Parents of children with disabilities' perceptions regarding the quality of interaction with Health professionals working in early intervention: A qualitative descriptive study
Aims and Objectives The aim of this study is to explore the perceptions of parents of children with physical disabilities concerning the quality of their interaction with health professionals in early intervention programs. Background Despite the consensus on the need for Patient and Family‐Centered...
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| Veröffentlicht in: | Journal of clinical nursing 2023-09, Vol.32 (17-18), p.6519-6532 |
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| container_issue | 17-18 |
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| container_title | Journal of clinical nursing |
| container_volume | 32 |
| creator | Morera‐Balaguer, Jaume Lillo‐Navarro, Carmen de Oliveira‐Sousa, Silvana‐Loana Montilla‐Herrador, Joaquina Escolar‐Reina, Pilar Rodríguez‐Nogueira, Óscar Medina‐Mirapeix, Francesc |
| description | Aims and Objectives
The aim of this study is to explore the perceptions of parents of children with physical disabilities concerning the quality of their interaction with health professionals in early intervention programs.
Background
Despite the consensus on the need for Patient and Family‐Centered Care, there are still difficulties when executing such care. The quality of interaction among patients, families, and professionals is essential to facilitate the implementation of the programs.
Design
A qualitative descriptive study with thematic analysis using a Modified Grounded Theory approach.
Methods
Data were collected through seven focus groups with 28 parents of children with physical disabilities who were undergoing early intervention programs in three centres. The study followed the COREQ guidelines and checklist.
Results
Two themes emerged from the experiences: ‘exchange of information and education’, which included all the activities, procedures, exercises and skills taught by the professionals to help parents care for their child; and ‘interpersonal skills’, which focused on the way the professional relates with the child and the parents. Several subthemes emerged within each theme.
Conclusions
This study identified which elements of the professional‐parent interaction are considered by parents when evaluating the quality of their interaction with the health care provider of their children.
Relevance to Clinical Practice
The results of this study bring to light certain behaviours and interactions that health professionals should consider in order to improve the perceptions of parents of children with disabilities regarding the quality of interaction in the context of early childhood intervention.
Patient or Public Contribution
Parents contributed to the data collected. Early intervention professionals were involved in participant checking to ensure the rigour of the study. |
| doi_str_mv | 10.1111/jocn.16580 |
| format | Article |
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The aim of this study is to explore the perceptions of parents of children with physical disabilities concerning the quality of their interaction with health professionals in early intervention programs.
Background
Despite the consensus on the need for Patient and Family‐Centered Care, there are still difficulties when executing such care. The quality of interaction among patients, families, and professionals is essential to facilitate the implementation of the programs.
Design
A qualitative descriptive study with thematic analysis using a Modified Grounded Theory approach.
Methods
Data were collected through seven focus groups with 28 parents of children with physical disabilities who were undergoing early intervention programs in three centres. The study followed the COREQ guidelines and checklist.
Results
Two themes emerged from the experiences: ‘exchange of information and education’, which included all the activities, procedures, exercises and skills taught by the professionals to help parents care for their child; and ‘interpersonal skills’, which focused on the way the professional relates with the child and the parents. Several subthemes emerged within each theme.
Conclusions
This study identified which elements of the professional‐parent interaction are considered by parents when evaluating the quality of their interaction with the health care provider of their children.
Relevance to Clinical Practice
The results of this study bring to light certain behaviours and interactions that health professionals should consider in order to improve the perceptions of parents of children with disabilities regarding the quality of interaction in the context of early childhood intervention.
Patient or Public Contribution
Parents contributed to the data collected. Early intervention professionals were involved in participant checking to ensure the rigour of the study.</description><identifier>ISSN: 0962-1067</identifier><identifier>EISSN: 1365-2702</identifier><identifier>DOI: 10.1111/jocn.16580</identifier><language>eng</language><publisher>Oxford: Wiley Subscription Services, Inc</publisher><subject>children ; Children with disabilities ; disability ; Early intervention ; focus groups ; Medical personnel ; Nurse patient relationships ; parents ; Parents & parenting ; patient and family‐centred care ; Pediatric nursing ; professional‐patient interaction ; Qualitative research ; quality of health care</subject><ispartof>Journal of clinical nursing, 2023-09, Vol.32 (17-18), p.6519-6532</ispartof><rights>2022 The Authors. published by John Wiley & Sons Ltd.</rights><rights>2022. This article is published under http://creativecommons.org/licenses/by-nc-nd/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c3290-b2a2a9495e1c2742d4361ffd2892824c120c4beda8ed892752fdc9a9fea47f2c3</cites><orcidid>0000-0002-7531-080X ; 0000-0003-1842-2968 ; 0000-0003-1581-3621 ; 0000-0002-4203-5784 ; 0000-0002-5074-8338 ; 0000-0001-8652-3600 ; 0000-0001-8733-4406</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fjocn.16580$$EPDF$$P50$$Gwiley$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fjocn.16580$$EHTML$$P50$$Gwiley$$Hfree_for_read</linktohtml><link.rule.ids>314,776,780,1411,27901,27902,45550,45551</link.rule.ids></links><search><creatorcontrib>Morera‐Balaguer, Jaume</creatorcontrib><creatorcontrib>Lillo‐Navarro, Carmen</creatorcontrib><creatorcontrib>de Oliveira‐Sousa, Silvana‐Loana</creatorcontrib><creatorcontrib>Montilla‐Herrador, Joaquina</creatorcontrib><creatorcontrib>Escolar‐Reina, Pilar</creatorcontrib><creatorcontrib>Rodríguez‐Nogueira, Óscar</creatorcontrib><creatorcontrib>Medina‐Mirapeix, Francesc</creatorcontrib><title>Parents of children with disabilities' perceptions regarding the quality of interaction with Health professionals working in early intervention: A qualitative descriptive study</title><title>Journal of clinical nursing</title><description>Aims and Objectives
The aim of this study is to explore the perceptions of parents of children with physical disabilities concerning the quality of their interaction with health professionals in early intervention programs.
