Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review
The importance of patient and public involvement (PPI) is recognized by agencies involved in health technology assessment (HTA) and guideline development. However, a comprehensive overview of the underlying PPI principles, values, strategies, and frameworks is lacking. This scoping review aimed to s...
Gespeichert in:
| Veröffentlicht in: | International journal of technology assessment in health care 2022-06, Vol.38 (1), p.e46-e46, Article e46 |
|---|---|
| Hauptverfasser: | , , , , , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | e46 |
|---|---|
| container_issue | 1 |
| container_start_page | e46 |
| container_title | International journal of technology assessment in health care |
| container_volume | 38 |
| creator | Pinho-Gomes, Ana-Catarina Stone, James Shaw, Toni Heath, Andrea Cowl, Jane Norburn, Laura Thomas, Victoria Scott, Sarah |
| description | The importance of patient and public involvement (PPI) is recognized by agencies involved in health technology assessment (HTA) and guideline development. However, a comprehensive overview of the underlying PPI principles, values, strategies, and frameworks is lacking. This scoping review aimed to summarize the available evidence on principles, values, frameworks, and strategies underpinning PPI carried out by agencies involved in HTA and guideline development. A total of twelve records were included, of which four referred to guidelines and eight to HTA. Overall, this review demonstrated a lack of consistency in the definition and application of the concepts of values and principles to PPI in the context of guideline development and HTA. There was significant overlap between values and principles, with some broad themes emerging, such as representation, transparency, relevance, equity, fairness, and reconciling different types of knowledge. Frameworks were typically based on the stages of guideline development or HTA, despite heterogeneity in how stages were labeled and described. Strategies were also mapped to the stages of guideline development and HTA and varied substantially depending on the context and setting. Both strategies and frameworks demonstrated patients and the public can be involved, albeit to a variable extent, throughout the stages of guideline development and HTA. However, frameworks often failed to explicitly link the values and principles with the HTA and guideline development stages through actionable PPI strategies. Further research is warranted to better understand the values, principles, and frameworks underpinning PPI in guideline development and HTA. |
| doi_str_mv | 10.1017/S0266462322000289 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_2673358171</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><cupid>10_1017_S0266462322000289</cupid><sourcerecordid>2673358171</sourcerecordid><originalsourceid>FETCH-LOGICAL-c416t-50df9d23a62593ad498ae43046c9a72c883baac88ea8b1e55413755ba954fb7d3</originalsourceid><addsrcrecordid>eNp1kcuO1DAQRS0EYpqBD2CDLLFhQcDPPNihES9pJBY8tlElrqQ9OHawkx71__ChxEwPSCBWVfI995ZVRchjzl5wxquXn5goS1UKKQRjTNTNHbLjquJFKVV9l-yyXGT9jDxI6YoxLlnD7pMzqUutlVI78uMruBXTczpH63s7u9ynJcKCo809eEOHCBNeh_gt0dUbjO5o_UhnWCz65Rcxr52zPbX-ENwBp_xsPd0juGVPF-z3PrgwHimkhClNt7ZxtQad9UgNHtCFOSuvKNDUhznPiHiweP2Q3BvAJXx0qufky9s3ny_eF5cf3324eH1Z9IqXS6GZGRojJJRCNxKMampAJZkq-wYq0de17AC2glB3HLcNcFlp3UGj1dBVRp6TZze5cwzft60s7WRTj86Bx7CmVpSVlLrmFd_Qp3-hV2GNfvtdpoSWFW_kRvEbqo8hpYhDu615gnhsOWvzCdt_Trh5npyS125C89txe7MNkKdQmLpozYh_Zv8_9icZf6ku</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2672537193</pqid></control><display><type>article</type><title>Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review</title><source>MEDLINE</source><source>Cambridge Journals</source><creator>Pinho-Gomes, Ana-Catarina ; Stone, James ; Shaw, Toni ; Heath, Andrea ; Cowl, Jane ; Norburn, Laura ; Thomas, Victoria ; Scott, Sarah</creator><creatorcontrib>Pinho-Gomes, Ana-Catarina ; Stone, James ; Shaw, Toni ; Heath, Andrea ; Cowl, Jane ; Norburn, Laura ; Thomas, Victoria ; Scott, Sarah</creatorcontrib><description>The importance of patient and public involvement (PPI) is recognized by agencies involved in health technology assessment (HTA) and guideline development. However, a comprehensive overview of the underlying PPI principles, values, strategies, and frameworks is lacking. This scoping review aimed to summarize the available evidence on principles, values, frameworks, and strategies underpinning PPI carried out by agencies involved in HTA and guideline development. A total of twelve records were included, of which four referred to guidelines and eight to HTA. Overall, this review demonstrated a lack of consistency in the definition and application of the concepts of values and principles to PPI in the context of guideline development and HTA. There was significant overlap between values and principles, with some broad themes emerging, such as