Resuscitation decisions in fetal myelomeningocele repair should center on parents’ values: a counter analysis
In our response to, “Parental request for non-resuscitation in fetal myelomeningocele repair: an analysis of the novel ethical tensions in fetal intervention” by Wolfe and co-authors, we argue that parental authority should guide resuscitation decision-making for a fetus at risk for preterm delivery...
Gespeichert in:
Veröffentlicht in: | Journal of perinatology 2022-07, Vol.42 (7), p.971-975 |
---|---|
Hauptverfasser: | , |
Format: | Artikel |
Sprache: | eng |
Schlagworte: | |
Online-Zugang: | Volltext |
Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
container_end_page | 975 |
---|---|
container_issue | 7 |
container_start_page | 971 |
container_title | Journal of perinatology |
container_volume | 42 |
creator | Kukora, Stephanie K. Fry, Jessica T. |
description | In our response to, “Parental request for non-resuscitation in fetal myelomeningocele repair: an analysis of the novel ethical tensions in fetal intervention” by Wolfe and co-authors, we argue that parental authority should guide resuscitation decision-making for a fetus at risk for preterm delivery as a complication of fetal myelomeningocele (fMMC) repair. Due to the elevated morbidity and mortality risks of combined myelomeningocele, extreme prematurity, and fetal hypoxia, parents’ values regarding the acceptability of possible outcomes should be elicited and their preferences honored. Ethical decision-making in these situations must also consider the broader context of the fetal-maternal dyad. Innovations in fetoscopic approaches to fMMC repair may pose additional complexity to these resuscitation decisions. |
doi_str_mv | 10.1038/s41372-022-01385-7 |
format | Article |
fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_2648897242</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2685223391</sourcerecordid><originalsourceid>FETCH-LOGICAL-c305t-bdf1e045d1c8c7f139fff7d1a992bc2adaf002b32123ccb27a40576d2612786d3</originalsourceid><addsrcrecordid>eNp9kc1q3TAQhUVJaG7TvkAWRZBNN270Z8vuLoT0BwKBkK6FLI1SBdu61diBu-tr9PXyJNHNTVrIIotBA_OdM4MOIUecfeZMtieouNSiYqIUl21d6TdkxZVuqrpWco-smFayaqVqDsg7xFvGtkP9lhzIWnal2IqkK8AFXZztHNNEPbiIpUEaJxpgtgMdNzCkEaY43SQHA9AMaxszxV9pGTx1MM2QadGubS493v_5S-_ssAB-oZa6tDzO7WSHDUZ8T_aDHRA-PL2H5OfX8-uz79XF5bcfZ6cXlZOsnqveBw5M1Z671unAZRdC0J7brhO9E9bbwJjopeBCOtcLbRWrdeNFw4VuGy8Pyaed7zqn3-WW2YwRy_mDnSAtaESj2rbTQomCHr9Ab9OSy71bqq2FkLLjhRI7yuWEmCGYdY6jzRvDmdnGYXZxmBKHeYzD6CL6-GS99CP4f5Ln_y-A3AFYRtMN5P-7X7F9ABCSmAI</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2685223391</pqid></control><display><type>article</type><title>Resuscitation decisions in fetal myelomeningocele repair should center on parents’ values: a counter analysis</title><source>SpringerLink Journals</source><creator>Kukora, Stephanie K. ; Fry, Jessica T.</creator><creatorcontrib>Kukora, Stephanie K. ; Fry, Jessica T.</creatorcontrib><description>In our response to, “Parental request for non-resuscitation in fetal myelomeningocele repair: an analysis of the novel ethical tensions in fetal intervention” by Wolfe and co-authors, we argue that parental authority should guide resuscitation decision-making for a fetus at risk for preterm delivery as a complication of fetal myelomeningocele (fMMC) repair. Due to the elevated morbidity and mortality risks of combined myelomeningocele, extreme prematurity, and fetal hypoxia, parents’ values regarding the acceptability of possible outcomes should be elicited and their preferences honored. Ethical decision-making in these situations must also consider the broader context of the fetal-maternal dyad. Innovations in fetoscopic approaches to fMMC repair may pose additional complexity to these resuscitation decisions.