A qualitative study on the needs of cancer caregivers in Vietnam
Vietnam has experienced a rapid increase in cancer incidence with many cancers (70%) being diagnosed at a late stage. The majority of physical and psychosocial care is provided by caregivers with minimal professional input. Due to limited resources in hospitals and social and cultural norms regardin...
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| Veröffentlicht in: | Global health action 2021-01, Vol.14 (1), p.1961403-1961403 |
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| creator | Jenkins, Chris Ho, Hien Thi Nghiem, Hoa Phuong Le Prue, Gillian Lohfeld, Lynne Donnelly, Michael Hoang, Minh Van Santin, Olinda |
| description | Vietnam has experienced a rapid increase in cancer incidence with many cancers (70%) being diagnosed at a late stage. The majority of physical and psychosocial care is provided by caregivers with minimal professional input. Due to limited resources in hospitals and social and cultural norms regarding caregiving in Vietnam, caregivers provide a range of supportive functions for family members diagnosed with cancer.
This study sought to provide empirical evidence on the self-identified unmet needs of caregivers of inpatients in national oncology hospitals in Vietnam.
Focus groups and in-depth interviews were conducted with caregivers (n = 20) and health care providers (n = 22) in national oncology hospitals in Hanoi and Ho Chi Minh City. Data was collaboratively analysed using thematic analysis. Findings were validated through key stakeholder group discussions with both caregivers and healthcare providers across multiple regions in Vietnam.
Analysis demonstrated that the burden of informal care is high with many caregivers managing patient's severe and complex health needs with minimal support. Caregivers highlighted four main areas of critical need: (i) challenges in providing long term care, particularly in hospital and in-patient settings, such as accessing comfortable facilities, accommodation and finance; (ii) information needs about cancer, treatment, and nutrition; (iii) support for the emotional impact of cancer; and (iv) training about how to provide care to their family members during treatment and recovery phases.
Caregivers provide invaluable support in supporting people with a cancer diagnosis, particularly given wider systemic challenges in delivering cancer services in Vietnam. Increasing visibility and formal support is likely to have both a positive impact upon the health and wellbeing of caregivers, as well as for cancer patients under their care. Given its absence, it is critical that comprehensive psychosocial care is developed for caregivers in Vietnam. |
| doi_str_mv | 10.1080/16549716.2021.1961403 |
| format | Article |
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This study sought to provide empirical evidence on the self-identified unmet needs of caregivers of inpatients in national oncology hospitals in Vietnam.
Focus groups and in-depth interviews were conducted with caregivers (n = 20) and health care providers (n = 22) in national oncology hospitals in Hanoi and Ho Chi Minh City. Data was collaboratively analysed using thematic analysis. Findings were validated through key stakeholder group discussions with both caregivers and healthcare providers across multiple regions in Vietnam.
Analysis demonstrated that the burden of informal care is high with many caregivers managing patient's severe and complex health needs with minimal support. Caregivers highlighted four main areas of critical need: (i) challenges in providing long term care, particularly in hospital and in-patient settings, such as accessing comfortable facilities, accommodation and finance; (ii) information needs about cancer, treatment, and nutrition; (iii) support for the emotional impact of cancer; and (iv) training about how to provide care to their family members during treatment and recovery phases.
