Com‐mens: a home‐based logopaedic intervention program for communication problems between people with dementia and their caregivers — a single‐group mixed‐methods pilot study
Background Communication difficulties are common in people with dementia, and often present from an early stage. However, direct treatment options for people with dementia that positively influence their daily communication are scarce. Aims To evaluate the potential impact and feasibility of a perso...
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Veröffentlicht in: | International journal of language & communication disorders 2023-05, Vol.58 (3), p.704-722 |
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creator | Olthof‐Nefkens, Maria W. L. J. Derksen, Els W. C. Debets, Frieda Swart, Bert J. M. Nijhuis‐van der Sanden, Maria W. G. Kalf, Johanna G. |
description | Background
Communication difficulties are common in people with dementia, and often present from an early stage. However, direct treatment options for people with dementia that positively influence their daily communication are scarce.
Aims
To evaluate the potential impact and feasibility of a personalized logopaedic intervention.
Methods & Procedures
A total of 40 community‐dwelling persons with dementia and their caregivers were recruited. Five experienced speech and language therapists (SLTs) delivered the six‐session Com‐mens intervention at home. Com‐mens aims to improve positive communication between people with dementia and their primary caregivers and comprises five elements: interactive history‐taking, dynamic observational assessment, education about the consequences of dementia on communication, development and use of personalized communication tools, use motivational, and person‐centred strategies by the SLT. We conducted a single‐group mixed‐methods pilot study with five measurements: baseline, directly after intervention, and at 3, 6 and 9 months follow‐up. Semi‐structured interviews and questionnaires for Experienced Communication in Dementia, quality of life, psychological well‐being and caregiver burden were conducted. Process evaluation was performed by interviewing participants, drop‐outs, SLTs and other stakeholders.
Outcomes & Results
A total of 32 dyads completed the intervention. Repeated measures analyses revealed no significant changes over time. In the interviews, participants reported a positive impact on their feelings, increased communication skills and better coping with the diagnosis. Participants would recommend the intervention to others. Facilitators were timely delivery, personalized content and adequate reimbursement. Barriers were unfamiliarity with Com‐mens among referrers, an overburdened caregiver or disrupted family relationships.
Conclusions & Implications
This newly developed logopaedic intervention is feasible and has a perceived positive impact on both people with dementia and their caregivers, which is confirmed by a stable pattern over a period of 1 year. Future comparative studies are needed to test the effectiveness of personalized interventions in this patient population.
What this paper adds
What is already known on the subject?
SLTs are experts in the field of communication, but even though communication problems are common between people with dementia and their caregivers, there is a lack of logopaedic g |
doi_str_mv | 10.1111/1460-6984.12811 |
format | Article |
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Communication difficulties are common in people with dementia, and often present from an early stage. However, direct treatment options for people with dementia that positively influence their daily communication are scarce.
Aims
To evaluate the potential impact and feasibility of a personalized logopaedic intervention.
Methods & Procedures
A total of 40 community‐dwelling persons with dementia and their caregivers were recruited. Five experienced speech and language therapists (SLTs) delivered the six‐session Com‐mens intervention at home. Com‐mens aims to improve positive communication between people with dementia and their primary caregivers and comprises five elements: interactive history‐taking, dynamic observational assessment, education about the consequences of dementia on communication, development and use of personalized communication tools, use motivational, and person‐centred strategies by the SLT. We conducted a single‐group mixed‐methods pilot study with five measurements: baseline, directly after intervention, and at 3, 6 and 9 months follow‐up. Semi‐structured interviews and questionnaires for Experienced Communication in Dementia, quality of life, psychological well‐being and caregiver burden were conducted. Process evaluation was performed by interviewing participants, drop‐outs, SLTs and other stakeholders.
Outcomes & Results
A total of 32 dyads completed the intervention. Repeated measures analyses revealed no significant changes over time. In the interviews, participants reported a positive impact on their feelings, increased communication skills and better coping with the diagnosis. Participants would recommend the intervention to others. Facilitators were timely delivery, personalized content and adequate reimbursement. Barriers were unfamiliarity with Com‐mens among referrers, an overburdened caregiver or disrupted family relationships.
