High Depression Symptoms and Burnout Levels Among Parents of Children with Autism Spectrum Disorders: A Multi-Center, Cross-Sectional, Case–Control Study
The diagnosis of autism spectrum disorder (ASD) in a child affects family processes, increases parenting stress and marital conflicts, and may lead to parental psychopathology. It may also affect the prognosis for their children. The aim of this study is to determine depression and burnout levels as...
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| Veröffentlicht in: | Journal of autism and developmental disorders 2021-11, Vol.51 (11), p.4086-4099 |
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| creator | Kütük, Meryem Özlem Tufan, Ali Evren Kılıçaslan, Fethiye Güler, Gülen Çelik, Fatma Altıntaş, Ebru Gökçen, Cem Karadağ, Mehmet Yektaş, Çiğdem Mutluer, Tuba Kandemir, Hasan Büber, Ahmet Topal, Zehra Acikbas, Ufuk Giray, Aslı Kütük, Özgür |
| description | The diagnosis of autism spectrum disorder (ASD) in a child affects family processes, increases parenting stress and marital conflicts, and may lead to parental psychopathology. It may also affect the prognosis for their children. The aim of this study is to determine depression and burnout levels as well as their predictors among parents of children with ASD compared with those of healthy children. We also sought to evaluate rate of complementary and alternative medicine (CAM) interventions among parents and explore the associations of this phenomenon in an exploratory fashion. 145 children with ASD and 127 control children were enrolled along with their mothers and fathers. Beck Depression Inventory and Maslach Burnout Inventory were used to evaluate parents’ depression symptoms and burnout levels. Symptoms of children with ASDs were evaluated according to the Childhood Autism Rating Scale by the clinicians. Family, child and CAM variables were screened by means of a sociodemographic data form. Descriptive, bivariate and correlation analyses were used in statistical evaluations. Predictors of burnout were evaluated with multiple regression analysis. Burnout and depression levels among parents of children with ASD were significantly elevated compared to controls. Burnout levels of mothers were significantly elevated compared to fathers while depression scores of fathers were significantly elevated compared to mothers. Maternal burnout was significantly predicted by presence of functional speech in child while paternal burnout was significantly predicted by paternal vocation. Maternal depression was associated with paternal depression, lack of speech in child and attendance of child to special education services. Paternal depression was associated with autistic symptom severity and maternal depression. More than half the parents sought CAM interventions. Education level did not affect search for CAM interventions while both maternal and paternal psychopathology and presence of epilepsy among children increased use of CAM methods. Psychological support should be provided to both mothers and fathers of a child receiving a diagnosis of ASD. Addressing parents’ burnout and stress levels and facilitating their negotiation of knowledge on etiology and treatments for ASD may be beneficial for the family unit as a whole. |
| doi_str_mv | 10.1007/s10803-021-04874-4 |
| format | Article |
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It may also affect the prognosis for their children. The aim of this study is to determine depression and burnout levels as well as their predictors among parents of children with ASD compared with those of healthy children. We also sought to evaluate rate of complementary and alternative medicine (CAM) interventions among parents and explore the associations of this phenomenon in an exploratory fashion. 145 children with ASD and 127 control children were enrolled along with their mothers and fathers. Beck Depression Inventory and Maslach Burnout Inventory were used to evaluate parents’ depression symptoms and burnout levels. Symptoms of children with ASDs were evaluated according to the Childhood Autism Rating Scale by the clinicians. Family, child and CAM variables were screened by means of a sociodemographic data form. Descriptive, bivariate and correlation analyses were used in statistical evaluations. Predictors of burnout were evaluated with multiple regression analysis. Burnout and depression levels among parents of children with ASD were significantly elevated compared to controls. Burnout levels of mothers were significantly elevated compared to fathers while depression scores of fathers were significantly elevated compared to mothers. Maternal burnout was significantly predicted by presence of functional speech in child while paternal burnout was significantly predicted by paternal vocation. Maternal depression was associated with paternal depression, lack of speech in child and attendance of child to special education services. Paternal depression was associated with autistic symptom severity and maternal depression. More than half the parents sought CAM interventions. Education level did not affect search for CAM interventions while both maternal and paternal psychopathology and presence of epilepsy among children increased use of CAM methods. Psychological support should be provided to both mothers and fathers of a child receiving a diagnosis of ASD. Addressing parents’ burnout and stress levels and facilitating their negotiation of knowledge on etiology and treatments for ASD may be beneficial for the family unit as a whole.