</description><identifier>ISSN: 0743-8346</identifier><identifier>EISSN: 1476-5543</identifier><identifier>DOI: 10.1038/s41372-022-01385-7</identifier><identifier>PMID: 35393530</identifier><language>eng</language><publisher>New York: Nature Publishing Group US</publisher><subject>692/700/3935 ; 706/648/179 ; Cardiac arrhythmia ; Decision making ; Ethics ; Fetuses ; Gestational age ; Hypoxia ; Maternal effects ; Medical prognosis ; Medicine ; Medicine & Public Health ; Morbidity ; Newborn babies ; Parents & parenting ; Pediatric Surgery ; Pediatrics ; Perspective ; Premature babies ; Premature birth ; Repair ; Resuscitation ; Spina bifida ; Surgery ; Values</subject><ispartof>Journal of perinatology, 2022-07, Vol.42 (7), p.971-975</ispartof><rights>The Author(s), under exclusive licence to Springer Nature America, Inc. 2022</rights><rights>2022. The Author(s), under exclusive licence to Springer Nature America, Inc.</rights><rights>The Author(s), under exclusive licence to Springer Nature America, Inc. 2022.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c305t-bdf1e045d1c8c7f139fff7d1a992bc2adaf002b32123ccb27a40576d2612786d3</citedby><cites>FETCH-LOGICAL-c305t-bdf1e045d1c8c7f139fff7d1a992bc2adaf002b32123ccb27a40576d2612786d3</cites><orcidid>0000-0002-3861-7327 ; 0000-0003-2257-1042</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1038/s41372-022-01385-7$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1038/s41372-022-01385-7$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,776,780,27903,27904,41467,42536,51297</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/35393530$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Kukora, Stephanie K.</creatorcontrib><creatorcontrib>Fry, Jessica T.</creatorcontrib><title>Resuscitation decisions in fetal myelomeningocele repair should center on parents’ values: a counter analysis</title><title>Journal of perinatology</title><addtitle>J Perinatol</addtitle><addtitle>J Perinatol</addtitle><description>In our response to, “Parental request for non-resuscitation in fetal myelomeningocele repair: an analysis of the novel ethical tensions in fetal intervention” by Wolfe and co-authors, we argue that parental authority should guide resuscitation decision-making for a fetus at risk for preterm delivery as a complication of fetal myelomeningocele (fMMC) repair. Due to the elevated morbidity and mortality risks of combined myelomeningocele, extreme prematurity, and fetal hypoxia, parents’ values regarding the acceptability of possible outcomes should be elicited and their preferences honored. Ethical decision-making in these situations must also consider the broader context of the fetal-maternal dyad. Innovations in fetoscopic approaches to fMMC repair may pose additional complexity to these resuscitation decisions.</description><subject>692/700/3935</subject><subject>706/648/179</subject><subject>Cardiac arrhythmia</subject><subject>Decision making</subject><subject>Ethics</subject><subject>Fetuses</subject><subject>Gestational age</subject><subject>Hypoxia</subject><subject>Maternal effects</subject><subject>Medical prognosis</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Morbidity</subject><subject>Newborn babies</subject><subject>Parents & parenting</subject><subject>Pediatric Surgery</subject><subject>Pediatrics</subject><subject>Perspective</subject><subject>Premature babies</subject><subject>Premature birth</subject><subject>Repair</subject><subject>Resuscitation</subject><subject>Spina