A Benchmarking Study Evaluating Axial Spondyloarthritis Burden in Spain and Other European Countries. Results from the Spanish Atlas and the European Map of Axial Spondyloarthritis (EMAS) Studies
Aim To compare the burden of disease in Spanish patients with axial spondyloarthritis (axSpA) vs other European countries (OEC). Methods Data from 2846 unselected patients from the European Map of Axial Spondyloarthritis (EMAS) and the Atlas of Axial Spondyloarthritis in Spain (Atlas) were collected...
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| Veröffentlicht in: | International journal of rheumatic diseases 2021-09, Vol.24 (9), p.1127-1136 |
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| creator | Garrido‐Cumbrera, Marco Gratacós, Jordi Collantes‐Estevez, Eduardo Zarco‐Montejo, Pedro Sastre, Carlos Christen, Laura Sanz‐Gómez, Sergio Correa‐Fernández, José Navarro‐Compán, Victoria |
| description | Aim
To compare the burden of disease in Spanish patients with axial spondyloarthritis (axSpA) vs other European countries (OEC).
Methods
Data from 2846 unselected patients from the European Map of Axial Spondyloarthritis (EMAS) and the Atlas of Axial Spondyloarthritis in Spain (Atlas) were collected through online surveys. Comparative analysis was carried out between Spanish patients (2016) and patients from 12 OEC ( 2017‐2018). Socio‐demographic characteristics, life habits, and patient‐reported outcomes (Bath Ankylosing Spondylitis Disease Activity Index 0‐10, spinal stiffness 3‐12, functional limitation 0‐54, the 12‐Item General Health Questionnaire [GHQ‐12] for psychological distress 0‐12) were compared. Chi‐square and Mann‐Whitney tests were used for qualitative and quantitative variables respectively.
Results
680 (23.9%) Spanish axSpA patients were compared to 2166 axSpA patients (76.1%) from OEC. Compared to Spain, the OEC group had a higher percentage of females (64.1% vs 52.5%; P |
| doi_str_mv | 10.1111/1756-185X.14173 |
| format | Article |
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To compare the burden of disease in Spanish patients with axial spondyloarthritis (axSpA) vs other European countries (OEC).
Methods
Data from 2846 unselected patients from the European Map of Axial Spondyloarthritis (EMAS) and the Atlas of Axial Spondyloarthritis in Spain (Atlas) were collected through online surveys. Comparative analysis was carried out between Spanish patients (2016) and patients from 12 OEC ( 2017‐2018). Socio‐demographic characteristics, life habits, and patient‐reported outcomes (Bath Ankylosing Spondylitis Disease Activity Index 0‐10, spinal stiffness 3‐12, functional limitation 0‐54, the 12‐Item General Health Questionnaire [GHQ‐12] for psychological distress 0‐12) were compared. Chi‐square and Mann‐Whitney tests were used for qualitative and quantitative variables respectively.
Results
680 (23.9%) Spanish axSpA patients were compared to 2166 axSpA patients (76.1%) from OEC. Compared to Spain, the OEC group had a higher percentage of females (64.1% vs 52.5%; P < .001) and university‐educated participants (51.7% vs 36.9%; P < .001). Spanish patients showed a greater diagnostic delay (8.5 ± 7.7 vs 7.2 ± 8.6 years; P < .001), visits to orthopedic specialists before diagnosis (56.9% vs 25.3%; P < .001), human leukocyte antigen‐B27 carriership (77.1% vs 70.1%; P = .003), disease activity (5.7 ± 2.0 vs 5.4 ± 2.0; P = .024), and higher unemployment rates (21.7% vs 9.2%; P < .001). Despite lower rates of diagnosed anxiety and depression, Spanish patients were at higher risk of psychological distress according to the GHQ‐12 (5.7 ± 4.5 vs 4.8 ± 4.0; P < .001).
