Nurse perspectives on the psychosocial care of patients with urinary incontinence in home hospice: A qualitative study
Background: Urinary incontinence is prevalent among patients receiving home hospice and presents multiple care management challenges for nurses and family caregivers. Aim: This study sought to understand how urinary incontinence influences the psychosocial care of patients receiving home hospice and...
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| Veröffentlicht in: | Palliative medicine 2022-01, Vol.36 (1), p.135-141 |
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| creator | Russell, David Stoddard, Michelina D Morgan, Natalie McDonald, Margaret V Dignam, Ritchell Bowles, Kathryn H Prigerson, Holly G Chughtai, Bilal |
| description | Background:
Urinary incontinence is prevalent among patients receiving home hospice and presents multiple care management challenges for nurses and family caregivers.
Aim:
This study sought to understand how urinary incontinence influences the psychosocial care of patients receiving home hospice and the strategies that nurses employ to maximize patient and family comfort.
Design:
Qualitative descriptive study using semi-structured interviews.
Setting/participants:
Nurses employed at a large not-for-profit hospice agency in New York City.
Results:
Analyses of 32 interviews revealed three primary themes. First, nurses considered urinary incontinence to be associated with multiple psychosocial issues including embarrassment for patients and caregiver burden. Second, nurses described urinary incontinence as a threat to patient dignity and took steps to preserve their continence function. Third, nurses assisted patients and their families to cope with urinary incontinence through normalization, reframing incontinence as part of the disease process, mobilizing caregiving assistance, and encouraging use of continence supplies such as diapers and liners.
Conclusion:
Urinary incontinence influences the psychosocial care of patients receiving home hospice and nurses employ strategies to maximize patient and family comfort. Additional research is needed to examine the psychosocial benefits of facilitated discussions with patients and family members about incontinence, provision of caregiving support, and distribution of comprehensive incontinence supplies to patients with fewer resources. |
| doi_str_mv | 10.1177/02692163211043378 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_2569383305</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sage_id>10.1177_02692163211043378</sage_id><sourcerecordid>2622712389</sourcerecordid><originalsourceid>FETCH-LOGICAL-c320t-4bd87caf166b622d3fe80a72a0adb6f15b5ac501f5d4c6f26782cb7b64b15e2a3</originalsourceid><addsrcrecordid>eNp1kU1P3DAQhq2qqCy0P4BLZakXLgF_xc72hhAflRBcQOotcpxJ1yhrB49Dtf8er5a2EhWXsWb8zPtafgk54uyEc2NOmdBLwbUUnDMlpWk-kAVXxlRMsp8fyWJ7X22BfXKA-MgYl0yrT2RfKmWWSssFeb6dEwKdIOEELvtnQBoDzasyw41bRYzO25E6m4DGgU42ewgZ6W-fV3ROPti0oT64GLIPEByUhq7iGkrByTv4Ts_o02xHn-1WnmKe-81nsjfYEeHL63lIHi4v7s-vq5u7qx_nZzeVk4LlSnV9Y5wduNadFqKXAzTMGmGZ7Ts98LqrrasZH-peOT0IbRrhOtNp1fEahJWH5HinO6X4NAPmdu3RwTjaAHHGVtR6KRspWV3Qb2_QxzinUF7XiuJtuJDNslB8R7kUERMM7ZT8uvxBy1m7DaX9L5Sy8_VVee7W0P_d-JNCAU52ANpf8M_2fcUXBRaV3A</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2622712389</pqid></control><display><type>article</type><title>Nurse perspectives on the psychosocial care of patients with urinary incontinence in home hospice: A qualitative study</title><source>Access via SAGE</source><source>MEDLINE</source><source>Applied Social Sciences Index & Abstracts (ASSIA)</source><creator>Russell, David ; Stoddard, Michelina D ; Morgan, Natalie ; McDonald, Margaret V ; Dignam, Ritchell ; Bowles, Kathryn H ; Prigerson, Holly G ; Chughtai, Bilal</creator><creatorcontrib>Russell, David ; Stoddard, Michelina D ; Morgan, Natalie ; McDonald, Margaret V ; Dignam, Ritchell ; Bowles, Kathryn H ; Prigerson, Holly G ; Chughtai, Bilal</creatorcontrib><description>Background:
Urinary incontinence is prevalent among patients receiving home hospice and presents multiple care management challenges for nurses and family caregivers.
