Achieving Racial Representation in Food Allergy Research: A Modified Delphi Study
The overrepresentation of White participants in food allergy research contributes to the development of research questions and interventions not driven by those disproportionately affected by the condition. This ultimately limits the generalizability of research findings and affects the development...
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Veröffentlicht in: | The journal of allergy and clinical immunology in practice (Cambridge, MA) MA), 2023-01, Vol.11 (1), p.281-291 |
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container_title | The journal of allergy and clinical immunology in practice (Cambridge, MA) |
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creator | Bilaver, Lucy A. Galic, Isabel Zaslavsky, Justin Anderson, Brigitte Catlin, Perry A. Gupta, Ruchi S. |
description | The overrepresentation of White participants in food allergy research contributes to the development of research questions and interventions not driven by those disproportionately affected by the condition. This ultimately limits the generalizability of research findings and affects the development of knowledge about food allergy and food allergy management.
To develop recommendations to combat inequitable research paradigms and increase participation of racially underrepresented populations in food allergy research.
This study used a modified consensus development method, known as a Delphi method, to assemble the expertise of food allergy clinicians, advocacy leaders, community-engaged researchers, and patients.
Findings resulted in 18 recommendations within four domains: community partnership, intentional engagement and messaging, recruitment activities, and dissemination.
Findings from this study provide food allergy researchers with specific recommendations for examining their efforts more critically toward recruiting and engaging with racially underrepresented populations, effectively transitioning from a research-on to a research-with relationship with individuals and families living with food allergy. |
doi_str_mv | 10.1016/j.jaip.2022.09.041 |
format | Article |
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To develop recommendations to combat inequitable research paradigms and increase participation of racially underrepresented populations in food allergy research.
This study used a modified consensus development method, known as a Delphi method, to assemble the expertise of food allergy clinicians, advocacy leaders, community-engaged researchers, and patients.
Findings resulted in 18 recommendations within four domains: community partnership, intentional engagement and messaging, recruitment activities, and dissemination.
Findings from this study provide food allergy researchers with specific recommendations for examining their efforts more critically toward recruiting and engaging with racially underrepresented populations, effectively transitioning from a research-on to a research-with relationship with individuals and families living with food allergy.</description><identifier>ISSN: 2213-2198</identifier><identifier>EISSN: 2213-2201</identifier><identifier>DOI: 10.1016/j.jaip.2022.09.041</identifier><identifier>PMID: 36241153</identifier><language>eng</language><publisher>United States: Elsevier Inc</publisher><subject>Delphi method ; Delphi Technique ; Ethnic disparities ; Food allergy ; Food Hypersensitivity - therapy ; Humans ; Participatory research ; Racial disparities ; Racial Groups</subject><ispartof>The journal of allergy and clinical immunology in practice (Cambridge, MA), 2023-01, Vol.11 (1), p.281-291</ispartof><rights>2022 American Academy of Allergy, Asthma & Immunology</rights><rights>Copyright © 2022 American Academy of Allergy, Asthma & Immunology. Published by Elsevier Inc. All rights reserved.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c330t-4af0c21f038f3733e925cb1894c4f8e5e2958ba4f24095c1529767fb97c406993</citedby><cites>FETCH-LOGICAL-c330t-4af0c21f038f3733e925cb1894c4f8e5e2958ba4f24095c1529767fb97c406993</cites><orcidid>0000-0002-5204-9098</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27924,27925</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/36241153$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Bilaver, Lucy A.</creatorcontrib><creatorcontrib>Galic, Isabel</creatorcontrib><creatorcontrib>Zaslavsky, Justin</creatorcontrib><creatorcontrib>Anderson, Brigitte</creatorcontrib><creatorcontrib>Catlin, Perry A.</creatorcontrib><creatorcontrib>Gupta, Ruchi S.</creatorcontrib><title>Achieving Racial Representation in Food Allergy Research: A Modified Delphi Study</title><title>The journal of allergy and clinical immunology in practice (Cambridge, MA)</title><addtitle>J Allergy Clin Immunol Pract</addtitle><description>The overrepresentation of White participants in food allergy research contributes to the development of research questions and interventions not driven by those disproportionately affected by the condition. This ultimately limits the generalizability of research findings and affects the development of knowledge about food allergy and food allergy management.
To develop recommendations to combat inequitable research paradigms and increase participation of racially underrepresented populations in food allergy research.
This study used a modified consensus development method, known as a Delphi method, to assemble the expertise of food allergy clinicians, advocacy leaders, community-engaged researchers, and patients.
Findings resulted in 18 recommendations within four domains: community partnership, intentional engagement and messaging, recruitment activities, and dissemination.
