Why We Swab: A library of stories in stem cell donation
Background Stories are powerful in their ability to disseminate information in a meaningful way. We hypothesized that a stem cell donation story library optimized for social media could support the education and recruitment of committed unrelated hematopoietic stem cell donors from needed demographi...
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| Veröffentlicht in: | Transfusion (Philadelphia, Pa.) Pa.), 2022-10, Vol.62 (10), p.2095-2107 |
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| creator | Jagelaviciute, Gabriele Kum, Elena Li, Edward W. Rosenfeld, Aaron Williams, Kenneth Kandel, Rana DeGurse, Natalie Park, Brady Okonofua, Sylvia Sano, Lauren Gerofsky, Moriah Sharp, Alexander Hatkar, Rupal Thyagu, Santhosh Fingrut, Warren B. |
| description | Background
Stories are powerful in their ability to disseminate information in a meaningful way. We hypothesized that a stem cell donation story library optimized for social media could support the education and recruitment of committed unrelated hematopoietic stem cell donors from needed demographic groups.
Study Design and Methods
We developed Why We Swab, a library of stories on stem cell donation (facebook.com/WhyWeSwab; instagram.com/WhyWeSwab; twitter.com/WhyWeSwab), and evaluated its impact across social and traditional media as well as on eligible potential donors' knowledge and attitudes towards donation.
Results
As of December 2021, the library included 28 story arcs featuring 45 storytellers from diverse ancestral backgrounds, including 8 donor‐recipient stories. Overall, the stories reached >92,000 people across social media. Notably, stories were republished by 18 print/ broadcast media outlets in Canada and by major medical organizations. A series of stories shown to 33 eligible potential donors improved mean total scores on a donation knowledge test (64% to 85%, p |
| doi_str_mv | 10.1111/trf.17087 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_2709915818</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2723097469</sourcerecordid><originalsourceid>FETCH-LOGICAL-c3307-d86c355a269ad358cbc939968a0ceabf11bb8754ff3c5df0b2a791223e706ab33</originalsourceid><addsrcrecordid>eNp10MFKAzEUBdAgCtbqwj8IuNHF2JekmUzclWJVKAha6TIkmQSnTCc1mVL696bWlWA2yeK8cN9F6JrAPcln1Ed_TwRU4gQNCGeioFLyUzQAGJOCEEbP0UVKKwCgEsgAieXnHi8dft9p84AnuG1M1HGPg8epD7FxCTddfro1tq5tcR063Tehu0RnXrfJXf3eQ_Qxe1xMn4v569PLdDIvLGMgiroqLeNc01LqmvHKGiuZlGWlwTptPCHGVIKPvWeW1x4M1UISSpkTUGrD2BDdHv_dxPC1dalX6yYdkujOhW1SVICUhFekyvTmD12FbexyuqwoAynGpczq7qhsDClF59UmNuu8siKgDhWqXKH6qTDb0dHumtbt_4dq8TY7TnwDL2VwLw</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2723097469</pqid></control><display><type>article</type><title>Why We Swab: A library of stories in stem cell donation</title><source>Wiley Online Library Journals Frontfile Complete</source><creator>Jagelaviciute, Gabriele ; Kum, Elena ; Li, Edward W. ; Rosenfeld, Aaron ; Williams, Kenneth ; Kandel, Rana ; DeGurse, Natalie ; Park, Brady ; Okonofua, Sylvia ; Sano, Lauren ; Gerofsky, Moriah ; Sharp, Alexander ; Hatkar, Rupal ; Thyagu, Santhosh ; Fingrut, Warren B.</creator><creatorcontrib>Jagelaviciute, Gabriele ; Kum, Elena ; Li, Edward W. ; Rosenfeld, Aaron ; Williams, Kenneth ; Kandel, Rana ; DeGurse, Natalie ; Park, Brady ; Okonofua, Sylvia ; Sano, Lauren ; Gerofsky, Moriah ; Sharp, Alexander ; Hatkar, Rupal ; Thyagu, Santhosh ; Fingrut, Warren B.</creatorcontrib><description>Background
Stories are powerful in their ability to disseminate information in a meaningful way. We hypothesized that a stem cell donation story library optimized for social media could support the education and recruitment of committed unrelated hematopoietic stem cell donors from needed demographic groups.