bifida</subject><subject>Surgery</subject><subject>Values</subject><issn>0743-8346</issn><issn>1476-5543</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><sourceid>ABUWG</sourceid><sourceid>AFKRA</sourceid><sourceid>AZQEC</sourceid><sourceid>BENPR</sourceid><sourceid>CCPQU</sourceid><sourceid>DWQXO</sourceid><sourceid>GNUQQ</sourceid><recordid>eNp9kc1q3TAQhUVJaG7TvkAWRZBNN270Z8vuLoT0BwKBkK6FLI1SBdu61diBu-tr9PXyJNHNTVrIIotBA_OdM4MOIUecfeZMtieouNSiYqIUl21d6TdkxZVuqrpWco-smFayaqVqDsg7xFvGtkP9lhzIWnal2IqkK8AFXZztHNNEPbiIpUEaJxpgtgMdNzCkEaY43SQHA9AMaxszxV9pGTx1MM2QadGubS493v_5S-_ssAB-oZa6tDzO7WSHDUZ8T_aDHRA-PL2H5OfX8-uz79XF5bcfZ6cXlZOsnqveBw5M1Z671unAZRdC0J7brhO9E9bbwJjopeBCOtcLbRWrdeNFw4VuGy8Pyaed7zqn3-WW2YwRy_mDnSAtaESj2rbTQomCHr9Ab9OSy71bqq2FkLLjhRI7yuWEmCGYdY6jzRvDmdnGYXZxmBKHeYzD6CL6-GS99CP4f5Ln_y-A3AFYRtMN5P-7X7F9ABCSmAI</recordid><startdate>20220701</startdate><enddate>20220701</enddate><creator>Kukora, Stephanie K.</creator><creator>Fry, Jessica T.</creator><general>Nature Publishing Group US</general><general>Nature Publishing Group</general><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7QG</scope><scope>7QL</scope><scope>7RV</scope><scope>7T5</scope><scope>7T7</scope><scope>7U9</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8AO</scope><scope>8C1</scope><scope>8FD</scope><scope>8FE</scope><scope>8FH</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>AN0</scope><scope>AZQEC</scope><scope>BBNVY</scope><scope>BENPR</scope><scope>BHPHI</scope><scope>C1K</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FR3</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>H94</scope><scope>HCIFZ</scope><scope>K9.</scope><scope>KB0</scope><scope>LK8</scope><scope>M0S</scope><scope>M1P</scope><scope>M7N</scope><scope>M7P</scope><scope>NAPCQ</scope><scope>P64</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-3861-7327</orcidid><orcidid>https://orcid.org/0000-0003-2257-1042</orcidid></search><sort><creationdate>20220701</creationdate><title>Resuscitation decisions in fetal myelomeningocele repair should center on parents’ values: a counter analysis</title><author>Kukora, Stephanie K. ; Fry, Jessica T.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c305t-bdf1e045d1c8c7f139fff7d1a992bc2adaf002b32123ccb27a40576d2612786d3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>692/700/3935</topic><topic>706/648/179</topic><topic>Cardiac arrhythmia</topic><topic>Decision making</topic><topic>Ethics</topic><topic>Fetuses</topic><topic>Gestational age</topic><topic>Hypoxia</topic><topic>Maternal effects</topic><topic>Medical prognosis</topic><topic>Medicine</topic><topic>Medicine & Public Health</topic><topic>Morbidity</topic><topic>Newborn babies</topic><topic>Parents & parenting</topic><topic>Pediatric Surgery</topic><topic>Pediatrics</topic><topic>Perspective</topic><topic>Premature babies</topic><topic>Premature birth</topic><topic>Repair</topic><topic>Resuscitation</topic><topic>Spina bifida</topic><topic>Surgery</topic><topic>Values</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Kukora, Stephanie K.</creatorcontrib><creatorcontrib>Fry, Jessica T.</creatorcontrib><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Central (Corporate)</collection><collection>Animal Behavior Abstracts</collection><collection>Bacteriology Abstracts (Microbiology B)</collection><collection>Nursing & Allied Health Database</collection><collection>Immunology Abstracts</collection><collection>Industrial and Applied Microbiology Abstracts (Microbiology A)</collection><collection>Virology and AIDS Abstracts</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>ProQuest Pharma Collection</collection><collection>Public Health Database</collection><collection>Technology Research Database</collection><collection>ProQuest SciTech Collection</collection><collection>ProQuest Natural Science Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>British Nursing Database</collection><collection>ProQuest Central Essentials</collection><collection>Biological Science Collection</collection><collection>ProQuest Central</collection><collection>Natural Science