematic analysis.
Findings
Eight themes were identified: (1) donor's emotional well‐being is influenced by the recipient's outcome, (2) varied levels of access to medical support and other important services in rural areas, (3) travel takes a toll on time, finances and well‐being, (4) varied level of financial impact, (5) medical, emotional and social challenges, (6) both lay and health professional support is valued, (7) varied levels of knowledge and experiences accessing information and (8) a worthwhile experience overall.
Conclusion
Despite many challenges, and travel adding to the complexity, rural living kidney donors generally consider it to be a worthwhile experience. The provision of additional emotional, practical and educational support would be welcomed by this group. |
| doi_str_mv | 10.1111/ajr.13008 |
| format | Article |
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A growing body of research has examined the physical, psychological, social and financial impacts of living kidney donation. However, little is known about the unique experiences or additional burdens faced by living donors from regional or remote locations.
Objective
To explore the experiences of living kidney donors who live outside metropolitan centres and to determine how support services could be orientated to better meet their unique needs.
Design/Setting/Participants
Seventeen living kidney donors participated in semistructured telephone interviews. Qualitative data were analysed using thematic analysis.
Findings
Eight themes were identified: (1) donor's emotional well‐being is influenced by the recipient's outcome, (2) varied levels of access to medical support and other important services in rural areas, (3) travel takes a toll on time, finances and well‐being, (4) varied level of financial impact, (5) medical, emotional and social challenges, (6) both lay and health professional support is valued, (7) varied levels of knowledge and experiences accessing information and (8) a worthwhile experience overall.
Conclusion
Despite many challenges, and travel adding to the complexity, rural living kidney donors generally consider it to be a worthwhile experience. The provision of additional emotional, practical and educational support would be welcomed by this group.</description><identifier>ISSN: 1038-5282</identifier><identifier>EISSN: 1440-1584</identifier><identifier>DOI: 10.1111/ajr.13008</identifier><identifier>PMID: 37335838</identifier><language>eng</language><publisher>Australia: Wiley Subscription Services, Inc</publisher><subject>Donations ; Donors ; Emotions ; Health services ; Kidneys ; Living donors ; living kidney donor ; living organ donation ; Medical personnel ; Organ donors ; psychosocial ; Qualitative analysis ; rural ; Rural areas ; Rural communities ; support ; Support services ; transplant ; Travel ; Well being</subject><ispartof>The Australian journal of rural health, 2023-10, Vol.31 (5), p.866-877</ispartof><rights>2023 The Authors. published by John Wiley & Sons Australia, Ltd on behalf of National Rural Health Alliance Ltd.</rights><rights>2023 The Authors. Australian Journal of Rural Health published by John Wiley & Sons Australia, Ltd on behalf of National Rural Health Alliance Ltd.</rights><rights>2023. This article is published under http://creativecommons.org/licenses/by-nc/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3888-530ce9b17b7d51720471755832bcb8f72d2a0ee17d34d2d43d8e9a12c1c6043</citedby><cites>FETCH-LOGICAL-c3888-530ce9b17b7d51720471755832bcb8f72d2a0ee17d34d2d43d8e9a12c1c6043</cites><orcidid>0000-0002-6427-2115 ; 0000-0003-0715-3563 ; 0000-0001-5478-1576 ; 0000-0002-1134-3266 ; 0000-0003-0837-6814</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fajr.13008$$EPDF$$P50$$Gwiley$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fajr.13008$$EHTML$$P50$$Gwiley$$Hfree_for_read</linktohtml><link.rule.ids>314,776,780,1411,27901,27902,30976,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/37335838$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Skaczkowski, Gemma</creatorcontrib><creatorcontrib>Barrett, Alison</creatorcontrib><creatorcontrib>Olver, Ian</creatorcontrib><creatorcontrib>Dollman, James</creatorcontrib><creatorcontrib>Gunn, Kate M.</creatorcontrib><title>‘It is a life changing experience’: The experiences of living kidney donors who live in rural Australia</title><title>The Australian journal of rural health</title><addtitle>Aust J Rural Health</addtitle><description>Introduction
A growing body of research has examined the physical, psychological, social and financial impacts of living kidney donation. However, little is known about the unique experiences or additional burdens faced by living donors from regional or remote locations.