Caregivers provide invaluable support in supporting people with a cancer diagnosis, particularly given wider systemic challenges in delivering cancer services in Vietnam. Increasing visibility and formal support is likely to have both a positive impact upon the health and wellbeing of caregivers, as well as for cancer patients under their care. Given its absence, it is critical that comprehensive psychosocial care is developed for caregivers in Vietnam.</description><identifier>ISSN: 1654-9716</identifier><identifier>EISSN: 1654-9880</identifier><identifier>DOI: 10.1080/16549716.2021.1961403</identifier><identifier>PMID: 34435936</identifier><language>eng</language><publisher>Abingdon: Taylor & Francis</publisher><subject>Cancer ; Caregivers ; carergivers ; Finance ; Global Health ; Health care ; Health needs ; Hospitals ; Informal care ; Information needs ; Inpatient care ; Long term health care ; Medical diagnosis ; Medical personnel ; Nutrition ; Oncology ; Original ; Patient communication ; Patients ; Psychosocial factors ; qualitative ; Qualitative research ; Relatives ; Treatment needs ; Vietnam ; Visibility</subject><ispartof>Global health action, 2021-01, Vol.14 (1), p.1961403-1961403</ispartof><rights>2021 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. 2021</rights><rights>2021 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This work is licensed under the Creative Commons Attribution License http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><rights>2021 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. 2021 The Author(s)</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c539t-c3291621a4e498de517bcd4518832c93a4a4e6f76dc93b2d2aba0123cc32b3763</citedby><cites>FETCH-LOGICAL-c539t-c3291621a4e498de517bcd4518832c93a4a4e6f76dc93b2d2aba0123cc32b3763</cites><orcidid>0000-0002-1181-7580 ; 0000-0001-7600-0259 ; 0000-0003-3514-3581</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8405114/pdf/$$EPDF$$P50$$Gpubmedcentral$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8405114/$$EHTML$$P50$$Gpubmedcentral$$Hfree_for_read</linktohtml><link.rule.ids>230,314,723,776,780,860,881,2096,27481,27903,27904,53769,53771,59119,59120</link.rule.ids></links><search><creatorcontrib>Jenkins, Chris</creatorcontrib><creatorcontrib>Ho, Hien Thi</creatorcontrib><creatorcontrib>Nghiem, Hoa Phuong Le</creatorcontrib><creatorcontrib>Prue, Gillian</creatorcontrib><creatorcontrib>Lohfeld, Lynne</creatorcontrib><creatorcontrib>Donnelly, Michael</creatorcontrib><creatorcontrib>Hoang, Minh Van</creatorcontrib><creatorcontrib>Santin, Olinda</creatorcontrib><title>A qualitative study on the needs of cancer caregivers in Vietnam</title><title>Global health action</title><description>Vietnam has experienced a rapid increase in cancer incidence with many cancers (70%) being diagnosed at a late stage. The majority of physical and psychosocial care is provided by caregivers with minimal professional input. Due to limited resources in hospitals and social and cultural norms regarding caregiving in Vietnam, caregivers provide a range of supportive functions for family members diagnosed with cancer.
This study sought to provide empirical evidence on the self-identified unmet needs of caregivers of inpatients in national oncology hospitals in Vietnam.
Focus groups and in-depth interviews were conducted with caregivers (n = 20) and health care providers (n = 22) in national oncology hospitals in Hanoi and Ho Chi Minh City. Data was collaboratively analysed using thematic analysis. Findings were validated through key stakeholder group discussions with both caregivers and healthcare providers across multiple regions in Vietnam.
Analysis demonstrated that the burden of informal care is high with many caregivers managing patient's severe and complex health needs with minimal support. Caregivers highlighted four main areas of critical need: (i) challenges in providing long term care, particularly in hospital and in-patient settings, such as accessing comfortable facilities, accommodation and finance; (ii) information needs about cancer, treatment, and nutrition; (iii) support for the emotional impact of cancer; and (iv) training about how to provide care to their family members during treatment and recovery phases.
Caregivers provide invaluable support in supporting people with a cancer diagnosis, particularly given wider systemic challenges in delivering cancer services in Vietnam. Increasing visibility and formal support is likely to have both a positive impact upon the health and wellbeing of caregivers, as well as for cancer patients under their care. Given its absence, it is critical that comprehensive psychosocial care is developed for caregivers in Vietnam.