Collection</collection><collection>Environmental Sciences and Pollution Management</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Engineering Research Database</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>SciTech Premium Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>ProQuest Biological Science Collection</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Algology Mycology and Protozoology Abstracts (Microbiology C)</collection><collection>Biological Science Database</collection><collection>Nursing & Allied Health Premium</collection><collection>Biotechnology and BioEngineering Abstracts</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of perinatology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Kukora, Stephanie K.</au><au>Fry, Jessica T.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Resuscitation decisions in fetal myelomeningocele repair should center on parents’ values: a counter analysis</atitle><jtitle>Journal of perinatology</jtitle><stitle>J Perinatol</stitle><addtitle>J Perinatol</addtitle><date>2022-07-01</date><risdate>2022</risdate><volume>42</volume><issue>7</issue><spage>971</spage><epage>975</epage><pages>971-975</pages><issn>0743-8346</issn><eissn>1476-5543</eissn><abstract>In our response to, “Parental request for non-resuscitation in fetal myelomeningocele repair: an analysis of the novel ethical tensions in fetal intervention” by Wolfe and co-authors, we argue that parental authority should guide resuscitation decision-making for a fetus at risk for preterm delivery as a complication of fetal myelomeningocele (fMMC) repair. Due to the elevated morbidity and mortality risks of combined myelomeningocele, extreme prematurity, and fetal hypoxia, parents’ values regarding the acceptability of possible outcomes should be elicited and their preferences honored. Ethical decision-making in these situations must also consider the broader context of the fetal-maternal dyad. Innovations in fetoscopic approaches to fMMC repair may pose additional complexity to these resuscitation decisions.</abstract><cop>New York</cop><pub>Nature Publishing Group US</pub><pmid>35393530</pmid><doi>10.1038/s41372-022-01385-7</doi><tpages>5</tpages><orcidid>https://orcid.org/0000-0002-3861-7327</orcidid><orcidid>https://orcid.org/0000-0003-2257-1042</orcidid></addata></record> |
fulltext | fulltext |
identifier | ISSN: 0743-8346 |
ispartof | Journal of perinatology, 2022-07, Vol.42 (7), p.971-975 |
issn | 0743-8346 1476-5543 |
language | eng |
recordid | cdi_proquest_miscellaneous_2648897242 |
source | SpringerLink Journals |
subjects | 692/700/3935 706/648/179 Cardiac arrhythmia Decision making Ethics Fetuses Gestational age Hypoxia Maternal effects Medical prognosis Medicine Medicine & Public Health Morbidity Newborn babies Parents & parenting Pediatric Surgery Pediatrics Perspective Premature babies Premature birth Repair Resuscitation Spina bifida Surgery Values |
title | Resuscitation decisions in fetal myelomeningocele repair should center on parents’ values: a counter analysis |
url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-25T05%3A29%3A06IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_cross&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=Resuscitation%20decisions%20in%20fetal%20myelomeningocele%20repair%20should%20center%20on%20parents%E2%80%99%20values:%20a%20counter%20analysis&rft.jtitle=Journal%20of%20perinatology&rft.au=Kukora,%20Stephanie%20K.&rft.date=2022-07-01&rft.volume=42&rft.issue=7&rft.spage=971&rft.epage=975&rft.pages=971-975&rft.issn=0743-8346&rft.eissn=1476-5543&rft_id=info:doi/10.1038/s41372-022-01385-7&rft_dat=%3Cproquest_cross%3E2685223391%3C/proquest_cross%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2685223391&rft_id=info:pmid/35393530&rfr_iscdi=true |