Use of a web‐based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes

Early Check is a voluntary, large‐scale expanded newborn screening study in North Carolina that uses a self‐directed web‐based portal for return of normal individual research results (IRR). Little is known about participant perspectives in using web‐based portals to receive IRR. This study explored...

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Veröffentlicht in:Clinical genetics 2023-06, Vol.103 (6), p.672-680
Hauptverfasser: Cope, Heidi, Lincoln‐Boyea, Beth, Gwaltney, Angela You, Biesecker, Barbara B., Moultrie, Rebecca, Alexander, Amir A., King, Nancy M. P., Check, Jennifer, Corbo, Allyson, Tzeng, Janice, Porter, Katherine Ackerman, Peay, Holly L.
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Sprache:eng
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