Study Design and Methods
We developed Why We Swab, a library of stories on stem cell donation (facebook.com/WhyWeSwab; instagram.com/WhyWeSwab; twitter.com/WhyWeSwab), and evaluated its impact across social and traditional media as well as on eligible potential donors' knowledge and attitudes towards donation.
Results
As of December 2021, the library included 28 story arcs featuring 45 storytellers from diverse ancestral backgrounds, including 8 donor‐recipient stories. Overall, the stories reached >92,000 people across social media. Notably, stories were republished by 18 print/ broadcast media outlets in Canada and by major medical organizations. A series of stories shown to 33 eligible potential donors improved mean total scores on a donation knowledge test (64% to 85%, p < 0.001), reduced mean ambivalence scale scores (3.85 to 2.70, p < 0.001), and improved participants' willingness to register as donors (45% to 73%, p < 0.005). Data are also shown demonstrating that stakeholders valued the library and that its deployment was associated with improved donor recruitment outcomes in Canada.
Conclusion
Why We Swab is accessible and relevant to a wide audience, including stem cell donor registries and recruitment organizations seeking to improve their recruitment efforts as well as to blood and organ & tissue donation organizations who can adapt the Why We Swab model to their audiences.</description><identifier>ISSN: 0041-1132</identifier><identifier>EISSN: 1537-2995</identifier><identifier>DOI: 10.1111/trf.17087</identifier><language>eng</language><publisher>Hoboken, USA: John Wiley & Sons, Inc</publisher><subject>allogeneic ; Digital media ; donor ; donor recruitment ; education ; Hematopoietic stem cells ; Libraries ; Organizations ; social media ; Social networks ; Stem cells ; transplantation</subject><ispartof>Transfusion (Philadelphia, Pa.), 2022-10, Vol.62 (10), p.2095-2107</ispartof><rights>2022 AABB.</rights><rights>2022 AABB</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3307-d86c355a269ad358cbc939968a0ceabf11bb8754ff3c5df0b2a791223e706ab33</citedby><cites>FETCH-LOGICAL-c3307-d86c355a269ad358cbc939968a0ceabf11bb8754ff3c5df0b2a791223e706ab33</cites><orcidid>0000-0002-6548-2632 ; 0000-0001-6185-8551 ; 0000-0003-4144-8138 ; 0000-0002-5017-1583 ; 0000-0002-8264-8526</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Ftrf.17087$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Ftrf.17087$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27903,27904,45553,45554</link.rule.ids></links><search><creatorcontrib>Jagelaviciute, Gabriele</creatorcontrib><creatorcontrib>Kum, Elena</creatorcontrib><creatorcontrib>Li, Edward W.</creatorcontrib><creatorcontrib>Rosenfeld, Aaron</creatorcontrib><creatorcontrib>Williams, Kenneth</creatorcontrib><creatorcontrib>Kandel, Rana</creatorcontrib><creatorcontrib>DeGurse, Natalie</creatorcontrib><creatorcontrib>Park, Brady</creatorcontrib><creatorcontrib>Okonofua, Sylvia</creatorcontrib><creatorcontrib>Sano, Lauren</creatorcontrib><creatorcontrib>Gerofsky, Moriah</creatorcontrib><creatorcontrib>Sharp, Alexander</creatorcontrib><creatorcontrib>Hatkar, Rupal</creatorcontrib><creatorcontrib>Thyagu, Santhosh</creatorcontrib><creatorcontrib>Fingrut, Warren B.</creatorcontrib><title>Why We Swab: A library of stories in stem cell donation</title><title>Transfusion (Philadelphia, Pa.)</title><description>Background
Stories are powerful in their ability to disseminate information in a meaningful way. We hypothesized that a stem cell donation story library optimized for social media could support the education and recruitment of committed unrelated hematopoietic stem cell donors from needed demographic groups.
Study Design and Methods
We developed Why We Swab, a library of stories on stem cell donation (facebook.com/WhyWeSwab; instagram.com/WhyWeSwab; twitter.com/WhyWeSwab), and evaluated its impact across social and traditional media as well as on eligible potential donors' knowledge and attitudes towards donation.
Results
As of December 2021, the library included 28 story arcs featuring 45 storytellers from diverse ancestral backgrounds, including 8 donor‐recipient stories. Overall, the stories reached >92,000 people across social media. Notably, stories were republished by 18 print/ broadcast media outlets in Canada and by major medical organizations. A series of stories shown to 33 eligible potential donors improved mean total scores on a donation knowledge test (64% to 85%, p < 0.001), reduced mean ambivalence scale scores (3.85 to 2.70, p < 0.001), and improved participants' willingness to register as donors (45% to 73%, p < 0.005). Data are also shown demonstrating that stakeholders valued the library and that its deployment was associated with improved donor recruitment outcomes in Canada.