</description><identifier>ISSN: 0162-3257</identifier><identifier>EISSN: 1573-3432</identifier><identifier>DOI: 10.1007/s10803-021-04874-4</identifier><identifier>PMID: 33459915</identifier><language>eng</language><publisher>New York: Springer US</publisher><subject>Alternative medicine ; Autism ; Autism Spectrum Disorders ; Autistic children ; Behavioral Science and Psychology ; Burn out (Psychology) ; Burnout ; Care and treatment ; Case Studies ; Child and School Psychology ; Childhood ; Children ; Children & youth ; Correlation analysis ; Demographic aspects ; Depression (Psychology) ; Depression, Mental ; Diagnosis ; Epilepsy ; Etiology ; Families & family life ; Fathers ; Health aspects ; Intervention ; Maternal depression ; Measures (Individuals) ; Medical diagnosis ; Medical prognosis ; Medicine ; Mental depression ; Mothers ; Multiple regression analysis ; Neurosciences ; Original Paper ; Parent Child Relationship ; Parent Education ; Parental stress ; Parenthood education ; Parents ; Parents & parenting ; Paternal depression ; Pediatrics ; Pervasive Developmental Disorders ; Predictor Variables ; Prognosis ; Psychological aspects ; Psychology ; Psychopathology ; Public Health ; Rating Scales ; Regression analysis ; Risk factors ; Sociodemographics ; Special education ; Speech ; Symptoms (Individual Disorders) ; Therapy</subject><ispartof>Journal of autism and developmental disorders, 2021-11, Vol.51 (11), p.4086-4099</ispartof><rights>The Author(s), under exclusive licence to Springer Science+Business Media, LLC part of Springer Nature 2021. corrected publication 2021</rights><rights>COPYRIGHT 2021 Springer</rights><rights>The Author(s), under exclusive licence to Springer Science+Business Media, LLC part of Springer Nature 2021. corrected publication 2021.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c569t-ca9d032a15ce774194f142adbc192862b5e586379a1c749992839e393c04bba83</citedby><cites>FETCH-LOGICAL-c569t-ca9d032a15ce774194f142adbc192862b5e586379a1c749992839e393c04bba83</cites><orcidid>0000-0001-5207-6240</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s10803-021-04874-4$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s10803-021-04874-4$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,776,780,12825,27901,27902,30976,41464,42533,51294</link.rule.ids><backlink>$$Uhttp://eric.ed.gov/ERICWebPortal/detail?accno=EJ1313015$$DView record in ERIC$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33459915$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Kütük, Meryem Özlem</creatorcontrib><creatorcontrib>Tufan, Ali Evren</creatorcontrib><creatorcontrib>Kılıçaslan, Fethiye</creatorcontrib><creatorcontrib>Güler, Gülen</creatorcontrib><creatorcontrib>Çelik, Fatma</creatorcontrib><creatorcontrib>Altıntaş, Ebru</creatorcontrib><creatorcontrib>Gökçen, Cem</creatorcontrib><creatorcontrib>Karadağ, Mehmet</creatorcontrib><creatorcontrib>Yektaş, Çiğdem</creatorcontrib><creatorcontrib>Mutluer, Tuba</creatorcontrib><creatorcontrib>Kandemir, Hasan</creatorcontrib><creatorcontrib>Büber, Ahmet</creatorcontrib><creatorcontrib>Topal, Zehra</creatorcontrib><creatorcontrib>Acikbas, Ufuk</creatorcontrib><creatorcontrib>Giray, Aslı</creatorcontrib><creatorcontrib>Kütük, Özgür</creatorcontrib><title>High Depression Symptoms and Burnout Levels Among Parents of Children with Autism Spectrum Disorders: A Multi-Center, Cross-Sectional, Case–Control Study</title><title>Journal of autism and developmental disorders</title><addtitle>J Autism Dev Disord</addtitle><addtitle>J Autism Dev Disord</addtitle><description>The diagnosis of autism spectrum disorder (ASD) in a child affects family processes, increases parenting stress and marital conflicts, and may lead to parental psychopathology. It may also affect the prognosis for their children. The aim of this study is to determine depression and burnout levels as well as their predictors among parents of children with ASD compared with those of healthy children. We also sought to evaluate rate of complementary and alternative medicine (CAM) interventions among parents and explore the associations of this phenomenon in an exploratory fashion. 