Aim:
This study sought to understand how urinary incontinence influences the psychosocial care of patients receiving home hospice and the strategies that nurses employ to maximize patient and family comfort.
Design:
Qualitative descriptive study using semi-structured interviews.
Setting/participants:
Nurses employed at a large not-for-profit hospice agency in New York City.
Results:
Analyses of 32 interviews revealed three primary themes. First, nurses considered urinary incontinence to be associated with multiple psychosocial issues including embarrassment for patients and caregiver burden. Second, nurses described urinary incontinence as a threat to patient dignity and took steps to preserve their continence function. Third, nurses assisted patients and their families to cope with urinary incontinence through normalization, reframing incontinence as part of the disease process, mobilizing caregiving assistance, and encouraging use of continence supplies such as diapers and liners.
Conclusion:
Urinary incontinence influences the psychosocial care of patients receiving home hospice and nurses employ strategies to maximize patient and family comfort. Additional research is needed to examine the psychosocial benefits of facilitated discussions with patients and family members about incontinence, provision of caregiving support, and distribution of comprehensive incontinence supplies to patients with fewer resources.</description><identifier>ISSN: 0269-2163</identifier><identifier>EISSN: 1477-030X</identifier><identifier>DOI: 10.1177/02692163211043378</identifier><identifier>PMID: 34479463</identifier><language>eng</language><publisher>London, England: SAGE Publications</publisher><subject>Caregiver burden ; Caregivers ; Caregivers - psychology ; Caregiving ; Comfort ; Diapers ; Embarrassment ; Health care management ; Hospice care ; Hospice Care - psychology ; Hospices ; Humans ; Incontinence ; Interviews ; Nonprofit organizations ; Normalization ; Nurses ; Patients ; Private sector ; Psychiatric Rehabilitation ; Psychosocial factors ; Qualitative Research ; Relatives ; Urinary incontinence ; Urinary Incontinence - psychology ; Urinary Incontinence - therapy</subject><ispartof>Palliative medicine, 2022-01, Vol.36 (1), p.135-141</ispartof><rights>The Author(s) 2021</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c320t-4bd87caf166b622d3fe80a72a0adb6f15b5ac501f5d4c6f26782cb7b64b15e2a3</cites><orcidid>0000-0001-8433-0821</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/02692163211043378$$EPDF$$P50$$Gsage$$H</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/02692163211043378$$EHTML$$P50$$Gsage$$H</linktohtml><link.rule.ids>314,780,784,21819,27924,27925,30999,43621,43622</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/34479463$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Russell, David</creatorcontrib><creatorcontrib>Stoddard, Michelina D</creatorcontrib><creatorcontrib>Morgan, Natalie</creatorcontrib><creatorcontrib>McDonald, Margaret V</creatorcontrib><creatorcontrib>Dignam, Ritchell</creatorcontrib><creatorcontrib>Bowles, Kathryn H</creatorcontrib><creatorcontrib>Prigerson, Holly G</creatorcontrib><creatorcontrib>Chughtai, Bilal</creatorcontrib><title>Nurse perspectives on the psychosocial care of patients with urinary incontinence in home hospice: A qualitative study</title><title>Palliative medicine</title><addtitle>Palliat Med</addtitle><description>Background:
Urinary incontinence is prevalent among patients receiving home hospice and presents multiple care management challenges for nurses and family caregivers.
Aim:
This study sought to understand how urinary incontinence influences the psychosocial care of patients receiving home hospice and the strategies that nurses employ to maximize patient and family comfort.
Design:
Qualitative descriptive study using semi-structured interviews.
Setting/participants:
Nurses employed at a large not-for-profit hospice agency in New York City.