Background
Despite the consensus on the need for Patient and Family‐Centered Care, there are still difficulties when executing such care. The quality of interaction among patients, families, and professionals is essential to facilitate the implementation of the programs.
Design
A qualitative descriptive study with thematic analysis using a Modified Grounded Theory approach.
Methods
Data were collected through seven focus groups with 28 parents of children with physical disabilities who were undergoing early intervention programs in three centres. The study followed the COREQ guidelines and checklist.
Results
Two themes emerged from the experiences: ‘exchange of information and education’, which included all the activities, procedures, exercises and skills taught by the professionals to help parents care for their child; and ‘interpersonal skills’, which focused on the way the professional relates with the child and the parents. Several subthemes emerged within each theme.
Conclusions
This study identified which elements of the professional‐parent interaction are considered by parents when evaluating the quality of their interaction with the health care provider of their children.
Relevance to Clinical Practice
The results of this study bring to light certain behaviours and interactions that health professionals should consider in order to improve the perceptions of parents of children with disabilities regarding the quality of interaction in the context of early childhood intervention.
Patient or Public Contribution
Parents contributed to the data collected. Early intervention professionals were involved in participant checking to ensure the rigour of the study.</description><subject>children</subject><subject>Children with disabilities</subject><subject>disability</subject><subject>Early intervention</subject><subject>focus groups</subject><subject>Medical personnel</subject><subject>Nurse patient relationships</subject><subject>parents</subject><subject>Parents & parenting</subject><subject>patient and family‐centred care</subject><subject>Pediatric nursing</subject><subject>professional‐patient interaction</subject><subject>Qualitative research</subject><subject>quality of health care</subject><issn>0962-1067</issn><issn>1365-2702</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>24P</sourceid><recordid>eNp9kc1O3TAQha0KpF5-Nn0CSyyoKoXak1-zQ1dtaYWABV1bvvaY60tIgu1wlbfqI9YhrLqoN2OPvnNmrEPIJ84ueDpfd73uLnhVNuwDWfG8KjOoGRyQFRMVZJxV9UdyFMKOMZ4D5Cvy51557GKgvaV661qTXnTv4pYaF9TGtS46DOd0QK9xiK7vAvX4qLxx3SONW6Qvo0rQNBu4LqJXeqYWj2tUbSqD7y2GkNqqDXTf-6dZ7DqKyrfTIntNWyTgkl69O6roXpEaDNq74e0e4mimE3Jokwuevtdj8vv7t4f1dXZz9-Pn-uom0zkIlm1AgRKFKJFrqAswRV5xaw00AhooNAemiw0a1aBJrboEa7RQwqIqags6PyafF9-0_MuIIcpnFzS2reqwH4OEOq85T7omoWf_oLt-9PNfJTQlQBotRKK-LJT2fQgerRy8e1Z-kpzJOTw5hyffwkswX-C9a3H6Dyl_3a1vF81fsEGhqg</recordid><startdate>202309</startdate><enddate>202309</enddate><creator>Morera‐Balaguer, Jaume</creator><creator>Lillo‐Navarro, Carmen</creator><creator>de Oliveira‐Sousa, Silvana‐Loana</creator><creator>Montilla‐Herrador, Joaquina</creator><creator>Escolar‐Reina, Pilar</creator><creator>Rodríguez‐Nogueira, Óscar</creator><creator>Medina‐Mirapeix, Francesc</creator><general>Wiley Subscription Services, Inc</general><scope>24P</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-7531-080X</orcidid><orcidid>https://orcid.org/0000-0003-1842-2968</orcidid><orcidid>https://orcid.org/0000-0003-1581-3621</orcidid><orcidid>https://orcid.org/0000-0002-4203-5784</orcidid><orcidid>https://orcid.org/0000-0002-5074-8338</orcidid><orcidid>https://orcid.org/0000-0001-8652-3600</orcidid><orcidid>https://orcid.org/0000-0001-8733-4406</orcidid></search><sort><creationdate>202309</creationdate><title>Parents of children with disabilities' perceptions regarding the quality of interaction with Health professionals working in early intervention: A qualitative descriptive study</title><author>Morera‐Balaguer, Jaume ; Lillo‐Navarro, Carmen ; de Oliveira‐Sousa, Silvana‐Loana ; Montilla‐Herrador, Joaquina ; Escolar‐Reina, Pilar ; Rodríguez‐Nogueira, Óscar ; Medina‐Mirapeix, Francesc</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3290-b2a2a9495e1c2742d4361ffd2892824c120c4beda8ed892752fdc9a9fea47f2c3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>children</topic><topic>Children with disabilities</topic><topic>disability</topic><topic>Early intervention</topic><topic>focus groups</topic><topic>Medical personnel</topic><topic>Nurse patient relationships</topic><topic>parents</topic><topic>Parents & parenting</topic><topic>patient and