Factors influencing quality of life in children with tracheostomy with emphasis on home care visits: a multi-centre investigation
Only a few studies have assessed the quality of life in children with tracheostomies. This study aimed to evaluate the quality of life and the factors influencing it in these children. This cross-sectional, two-centre study was conducted on paediatric patients living in the community with a tracheos...
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| Veröffentlicht in: | Journal of laryngology and otology 2023-10, Vol.137 (10), p.1102-1109 |
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| container_title | Journal of laryngology and otology |
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| creator | Mirza, B Marouf, A Abi Sheffah, F Marghlani, O Heaphy, J Alherabi, A Zawawi, F Alnoury, I Al-Khatib, T |
| description | Only a few studies have assessed the quality of life in children with tracheostomies. This study aimed to evaluate the quality of life and the factors influencing it in these children.
This cross-sectional, two-centre study was conducted on paediatric patients living in the community with a tracheostomy by using the Pediatric Quality of Life Inventory. Clinical and demographic information of patients, as well as parents' socioeconomic factors, were obtained.
A total of 53 patients met our inclusion criteria, and their parents agreed to participate. The mean age of patients was 6.85 years, and 21 patients were ventilator-dependent. The total paediatric health-related quality of life score was 59.28, and the family impact score was 68.49. In non-ventilator-dependent patients, multivariate analyses indicated that social functioning and health-related quality of life were negatively affected by the duration of tracheostomy. The Quality of Life of ventilator-dependent patients was influenced by care visits and the presence of pulmonary co-morbidities.
Children with tracheostomies have a lower quality of life than healthy children do. Routine care visits by a respiratory therapist and nurses yielded significantly improved quality of life in ventilator-dependent children. |
| doi_str_mv | 10.1017/S002221512200202X |
| format | Article |
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This cross-sectional, two-centre study was conducted on paediatric patients living in the community with a tracheostomy by using the Pediatric Quality of Life Inventory. Clinical and demographic information of patients, as well as parents' socioeconomic factors, were obtained.
A total of 53 patients met our inclusion criteria, and their parents agreed to participate. The mean age of patients was 6.85 years, and 21 patients were ventilator-dependent. The total paediatric health-related quality of life score was 59.28, and the family impact score was 68.49. In non-ventilator-dependent patients, multivariate analyses indicated that social functioning and health-related quality of life were negatively affected by the duration of tracheostomy. The Quality of Life of ventilator-dependent patients was influenced by care visits and the presence of pulmonary co-morbidities.
Children with tracheostomies have a lower quality of life than healthy children do. Routine care visits by a respiratory therapist and nurses yielded significantly improved quality of life in ventilator-dependent children.</description><identifier>ISSN: 0022-2151</identifier><identifier>EISSN: 1748-5460</identifier><identifier>DOI: 10.1017/S002221512200202X</identifier><identifier>PMID: 36089743</identifier><language>eng</language><publisher>Cambridge, UK: Cambridge University Press</publisher><subject>Airway management ; Children ; Children & youth ; Chronic illnesses ; Demography ; Disease ; Families & family life ; Main Article ; Morbidity ; Mortality ; Nurses ; Nursing care ; Ostomy ; Parents & parenting ; Patients ; Pediatrics ; Quality of life ; Questionnaires ; Socioeconomic factors ; Statistical analysis ; Tracheostomy ; Tracheotomy ; Ventilators</subject><ispartof>Journal of laryngology and otology, 2023-10, Vol.137 (10), p.1102-1109</ispartof><rights>Copyright © The Author(s), 2022. Published by Cambridge University Press on behalf of J.L.O. (1984) LIMITED</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c373t-63b2ad0c96fbd2ce9b11cbc91a972d7a00525e7bc84b0a257c3a7e96da816c303</citedby><cites>FETCH-LOGICAL-c373t-63b2ad0c96fbd2ce9b11cbc91a972d7a00525e7bc84b0a257c3a7e96da816c303</cites><orcidid>0000-0003-2512-407X ; 0000-0002-2267-9873</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.cambridge.org/core/product/identifier/S002221512200202X/type/journal_article$$EHTML$$P50$$Gcambridge$$H</linktohtml><link.rule.ids>164,314,780,784,27924,27925,55628</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/36089743$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Mirza, B</creatorcontrib><creatorcontrib>Marouf, A</creatorcontrib><creatorcontrib>Abi Sheffah, F</creatorcontrib><creatorcontrib>Marghlani, O</creatorcontrib><creatorcontrib>Heaphy, J</creatorcontrib><creatorcontrib>Alherabi, A</creatorcontrib><creatorcontrib>Zawawi, F</creatorcontrib><creatorcontrib>Alnoury, I</creatorcontrib><creatorcontrib>Al-Khatib, T</creatorcontrib><title>Factors influencing quality of life in children with tracheostomy with emphasis on home care visits: a multi-centre investigation</title><title>Journal of laryngology and otology</title><addtitle>J. Laryngol. Otol</addtitle><description>Only a few studies have assessed the quality of life in children with tracheostomies. This study aimed to evaluate the quality of life and the factors influencing it in these children.
