Generic Health-Related Quality of Life Utility Measure for Preschool Children (Health Utilities Preschool): Design, Development, and Properties
Health Utilities Preschool (HuPS) was developed to fill the need for a generic preference-based measure (GPM) applicable in early childhood. A GPM has all the properties for higher-order summary measures, such as quality-adjusted life-years, required to inform important policy decisions regarding he...
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| Veröffentlicht in: | Value in health 2023-02, Vol.26 (2), p.251-260 |
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| creator | Furlong, William Rae, Charlene Feeny, David Ghotra, Satvinder Breakey, Vicky R. Carter, Teresa Pai, Nikhil Pullenayegum, Eleanor Xie, Feng Barr, Ronald |
| description | Health Utilities Preschool (HuPS) was developed to fill the need for a generic preference-based measure (GPM) applicable in early childhood. A GPM has all the properties for higher-order summary measures, such as quality-adjusted life-years, required to inform important policy decisions regarding health and healthcare services.
Development was in accordance with published standards for a GPM, statistical procedures, and modeling. HuPS incorporates key components of 2 existing measurement systems: Health Status Classification System for Preschool Children and Health Utilities Index Mark 3 (HUI3). The study included a series of 4 measurement surveys: definitional, adaptational, quantificational, and evaluational health-related quality of life (HRQL). HuPS measurements were evaluated for reliability, validity, interpretability, and acceptability.
Definitional measurements identified 8 Health Status Classification System for Preschool Children attributes in common with HUI3 (vision, hearing, speech, ambulation, dexterity, emotion, cognition, and pain and discomfort), making the HUI3 scoring equation commensurate with HuPS health states. Adaptational measurements informed the content of attribute-level descriptions (n = 35). Quantificational measurements determined level scoring coefficients. HRQL scoring inter-rater reliability (intraclass correlation coefficient = 0.79) was excellent. Continuity of HRQL scoring with HUI3 was reliable (intraclass correlation coefficient = 0.80, P < .001) and valid (mean absolute difference = 0.016, P = .396).
HuPS is an acceptable, reliable, and valid GPM. HRQL scoring is continuous with HUI3. Continuity expands the applicability of GPM (HUI3) scoring to include subjects as young as 2 years of age. Widespread applications of HuPS would inform important health policy and management decisions as HUI3 does for older subjects.
•This article describes the development of a new generic preference-based measurement (GPM) system: Health Utilities Pre-School (HuPS). HuPS fills the void for a reliable and valid GPM system applicable to children at 2 to 4 years of age. GPM provides scores of health-related quality of life to inform important policy decisions considering the effectiveness and cost-effectiveness of healthcare services and has the properties required for higher-order summary measures such as quality-adjusted life-years.•HuPS scores of health-related quality of life are reliable and valid. HuPS measurements are commensurate a |
| doi_str_mv | 10.1016/j.jval.2022.07.015 |
| format | Article |
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Development was in accordance with published standards for a GPM, statistical procedures, and modeling. HuPS incorporates key components of 2 existing measurement systems: Health Status Classification System for Preschool Children and Health Utilities Index Mark 3 (HUI3). The study included a series of 4 measurement surveys: definitional, adaptational, quantificational, and evaluational health-related quality of life (HRQL). HuPS measurements were evaluated for reliability, validity, interpretability, and acceptability.
Definitional measurements identified 8 Health Status Classification System for Preschool Children attributes in common with HUI3 (vision, hearing, speech, ambulation, dexterity, emotion, cognition, and pain and discomfort), making the HUI3 scoring equation commensurate with HuPS health states. Adaptational measurements informed the content of attribute-level descriptions (n = 35). Quantificational measurements determined level scoring coefficients. HRQL scoring inter-rater reliability (intraclass correlation coefficient = 0.79) was excellent. Continuity of HRQL scoring with HUI3 was reliable (intraclass correlation coefficient = 0.80, P < .001) and valid (mean absolute difference = 0.016, P = .396).
HuPS is an acceptable, reliable, and valid GPM. HRQL scoring is continuous with HUI3. Continuity expands the applicability of GPM (HUI3) scoring to include subjects as young as 2 years of age. Widespread applications of HuPS would inform important health policy and management decisions as HUI3 does for older subjects.