representation, transparency, relevance, equity, fairness, and reconciling different types of knowledge. Frameworks were typically based on the stages of guideline development or HTA, despite heterogeneity in how stages were labeled and described. Strategies were also mapped to the stages of guideline development and HTA and varied substantially depending on the context and setting. Both strategies and frameworks demonstrated patients and the public can be involved, albeit to a variable extent, throughout the stages of guideline development and HTA. However, frameworks often failed to explicitly link the values and principles with the HTA and guideline development stages through actionable PPI strategies. Further research is warranted to better understand the values, principles, and frameworks underpinning PPI in guideline development and HTA.</description><identifier>ISSN: 0266-4623</identifier><identifier>EISSN: 1471-6348</identifier><identifier>DOI: 10.1017/S0266462322000289</identifier><identifier>PMID: 35655444</identifier><language>eng</language><publisher>New York, USA: Cambridge University Press</publisher><subject>Automation ; Bibliographic data bases ; Clinical practice guidelines ; Consumer organizations ; Context ; Grey literature ; Health technology assessment ; Heterogeneity ; Humans ; Medical technology ; Patient Participation ; Patients ; Public health ; Public involvement ; Public opinion ; Systematic review ; Technology assessment ; Technology Assessment, Biomedical</subject><ispartof>International journal of technology assessment in health care, 2022-06, Vol.38 (1), p.e46-e46, Article e46</ispartof><rights>The Author(s), 2022. Published by Cambridge University Press</rights><rights>The Author(s), 2022. Published by Cambridge University Press. This work is licensed under the Creative Commons Attribution License http://creativecommons.org/licenses/by/4.0 (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c416t-50df9d23a62593ad498ae43046c9a72c883baac88ea8b1e55413755ba954fb7d3</citedby><cites>FETCH-LOGICAL-c416t-50df9d23a62593ad498ae43046c9a72c883baac88ea8b1e55413755ba954fb7d3</cites><orcidid>0000-0002-8168-7064 ; 0000-0001-9895-1493 ; 0000-0003-1626-1224</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.cambridge.org/core/product/identifier/S0266462322000289/type/journal_article$$EHTML$$P50$$Gcambridge$$Hfree_for_read</linktohtml><link.rule.ids>164,314,776,780,27903,27904,55607</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/35655444$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Pinho-Gomes, Ana-Catarina</creatorcontrib><creatorcontrib>Stone, James</creatorcontrib><creatorcontrib>Shaw, Toni</creatorcontrib><creatorcontrib>Heath, Andrea</creatorcontrib><creatorcontrib>Cowl, Jane</creatorcontrib><creatorcontrib>Norburn, Laura</creatorcontrib><creatorcontrib>Thomas, Victoria</creatorcontrib><creatorcontrib>Scott, Sarah</creatorcontrib><title>Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review</title><title>International journal of technology assessment in health care</title><addtitle>Int J Technol Assess Health Care</addtitle><description>The importance of patient and public involvement (PPI) is recognized by agencies involved in health technology assessment (HTA) and guideline development. However, a comprehensive overview of the underlying PPI principles, values, strategies, and frameworks is lacking. This scoping review aimed to summarize the available evidence on principles, values, frameworks, and strategies underpinning PPI carried out by agencies involved in HTA and guideline development. A total of twelve records were included, of which four referred to guidelines and eight to HTA. Overall, this review demonstrated a lack of consistency in the definition and application of the concepts of values and principles to PPI in the context of guideline development and HTA. There was significant overlap between values and principles, with some broad themes emerging, such as representation, transparency, relevance, equity, fairness, and reconciling different types of knowledge. Frameworks were typically based on the stages of guideline development or HTA, despite heterogeneity in how stages were labeled and described. Strategies were also mapped to the stages of guideline development and HTA and varied substantially depending on the context and setting. Both strategies and frameworks demonstrated patients and the public can be involved, albeit to a variable extent, throughout the stages of guideline development and HTA. However, frameworks often failed to explicitly link the values and principles with the HTA and guideline development stages through actionable PPI strategies. Further research is warranted to better understand the values, principles, and frameworks underpinning PPI in guideline development and HTA.