Feasibility of Routine Quality of Life Measurement for People Living With Dementia in Long-Term Care
Maximizing quality of life (QoL) is the ultimate goal of long-term dementia care. However, routine QoL measurement is rare in nursing home (NH) and assisted living (AL) facilities. Routine QoL measurement might lead to improvements in resident QoL. Our objective was to assess the feasibility of usin...
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| Veröffentlicht in: | Journal of the American Medical Directors Association 2022-07, Vol.23 (7), p.1221-1226 |
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| creator | Hoben, Matthias Banerjee, Sube Beeber, Anna S. Chamberlain, Stephanie A. Hughes, Laura O'Rourke, Hannah M. Stajduhar, Kelli Shrestha, Shovana Devkota, Rashmi Lam, Jenny Simons, Ian Dymchuk, Emily Corbett, Kyle Estabrooks, Carole A. |
| description | Maximizing quality of life (QoL) is the ultimate goal of long-term dementia care. However, routine QoL measurement is rare in nursing home (NH) and assisted living (AL) facilities. Routine QoL measurement might lead to improvements in resident QoL. Our objective was to assess the feasibility of using DEMQOL-CH, completed by long-term care staff in video calls with researchers, to assess health-related quality of life (HrQoL) of NH and AL residents with dementia or other cognitive impairment.
Cross-sectional study.
We included a convenience sample of 5 NHs and 5 AL facilities in the Canadian province of Alberta. Forty-two care staff who had worked in the facility for ≥3 months completed DEMQOL-CH assessments of 183 residents who had lived in the facility for 3 months or more and were aged ≥65 years. Sixteen residents were assessed independently by 2 care staff to assess inter-rater reliability.
We assessed HrQoL in people with dementia or other cognitive impairment using DEMQOL-CH, and assessed time to complete, inter-rater reliability, internal consistency reliability, and care staff ratings of feasibility of completing the DEMQOL-CH.
Average time to complete DEMQOL-CH was |
| doi_str_mv | 10.1016/j.jamda.2021.07.018 |
| format | Article |
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Cross-sectional study.
We included a convenience sample of 5 NHs and 5 AL facilities in the Canadian province of Alberta. Forty-two care staff who had worked in the facility for ≥3 months completed DEMQOL-CH assessments of 183 residents who had lived in the facility for 3 months or more and were aged ≥65 years. Sixteen residents were assessed independently by 2 care staff to assess inter-rater reliability.
We assessed HrQoL in people with dementia or other cognitive impairment using DEMQOL-CH, and assessed time to complete, inter-rater reliability, internal consistency reliability, and care staff ratings of feasibility of completing the DEMQOL-CH.
Average time to complete DEMQOL-CH was <5 minutes. Staff characteristics were not associated with time to complete or DEMQOL-CH scores. Inter-rater reliability [0.735, 95% confidence interval (CI): 0.712-0.780] and internal consistency reliability (0.834, 95% CI: 0.779-0.864) were high. The DEMQOL-CH score varied across residents (mean = 84.8, standard deviation = 11.20, 95% CI: 83.2-86.4). Care aides and managers rated use of the DEMQOL-CH as highly feasible, acceptable, and valuable.
This study provides a proof of concept that DEMQOL-CH can be used to assess HrQoL in NH and AL residents and provides initial indications of feasibility and resources required. DEMQOL-CH may be used to support actions to improve the QoL of residents.</description><identifier>ISSN: 1525-8610</identifier><identifier>EISSN: 1538-9375</identifier><identifier>DOI: 10.1016/j.jamda.2021.07.018</identifier><language>eng</language><publisher>Elsevier Inc</publisher><subject>dementia ; DEMQOL-CH ; feasibility ; long-term care ; measurement ; Quality of life</subject><ispartof>Journal of the American Medical Directors Association, 2022-07, Vol.23 (7), p.1221-1226</ispartof><rights>2021 The Authors</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c381t-3b48a525a0a5ffa7341b07aaffc55870eef7a56044e205c667df348c30c070273</citedby><cites>FETCH-LOGICAL-c381t-3b48a525a0a5ffa7341b07aaffc55870eef7a56044e205c667df348c30c070273</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,780,784,27922,27923</link.rule.ids></links><search><creatorcontrib>Hoben, Matthias</creatorcontrib><creatorcontrib>Banerjee, Sube</creatorcontrib><creatorcontrib>Beeber, Anna S.</creatorcontrib><creatorcontrib>Chamberlain, Stephanie A.</creatorcontrib><creatorcontrib>Hughes, Laura</creatorcontrib><creatorcontrib>O'Rourke, Hannah M.</creatorcontrib><creatorcontrib>Stajduhar, Kelli</creatorcontrib><creatorcontrib>Shrestha, Shovana</creatorcontrib><creatorcontrib>Devkota, Rashmi</creatorcontrib><creatorcontrib>Lam, Jenny</creatorcontrib><creatorcontrib>Simons, Ian</creatorcontrib><creatorcontrib>Dymchuk, Emily</creatorcontrib><creatorcontrib>Corbett, Kyle</creatorcontrib><creatorcontrib>Estabrooks, Carole A.</creatorcontrib><title>Feasibility of Routine Quality of Life Measurement for People Living With Dementia in Long-Term Care</title><title>Journal of the American Medical Directors Association</title><description>Maximizing quality of life (QoL) is the ultimate goal of long-term dementia care. However, routine QoL measurement is rare in nursing home (NH) and assisted living (AL) facilities. Routine QoL measurement might lead to improvements in resident QoL. Our objective was to assess the feasibility of using DEMQOL-CH, completed by long-term care staff in video calls with researchers, to assess health-related quality of life (HrQoL) of NH and AL residents with dementia or other cognitive impairment.
