Parents’ views on medical decisions related to life and death for their ageing child with profound intellectual and multiple disabilities: A qualitative study

•Parents feel best equipped to estimate the QoL and interests of their ageing child.•Parents desire understanding from medical professionals for their expertise.•Parents want a central role in life and death decisions for their child with PIMD.•Some parents consider physician-assisted death to be in...

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Veröffentlicht in:	Research in developmental disabilities 2022-02, Vol.121, p.104154-104154, Article 104154
Hauptverfasser:	Kruithof, Kasper, Olsman, Erik, Nieuwenhuijse, Appolonia, Willems, Dick
Format:	Artikel
Sprache:	eng
Schlagworte:	Aging Child Disabilities End-of-life decisions Family Humans Medical decisions Parents PIMD Qualitative Research Quality of Life Surrogate decision-makers
Online-Zugang:	Volltext
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