Conclusions & Implications
This newly developed logopaedic intervention is feasible and has a perceived positive impact on both people with dementia and their caregivers, which is confirmed by a stable pattern over a period of 1 year. Future comparative studies are needed to test the effectiveness of personalized interventions in this patient population.
What this paper adds
What is already known on the subject?
SLTs are experts in the field of communication, but even though communication problems are common between people with dementia and their caregivers, there is a lack of logopaedic guidelines and materials for the direct treatment for this population. Interventions that are available either focus on (professional) caregivers only or aim to enhance cognitive functioning and do not target on joined communication.
What this paper adds to the existing knowledge?
A newly developed intervention called Com‐mens can be provided by trained SLTs and takes an average of six 1‐h sessions. The intervention is perceived to be valuable and feasible for people with dementia and their caregivers, by the participants themselves, as well as by healthcare professionals and other stakeholders.
What are the potential or actual clinical implications of this work?
Dissemination of this intervention will give SLTs skills, tools and materials to provide meaningful care to home‐dwelling persons with dementia and their caregivers. Also, persons with dementia and their caregivers will receive education and materials that can help them increase their understanding of communication problems, enhance their communication skills and better cope with the communication problems that result from dementia. We consider the Com‐mens intervention to be a valuable addition to the field of speech language therapy and dementia.</description><identifier>ISSN: 1368-2822</identifier><identifier>EISSN: 1460-6984</identifier><identifier>DOI: 10.1111/1460-6984.12811</identifier><identifier>PMID: 36394262</identifier><language>eng</language><publisher>United States: Wiley</publisher><subject>Alzheimer disease ; Caregivers ; Caregivers - psychology ; Communication ; Communication Disorders ; Communication Skills ; Coping ; Dementia ; Dementia - psychology ; Education ; Humans ; Interpersonal Communication ; Intervention ; Interviews ; Language therapy ; Male ; Mental Health ; Mixed methods research ; neurodegenerative diseases ; neurogenic communication disorders ; Pilot Projects ; Program Effectiveness ; Program Implementation ; psychosocial intervention ; Quality of Life ; Speech Language Pathology ; Speech-language pathologists ; Stress Variables ; Well Being ; Willingness to communicate</subject><ispartof>International journal of language & communication disorders, 2023-05, Vol.58 (3), p.704-722</ispartof><rights>2022 The Authors. published by John Wiley & Sons Ltd on behalf of Royal College of Speech and Language Therapists.</rights><rights>2022 The Authors. International Journal of Language & Communication Disorders published by John Wiley & Sons Ltd on behalf of Royal College of Speech and Language Therapists.</rights><rights>2022. This article is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4351-ee476297ed06ac8bf24b6ed0c2e3d285c6cce7daaa763e85bd236c7beeaeb8b23</citedby><cites>FETCH-LOGICAL-c4351-ee476297ed06ac8bf24b6ed0c2e3d285c6cce7daaa763e85bd236c7beeaeb8b23</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2F1460-6984.12811$$EPDF$$P50$$Gwiley$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2F1460-6984.12811$$EHTML$$P50$$Gwiley$$Hfree_for_read</linktohtml><link.rule.ids>314,780,784,1417,27924,27925,45574,45575</link.rule.ids><backlink>$$Uhttp://eric.ed.gov/ERICWebPortal/detail?accno=EJ1373870$$DView record in ERIC$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/36394262$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Olthof‐Nefkens, Maria W. L. J.</creatorcontrib><creatorcontrib>Derksen, Els W. C.</creatorcontrib><creatorcontrib>Debets, Frieda</creatorcontrib><creatorcontrib>Swart, Bert J. M.</creatorcontrib><creatorcontrib>Nijhuis‐van der Sanden, Maria W. G.</creatorcontrib><creatorcontrib>Kalf, Johanna G.</creatorcontrib><title>Com‐mens: a home‐based logopaedic intervention program for communication problems between people with dementia and their caregivers — a single‐group mixed‐methods pilot study</title><title>International journal of language & communication disorders</title><addtitle>Int J Lang Commun Disord</addtitle><description>Background
Communication difficulties are common in people with dementia, and often present from an early stage. However, direct treatment options for people with dementia that positively influence their daily communication are scarce.
Aims
To evaluate the potential impact and feasibility of a personalized logopaedic intervention.