Results:
Analyses of 32 interviews revealed three primary themes. First, nurses considered urinary incontinence to be associated with multiple psychosocial issues including embarrassment for patients and caregiver burden. Second, nurses described urinary incontinence as a threat to patient dignity and took steps to preserve their continence function. Third, nurses assisted patients and their families to cope with urinary incontinence through normalization, reframing incontinence as part of the disease process, mobilizing caregiving assistance, and encouraging use of continence supplies such as diapers and liners.
Conclusion:
Urinary incontinence influences the psychosocial care of patients receiving home hospice and nurses employ strategies to maximize patient and family comfort. Additional research is needed to examine the psychosocial benefits of facilitated discussions with patients and family members about incontinence, provision of caregiving support, and distribution of comprehensive incontinence supplies to patients with fewer resources.</description><subject>Caregiver burden</subject><subject>Caregivers</subject><subject>Caregivers - psychology</subject><subject>Caregiving</subject><subject>Comfort</subject><subject>Diapers</subject><subject>Embarrassment</subject><subject>Health care management</subject><subject>Hospice care</subject><subject>Hospice Care - psychology</subject><subject>Hospices</subject><subject>Humans</subject><subject>Incontinence</subject><subject>Interviews</subject><subject>Nonprofit organizations</subject><subject>Normalization</subject><subject>Nurses</subject><subject>Patients</subject><subject>Private sector</subject><subject>Psychiatric Rehabilitation</subject><subject>Psychosocial factors</subject><subject>Qualitative Research</subject><subject>Relatives</subject><subject>Urinary incontinence</subject><subject>Urinary Incontinence - psychology</subject><subject>Urinary Incontinence - therapy</subject><issn>0269-2163</issn><issn>1477-030X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNp1kU1P3DAQhq2qqCy0P4BLZakXLgF_xc72hhAflRBcQOotcpxJ1yhrB49Dtf8er5a2EhWXsWb8zPtafgk54uyEc2NOmdBLwbUUnDMlpWk-kAVXxlRMsp8fyWJ7X22BfXKA-MgYl0yrT2RfKmWWSssFeb6dEwKdIOEELvtnQBoDzasyw41bRYzO25E6m4DGgU42ewgZ6W-fV3ROPti0oT64GLIPEByUhq7iGkrByTv4Ts_o02xHn-1WnmKe-81nsjfYEeHL63lIHi4v7s-vq5u7qx_nZzeVk4LlSnV9Y5wduNadFqKXAzTMGmGZ7Ts98LqrrasZH-peOT0IbRrhOtNp1fEahJWH5HinO6X4NAPmdu3RwTjaAHHGVtR6KRspWV3Qb2_QxzinUF7XiuJtuJDNslB8R7kUERMM7ZT8uvxBy1m7DaX9L5Sy8_VVee7W0P_d-JNCAU52ANpf8M_2fcUXBRaV3A</recordid><startdate>202201</startdate><enddate>202201</enddate><creator>Russell, David</creator><creator>Stoddard, Michelina D</creator><creator>Morgan, Natalie</creator><creator>McDonald, Margaret V</creator><creator>Dignam, Ritchell</creator><creator>Bowles, Kathryn H</creator><creator>Prigerson, Holly G</creator><creator>Chughtai, Bilal</creator><general>SAGE Publications</general><general>Sage Publications Ltd</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0001-8433-0821</orcidid></search><sort><creationdate>202201</creationdate><title>Nurse perspectives on the psychosocial care of patients with urinary incontinence in home hospice: A qualitative study</title><author>Russell, David ; Stoddard, Michelina D ; Morgan, Natalie ; McDonald, Margaret V ; Dignam, Ritchell ; Bowles, Kathryn H ; Prigerson, Holly G ; Chughtai, Bilal</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c320t-4bd87caf166b622d3fe80a72a0adb6f15b5ac501f5d4c6f26782cb7b64b15e2a3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>Caregiver burden</topic><topic>Caregivers</topic><topic>Caregivers - psychology</topic><topic>Caregiving</topic><topic>Comfort</topic><topic>Diapers</topic><topic>Embarrassment</topic><topic>Health care management</topic><topic>Hospice care</topic><topic>Hospice Care - psychology</topic><topic>Hospices</topic><topic>Humans</topic><topic>Incontinence</topic><topic>Interviews</topic><topic>Nonprofit organizations</topic><topic>Normalization</topic><topic>Nurses</topic><topic>Patients</topic><topic>Private sector</topic><topic>Psychiatric Rehabilitation</topic><topic>Psychosocial