Cross-sectional study.
We included a convenience sample of 5 NHs and 5 AL facilities in the Canadian province of Alberta. Forty-two care staff who had worked in the facility for ≥3 months completed DEMQOL-CH assessments of 183 residents who had lived in the facility for 3 months or more and were aged ≥65 years. Sixteen residents were assessed independently by 2 care staff to assess inter-rater reliability.
We assessed HrQoL in people with dementia or other cognitive impairment using DEMQOL-CH, and assessed time to complete, inter-rater reliability, internal consistency reliability, and care staff ratings of feasibility of completing the DEMQOL-CH.
Average time to complete DEMQOL-CH was <5 minutes. Staff characteristics were not associated with time to complete or DEMQOL-CH scores. Inter-rater reliability [0.735, 95% confidence interval (CI): 0.712-0.780] and internal consistency reliability (0.834, 95% CI: 0.779-0.864) were high. The DEMQOL-CH score varied across residents (mean = 84.8, standard deviation = 11.20, 95% CI: 83.2-86.4). Care aides and managers rated use of the DEMQOL-CH as highly feasible, acceptable, and valuable.
This study provides a proof of concept that DEMQOL-CH can be used to assess HrQoL in NH and AL residents and provides initial indications of feasibility and resources required. DEMQOL-CH may be used to support actions to improve the QoL of residents.</description><subject>dementia</subject><subject>DEMQOL-CH</subject><subject>feasibility</subject><subject>long-term care</subject><subject>measurement</subject><subject>Quality of life</subject><issn>1525-8610</issn><issn>1538-9375</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2022</creationdate><recordtype>article</recordtype><recordid>eNp9kMtOwzAQRSMEEuXxBWy8ZJMwjmM7XbBAhQJSEQ8VsbRcZwyOkrjYCVL_npTCltWM5t47mjlJckYho0DFRZ3Vuq10lkNOM5AZ0HIvmVDOynTKJN_f9jlPS0HhMDmKsQbIgU7FJKnmqKNbucb1G-ItefFD7zokz4P-Gy2cRfIw2oaALXY9sT6QJ_TrBkfty3Xv5M31H-T6R3WauI4sfPeeLjG0ZKYDniQHVjcRT3_rcfI6v1nO7tLF4-397GqRGlbSPmWrotTjnRo0t1ZLVtAVSK2tNZyXEhCt1FxAUWAO3AghK8uK0jAwICGX7Dg53-1dB_85YOxV66LBptEd-iGqnAtW5IKJcrSyndUEH2NAq9bBtTpsFAW1Zapq9cNUbZkqkGpkOqYudykcv_hyGFQ0DjuDlQtoelV592_-G-RogDw</recordid><startdate>202207</startdate><enddate>202207</enddate><creator>Hoben, Matthias</creator><creator>Banerjee, Sube</creator><creator>Beeber, Anna S.</creator><creator>Chamberlain, Stephanie A.</creator><creator>Hughes, Laura</creator><creator>O'Rourke, Hannah M.</creator><creator>Stajduhar, Kelli</creator><creator>Shrestha, Shovana</creator><creator>Devkota, Rashmi</creator><creator>Lam, Jenny</creator><creator>Simons, Ian</creator><creator>Dymchuk, Emily</creator><creator>Corbett, Kyle</creator><creator>Estabrooks, Carole A.</creator><general>Elsevier Inc</general><scope>6I.</scope><scope>AAFTH</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>202207</creationdate><title>Feasibility of Routine Quality of Life Measurement for People Living With Dementia in Long-Term Care</title><author>Hoben, Matthias ; Banerjee, Sube ; Beeber, Anna S. ; Chamberlain, Stephanie A. ; Hughes, Laura ; O'Rourke, Hannah M. ; Stajduhar, Kelli ; Shrestha, Shovana ; Devkota, Rashmi ; Lam, Jenny ; Simons, Ian ; Dymchuk, Emily ; Corbett, Kyle ; Estabrooks, Carole A.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c381t-3b48a525a0a5ffa7341b07aaffc55870eef7a56044e205c667df348c30c070273</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2022</creationdate><topic>dementia</topic><topic>DEMQOL-CH</topic><topic>feasibility</topic><topic>long-term care</topic><topic>measurement</topic><topic>Quality of life</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Hoben, Matthias</creatorcontrib><creatorcontrib>Banerjee, Sube</creatorcontrib><creatorcontrib>Beeber, Anna S.</creatorcontrib><creatorcontrib>Chamberlain, Stephanie A.</creatorcontrib><creatorcontrib>Hughes, Laura</creatorcontrib><creatorcontrib>O'Rourke, Hannah M.