145 children with ASD and 127 control children were enrolled along with their mothers and fathers. Beck Depression Inventory and Maslach Burnout Inventory were used to evaluate parents’ depression symptoms and burnout levels. Symptoms of children with ASDs were evaluated according to the Childhood Autism Rating Scale by the clinicians. Family, child and CAM variables were screened by means of a sociodemographic data form. Descriptive, bivariate and correlation analyses were used in statistical evaluations. Predictors of burnout were evaluated with multiple regression analysis. Burnout and depression levels among parents of children with ASD were significantly elevated compared to controls. Burnout levels of mothers were significantly elevated compared to fathers while depression scores of fathers were significantly elevated compared to mothers. Maternal burnout was significantly predicted by presence of functional speech in child while paternal burnout was significantly predicted by paternal vocation. Maternal depression was associated with paternal depression, lack of speech in child and attendance of child to special education services. Paternal depression was associated with autistic symptom severity and maternal depression. More than half the parents sought CAM interventions. Education level did not affect search for CAM interventions while both maternal and paternal psychopathology and presence of epilepsy among children increased use of CAM methods. Psychological support should be provided to both mothers and fathers of a child receiving a diagnosis of ASD. Addressing parents’ burnout and stress levels and facilitating their negotiation of knowledge on etiology and treatments for ASD may be beneficial for the family unit as a whole.</description><subject>Alternative medicine</subject><subject>Autism</subject><subject>Autism Spectrum Disorders</subject><subject>Autistic children</subject><subject>Behavioral Science and Psychology</subject><subject>Burn out (Psychology)</subject><subject>Burnout</subject><subject>Care and treatment</subject><subject>Case Studies</subject><subject>Child and School Psychology</subject><subject>Childhood</subject><subject>Children</subject><subject>Children & youth</subject><subject>Correlation analysis</subject><subject>Demographic aspects</subject><subject>Depression (Psychology)</subject><subject>Depression, Mental</subject><subject>Diagnosis</subject><subject>Epilepsy</subject><subject>Etiology</subject><subject>Families & family life</subject><subject>Fathers</subject><subject>Health aspects</subject><subject>Intervention</subject><subject>Maternal depression</subject><subject>Measures (Individuals)</subject><subject>Medical diagnosis</subject><subject>Medical prognosis</subject><subject>Medicine</subject><subject>Mental depression</subject><subject>Mothers</subject><subject>Multiple regression analysis</subject><subject>Neurosciences</subject><subject>Original Paper</subject><subject>Parent Child Relationship</subject><subject>Parent Education</subject><subject>Parental stress</subject><subject>Parenthood education</subject><subject>Parents</subject><subject>Parents & parenting</subject><subject>Paternal depression</subject><subject>Pediatrics</subject><subject>Pervasive Developmental Disorders</subject><subject>Predictor Variables</subject><subject>Prognosis</subject><subject>Psychological aspects</subject><subject>Psychology</subject><subject>Psychopathology</subject><subject>Public Health</subject><subject>Rating Scales</subject><subject>Regression analysis</subject><subject>Risk factors</subject><subject>Sociodemographics</subject><subject>Special education</subject><subject>Speech</subject><subject>Symptoms (Individual 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Depression Symptoms and Burnout Levels Among Parents of Children with Autism Spectrum Disorders: A Multi-Center, Cross-Sectional, Case–Control Study</title><author>Kütük, Meryem Özlem ; Tufan, Ali Evren ; Kılıçaslan, Fethiye ; Güler, Gülen ; Çelik, Fatma ; Altıntaş, Ebru ; Gökçen, Cem ; Karadağ, Mehmet ; Yektaş, Çiğdem ; Mutluer, Tuba ; Kandemir, Hasan ; Büber, Ahmet ; Topal, Zehra ; Acikbas, Ufuk ; Giray, Aslı ; Kütük, Özgür</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c569t-ca9d032a15ce774194f142adbc192862b5e586379a1c749992839e393c04bba83</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Alternative medicine</topic><topic>Autism</topic><topic>Autism Spectrum Disorders</topic><topic>Autistic children</topic><topic>Behavioral Science and Psychology</topic><topic>Burn out (Psychology)</topic><topic>Burnout</topic><topic>Care and treatment</topic><topic>Case 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Ebru</au><au>Gökçen, Cem</au><au>Karadağ, Mehmet</au><au>Yektaş, Çiğdem</au><au>Mutluer, Tuba</au><au>Kandemir, Hasan</au><au>Büber, Ahmet</au><au>Topal, Zehra</au><au>Acikbas, Ufuk</au><au>Giray, Aslı</au><au>Kütük, Özgür</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><ericid>EJ1313015</ericid><atitle>High Depression Symptoms and Burnout Levels Among Parents of Children with Autism Spectrum Disorders: A Multi-Center, Cross-Sectional, Case–Control Study</atitle><jtitle>Journal of autism and developmental disorders</jtitle><stitle>J Autism Dev Disord</stitle><addtitle>J Autism Dev Disord</addtitle><date>2021-11-01</date><risdate>2021</risdate><volume>51</volume><issue>11</issue><spage>4086</spage><epage>4099</epage><pages>4086-4099</pages><issn>0162-3257</issn><eissn>1573-3432</eissn><abstract>The diagnosis of autism spectrum disorder (ASD) in a child affects family processes, increases parenting stress and marital conflicts, and may lead to parental psychopathology. It may also affect the prognosis for their children. The aim of this study is to determine depression and burnout levels as well as their predictors among parents of children with ASD compared with those of healthy children. We also sought to evaluate rate of complementary and alternative medicine (CAM) interventions among parents and explore the associations of this phenomenon in an exploratory fashion. 