factors</topic><topic>Qualitative Research</topic><topic>Relatives</topic><topic>Urinary incontinence</topic><topic>Urinary Incontinence - psychology</topic><topic>Urinary Incontinence - therapy</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Russell, David</creatorcontrib><creatorcontrib>Stoddard, Michelina D</creatorcontrib><creatorcontrib>Morgan, Natalie</creatorcontrib><creatorcontrib>McDonald, Margaret V</creatorcontrib><creatorcontrib>Dignam, Ritchell</creatorcontrib><creatorcontrib>Bowles, Kathryn H</creatorcontrib><creatorcontrib>Prigerson, Holly G</creatorcontrib><creatorcontrib>Chughtai, Bilal</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Palliative medicine</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Russell, David</au><au>Stoddard, Michelina D</au><au>Morgan, Natalie</au><au>McDonald, Margaret V</au><au>Dignam, Ritchell</au><au>Bowles, Kathryn H</au><au>Prigerson, Holly G</au><au>Chughtai, Bilal</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Nurse perspectives on the psychosocial care of patients with urinary incontinence in home hospice: A qualitative study</atitle><jtitle>Palliative medicine</jtitle><addtitle>Palliat Med</addtitle><date>2022-01</date><risdate>2022</risdate><volume>36</volume><issue>1</issue><spage>135</spage><epage>141</epage><pages>135-141</pages><issn>0269-2163</issn><eissn>1477-030X</eissn><abstract>Background:
Urinary incontinence is prevalent among patients receiving home hospice and presents multiple care management challenges for nurses and family caregivers.
Aim:
This study sought to understand how urinary incontinence influences the psychosocial care of patients receiving home hospice and the strategies that nurses employ to maximize patient and family comfort.
Design:
Qualitative descriptive study using semi-structured interviews.
Setting/participants:
Nurses employed at a large not-for-profit hospice agency in New York City.
Results:
Analyses of 32 interviews revealed three primary themes. First, nurses considered urinary incontinence to be associated with multiple psychosocial issues including embarrassment for patients and caregiver burden. Second, nurses described urinary incontinence as a threat to patient dignity and took steps to preserve their continence function. Third, nurses assisted patients and their families to cope with urinary incontinence through normalization, reframing incontinence as part of the disease process, mobilizing caregiving assistance, and encouraging use of continence supplies such as diapers and liners.
Conclusion:
Urinary incontinence influences the psychosocial care of patients receiving home hospice and nurses employ strategies to maximize patient and family comfort. Additional research is needed to examine the psychosocial benefits of facilitated discussions with patients and family members about incontinence, provision of caregiving support, and distribution of comprehensive incontinence supplies to patients with fewer resources.</abstract><cop>London, England</cop><pub>SAGE Publications</pub><pmid>34479463</pmid><doi>10.1177/02692163211043378</doi><tpages>7</tpages><orcidid>https://orcid.org/0000-0001-8433-0821</orcidid></addata></record> |
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| ispartof | Palliative medicine, 2022-01, Vol.36 (1), p.135-141 |
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| language | eng |
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| source | Access via SAGE; MEDLINE; Applied Social Sciences Index & Abstracts (ASSIA) |
| subjects | Caregiver burden Caregivers Caregivers - psychology Caregiving Comfort Diapers Embarrassment Health care management Hospice care Hospice Care - psychology Hospices Humans Incontinence Interviews Nonprofit organizations Normalization Nurses Patients Private sector Psychiatric Rehabilitation Psychosocial factors Qualitative Research Relatives Urinary incontinence Urinary Incontinence - psychology Urinary Incontinence - therapy |
| title | Nurse perspectives on the psychosocial care of patients with urinary incontinence in home hospice: A qualitative study |
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