Methods & Procedures
A total of 40 community‐dwelling persons with dementia and their caregivers were recruited. Five experienced speech and language therapists (SLTs) delivered the six‐session Com‐mens intervention at home. Com‐mens aims to improve positive communication between people with dementia and their primary caregivers and comprises five elements: interactive history‐taking, dynamic observational assessment, education about the consequences of dementia on communication, development and use of personalized communication tools, use motivational, and person‐centred strategies by the SLT. We conducted a single‐group mixed‐methods pilot study with five measurements: baseline, directly after intervention, and at 3, 6 and 9 months follow‐up. Semi‐structured interviews and questionnaires for Experienced Communication in Dementia, quality of life, psychological well‐being and caregiver burden were conducted. Process evaluation was performed by interviewing participants, drop‐outs, SLTs and other stakeholders.
Outcomes & Results
A total of 32 dyads completed the intervention. Repeated measures analyses revealed no significant changes over time. In the interviews, participants reported a positive impact on their feelings, increased communication skills and better coping with the diagnosis. Participants would recommend the intervention to others. Facilitators were timely delivery, personalized content and adequate reimbursement. Barriers were unfamiliarity with Com‐mens among referrers, an overburdened caregiver or disrupted family relationships.
Conclusions & Implications
This newly developed logopaedic intervention is feasible and has a perceived positive impact on both people with dementia and their caregivers, which is confirmed by a stable pattern over a period of 1 year. Future comparative studies are needed to test the effectiveness of personalized interventions in this patient population.
What this paper adds
What is already known on the subject?
SLTs are experts in the field of communication, but even though communication problems are common between people with dementia and their caregivers, there is a lack of logopaedic guidelines and materials for the direct treatment for this population. Interventions that are available either focus on (professional) caregivers only or aim to enhance cognitive functioning and do not target on joined communication.
What this paper adds to the existing knowledge?
A newly developed intervention called Com‐mens can be provided by trained SLTs and takes an average of six 1‐h sessions. The intervention is perceived to be valuable and feasible for people with dementia and their caregivers, by the participants themselves, as well as by healthcare professionals and other stakeholders.
What are the potential or actual clinical implications of this work?
Dissemination of this intervention will give SLTs skills, tools and materials to provide meaningful care to home‐dwelling persons with dementia and their caregivers. Also, persons with dementia and their caregivers will receive education and materials that can help them increase their understanding of communication problems, enhance their communication skills and better cope with the communication problems that result from dementia. We consider the Com‐mens intervention to be a valuable addition to the field of speech language therapy and dementia.</description><subject>Alzheimer disease</subject><subject>Caregivers</subject><subject>Caregivers - psychology</subject><subject>Communication</subject><subject>Communication Disorders</subject><subject>Communication Skills</subject><subject>Coping</subject><subject>Dementia</subject><subject>Dementia - psychology</subject><subject>Education</subject><subject>Humans</subject><subject>Interpersonal Communication</subject><subject>Intervention</subject><subject>Interviews</subject><subject>Language therapy</subject><subject>Male</subject><subject>Mental Health</subject><subject>Mixed methods research</subject><subject>neurodegenerative diseases</subject><subject>neurogenic communication disorders</subject><subject>Pilot Projects</subject><subject>Program Effectiveness</subject><subject>Program Implementation</subject><subject>psychosocial intervention</subject><subject>Quality of Life</subject><subject>Speech Language Pathology</subject><subject>Speech-language pathologists</subject><subject>Stress Variables</subject><subject>Well Being</subject><subject>Willingness to communicate</subject><issn>1368-2822</issn><issn>1460-6984</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>24P</sourceid><sourceid>WIN</sourceid><sourceid>EIF</sourceid><recordid>eNqFUctu1DAUjRCIlsKaFcgSm27SxnbG9rBDQ3lUI7GBteXHnYyrOA520mF2_YQu-Bi-p1-C07SzYIM39r3n3HOPdYriNa7OcD7nuGZVyZaiPsNEYPykOD50nuY3ZaIkgpCj4kVKV1VVEbzAz4sjyuiyJowcF39Wwd_d3Hro0nuk0DZ4yKVWCSxqQxN6BdYZ5LoB4jV0gwsd6mNoovJoEyIywfuxc0Y9IroFn5CGYQeQGxD6FtDODVtkwU8CCqnOomELLk-rCI27hpjQ3c3vvD-5rmknB00MY4-8-wX23t6wDTah3rVhQGkY7f5l8Wyj2gSvHu6T4seni--rL-X62-evqw_r0tR0gUuAmjOy5GArpozQG1JrlgtDgFoiFoYZA9wqpTijIBbaEsoM1wAKtNCEnhSns27-288R0iC9SwbaVnUQxiQJp7zmmBKcqe_-oV6FMXbZnSSiIoTwBZkEz2eWiSGlCBvZR-dV3EtcySlUOUUopwjlfah54u2D7qg92AP_McVMeDMTIDpzgC8uMeVU8CrjbMZ3roX9__bJy_Xq47z5L0Nfv3c</recordid><startdate>202305</startdate><enddate>202305</enddate><creator>Olthof‐Nefkens, Maria W. L. J.