Assessing the Governance of Digital Contact Tracing in Response to COVID-19: Results of a Multi-National Study
This paper describes the results of a multi-country survey of governance approaches for the use of digital contact tracing (DCT) in response to the COVID-19 pandemic. We argue that the countries in our survey represent two distinct models of DCT governance, both of which are flawed. The "data p...
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Veröffentlicht in: | The Journal of law, medicine & ethics medicine & ethics, 2022-01, Vol.50 (4), p.791-804 |
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container_title | The Journal of law, medicine & ethics |
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creator | Hutler, Brian Blasimme, Alessandro Gur-Arie, Rachel Ali, Joseph Barnhill, Anne Hood, Amelia Kahn, Jeffrey Perkins, Nancy L Regenberg, Alan Vayena, Effy |
description | This paper describes the results of a multi-country survey of governance approaches for the use of digital contact tracing (DCT) in response to the COVID-19 pandemic. We argue that the countries in our survey represent two distinct models of DCT governance, both of which are flawed. The "data protection model" emphasizes privacy protections at the expense of public health benefit, while the "emergency response model" sacrifices transparency and accountability, prompting concerns about excessive governance surveillance. The ethical and effective use of DCT in the future requires a new governance approach that is better suited to this novel use of mobile phone data to promote public health." |
doi_str_mv | 10.1017/jme.2023.20 |
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We argue that the countries in our survey represent two distinct models of DCT governance, both of which are flawed. The "data protection model" emphasizes privacy protections at the expense of public health benefit, while the "emergency response model" sacrifices transparency and accountability, prompting concerns about excessive governance surveillance. The ethical and effective use of DCT in the future requires a new governance approach that is better suited to this novel use of mobile phone data to promote public health."</description><identifier>ISSN: 1073-1105</identifier><identifier>EISSN: 1748-720X</identifier><identifier>DOI: 10.1017/jme.2023.20</identifier><identifier>PMID: 36883392</identifier><language>eng</language><publisher>England: Cambridge University Press</publisher><subject>Accountability ; Cellular telephones ; Consortia ; Contact Tracing ; COVID-19 ; COVID-19 - epidemiology ; COVID-19 - prevention & control ; Disease transmission ; Epidemics ; Governance ; Health education ; Humans ; Infectious diseases ; Legislation ; Medical ethics ; Pandemics ; Pandemics - prevention & control ; Personal information ; Privacy ; Public Health ; Severe acute respiratory syndrome coronavirus 2 ; Surveillance ; Transparency</subject><ispartof>The Journal of law, medicine & ethics, 2022-01, Vol.50 (4), p.791-804</ispartof><rights>2023 The Author(s)</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,776,780,27843,27901,27902</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/36883392$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Hutler, Brian</creatorcontrib><creatorcontrib>Blasimme, Alessandro</creatorcontrib><creatorcontrib>Gur-Arie, Rachel</creatorcontrib><creatorcontrib>Ali, Joseph</creatorcontrib><creatorcontrib>Barnhill, Anne</creatorcontrib><creatorcontrib>Hood, Amelia</creatorcontrib><creatorcontrib>Kahn, Jeffrey</creatorcontrib><creatorcontrib>Perkins, Nancy L</creatorcontrib><creatorcontrib>Regenberg, Alan</creatorcontrib><creatorcontrib>Vayena, Effy</creatorcontrib><title>Assessing the Governance of Digital Contact Tracing in Response to COVID-19: Results of a Multi-National Study</title><title>The Journal of law, medicine & ethics</title><addtitle>J Law Med Ethics</addtitle><description>This paper describes the results of a multi-country survey of governance approaches for the use of digital contact tracing (DCT) in response to the COVID-19 pandemic. We argue that the countries in our survey represent two distinct models of DCT governance, both of which are flawed. The "data protection model" emphasizes privacy protections at the expense of public health benefit, while the "emergency response model" sacrifices transparency and accountability, prompting concerns about excessive governance surveillance. The ethical and effective use of DCT in the future requires a new governance approach that is better suited to this novel use of mobile phone data to promote public health."