This cross-sectional, two-centre study was conducted on paediatric patients living in the community with a tracheostomy by using the Pediatric Quality of Life Inventory. Clinical and demographic information of patients, as well as parents' socioeconomic factors, were obtained.
A total of 53 patients met our inclusion criteria, and their parents agreed to participate. The mean age of patients was 6.85 years, and 21 patients were ventilator-dependent. The total paediatric health-related quality of life score was 59.28, and the family impact score was 68.49. In non-ventilator-dependent patients, multivariate analyses indicated that social functioning and health-related quality of life were negatively affected by the duration of tracheostomy. The Quality of Life of ventilator-dependent patients was influenced by care visits and the presence of pulmonary co-morbidities.
Children with tracheostomies have a lower quality of life than healthy children do. Routine care visits by a respiratory therapist and nurses yielded significantly improved quality of life in ventilator-dependent children.</description><subject>Airway management</subject><subject>Children</subject><subject>Children & youth</subject><subject>Chronic illnesses</subject><subject>Demography</subject><subject>Disease</subject><subject>Families & family life</subject><subject>Main Article</subject><subject>Morbidity</subject><subject>Mortality</subject><subject>Nurses</subject><subject>Nursing care</subject><subject>Ostomy</subject><subject>Parents & parenting</subject><subject>Patients</subject><subject>Pediatrics</subject><subject>Quality of life</subject><subject>Questionnaires</subject><subject>Socioeconomic factors</subject><subject>Statistical analysis</subject><subject>Tracheostomy</subject><subject>Tracheotomy</subject><subject>Ventilators</subject><issn>0022-2151</issn><issn>1748-5460</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><recordid>eNp1kUFv1DAQhS1ERbeFH8AFWeLCJXRsJ3HCDVVtQarEAZC4RRNnsnGV2FvbKdpj_zmJdgGpiNNY8773xtJj7LWA9wKEvvgKIKUUhZByeYH88YxthM6rrMhLeM42q5yt-ik7i_EOYDGBfMFOVQlVrXO1YY_XaJIPkVvXjzM5Y92W38842rTnvuej7WnRuBns2AVy_KdNA08BzUA-Jj_tDxuadgNGG7l3fPATcYOB-IONNsUPHPk0j8lmhlwKa94DxWS3mKx3L9lJj2OkV8d5zr5fX327_JTdfrn5fPnxNjNKq5SVqpXYganLvu2koboVwrSmFlhr2WkEKGRBujVV3gLKQhuFmuqyw0qURoE6Z-8Oubvg7-flfjPZaGgc0ZGfYyO1UApKWa3o2yfonZ-DW37XyKqsRa5roRdKHCgTfIyB-mYX7IRh3who1n6af_pZPG-OyXM7UffH8buQBVDHUJzaYLst_b39_9hforScBQ</recordid><startdate>20231001</startdate><enddate>20231001</enddate><creator>Mirza, B</creator><creator>Marouf, A</creator><creator>Abi Sheffah, F</creator><creator>Marghlani, O</creator><creator>Heaphy, J</creator><creator>Alherabi, A</creator><creator>Zawawi, F</creator><creator>Alnoury, I</creator><creator>Al-Khatib, T</creator><general>Cambridge University Press</general><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7TK</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>88I</scope><scope>8AF</scope><scope>8AO</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>HCIFZ</scope><scope>K9.</scope><scope>KB0</scope><scope>M0S</scope><scope>M1P</scope><scope>M2P</scope><scope>NAPCQ</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>Q9U</scope><scope>S0X</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0003-2512-407X</orcidid><orcidid>https://orcid.org/0000-0002-2267-9873</orcidid></search><sort><creationdate>20231001</creationdate><title>Factors influencing quality of life in children with tracheostomy with emphasis on home care visits: a multi-centre investigation</title><author>Mirza, B ; Marouf, A ; Abi Sheffah, F ; Marghlani, O ; Heaphy, J ; Alherabi, A ; Zawawi, F ; Alnoury, I ; Al-Khatib, T</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c373t-63b2ad0c96fbd2ce9b11cbc91a972d7a00525e7bc84b0a257c3a7e96da816c303</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>Airway management</topic><topic>Children</topic><topic>Children & youth</topic><topic>Chronic illnesses</topic><topic>Demography</topic><topic>Disease</topic><topic>Families & family life</topic><topic>Main Article</topic><topic>Morbidity</topic><topic>Mortality</topic><topic>Nurses</topic><topic>Nursing care</topic><topic>Ostomy</topic><topic>Parents & parenting</topic><topic>Patients</topic><topic>Pediatrics</topic><topic>Quality of