</creator><creator>Derksen, Els W. C.</creator><creator>Debets, Frieda</creator><creator>Swart, Bert J. M.</creator><creator>Nijhuis‐van der Sanden, Maria W. G.</creator><creator>Kalf, Johanna G.</creator><general>Wiley</general><general>Wiley Subscription Services, Inc</general><scope>24P</scope><scope>WIN</scope><scope>7SW</scope><scope>BJH</scope><scope>BNH</scope><scope>BNI</scope><scope>BNJ</scope><scope>BNO</scope><scope>ERI</scope><scope>PET</scope><scope>REK</scope><scope>WWN</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7T9</scope><scope>8BM</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope></search><sort><creationdate>202305</creationdate><title>Com‐mens: a home‐based logopaedic intervention program for communication problems between people with dementia and their caregivers — a single‐group mixed‐methods pilot study</title><author>Olthof‐Nefkens, Maria W. L. J. ; Derksen, Els W. C. ; Debets, Frieda ; Swart, Bert J. M. ; Nijhuis‐van der Sanden, Maria W. G. ; Kalf, Johanna G.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4351-ee476297ed06ac8bf24b6ed0c2e3d285c6cce7daaa763e85bd236c7beeaeb8b23</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>Alzheimer disease</topic><topic>Caregivers</topic><topic>Caregivers - psychology</topic><topic>Communication</topic><topic>Communication Disorders</topic><topic>Communication Skills</topic><topic>Coping</topic><topic>Dementia</topic><topic>Dementia - psychology</topic><topic>Education</topic><topic>Humans</topic><topic>Interpersonal Communication</topic><topic>Intervention</topic><topic>Interviews</topic><topic>Language therapy</topic><topic>Male</topic><topic>Mental Health</topic><topic>Mixed methods research</topic><topic>neurodegenerative diseases</topic><topic>neurogenic communication disorders</topic><topic>Pilot Projects</topic><topic>Program Effectiveness</topic><topic>Program Implementation</topic><topic>psychosocial intervention</topic><topic>Quality of Life</topic><topic>Speech Language Pathology</topic><topic>Speech-language pathologists</topic><topic>Stress Variables</topic><topic>Well Being</topic><topic>Willingness to communicate</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Olthof‐Nefkens, Maria W. L. J.</creatorcontrib><creatorcontrib>Derksen, Els W. C.</creatorcontrib><creatorcontrib>Debets, Frieda</creatorcontrib><creatorcontrib>Swart, Bert J. M.</creatorcontrib><creatorcontrib>Nijhuis‐van der Sanden, Maria W. G.</creatorcontrib><creatorcontrib>Kalf, Johanna G.</creatorcontrib><collection>Wiley Online Library Open Access</collection><collection>Wiley Online Library Free Content</collection><collection>ERIC</collection><collection>ERIC (Ovid)</collection><collection>ERIC</collection><collection>ERIC</collection><collection>ERIC (Legacy Platform)</collection><collection>ERIC( SilverPlatter )</collection><collection>ERIC</collection><collection>ERIC PlusText (Legacy Platform)</collection><collection>Education Resources Information Center (ERIC)</collection><collection>ERIC</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Linguistics and Language Behavior Abstracts (LLBA)</collection><collection>ComDisDome</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>International journal of language & communication disorders</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Olthof‐Nefkens, Maria W. L. J.</au><au>Derksen, Els W. C.</au><au>Debets, Frieda</au><au>Swart, Bert J. M.</au><au>Nijhuis‐van der Sanden, Maria W. G.</au><au>Kalf, Johanna G.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><ericid>EJ1373870</ericid><atitle>Com‐mens: a home‐based logopaedic intervention program for communication problems between people with dementia and their caregivers — a single‐group mixed‐methods pilot study</atitle><jtitle>International journal of language & communication disorders</jtitle><addtitle>Int J Lang Commun Disord</addtitle><date>2023-05</date><risdate>2023</risdate><volume>58</volume><issue>3</issue><spage>704</spage><epage>722</epage><pages>704-722</pages><issn>1368-2822</issn><eissn>1460-6984</eissn><abstract>Background
Communication difficulties are common in people with dementia, and often present from an early stage. However, direct treatment options for people with dementia that positively influence their daily communication are scarce.