145 children with ASD and 127 control children were enrolled along with their mothers and fathers. Beck Depression Inventory and Maslach Burnout Inventory were used to evaluate parents’ depression symptoms and burnout levels. Symptoms of children with ASDs were evaluated according to the Childhood Autism Rating Scale by the clinicians. Family, child and CAM variables were screened by means of a sociodemographic data form. Descriptive, bivariate and correlation analyses were used in statistical evaluations. Predictors of burnout were evaluated with multiple regression analysis. Burnout and depression levels among parents of children with ASD were significantly elevated compared to controls. Burnout levels of mothers were significantly elevated compared to fathers while depression scores of fathers were significantly elevated compared to mothers. Maternal burnout was significantly predicted by presence of functional speech in child while paternal burnout was significantly predicted by paternal vocation. Maternal depression was associated with paternal depression, lack of speech in child and attendance of child to special education services. Paternal depression was associated with autistic symptom severity and maternal depression. More than half the parents sought CAM interventions. Education level did not affect search for CAM interventions while both maternal and paternal psychopathology and presence of epilepsy among children increased use of CAM methods. Psychological support should be provided to both mothers and fathers of a child receiving a diagnosis of ASD. Addressing parents’ burnout and stress levels and facilitating their negotiation of knowledge on etiology and treatments for ASD may be beneficial for the family unit as a whole.</abstract><cop>New York</cop><pub>Springer US</pub><pmid>33459915</pmid><doi>10.1007/s10803-021-04874-4</doi><tpages>14</tpages><orcidid>https://orcid.org/0000-0001-5207-6240</orcidid></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 0162-3257 |
| ispartof | Journal of autism and developmental disorders, 2021-11, Vol.51 (11), p.4086-4099 |
| issn | 0162-3257 1573-3432 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_2608652192 |
| source | Applied Social Sciences Index & Abstracts (ASSIA); Education Source; SpringerLink Journals |
| subjects | Alternative medicine Autism Autism Spectrum Disorders Autistic children Behavioral Science and Psychology Burn out (Psychology) Burnout Care and treatment Case Studies Child and School Psychology Childhood Children Children & youth Correlation analysis Demographic aspects Depression (Psychology) Depression, Mental Diagnosis Epilepsy Etiology Families & family life Fathers Health aspects Intervention Maternal depression Measures (Individuals) Medical diagnosis Medical prognosis Medicine Mental depression Mothers Multiple regression analysis Neurosciences Original Paper Parent Child Relationship Parent Education Parental stress Parenthood education Parents Parents & parenting Paternal depression Pediatrics Pervasive Developmental Disorders Predictor Variables Prognosis Psychological aspects Psychology Psychopathology Public Health Rating Scales Regression analysis Risk factors Sociodemographics Special education Speech Symptoms (Individual Disorders) Therapy |
| title | High Depression Symptoms and Burnout Levels Among Parents of Children with Autism Spectrum Disorders: A Multi-Center, Cross-Sectional, Case–Control Study |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-02-02T15%3A06%3A53IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-gale_proqu&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=High%20Depression%20Symptoms%20and%20Burnout%20Levels%20Among%20Parents%20of%20Children%20with%20Autism%20Spectrum%20Disorders:%20A%20Multi-Center,%20Cross-Sectional,%20Case%E2%80%93Control%20Study&rft.jtitle=Journal%20of%20autism%20and%20developmental%20disorders&rft.au=K%C3%BCt%C3%BCk,%20Meryem%20%C3%96zlem&rft.date=2021-11-01&rft.volume=51&rft.issue=11&rft.spage=4086&rft.epage=4099&rft.pages=4086-4099&rft.issn=0162-3257&rft.eissn=1573-3432&rft_id=info:doi/10.1007/s10803-021-04874-4&rft_dat=%3Cgale_proqu%3EA678871143%3C/gale_proqu%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2581103000&rft_id=info:pmid/33459915&rft_galeid=A678871143&rft_ericid=EJ1313015&rfr_iscdi=true |