life</topic><topic>Questionnaires</topic><topic>Socioeconomic factors</topic><topic>Statistical analysis</topic><topic>Tracheostomy</topic><topic>Tracheotomy</topic><topic>Ventilators</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Mirza, B</creatorcontrib><creatorcontrib>Marouf, A</creatorcontrib><creatorcontrib>Abi Sheffah, F</creatorcontrib><creatorcontrib>Marghlani, O</creatorcontrib><creatorcontrib>Heaphy, J</creatorcontrib><creatorcontrib>Alherabi, A</creatorcontrib><creatorcontrib>Zawawi, F</creatorcontrib><creatorcontrib>Alnoury, I</creatorcontrib><creatorcontrib>Al-Khatib, T</creatorcontrib><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Neurosciences Abstracts</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Science Database (Alumni Edition)</collection><collection>STEM Database</collection><collection>ProQuest Pharma Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>SciTech Premium Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Science Database</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central Basic</collection><collection>SIRS Editorial</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of laryngology and otology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Mirza, B</au><au>Marouf, A</au><au>Abi Sheffah, F</au><au>Marghlani, O</au><au>Heaphy, J</au><au>Alherabi, A</au><au>Zawawi, F</au><au>Alnoury, I</au><au>Al-Khatib, T</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Factors influencing quality of life in children with tracheostomy with emphasis on home care visits: a multi-centre investigation</atitle><jtitle>Journal of laryngology and otology</jtitle><addtitle>J. Laryngol. Otol</addtitle><date>2023-10-01</date><risdate>2023</risdate><volume>137</volume><issue>10</issue><spage>1102</spage><epage>1109</epage><pages>1102-1109</pages><issn>0022-2151</issn><eissn>1748-5460</eissn><abstract>Only a few studies have assessed the quality of life in children with tracheostomies. This study aimed to evaluate the quality of life and the factors influencing it in these children.
This cross-sectional, two-centre study was conducted on paediatric patients living in the community with a tracheostomy by using the Pediatric Quality of Life Inventory. Clinical and demographic information of patients, as well as parents' socioeconomic factors, were obtained.
A total of 53 patients met our inclusion criteria, and their parents agreed to participate. The mean age of patients was 6.85 years, and 21 patients were ventilator-dependent. The total paediatric health-related quality of life score was 59.28, and the family impact score was 68.49. In non-ventilator-dependent patients, multivariate analyses indicated that social functioning and health-related quality of life were negatively affected by the duration of tracheostomy. The Quality of Life of ventilator-dependent patients was influenced by care visits and the presence of pulmonary co-morbidities.
Children with tracheostomies have a lower quality of life than healthy children do. Routine care visits by a respiratory therapist and nurses yielded significantly improved quality of life in ventilator-dependent children.</abstract><cop>Cambridge, UK</cop><pub>Cambridge University Press</pub><pmid>36089743</pmid><doi>10.1017/S002221512200202X</doi><tpages>8</tpages><orcidid>https://orcid.org/0000-0003-2512-407X</orcidid><orcidid>https://orcid.org/0000-0002-2267-9873</orcidid></addata></record> |
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| identifier | ISSN: 0022-2151 |
| ispartof | Journal of laryngology and otology, 2023-10, Vol.137 (10), p.1102-1109 |
| issn | 0022-2151 1748-5460 |
| language | eng |
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| source | Cambridge University Press Journals Complete |
| subjects | Airway management Children Children & youth Chronic illnesses Demography Disease Families & family life Main Article Morbidity Mortality Nurses Nursing care Ostomy Parents & parenting Patients Pediatrics Quality of life Questionnaires Socioeconomic factors Statistical analysis Tracheostomy Tracheotomy Ventilators |
| title | Factors influencing quality of life in children with tracheostomy with emphasis on home care visits: a multi-centre investigation |
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