</description><subject>Cancer</subject><subject>Caregivers</subject><subject>carergivers</subject><subject>Finance</subject><subject>Global Health</subject><subject>Health care</subject><subject>Health needs</subject><subject>Hospitals</subject><subject>Informal care</subject><subject>Information needs</subject><subject>Inpatient care</subject><subject>Long term health care</subject><subject>Medical diagnosis</subject><subject>Medical personnel</subject><subject>Nutrition</subject><subject>Oncology</subject><subject>Original</subject><subject>Patient communication</subject><subject>Patients</subject><subject>Psychosocial factors</subject><subject>qualitative</subject><subject>Qualitative research</subject><subject>Relatives</subject><subject>Treatment needs</subject><subject>Vietnam</subject><subject>Visibility</subject><issn>1654-9716</issn><issn>1654-9880</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>0YH</sourceid><sourceid>8G5</sourceid><sourceid>BENPR</sourceid><sourceid>GUQSH</sourceid><sourceid>M2O</sourceid><sourceid>DOA</sourceid><recordid>eNp9kU1rVDEUhi-i2Fr9CcIFN25mzPfHRlqK1kLBjboNucm50wz3Jm2SW5l_b6YzFerC1UnOec5DyNt17zFaY6TQJyw40xKLNUEEr7EWmCH6ojvd91daKfTy6dygk-5NKVuEBJWSvu5OKGOUaypOu_OL_n6xU6i2hgfoS138rk-xr7fQRwBf-jT2zkYHuZUMm0bl0ofY_wpQo53fdq9GOxV4d6xn3c-vX35cflvdfL-6vry4WTlOdV05SjQWBFsGTCsPHMvBecaxUpQ4TS1rEzFK4dtlIJ7YwSJMqGuLA5WCnnXXB69Pdmvucpht3plkg3lspLwxNtfgJjCWU0UF1pR5zTzRegQ9MguSKu0HhZrr88F1twwzeAexZjs9kz6fxHBrNunBKIY4xqwJPh4FOd0vUKqZQ3EwTTZCWoohXDDNuFZ79MM_6DYtObavMkQJoSUXkjeKHyiXUykZxr-Pwcjs8zZPeZt93uaYd9s7P-yFOKY8298pT95Uu5tSHnOLLRRD_6_4A5PErpA</recordid><startdate>20210101</startdate><enddate>20210101</enddate><creator>Jenkins, Chris</creator><creator>Ho, Hien Thi</creator><creator>Nghiem, Hoa Phuong Le</creator><creator>Prue, Gillian</creator><creator>Lohfeld, Lynne</creator><creator>Donnelly, Michael</creator><creator>Hoang, Minh Van</creator><creator>Santin, Olinda</creator><general>Taylor & Francis</general><general>Taylor & Francis Ltd</general><general>Taylor & Francis Group</general><scope>0YH</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>3V.</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>8BJ</scope><scope>8C1</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>8G5</scope><scope>ABUWG</scope><scope>AEUYN</scope><scope>AFKRA</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FQK</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>GUQSH</scope><scope>JBE</scope><scope>K9.</scope><scope>M0S</scope><scope>M1P</scope><scope>M2O</scope><scope>MBDVC</scope><scope>PIMPY</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>Q9U</scope><scope>7X8</scope><scope>5PM</scope><scope>DOA</scope><orcidid>https://orcid.org/0000-0002-1181-7580</orcidid><orcidid>https://orcid.org/0000-0001-7600-0259</orcidid><orcidid>https://orcid.org/0000-0003-3514-3581</orcidid></search><sort><creationdate>20210101</creationdate><title>A qualitative study on the needs of cancer caregivers in Vietnam</title><author>Jenkins, Chris ; 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The majority of physical and psychosocial care is provided by caregivers with minimal professional input. Due to limited resources in hospitals and social and cultural norms regarding caregiving in Vietnam, caregivers provide a range of supportive functions for family members diagnosed with cancer.
This study sought to provide empirical evidence on the self-identified unmet needs of caregivers of inpatients in national oncology hospitals in Vietnam.
Focus groups and in-depth interviews were conducted with caregivers (n = 20) and health care providers (n = 22) in national oncology hospitals in Hanoi and Ho Chi Minh City. Data was collaboratively analysed using thematic analysis. Findings were validated through key stakeholder group discussions with both caregivers and healthcare providers across multiple regions in Vietnam.
Analysis demonstrated that the burden of informal care is high with many caregivers managing patient's severe and complex health needs with minimal support. Caregivers highlighted four main areas of critical need: (i) challenges in providing long term care, particularly in hospital and in-patient settings, such as accessing comfortable facilities, accommodation and finance; (ii) information needs about cancer, treatment, and nutrition; (iii) support for the emotional impact of cancer; and (iv) training about how to provide care to their family members during treatment and recovery phases.
Caregivers provide invaluable support in supporting people with a cancer diagnosis, particularly given wider systemic challenges in delivering cancer services in Vietnam. Increasing visibility and formal support is likely to have both a positive impact upon the health and wellbeing of caregivers, as well as for cancer patients under their care. Given its absence, it is critical that comprehensive psychosocial care is developed for caregivers in Vietnam.</abstract><cop>Abingdon</cop><pub>Taylor & Francis</pub><pmid>34435936</pmid><doi>10.1080/16549716.2021.1961403</doi><tpages>1</tpages><orcidid>https://orcid.org/0000-0002-1181-7580</orcidid><orcidid>https://orcid.org/0000-0001-7600-0259</orcidid><orcidid>https://orcid.org/0000-0003-3514-3581</orcidid><oa>free_for_read</oa></addata></record> |
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| subjects | Cancer Caregivers carergivers Finance Global Health Health care Health needs Hospitals Informal care Information needs Inpatient care Long term health care Medical diagnosis Medical personnel Nutrition Oncology Original Patient communication Patients Psychosocial factors qualitative Qualitative research Relatives Treatment needs Vietnam Visibility |
| title | A qualitative study on the needs of cancer caregivers in Vietnam |
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