</description><subject>Automation</subject><subject>Bibliographic data bases</subject><subject>Clinical practice guidelines</subject><subject>Consumer organizations</subject><subject>Context</subject><subject>Grey literature</subject><subject>Health technology assessment</subject><subject>Heterogeneity</subject><subject>Humans</subject><subject>Medical technology</subject><subject>Patient Participation</subject><subject>Patients</subject><subject>Public health</subject><subject>Public involvement</subject><subject>Public opinion</subject><subject>Systematic review</subject><subject>Technology assessment</subject><subject>Technology Assessment, Biomedical</subject><issn>0266-4623</issn><issn>1471-6348</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><sourceid>IKXGN</sourceid><sourceid>EIF</sourceid><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><recordid>eNp1kcuO1DAQRS0EYpqBD2CDLLFhQcDPPNihES9pJBY8tlElrqQ9OHawkx71__ChxEwPSCBWVfI995ZVRchjzl5wxquXn5goS1UKKQRjTNTNHbLjquJFKVV9l-yyXGT9jDxI6YoxLlnD7pMzqUutlVI78uMruBXTczpH63s7u9ynJcKCo809eEOHCBNeh_gt0dUbjO5o_UhnWCz65Rcxr52zPbX-ENwBp_xsPd0juGVPF-z3PrgwHimkhClNt7ZxtQad9UgNHtCFOSuvKNDUhznPiHiweP2Q3BvAJXx0qufky9s3ny_eF5cf3324eH1Z9IqXS6GZGRojJJRCNxKMampAJZkq-wYq0de17AC2glB3HLcNcFlp3UGj1dBVRp6TZze5cwzft60s7WRTj86Bx7CmVpSVlLrmFd_Qp3-hV2GNfvtdpoSWFW_kRvEbqo8hpYhDu615gnhsOWvzCdt_Trh5npyS125C89txe7MNkKdQmLpozYh_Zv8_9icZf6ku</recordid><startdate>20220603</startdate><enddate>20220603</enddate><creator>Pinho-Gomes, Ana-Catarina</creator><creator>Stone, James</creator><creator>Shaw, Toni</creator><creator>Heath, Andrea</creator><creator>Cowl, Jane</creator><creator>Norburn, Laura</creator><creator>Thomas, Victoria</creator><creator>Scott, Sarah</creator><general>Cambridge University Press</general><scope>IKXGN</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7RV</scope><scope>7T5</scope><scope>7U5</scope><scope>7WY</scope><scope>7WZ</scope><scope>7X7</scope><scope>7XB</scope><scope>87Z</scope><scope>88C</scope><scope>88E</scope><scope>8C1</scope><scope>8FD</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8FL</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>BENPR</scope><scope>BEZIV</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FRNLG</scope><scope>FYUFA</scope><scope>F~G</scope><scope>GHDGH</scope><scope>H94</scope><scope>K60</scope><scope>K6~</scope><scope>K9.</scope><scope>KB0</scope><scope>L.-</scope><scope>L7M</scope><scope>M0C</scope><scope>M0S</scope><scope>M0T</scope><scope>M1P</scope><scope>NAPCQ</scope><scope>PQBIZ</scope><scope>PQBZA</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>Q9U</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-8168-7064</orcidid><orcidid>https://orcid.org/0000-0001-9895-1493</orcidid><orcidid>https://orcid.org/0000-0003-1626-1224</orcidid></search><sort><creationdate>20220603</creationdate><title>Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review</title><author>Pinho-Gomes, Ana-Catarina ; Stone, James ; Shaw, Toni ; Heath, Andrea ; Cowl, Jane ; Norburn, Laura ; Thomas, Victoria ; Scott, Sarah</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c416t-50df9d23a62593ad498ae43046c9a72c883baac88ea8b1e55413755ba954fb7d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>Automation</topic><topic>Bibliographic data bases</topic><topic>Clinical practice guidelines</topic><topic>Consumer organizations</topic><topic>Context</topic><topic>Grey literature</topic><topic>Health technology assessment</topic><topic>Heterogeneity</topic><topic>Humans</topic><topic>Medical technology</topic><topic>Patient Participation</topic><topic>Patients</topic><topic>Public health</topic><topic>Public involvement</topic><topic>Public opinion</topic><topic>Systematic review</topic><topic>Technology assessment</topic><topic>Technology Assessment, Biomedical</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Pinho-Gomes, Ana-Catarina</creatorcontrib><creatorcontrib>Stone, James</creatorcontrib><creatorcontrib>Shaw, Toni</creatorcontrib><creatorcontrib>Heath, Andrea</creatorcontrib><creatorcontrib>Cowl, Jane</creatorcontrib><creatorcontrib>Norburn, Laura</creatorcontrib><creatorcontrib>Thomas, Victoria</creatorcontrib><creatorcontrib>Scott, Sarah</creatorcontrib><collection>Cambridge Journals Open Access</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Immunology Abstracts</collection><collection>Solid State and Superconductivity Abstracts</collection><collection>ABI/INFORM Collection</collection><collection>ABI/INFORM Global (PDF only)</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>ABI/INFORM Global (Alumni Edition)</collection><collection>Healthcare Administration Database (Alumni)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Public Health Database</collection><collection>Technology Research Database</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ABI/INFORM Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>ProQuest Central</collection><collection>Business Premium Collection</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Business Premium Collection (Alumni)</collection><collection>Health Research Premium Collection</collection><collection>ABI/INFORM