Quality of life of primary caregivers of children living with cerebral palsy at two clinics in Blantyre, Malawi

In Malawi, Primary Caregivers (PCGs) of children living with Cerebral Palsy report challenges such as physical strain and lack of resources that affect care giving. Although such experiences affect the PCGs' Quality of Life (QoL), there is paucity of data for Malawi. Understanding their QoL wou...

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Veröffentlicht in:Malawi medical journal 2022-09, Vol.34 (3), p.176-183
Hauptverfasser: Namanja, Alice, Phiri, Vincent Samuel
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container_title Malawi medical journal
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Phiri, Vincent Samuel
description In Malawi, Primary Caregivers (PCGs) of children living with Cerebral Palsy report challenges such as physical strain and lack of resources that affect care giving. Although such experiences affect the PCGs' Quality of Life (QoL), there is paucity of data for Malawi. Understanding their QoL would inform establishment of holistic intervention(s) tailored to meet their needs. Therefore, the purposes of this study were to determine QoL of PCGs of the children who were receiving rehabilitation at Queen Elizabeth Central Hospital (QECH) and Feed the Children (FtC), to identify PCG's and children's socio-demographic factors that may attribute to the perceived QoL, and to compare the PCGs' QoL between the sites. A cross-sectional study was conducted from January to April 2019 on 142 PCGs of children aged between 2 and 18 years of age. All PCGs who were employed for the child-care, or had a chronic sickness were excluded. QoL was assessed using the World Health Organization Brief questionnaire, with a cut-off point of
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identifier ISSN: 1995-7270
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1995-7262
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source MEDLINE; DOAJ Directory of Open Access Journals; PubMed Central; EZB Electronic Journals Library
subjects Adolescent
Caregivers
Cerebral Palsy
Child
Child, Preschool
Cross-Sectional Studies
Humans
Malawi
Quality of Life
title Quality of life of primary caregivers of children living with cerebral palsy at two clinics in Blantyre, Malawi
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