Objective
To explore the experiences of living kidney donors who live outside metropolitan centres and to determine how support services could be orientated to better meet their unique needs.
Design/Setting/Participants
Seventeen living kidney donors participated in semistructured telephone interviews. Qualitative data were analysed using thematic analysis.
Findings
Eight themes were identified: (1) donor's emotional well‐being is influenced by the recipient's outcome, (2) varied levels of access to medical support and other important services in rural areas, (3) travel takes a toll on time, finances and well‐being, (4) varied level of financial impact, (5) medical, emotional and social challenges, (6) both lay and health professional support is valued, (7) varied levels of knowledge and experiences accessing information and (8) a worthwhile experience overall.
Conclusion
Despite many challenges, and travel adding to the complexity, rural living kidney donors generally consider it to be a worthwhile experience. The provision of additional emotional, practical and educational support would be welcomed by this group.</description><subject>Donations</subject><subject>Donors</subject><subject>Emotions</subject><subject>Health services</subject><subject>Kidneys</subject><subject>Living donors</subject><subject>living kidney donor</subject><subject>living organ donation</subject><subject>Medical personnel</subject><subject>Organ donors</subject><subject>psychosocial</subject><subject>Qualitative analysis</subject><subject>rural</subject><subject>Rural areas</subject><subject>Rural communities</subject><subject>support</subject><subject>Support services</subject><subject>transplant</subject><subject>Travel</subject><subject>Well being</subject><issn>1038-5282</issn><issn>1440-1584</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>24P</sourceid><sourceid>7QJ</sourceid><recordid>eNp1kMtKAzEUhoMotlYXvoAE3OiiNZcZk7orxUulIGj3QyY506ZOZ2rSsXbXx9DX65OY2ioiGAjnkHz8_HwIHVPSouFcqLFrUU6I3EF1GkWkSWMZ7YadcNmMmWQ1dOD9mBDSJjTaRzUuOI8ll3X0vFq-92bYeqxwbjPAeqSKoS2GGN6m4CwUGlbLjys8GMGvJ4_LLPCva_DZmgIW2JRF6Tyej8r1B2BbYFc5leNO5WdhWnWI9jKVezjazgZ6urkedO-a_YfbXrfTb2ouZSjMiYZ2SkUqTEwFI5GgIg51WapTmQlmmCIAVBgeGWYibiS0FWWa6ksS8QY626ROXflSgZ8lE-s15LkqoKx8EnSINiOMxwE9_YOOy8oVoVughAyXUx6o8w2lXem9gyyZOjtRbpFQkqz9J8F_8uU_sCfbxCqdgPkhv4UH4GIDzG0Oi_-Tks794ybyE9MQj5Q</recordid><startdate>202310</startdate><enddate>202310</enddate><creator>Skaczkowski, Gemma</creator><creator>Barrett, Alison</creator><creator>Olver, Ian</creator><creator>Dollman, James</creator><creator>Gunn, Kate M.</creator><general>Wiley Subscription Services, Inc</general><scope>24P</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>7T5</scope><scope>H94</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-6427-2115</orcidid><orcidid>https://orcid.org/0000-0003-0715-3563</orcidid><orcidid>https://orcid.org/0000-0001-5478-1576</orcidid><orcidid>https://orcid.org/0000-0002-1134-3266</orcidid><orcidid>https://orcid.org/0000-0003-0837-6814</orcidid></search><sort><creationdate>202310</creationdate><title>‘It is a life changing experience’: The experiences of living kidney donors who live in rural Australia</title><author>Skaczkowski, Gemma ; Barrett, Alison ; Olver, Ian ; Dollman, James ; Gunn, Kate M.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3888-530ce9b17b7d51720471755832bcb8f72d2a0ee17d34d2d43d8e9a12c1c6043</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>Donations</topic><topic>Donors</topic><topic>Emotions</topic><topic>Health services</topic><topic>Kidneys</topic><topic>Living donors</topic><topic>living kidney donor</topic><topic>living organ donation</topic><topic>Medical personnel</topic><topic>Organ donors</topic><topic>psychosocial</topic><topic>Qualitative analysis</topic><topic>rural</topic><topic>Rural areas</topic><topic>Rural communities</topic><topic>support</topic><topic>Support services</topic><topic>transplant</topic><topic>Travel</topic><topic>Well being</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Skaczkowski, Gemma</creatorcontrib><creatorcontrib>Barrett, Alison</creatorcontrib><creatorcontrib>Olver, Ian</creatorcontrib><creatorcontrib>Dollman, James</creatorcontrib><creatorcontrib>Gunn, Kate M.