Global (Corporate)</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>ProQuest Business Collection (Alumni Edition)</collection><collection>ProQuest Business Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>ABI/INFORM Professional Advanced</collection><collection>Advanced Technologies Database with Aerospace</collection><collection>ABI/INFORM Global</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Healthcare Administration Database</collection><collection>Medical Database</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Business</collection><collection>ProQuest One Business (Alumni)</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><jtitle>International journal of technology assessment in health care</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Pinho-Gomes, Ana-Catarina</au><au>Stone, James</au><au>Shaw, Toni</au><au>Heath, Andrea</au><au>Cowl, Jane</au><au>Norburn, Laura</au><au>Thomas, Victoria</au><au>Scott, Sarah</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review</atitle><jtitle>International journal of technology assessment in health care</jtitle><addtitle>Int J Technol Assess Health Care</addtitle><date>2022-06-03</date><risdate>2022</risdate><volume>38</volume><issue>1</issue><spage>e46</spage><epage>e46</epage><pages>e46-e46</pages><artnum>e46</artnum><issn>0266-4623</issn><eissn>1471-6348</eissn><abstract>The importance of patient and public involvement (PPI) is recognized by agencies involved in health technology assessment (HTA) and guideline development. However, a comprehensive overview of the underlying PPI principles, values, strategies, and frameworks is lacking. This scoping review aimed to summarize the available evidence on principles, values, frameworks, and strategies underpinning PPI carried out by agencies involved in HTA and guideline development. A total of twelve records were included, of which four referred to guidelines and eight to HTA. Overall, this review demonstrated a lack of consistency in the definition and application of the concepts of values and principles to PPI in the context of guideline development and HTA. There was significant overlap between values and principles, with some broad themes emerging, such as representation, transparency, relevance, equity, fairness, and reconciling different types of knowledge. Frameworks were typically based on the stages of guideline development or HTA, despite heterogeneity in how stages were labeled and described. Strategies were also mapped to the stages of guideline development and HTA and varied substantially depending on the context and setting. Both strategies and frameworks demonstrated patients and the public can be involved, albeit to a variable extent, throughout the stages of guideline development and HTA. However, frameworks often failed to explicitly link the values and principles with the HTA and guideline development stages through actionable PPI strategies. Further research is warranted to better understand the values, principles, and frameworks underpinning PPI in guideline development and HTA.</abstract><cop>New York, USA</cop><pub>Cambridge University Press</pub><pmid>35655444</pmid><doi>10.1017/S0266462322000289</doi><tpages>7</tpages><orcidid>https://orcid.org/0000-0002-8168-7064</orcidid><orcidid>https://orcid.org/0000-0001-9895-1493</orcidid><orcidid>https://orcid.org/0000-0003-1626-1224</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0266-4623 |
| ispartof | International journal of technology assessment in health care, 2022-06, Vol.38 (1), p.e46-e46, Article e46 |
| issn | 0266-4623 1471-6348 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_2673358171 |
| source | MEDLINE; Cambridge Journals |
| subjects | Automation Bibliographic data bases Clinical practice guidelines Consumer organizations Context Grey literature Health technology assessment Heterogeneity Humans Medical technology Patient Participation Patients Public health Public involvement Public opinion Systematic review Technology assessment Technology Assessment, Biomedical |
| title | Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-23T02%3A58%3A06IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_cross&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Values,%20principles,%20strategies,%20and%20frameworks%20underlying%20patient%20and%20public%20involvement%20in%20health%20technology%20assessment%20and%20guideline%20development:%20a%20scoping%20review&rft.jtitle=International%20journal%20of%20technology%20assessment%20in%20health%20care&rft.au=Pinho-Gomes,%20Ana-Catarina&rft.date=2022-06-03&rft.volume=38&rft.issue=1&rft.spage=e46&rft.epage=e46&rft.pages=e46-e46&rft.artnum=e46&rft.issn=0266-4623&rft.eissn=1471-6348&rft_id=info:doi/10.1017/S0266462322000289&rft_dat=%3Cproquest_cross%3E2673358171%3C/proquest_cross%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2672537193&rft_id=info:pmid/35655444&rft_cupid=10_1017_S0266462322000289&rfr_iscdi=true |