•This article describes the development of a new generic preference-based measurement (GPM) system: Health Utilities Pre-School (HuPS). HuPS fills the void for a reliable and valid GPM system applicable to children at 2 to 4 years of age. GPM provides scores of health-related quality of life to inform important policy decisions considering the effectiveness and cost-effectiveness of healthcare services and has the properties required for higher-order summary measures such as quality-adjusted life-years.•HuPS scores of health-related quality of life are reliable and valid. HuPS measurements are commensurate and continuous with those of Health Utilities Index Mark 3 (HUI3). HuPS expands the applicability of HUI3-based scoring to include subjects as young as 2 years of age. HuPS, in combination with HUI3, makes HUI3-based scoring applicable to the greatest range of age applicability among leading GPM systems: from 2 years of age.•HUI3 is the most frequently used GPM system for children worldwide. Consequently, HuPS has the potential to be widely used in numerous languages and countries as HUI3 does for older subjects.</description><identifier>ISSN: 1098-3015</identifier><identifier>EISSN: 1524-4733</identifier><identifier>DOI: 10.1016/j.jval.2022.07.015</identifier><identifier>PMID: 36031479</identifier><language>eng</language><publisher>United States: Elsevier Inc</publisher><subject>Child, Preschool ; Educational Status ; generic ; health measure ; Health Status ; Health Status Indicators ; health-related quality of life ; Humans ; multiattribute ; preschool children ; Quality of Life ; Reproducibility of Results ; Surveys and Questionnaires ; utilities</subject><ispartof>Value in health, 2023-02, Vol.26 (2), p.251-260</ispartof><rights>2022 International Society for Pharmacoeconomics and Outcomes Research, Inc.</rights><rights>Copyright © 2022 International Society for Pharmacoeconomics and Outcomes Research, Inc. Published by Elsevier Inc. All rights reserved.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c400t-28221da3b09709678f258296d5629f9cb067c55fe6846cef6b772664104766523</citedby><cites>FETCH-LOGICAL-c400t-28221da3b09709678f258296d5629f9cb067c55fe6846cef6b772664104766523</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.sciencedirect.com/science/article/pii/S1098301522021118$$EHTML$$P50$$Gelsevier$$Hfree_for_read</linktohtml><link.rule.ids>314,776,780,3537,27901,27902,65534</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/36031479$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Furlong, William</creatorcontrib><creatorcontrib>Rae, Charlene</creatorcontrib><creatorcontrib>Feeny, David</creatorcontrib><creatorcontrib>Ghotra, Satvinder</creatorcontrib><creatorcontrib>Breakey, Vicky R.</creatorcontrib><creatorcontrib>Carter, Teresa</creatorcontrib><creatorcontrib>Pai, Nikhil</creatorcontrib><creatorcontrib>Pullenayegum, Eleanor</creatorcontrib><creatorcontrib>Xie, Feng</creatorcontrib><creatorcontrib>Barr, Ronald</creatorcontrib><title>Generic Health-Related Quality of Life Utility Measure for Preschool Children (Health Utilities Preschool): Design, Development, and Properties</title><title>Value in health</title><addtitle>Value Health</addtitle><description>Health Utilities Preschool (HuPS) was developed to fill the need for a generic preference-based measure (GPM) applicable in early childhood. A GPM has all the properties for higher-order summary measures, such as quality-adjusted life-years, required to inform important policy decisions regarding health and healthcare services.
Development was in accordance with published standards for a GPM, statistical procedures, and modeling. HuPS incorporates key components of 2 existing measurement systems: Health Status Classification System for Preschool Children and Health Utilities Index Mark 3 (HUI3). The study included a series of 4 measurement surveys: definitional, adaptational, quantificational, and evaluational health-related quality of life (HRQL). HuPS measurements were evaluated for reliability, validity, interpretability, and acceptability.
Definitional measurements identified 8 Health Status Classification System for Preschool Children attributes in common with HUI3 (vision, hearing, speech, ambulation, dexterity, emotion, cognition, and pain and discomfort), making the HUI3 scoring equation commensurate with HuPS health states. Adaptational measurements informed the content of attribute-level descriptions (n = 35). Quantificational measurements determined level scoring coefficients. HRQL scoring inter-rater reliability (intraclass correlation coefficient = 0.79) was excellent. Continuity of HRQL scoring with HUI3 was reliable (intraclass correlation coefficient = 0.80, P < .001) and valid (mean absolute difference = 0.016, P = .396).
HuPS is an acceptable, reliable, and valid GPM. HRQL scoring is continuous with HUI3. Continuity expands the applicability of GPM (HUI3) scoring to include subjects as young as 2 years of age. Widespread applications of HuPS would inform important health policy and management decisions as HUI3 does for older subjects.