</creatorcontrib><collection>Wiley-Blackwell Open Access Titles</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>Immunology Abstracts</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>The Australian journal of rural health</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Skaczkowski, Gemma</au><au>Barrett, Alison</au><au>Olver, Ian</au><au>Dollman, James</au><au>Gunn, Kate M.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>‘It is a life changing experience’: The experiences of living kidney donors who live in rural Australia</atitle><jtitle>The Australian journal of rural health</jtitle><addtitle>Aust J Rural Health</addtitle><date>2023-10</date><risdate>2023</risdate><volume>31</volume><issue>5</issue><spage>866</spage><epage>877</epage><pages>866-877</pages><issn>1038-5282</issn><eissn>1440-1584</eissn><abstract>Introduction
A growing body of research has examined the physical, psychological, social and financial impacts of living kidney donation. However, little is known about the unique experiences or additional burdens faced by living donors from regional or remote locations.
Objective
To explore the experiences of living kidney donors who live outside metropolitan centres and to determine how support services could be orientated to better meet their unique needs.
Design/Setting/Participants
Seventeen living kidney donors participated in semistructured telephone interviews. Qualitative data were analysed using thematic analysis.
Findings
Eight themes were identified: (1) donor's emotional well‐being is influenced by the recipient's outcome, (2) varied levels of access to medical support and other important services in rural areas, (3) travel takes a toll on time, finances and well‐being, (4) varied level of financial impact, (5) medical, emotional and social challenges, (6) both lay and health professional support is valued, (7) varied levels of knowledge and experiences accessing information and (8) a worthwhile experience overall.
Conclusion
Despite many challenges, and travel adding to the complexity, rural living kidney donors generally consider it to be a worthwhile experience. The provision of additional emotional, practical and educational support would be welcomed by this group.</abstract><cop>Australia</cop><pub>Wiley Subscription Services, Inc</pub><pmid>37335838</pmid><doi>10.1111/ajr.13008</doi><tpages>12</tpages><orcidid>https://orcid.org/0000-0002-6427-2115</orcidid><orcidid>https://orcid.org/0000-0003-0715-3563</orcidid><orcidid>https://orcid.org/0000-0001-5478-1576</orcidid><orcidid>https://orcid.org/0000-0002-1134-3266</orcidid><orcidid>https://orcid.org/0000-0003-0837-6814</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 1038-5282 |
| ispartof | The Australian journal of rural health, 2023-10, Vol.31 (5), p.866-877 |
| issn | 1038-5282 1440-1584 |
| language | eng |
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| source | Applied Social Sciences Index & Abstracts (ASSIA); Wiley Online Library Journals Frontfile Complete |
| subjects | Donations Donors Emotions Health services Kidneys Living donors living kidney donor living organ donation Medical personnel Organ donors psychosocial Qualitative analysis rural Rural areas Rural communities support Support services transplant Travel Well being |
| title | ‘It is a life changing experience’: The experiences of living kidney donors who live in rural Australia |
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