Conclusion
Why We Swab is accessible and relevant to a wide audience, including stem cell donor registries and recruitment organizations seeking to improve their recruitment efforts as well as to blood and organ & tissue donation organizations who can adapt the Why We Swab model to their audiences.</description><subject>allogeneic</subject><subject>Digital media</subject><subject>donor</subject><subject>donor recruitment</subject><subject>education</subject><subject>Hematopoietic stem cells</subject><subject>Libraries</subject><subject>Organizations</subject><subject>social media</subject><subject>Social networks</subject><subject>Stem cells</subject><subject>transplantation</subject><issn>0041-1132</issn><issn>1537-2995</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><recordid>eNp10MFKAzEUBdAgCtbqwj8IuNHF2JekmUzclWJVKAha6TIkmQSnTCc1mVL696bWlWA2yeK8cN9F6JrAPcln1Ed_TwRU4gQNCGeioFLyUzQAGJOCEEbP0UVKKwCgEsgAieXnHi8dft9p84AnuG1M1HGPg8epD7FxCTddfro1tq5tcR063Tehu0RnXrfJXf3eQ_Qxe1xMn4v569PLdDIvLGMgiroqLeNc01LqmvHKGiuZlGWlwTptPCHGVIKPvWeW1x4M1UISSpkTUGrD2BDdHv_dxPC1dalX6yYdkujOhW1SVICUhFekyvTmD12FbexyuqwoAynGpczq7qhsDClF59UmNuu8siKgDhWqXKH6qTDb0dHumtbt_4dq8TY7TnwDL2VwLw</recordid><startdate>202210</startdate><enddate>202210</enddate><creator>Jagelaviciute, Gabriele</creator><creator>Kum, Elena</creator><creator>Li, Edward W.</creator><creator>Rosenfeld, Aaron</creator><creator>Williams, Kenneth</creator><creator>Kandel, Rana</creator><creator>DeGurse, Natalie</creator><creator>Park, Brady</creator><creator>Okonofua, Sylvia</creator><creator>Sano, Lauren</creator><creator>Gerofsky, Moriah</creator><creator>Sharp, Alexander</creator><creator>Hatkar, Rupal</creator><creator>Thyagu, Santhosh</creator><creator>Fingrut, Warren B.</creator><general>John Wiley & Sons, Inc</general><general>Wiley Subscription Services, Inc</general><scope>AAYXX</scope><scope>CITATION</scope><scope>7QO</scope><scope>7U9</scope><scope>8FD</scope><scope>FR3</scope><scope>H94</scope><scope>K9.</scope><scope>P64</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-6548-2632</orcidid><orcidid>https://orcid.org/0000-0001-6185-8551</orcidid><orcidid>https://orcid.org/0000-0003-4144-8138</orcidid><orcidid>https://orcid.org/0000-0002-5017-1583</orcidid><orcidid>https://orcid.org/0000-0002-8264-8526</orcidid></search><sort><creationdate>202210</creationdate><title>Why We Swab: A library of stories in stem cell donation</title><author>Jagelaviciute, Gabriele ; Kum, Elena ; Li, Edward W. ; Rosenfeld, Aaron ; Williams, Kenneth ; Kandel, Rana ; DeGurse, Natalie ; Park, Brady ; Okonofua, Sylvia ; Sano, Lauren ; Gerofsky, Moriah ; Sharp, Alexander ; Hatkar, Rupal ; Thyagu, Santhosh ; Fingrut, Warren B.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3307-d86c355a269ad358cbc939968a0ceabf11bb8754ff3c5df0b2a791223e706ab33</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>allogeneic</topic><topic>Digital media</topic><topic>donor</topic><topic>donor recruitment</topic><topic>education</topic><topic>Hematopoietic stem cells</topic><topic>Libraries</topic><topic>Organizations</topic><topic>social media</topic><topic>Social networks</topic><topic>Stem cells</topic><topic>transplantation</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Jagelaviciute, Gabriele</creatorcontrib><creatorcontrib>Kum, Elena</creatorcontrib><creatorcontrib>Li, Edward W.</creatorcontrib><creatorcontrib>Rosenfeld, Aaron</creatorcontrib><creatorcontrib>Williams, Kenneth</creatorcontrib><creatorcontrib>Kandel, Rana</creatorcontrib><creatorcontrib>DeGurse, Natalie</creatorcontrib><creatorcontrib>Park, Brady</creatorcontrib><creatorcontrib>Okonofua, Sylvia</creatorcontrib><creatorcontrib>Sano, Lauren</creatorcontrib><creatorcontrib>Gerofsky, Moriah</creatorcontrib><creatorcontrib>Sharp, Alexander</creatorcontrib><creatorcontrib>Hatkar, Rupal</creatorcontrib><creatorcontrib>Thyagu, Santhosh</creatorcontrib><creatorcontrib>Fingrut, Warren B.