family‐centred care</topic><topic>Pediatric nursing</topic><topic>professional‐patient interaction</topic><topic>Qualitative research</topic><topic>quality of health care</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Morera‐Balaguer, Jaume</creatorcontrib><creatorcontrib>Lillo‐Navarro, Carmen</creatorcontrib><creatorcontrib>de Oliveira‐Sousa, Silvana‐Loana</creatorcontrib><creatorcontrib>Montilla‐Herrador, Joaquina</creatorcontrib><creatorcontrib>Escolar‐Reina, Pilar</creatorcontrib><creatorcontrib>Rodríguez‐Nogueira, Óscar</creatorcontrib><creatorcontrib>Medina‐Mirapeix, Francesc</creatorcontrib><collection>Wiley Open Access</collection><collection>CrossRef</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of clinical nursing</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Morera‐Balaguer, Jaume</au><au>Lillo‐Navarro, Carmen</au><au>de Oliveira‐Sousa, Silvana‐Loana</au><au>Montilla‐Herrador, Joaquina</au><au>Escolar‐Reina, Pilar</au><au>Rodríguez‐Nogueira, Óscar</au><au>Medina‐Mirapeix, Francesc</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Parents of children with disabilities' perceptions regarding the quality of interaction with Health professionals working in early intervention: A qualitative descriptive study</atitle><jtitle>Journal of clinical nursing</jtitle><date>2023-09</date><risdate>2023</risdate><volume>32</volume><issue>17-18</issue><spage>6519</spage><epage>6532</epage><pages>6519-6532</pages><issn>0962-1067</issn><eissn>1365-2702</eissn><abstract>Aims and Objectives
The aim of this study is to explore the perceptions of parents of children with physical disabilities concerning the quality of their interaction with health professionals in early intervention programs.
Background
Despite the consensus on the need for Patient and Family‐Centered Care, there are still difficulties when executing such care. The quality of interaction among patients, families, and professionals is essential to facilitate the implementation of the programs.
Design
A qualitative descriptive study with thematic analysis using a Modified Grounded Theory approach.
Methods
Data were collected through seven focus groups with 28 parents of children with physical disabilities who were undergoing early intervention programs in three centres. The study followed the COREQ guidelines and checklist.
Results
Two themes emerged from the experiences: ‘exchange of information and education’, which included all the activities, procedures, exercises and skills taught by the professionals to help parents care for their child; and ‘interpersonal skills’, which focused on the way the professional relates with the child and the parents. Several subthemes emerged within each theme.
Conclusions
This study identified which elements of the professional‐parent interaction are considered by parents when evaluating the quality of their interaction with the health care provider of their children.
Relevance to Clinical Practice
The results of this study bring to light certain behaviours and interactions that health professionals should consider in order to improve the perceptions of parents of children with disabilities regarding the quality of interaction in the context of early childhood intervention.
Patient or Public Contribution
Parents contributed to the data collected. Early intervention professionals were involved in participant checking to ensure the rigour of the study.</abstract><cop>Oxford</cop><pub>Wiley Subscription Services, Inc</pub><doi>10.1111/jocn.16580</doi><tpages>14</tpages><orcidid>https://orcid.org/0000-0002-7531-080X</orcidid><orcidid>https://orcid.org/0000-0003-1842-2968</orcidid><orcidid>https://orcid.org/0000-0003-1581-3621</orcidid><orcidid>https://orcid.org/0000-0002-4203-5784</orcidid><orcidid>https://orcid.org/0000-0002-5074-8338</orcidid><orcidid>https://orcid.org/0000-0001-8652-3600</orcidid><orcidid>https://orcid.org/0000-0001-8733-4406</orcidid><oa>free_for_read</oa></addata></record> |
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| source | Wiley Online Library |
| subjects | children Children with disabilities disability Early intervention focus groups Medical personnel Nurse patient relationships parents Parents & parenting patient and family‐centred care Pediatric nursing professional‐patient interaction Qualitative research quality of health care |
| title | Parents of children with disabilities' perceptions regarding the quality of interaction with Health professionals working in early intervention: A qualitative descriptive study |
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