•This article describes the development of a new generic preference-based measurement (GPM) system: Health Utilities Pre-School (HuPS). HuPS fills the void for a reliable and valid GPM system applicable to children at 2 to 4 years of age. GPM provides scores of health-related quality of life to inform important policy decisions considering the effectiveness and cost-effectiveness of healthcare services and has the properties required for higher-order summary measures such as quality-adjusted life-years.•HuPS scores of health-related quality of life are reliable and valid. HuPS measurements are commensurate and continuous with those of Health Utilities Index Mark 3 (HUI3). HuPS expands the applicability of HUI3-based scoring to include subjects as young as 2 years of age. HuPS, in combination with HUI3, makes HUI3-based scoring applicable to the greatest range of age applicability among leading GPM systems: from 2 years of age.•HUI3 is the most frequently used GPM system for children worldwide. Consequently, HuPS has the potential to be widely used in numerous languages and countries as HUI3 does for older subjects.</description><subject>Child, Preschool</subject><subject>Educational Status</subject><subject>generic</subject><subject>health measure</subject><subject>Health Status</subject><subject>Health Status Indicators</subject><subject>health-related quality of life</subject><subject>Humans</subject><subject>multiattribute</subject><subject>preschool children</subject><subject>Quality of Life</subject><subject>Reproducibility of Results</subject><subject>Surveys and Questionnaires</subject><subject>utilities</subject><issn>1098-3015</issn><issn>1524-4733</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2023</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kc1uEzEUhS0EoqXwAiyQl0XqDNeesT2D2KAALVIQP6Jry_FcE0fOOLVnIvUpeGUcEmDH6v7ou0e65xDynEHNgMlXm3qzN6HmwHkNqgYmHpBzJnhbtappHpYe-q5qyv6MPMl5AwCy4eIxOWskNKxV_Tn5eY0jJm_pDZowratvGMyEA_06m-CnexodXXqH9Hbyv-dPaPKckLqY6JeE2a5jDHSx9mFIONLLo8wJ95j_QS9f03eY_Y_xqtQ9hrjb4jhdUTMOBYo7TAf-KXnkTMj47FQvyO2H998XN9Xy8_XHxdtlZVuAqeId52wwzQp6Bb1UneOi470chOS96-0KpLJCOJRdKy06uVKKS9kyaJWUgjcX5PKou0vxbsY86a3PFkMwI8Y5a65AdaqToisoP6I2xZwTOr1LfmvSvWagD0HojT4EoQ9BaFC6GF6OXpz059UWh78nf5wvwJsjgOXLvceks_U4Whx8QjvpIfr_6f8ChBeZcw</recordid><startdate>202302</startdate><enddate>202302</enddate><creator>Furlong, William</creator><creator>Rae, Charlene</creator><creator>Feeny, David</creator><creator>Ghotra, Satvinder</creator><creator>Breakey, Vicky R.</creator><creator>Carter, Teresa</creator><creator>Pai, Nikhil</creator><creator>Pullenayegum, Eleanor</creator><creator>Xie, Feng</creator><creator>Barr, Ronald</creator><general>Elsevier Inc</general><scope>6I.</scope><scope>AAFTH</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>202302</creationdate><title>Generic Health-Related Quality of Life Utility Measure for Preschool Children (Health Utilities Preschool): Design, Development, and Properties</title><author>Furlong, William ; Rae, Charlene ; Feeny, David ; Ghotra, Satvinder ; Breakey, Vicky R. ; Carter, Teresa ; Pai, Nikhil ; Pullenayegum, Eleanor ; Xie, Feng ; Barr, Ronald</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c400t-28221da3b09709678f258296d5629f9cb067c55fe6846cef6b772664104766523</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2023</creationdate><topic>Child, Preschool</topic><topic>Educational Status</topic><topic>generic</topic><topic>health measure</topic><topic>Health Status</topic><topic>Health Status Indicators</topic><topic>health-related quality of life</topic><topic>Humans</topic><topic>multiattribute</topic><topic>preschool children</topic><topic>Quality of Life</topic><topic>Reproducibility of Results</topic><topic>Surveys and Questionnaires</topic><topic>utilities</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Furlong, William</creatorcontrib><creatorcontrib>Rae, Charlene</creatorcontrib><creatorcontrib>Feeny, David</creatorcontrib><creatorcontrib>Ghotra, Satvinder</creatorcontrib><creatorcontrib>Breakey, Vicky R.</creatorcontrib><creatorcontrib>Carter, Teresa</creatorcontrib><creatorcontrib>Pai, Nikhil</creatorcontrib><creatorcontrib>Pullenayegum, Eleanor</creatorcontrib><creatorcontrib>Xie, Feng</creatorcontrib><creatorcontrib>Barr, Ronald</creatorcontrib><collection>ScienceDirect Open Access Titles</collection><collection>Elsevier:ScienceDirect:Open Access</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Value in health</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Furlong, William</au><au>Rae, Charlene</au><au>Feeny, David</au><au>Ghotra, Satvinder</au><au>Breakey, Vicky R.