Aims
To evaluate the potential impact and feasibility of a personalized logopaedic intervention.
Methods & Procedures
A total of 40 community‐dwelling persons with dementia and their caregivers were recruited. Five experienced speech and language therapists (SLTs) delivered the six‐session Com‐mens intervention at home. Com‐mens aims to improve positive communication between people with dementia and their primary caregivers and comprises five elements: interactive history‐taking, dynamic observational assessment, education about the consequences of dementia on communication, development and use of personalized communication tools, use motivational, and person‐centred strategies by the SLT. We conducted a single‐group mixed‐methods pilot study with five measurements: baseline, directly after intervention, and at 3, 6 and 9 months follow‐up. Semi‐structured interviews and questionnaires for Experienced Communication in Dementia, quality of life, psychological well‐being and caregiver burden were conducted. Process evaluation was performed by interviewing participants, drop‐outs, SLTs and other stakeholders.
Outcomes & Results
A total of 32 dyads completed the intervention. Repeated measures analyses revealed no significant changes over time. In the interviews, participants reported a positive impact on their feelings, increased communication skills and better coping with the diagnosis. Participants would recommend the intervention to others. Facilitators were timely delivery, personalized content and adequate reimbursement. Barriers were unfamiliarity with Com‐mens among referrers, an overburdened caregiver or disrupted family relationships.
Conclusions & Implications
This newly developed logopaedic intervention is feasible and has a perceived positive impact on both people with dementia and their caregivers, which is confirmed by a stable pattern over a period of 1 year. Future comparative studies are needed to test the effectiveness of personalized interventions in this patient population.
What this paper adds
What is already known on the subject?
SLTs are experts in the field of communication, but even though communication problems are common between people with dementia and their caregivers, there is a lack of logopaedic guidelines and materials for the direct treatment for this population. Interventions that are available either focus on (professional) caregivers only or aim to enhance cognitive functioning and do not target on joined communication.
What this paper adds to the existing knowledge?
A newly developed intervention called Com‐mens can be provided by trained SLTs and takes an average of six 1‐h sessions. The intervention is perceived to be valuable and feasible for people with dementia and their caregivers, by the participants themselves, as well as by healthcare professionals and other stakeholders.
What are the potential or actual clinical implications of this work?
Dissemination of this intervention will give SLTs skills, tools and materials to provide meaningful care to home‐dwelling persons with dementia and their caregivers. Also, persons with dementia and their caregivers will receive education and materials that can help them increase their understanding of communication problems, enhance their communication skills and better cope with the communication problems that result from dementia. We consider the Com‐mens intervention to be a valuable addition to the field of speech language therapy and dementia.</abstract><cop>United States</cop><pub>Wiley</pub><pmid>36394262</pmid><doi>10.1111/1460-6984.12811</doi><tpages>19</tpages><oa>free_for_read</oa></addata></record> |
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subjects | Alzheimer disease Caregivers Caregivers - psychology Communication Communication Disorders Communication Skills Coping Dementia Dementia - psychology Education Humans Interpersonal Communication Intervention Interviews Language therapy Male Mental Health Mixed methods research neurodegenerative diseases neurogenic communication disorders Pilot Projects Program Effectiveness Program Implementation psychosocial intervention Quality of Life Speech Language Pathology Speech-language pathologists Stress Variables Well Being Willingness to communicate |
title | Com‐mens: a home‐based logopaedic intervention program for communication problems between people with dementia and their caregivers — a single‐group mixed‐methods pilot study |
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