</creatorcontrib><collection>CrossRef</collection><collection>Biotechnology Research Abstracts</collection><collection>Virology and AIDS Abstracts</collection><collection>Technology Research Database</collection><collection>Engineering Research Database</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>MEDLINE - Academic</collection><jtitle>Transfusion (Philadelphia, Pa.)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Jagelaviciute, Gabriele</au><au>Kum, Elena</au><au>Li, Edward W.</au><au>Rosenfeld, Aaron</au><au>Williams, Kenneth</au><au>Kandel, Rana</au><au>DeGurse, Natalie</au><au>Park, Brady</au><au>Okonofua, Sylvia</au><au>Sano, Lauren</au><au>Gerofsky, Moriah</au><au>Sharp, Alexander</au><au>Hatkar, Rupal</au><au>Thyagu, Santhosh</au><au>Fingrut, Warren B.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Why We Swab: A library of stories in stem cell donation</atitle><jtitle>Transfusion (Philadelphia, Pa.)</jtitle><date>2022-10</date><risdate>2022</risdate><volume>62</volume><issue>10</issue><spage>2095</spage><epage>2107</epage><pages>2095-2107</pages><issn>0041-1132</issn><eissn>1537-2995</eissn><abstract>Background
Stories are powerful in their ability to disseminate information in a meaningful way. We hypothesized that a stem cell donation story library optimized for social media could support the education and recruitment of committed unrelated hematopoietic stem cell donors from needed demographic groups.
Study Design and Methods
We developed Why We Swab, a library of stories on stem cell donation (facebook.com/WhyWeSwab; instagram.com/WhyWeSwab; twitter.com/WhyWeSwab), and evaluated its impact across social and traditional media as well as on eligible potential donors' knowledge and attitudes towards donation.
Results
As of December 2021, the library included 28 story arcs featuring 45 storytellers from diverse ancestral backgrounds, including 8 donor‐recipient stories. Overall, the stories reached >92,000 people across social media. Notably, stories were republished by 18 print/ broadcast media outlets in Canada and by major medical organizations. A series of stories shown to 33 eligible potential donors improved mean total scores on a donation knowledge test (64% to 85%, p < 0.001), reduced mean ambivalence scale scores (3.85 to 2.70, p < 0.001), and improved participants' willingness to register as donors (45% to 73%, p < 0.005). Data are also shown demonstrating that stakeholders valued the library and that its deployment was associated with improved donor recruitment outcomes in Canada.
Conclusion
Why We Swab is accessible and relevant to a wide audience, including stem cell donor registries and recruitment organizations seeking to improve their recruitment efforts as well as to blood and organ & tissue donation organizations who can adapt the Why We Swab model to their audiences.</abstract><cop>Hoboken, USA</cop><pub>John Wiley & Sons, Inc</pub><doi>10.1111/trf.17087</doi><tpages>13</tpages><orcidid>https://orcid.org/0000-0002-6548-2632</orcidid><orcidid>https://orcid.org/0000-0001-6185-8551</orcidid><orcidid>https://orcid.org/0000-0003-4144-8138</orcidid><orcidid>https://orcid.org/0000-0002-5017-1583</orcidid><orcidid>https://orcid.org/0000-0002-8264-8526</orcidid></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0041-1132 |
| ispartof | Transfusion (Philadelphia, Pa.), 2022-10, Vol.62 (10), p.2095-2107 |
| issn | 0041-1132 1537-2995 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_2709915818 |
| source | Wiley Online Library Journals Frontfile Complete |
| subjects | allogeneic Digital media donor donor recruitment education Hematopoietic stem cells Libraries Organizations social media Social networks Stem cells transplantation |
| title | Why We Swab: A library of stories in stem cell donation |
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