</au><au>Carter, Teresa</au><au>Pai, Nikhil</au><au>Pullenayegum, Eleanor</au><au>Xie, Feng</au><au>Barr, Ronald</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Generic Health-Related Quality of Life Utility Measure for Preschool Children (Health Utilities Preschool): Design, Development, and Properties</atitle><jtitle>Value in health</jtitle><addtitle>Value Health</addtitle><date>2023-02</date><risdate>2023</risdate><volume>26</volume><issue>2</issue><spage>251</spage><epage>260</epage><pages>251-260</pages><issn>1098-3015</issn><eissn>1524-4733</eissn><abstract>Health Utilities Preschool (HuPS) was developed to fill the need for a generic preference-based measure (GPM) applicable in early childhood. A GPM has all the properties for higher-order summary measures, such as quality-adjusted life-years, required to inform important policy decisions regarding health and healthcare services.
Development was in accordance with published standards for a GPM, statistical procedures, and modeling. HuPS incorporates key components of 2 existing measurement systems: Health Status Classification System for Preschool Children and Health Utilities Index Mark 3 (HUI3). The study included a series of 4 measurement surveys: definitional, adaptational, quantificational, and evaluational health-related quality of life (HRQL). HuPS measurements were evaluated for reliability, validity, interpretability, and acceptability.
Definitional measurements identified 8 Health Status Classification System for Preschool Children attributes in common with HUI3 (vision, hearing, speech, ambulation, dexterity, emotion, cognition, and pain and discomfort), making the HUI3 scoring equation commensurate with HuPS health states. Adaptational measurements informed the content of attribute-level descriptions (n = 35). Quantificational measurements determined level scoring coefficients. HRQL scoring inter-rater reliability (intraclass correlation coefficient = 0.79) was excellent. Continuity of HRQL scoring with HUI3 was reliable (intraclass correlation coefficient = 0.80, P < .001) and valid (mean absolute difference = 0.016, P = .396).
HuPS is an acceptable, reliable, and valid GPM. HRQL scoring is continuous with HUI3. Continuity expands the applicability of GPM (HUI3) scoring to include subjects as young as 2 years of age. Widespread applications of HuPS would inform important health policy and management decisions as HUI3 does for older subjects.
•This article describes the development of a new generic preference-based measurement (GPM) system: Health Utilities Pre-School (HuPS). HuPS fills the void for a reliable and valid GPM system applicable to children at 2 to 4 years of age. GPM provides scores of health-related quality of life to inform important policy decisions considering the effectiveness and cost-effectiveness of healthcare services and has the properties required for higher-order summary measures such as quality-adjusted life-years.•HuPS scores of health-related quality of life are reliable and valid. HuPS measurements are commensurate and continuous with those of Health Utilities Index Mark 3 (HUI3). HuPS expands the applicability of HUI3-based scoring to include subjects as young as 2 years of age. HuPS, in combination with HUI3, makes HUI3-based scoring applicable to the greatest range of age applicability among leading GPM systems: from 2 years of age.•HUI3 is the most frequently used GPM system for children worldwide. Consequently, HuPS has the potential to be widely used in numerous languages and countries as HUI3 does for older subjects.</abstract><cop>United States</cop><pub>Elsevier Inc</pub><pmid>36031479</pmid><doi>10.1016/j.jval.2022.07.015</doi><tpages>10</tpages><oa>free_for_read</oa></addata></record> |
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| subjects | Child, Preschool Educational Status generic health measure Health Status Health Status Indicators health-related quality of life Humans multiattribute preschool children Quality of Life Reproducibility of Results Surveys and Questionnaires utilities |
| title | Generic Health-Related Quality of Life Utility Measure for Preschool Children (Health Utilities Preschool): Design, Development, and Properties |
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