</description><subject>Accountability</subject><subject>Cellular telephones</subject><subject>Consortia</subject><subject>Contact Tracing</subject><subject>COVID-19</subject><subject>COVID-19 - epidemiology</subject><subject>COVID-19 - prevention & control</subject><subject>Disease transmission</subject><subject>Epidemics</subject><subject>Governance</subject><subject>Health education</subject><subject>Humans</subject><subject>Infectious diseases</subject><subject>Legislation</subject><subject>Medical ethics</subject><subject>Pandemics</subject><subject>Pandemics - prevention & control</subject><subject>Personal information</subject><subject>Privacy</subject><subject>Public Health</subject><subject>Severe acute respiratory syndrome coronavirus 2</subject><subject>Surveillance</subject><subject>Transparency</subject><issn>1073-1105</issn><issn>1748-720X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7TQ</sourceid><sourceid>8G5</sourceid><sourceid>AVQMV</sourceid><sourceid>BEC</sourceid><sourceid>BENPR</sourceid><sourceid>GUQSH</sourceid><sourceid>K50</sourceid><sourceid>M1D</sourceid><sourceid>M2O</sourceid><recordid>eNpdkU1LJDEQhoPsou7oybsE9iIsrZVkepL2JuMnqAN-4a1JMhXtoScZO2nBf2-a0T14qSqKp16q6iVkj8EhAyaPFks85MBFDhtkm8mxKiSH51-5BikKxqDcIn9iXAAA42KySbbERCkhKr5N_EmMGGPjX2h6RXoR3rHz2lukwdHT5qVJuqXT4JO2iT502g5k4-kdxlXwEWkKdDp7ujotWHU8dPs2xWFW05tcNsWtTk3wWeQ-9fOPHfLb6Tbi7lcekcfzs4fpZXE9u7ianlwXlssyFaXg2hjI-0snlZmgAZClQjDCQWXVeO7m1ViAGS5CK6WZMO1cqa2TwA2KETlY66668NZjTPWyiRbbVnsMfay5VGMlqrIUGf37A12EPv-gXVNMskrJTP1bU7YLMXbo6lXXLHX3UTOoBxvqbEM92JBDpve_NHuzxPl_9vvv4hObzYGf</recordid><startdate>20220101</startdate><enddate>20220101</enddate><creator>Hutler, Brian</creator><creator>Blasimme, Alessandro</creator><creator>Gur-Arie, Rachel</creator><creator>Ali, Joseph</creator><creator>Barnhill, Anne</creator><creator>Hood, Amelia</creator><creator>Kahn, Jeffrey</creator><creator>Perkins, Nancy L</creator><creator>Regenberg, Alan</creator><creator>Vayena, Effy</creator><general>Cambridge University Press</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7RV</scope><scope>7TQ</scope><scope>7X7</scope><scope>7XB</scope><scope>88C</scope><scope>88E</scope><scope>88I</scope><scope>8AF</scope><scope>8AM</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8G5</scope><scope>AABKS</scope><scope>ABSDQ</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AVQMV</scope><scope>AZQEC</scope><scope>BEC</scope><scope>BENPR</scope><scope>BGRYB</scope><scope>CCPQU</scope><scope>DHY</scope><scope>DON</scope><scope>DPSOV</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>GUQSH</scope><scope>HCIFZ</scope><scope>K50</scope><scope>K7.</scope><scope>K9.</scope><scope>KB0</scope><scope>KC-</scope><scope>M0O</scope><scope>M0S</scope><scope>M0T</scope><scope>M1D</scope><scope>M1P</scope><scope>M2L</scope><scope>M2O</scope><scope>M2P</scope><scope>MBDVC</scope><scope>NAPCQ</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>Q9U</scope><scope>S0X</scope><scope>7X8</scope></search><sort><creationdate>20220101</creationdate><title>Assessing the Governance of Digital Contact Tracing in Response to COVID-19: Results of a Multi-National Study</title><author>Hutler, Brian ; Blasimme, Alessandro ; Gur-Arie, Rachel ; Ali, Joseph ; Barnhill, Anne ; Hood, Amelia ; Kahn, Jeffrey ; Perkins, Nancy L ; Regenberg, Alan ; Vayena, Effy</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c275t-532abb01077f78b6eb00758e0b3f09c84dfd9430b0012ec77b61aff5acf702be3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>Accountability</topic><topic>Cellular telephones</topic><topic>Consortia</topic><topic>Contact Tracing</topic><topic>COVID-19</topic><topic>COVID-19 - 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subjects | Accountability Cellular telephones Consortia Contact Tracing COVID-19 COVID-19 - epidemiology COVID-19 - prevention & control Disease transmission Epidemics Governance Health education Humans Infectious diseases Legislation Medical ethics Pandemics Pandemics - prevention & control Personal information Privacy Public Health Severe acute respiratory syndrome coronavirus 2 Surveillance Transparency |
title | Assessing the Governance of Digital Contact Tracing in Response to COVID-19: Results of a Multi-National Study |
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