</creatorcontrib><creatorcontrib>Stajduhar, Kelli</creatorcontrib><creatorcontrib>Shrestha, Shovana</creatorcontrib><creatorcontrib>Devkota, Rashmi</creatorcontrib><creatorcontrib>Lam, Jenny</creatorcontrib><creatorcontrib>Simons, Ian</creatorcontrib><creatorcontrib>Dymchuk, Emily</creatorcontrib><creatorcontrib>Corbett, Kyle</creatorcontrib><creatorcontrib>Estabrooks, Carole A.</creatorcontrib><collection>ScienceDirect Open Access Titles</collection><collection>Elsevier:ScienceDirect:Open Access</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of the American Medical Directors Association</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Hoben, Matthias</au><au>Banerjee, Sube</au><au>Beeber, Anna S.</au><au>Chamberlain, Stephanie A.</au><au>Hughes, Laura</au><au>O'Rourke, Hannah M.</au><au>Stajduhar, Kelli</au><au>Shrestha, Shovana</au><au>Devkota, Rashmi</au><au>Lam, Jenny</au><au>Simons, Ian</au><au>Dymchuk, Emily</au><au>Corbett, Kyle</au><au>Estabrooks, Carole A.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Feasibility of Routine Quality of Life Measurement for People Living With Dementia in Long-Term Care</atitle><jtitle>Journal of the American Medical Directors Association</jtitle><date>2022-07</date><risdate>2022</risdate><volume>23</volume><issue>7</issue><spage>1221</spage><epage>1226</epage><pages>1221-1226</pages><issn>1525-8610</issn><eissn>1538-9375</eissn><abstract>Maximizing quality of life (QoL) is the ultimate goal of long-term dementia care. However, routine QoL measurement is rare in nursing home (NH) and assisted living (AL) facilities. Routine QoL measurement might lead to improvements in resident QoL. Our objective was to assess the feasibility of using DEMQOL-CH, completed by long-term care staff in video calls with researchers, to assess health-related quality of life (HrQoL) of NH and AL residents with dementia or other cognitive impairment.
Cross-sectional study.
We included a convenience sample of 5 NHs and 5 AL facilities in the Canadian province of Alberta. Forty-two care staff who had worked in the facility for ≥3 months completed DEMQOL-CH assessments of 183 residents who had lived in the facility for 3 months or more and were aged ≥65 years. Sixteen residents were assessed independently by 2 care staff to assess inter-rater reliability.
We assessed HrQoL in people with dementia or other cognitive impairment using DEMQOL-CH, and assessed time to complete, inter-rater reliability, internal consistency reliability, and care staff ratings of feasibility of completing the DEMQOL-CH.
Average time to complete DEMQOL-CH was <5 minutes. Staff characteristics were not associated with time to complete or DEMQOL-CH scores. Inter-rater reliability [0.735, 95% confidence interval (CI): 0.712-0.780] and internal consistency reliability (0.834, 95% CI: 0.779-0.864) were high. The DEMQOL-CH score varied across residents (mean = 84.8, standard deviation = 11.20, 95% CI: 83.2-86.4). Care aides and managers rated use of the DEMQOL-CH as highly feasible, acceptable, and valuable.
This study provides a proof of concept that DEMQOL-CH can be used to assess HrQoL in NH and AL residents and provides initial indications of feasibility and resources required. DEMQOL-CH may be used to support actions to improve the QoL of residents.</abstract><pub>Elsevier Inc</pub><doi>10.1016/j.jamda.2021.07.018</doi><tpages>6</tpages><oa>free_for_read</oa></addata></record> |
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| issn | 1525-8610 1538-9375 |
| language | eng |
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| source | ScienceDirect Journals (5 years ago - present) |
| subjects | dementia DEMQOL-CH feasibility long-term care measurement Quality of life |
| title | Feasibility of Routine Quality of Life Measurement for People Living With Dementia in Long-Term Care |
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