Findings from this study provide food allergy researchers with specific recommendations for examining their efforts more critically toward recruiting and engaging with racially underrepresented populations, effectively transitioning from a research-on to a research-with relationship with individuals and families living with food allergy.</description><subject>Delphi method</subject><subject>Delphi Technique</subject><subject>Ethnic disparities</subject><subject>Food allergy</subject><subject>Food Hypersensitivity - therapy</subject><subject>Humans</subject><subject>Participatory research</subject><subject>Racial disparities</subject><subject>Racial Groups</subject><issn>2213-2198</issn><issn>2213-2201</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kE1PwzAMhiMEAgT8AQ4oRy4rjpOuDeIy8S2BEF_nKEsdlqlrS9Ih7d_TacARX2zJj1_JD2PHAjIBYnw2z-Y2dBkCYgY6AyW22D6ikCNEENu_s9DlHjtKaQ5DlaIABbtsT45RCZHLffY8cbNAX6H54C_WBVvzF-oiJWp624e24aHhN21b8UldU_xYDetENrrZOZ_wx7YKPlDFr6juZoG_9stqdch2vK0THf30A_Z-c_12eTd6eLq9v5w8jJyU0I-U9eBQeJCll4WUpDF3U1Fq5ZQvKSfUeTm1yqMCnTuRoy7GhZ_qwikYay0P2Okmt4vt55JSbxYhOapr21C7TAYLzBGgEGsUN6iLbUqRvOliWNi4MgLM2qaZm7VNs7ZpQJvB5nB08pO_nC6o-jv5dTcAFxuAhi-_AkWTXKDGURUiud5Ubfgv_xvoRoOG</recordid><startdate>202301</startdate><enddate>202301</enddate><creator>Bilaver, Lucy A.</creator><creator>Galic, Isabel</creator><creator>Zaslavsky, Justin</creator><creator>Anderson, Brigitte</creator><creator>Catlin, Perry A.</creator><creator>Gupta, Ruchi S.</creator><general>Elsevier Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-5204-9098</orcidid></search><sort><creationdate>202301</creationdate><title>Achieving Racial Representation in Food Allergy Research: A Modified Delphi Study</title><author>Bilaver, Lucy A. ; Galic, Isabel ; Zaslavsky, Justin ; Anderson, Brigitte ; Catlin, Perry A. ; Gupta, Ruchi S.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c330t-4af0c21f038f3733e925cb1894c4f8e5e2958ba4f24095c1529767fb97c406993</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>Delphi method</topic><topic>Delphi Technique</topic><topic>Ethnic disparities</topic><topic>Food allergy</topic><topic>Food Hypersensitivity - therapy</topic><topic>Humans</topic><topic>Participatory research</topic><topic>Racial disparities</topic><topic>Racial Groups</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Bilaver, Lucy A.</creatorcontrib><creatorcontrib>Galic, Isabel</creatorcontrib><creatorcontrib>Zaslavsky, Justin</creatorcontrib><creatorcontrib>Anderson, Brigitte</creatorcontrib><creatorcontrib>Catlin, Perry A.</creatorcontrib><creatorcontrib>Gupta, Ruchi S.</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>The journal of allergy and clinical immunology in practice (Cambridge, MA)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Bilaver, Lucy A.</au><au>Galic, Isabel</au><au>Zaslavsky, Justin</au><au>Anderson, Brigitte</au><au>Catlin, Perry A.</au><au>Gupta, Ruchi S.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Achieving Racial Representation in Food Allergy Research: A Modified Delphi Study</atitle><jtitle>The journal of allergy and clinical immunology in practice (Cambridge, MA)</jtitle><addtitle>J Allergy Clin Immunol Pract</addtitle><date>2023-01</date><risdate>2023</risdate><volume>11</volume><issue>1</issue><spage>281</spage><epage>291</epage><pages>281-291</pages><issn>2213-2198</issn><eissn>2213-2201</eissn><abstract>The overrepresentation of White participants in food allergy research contributes to the development of research questions and interventions not driven by those disproportionately affected by the condition. This ultimately limits the generalizability of research findings and affects the development of knowledge about food allergy and food allergy management.
To develop recommendations to combat inequitable research paradigms and increase participation of racially underrepresented populations in food allergy research.
This study used a modified consensus development method, known as a Delphi method, to assemble the expertise of food allergy clinicians, advocacy leaders, community-engaged researchers, and patients.
Findings resulted in 18 recommendations within four domains: community partnership, intentional engagement and messaging, recruitment activities, and dissemination.
Findings from this study provide food allergy researchers with specific recommendations for examining their efforts more critically toward recruiting and engaging with racially underrepresented populations, effectively transitioning from a research-on to a research-with relationship with individuals and families living with food allergy.</abstract><cop>United States</cop><pub>Elsevier Inc</pub><pmid>36241153</pmid><doi>10.1016/j.jaip.2022.09.041</doi><tpages>11</tpages><orcidid>https://orcid.org/0000-0002-5204-9098</orcidid><oa>free_for_read</oa></addata></record> |
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subjects | Delphi method Delphi Technique Ethnic disparities Food allergy Food Hypersensitivity - therapy Humans Participatory research Racial disparities Racial Groups |
title | Achieving Racial Representation in Food Allergy Research: A Modified Delphi Study |
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