Conclusion
Compared to European axSpA patients, Spanish patients experience a longer diagnostic delay and greater psychological distress. Being wrongly referred to orthopedic specialists and facing a more precarious labor scenario appear as possible causal factors, highlighting the need to increase the number of rheumatologists, the training of healthcare professionals, and improving axSpA patients' working conditions.]]></description><identifier>ISSN: 1756-1841</identifier><identifier>EISSN: 1756-185X</identifier><identifier>DOI: 10.1111/1756-185X.14173</identifier><identifier>PMID: 34268889</identifier><language>eng</language><publisher>England: Wiley Subscription Services, Inc</publisher><subject>Adult ; Ankylosing spondylitis ; Arthritis ; axial spondyloarthritis ; Axial Spondyloarthritis - diagnosis ; Axial Spondyloarthritis - epidemiology ; Axial Spondyloarthritis - psychology ; Benchmarking ; Comparative analysis ; Cost of Illness ; Cross-Sectional Studies ; Delayed Diagnosis ; diagnostic delay ; employment status ; Female ; Health Services Needs and Demand ; Histocompatibility antigen HLA ; Humans ; Inflammatory diseases ; Male ; Middle Aged ; Needs Assessment ; Orthopedics ; patient‐reported outcomes ; psychological distress ; Quality of Life ; Referral and Consultation ; Rheumatic diseases ; Risk Assessment ; Risk Factors ; Severity of Illness Index ; Spain - epidemiology ; Stress, Psychological - diagnosis ; Stress, Psychological - epidemiology ; Stress, Psychological - psychology ; Training ; Unemployment</subject><ispartof>International journal of rheumatic diseases, 2021-09, Vol.24 (9), p.1127-1136</ispartof><rights>2021 The Authors. published by Asia Pacific League of Associations for Rheumatology and John Wiley & Sons Australia, Ltd.</rights><rights>2021 The Authors. International Journal of Rheumatic Diseases published by Asia Pacific League of Associations for Rheumatology and John Wiley & Sons Australia, Ltd.</rights><rights>2021. This article is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4123-45973252e59a382b274fb33ac28b1e106c35e096ccff06c21658e2fb092f691a3</citedby><cites>FETCH-LOGICAL-c4123-45973252e59a382b274fb33ac28b1e106c35e096ccff06c21658e2fb092f691a3</cites><orcidid>0000-0002-1577-7838 ; 0000-0002-7647-6289 ; 0000-0001-6801-0836 ; 0000-0003-4007-4103 ; 0000-0001-9727-1189 ; 0000-0002-3039-187X ; 0000-0002-4527-852X ; 0000-0002-7788-5391</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2F1756-185X.14173$$EPDF$$P50$$Gwiley$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2F1756-185X.14173$$EHTML$$P50$$Gwiley$$Hfree_for_read</linktohtml><link.rule.ids>314,776,780,1411,27903,27904,45553,45554</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/34268889$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Garrido‐Cumbrera, Marco</creatorcontrib><creatorcontrib>Gratacós, Jordi</creatorcontrib><creatorcontrib>Collantes‐Estevez, Eduardo</creatorcontrib><creatorcontrib>Zarco‐Montejo, Pedro</creatorcontrib><creatorcontrib>Sastre, Carlos</creatorcontrib><creatorcontrib>Christen, Laura</creatorcontrib><creatorcontrib>Sanz‐Gómez, Sergio</creatorcontrib><creatorcontrib>Correa‐Fernández, José</creatorcontrib><creatorcontrib>Navarro‐Compán, Victoria</creatorcontrib><title>A Benchmarking Study Evaluating Axial Spondyloarthritis Burden in Spain and Other European Countries. Results from the Spanish Atlas and the European Map of Axial Spondyloarthritis (EMAS) Studies</title><title>International journal of rheumatic diseases</title><addtitle>Int J Rheum Dis</addtitle><description><![CDATA[Aim
To compare the burden of disease in Spanish patients with axial spondyloarthritis (axSpA) vs other European countries (OEC).
Methods
Data from 2846 unselected patients from the European Map of Axial Spondyloarthritis (EMAS) and the Atlas of Axial Spondyloarthritis in Spain (Atlas) were collected through online surveys. Comparative analysis was carried out between Spanish patients (2016) and patients from 12 OEC ( 2017‐2018). Socio‐demographic characteristics, life habits, and patient‐reported outcomes (Bath Ankylosing Spondylitis Disease Activity Index 0‐10, spinal stiffness 3‐12, functional limitation 0‐54, the 12‐Item General Health Questionnaire [GHQ‐12] for psychological distress 0‐12) were compared. Chi‐square and Mann‐Whitney tests were used for qualitative and quantitative variables respectively.
Results
680 (23.9%) Spanish axSpA patients were compared to 2166 axSpA patients (76.1%) from OEC. Compared to Spain, the OEC group had a higher percentage of females (64.1% vs 52.5%; P < .001) and university‐educated participants (51.7% vs 36.9%; P < .001). Spanish patients showed a greater diagnostic delay (8.5 ± 7.7 vs 7.2 ± 8.6 years; P < .001), visits to orthopedic specialists before diagnosis (56.9% vs 25.3%; P < .001), human leukocyte antigen‐B27 carriership (77.1% vs 70.1%; P = .003), disease activity (5.7 ± 2.0 vs 5.4 ± 2.0; P = .024), and higher unemployment rates (21.7% vs 9.2%; P < .001). Despite lower rates of diagnosed anxiety and depression, Spanish patients were at higher risk of psychological distress according to the GHQ‐12 (5.7 ± 4.5 vs 4.8 ± 4.0; P < .001).
Conclusion
Compared to European axSpA patients, Spanish patients experience a longer diagnostic delay and greater psychological distress. Being wrongly referred to orthopedic specialists and facing a more precarious labor scenario appear as possible causal factors, highlighting the need to increase the number of rheumatologists, the training of healthcare professionals, and improving axSpA patients' working conditions.]]></description><subject>Adult</subject><subject>Ankylosing spondylitis</subject><subject>Arthritis</subject><subject>axial spondyloarthritis</subject><subject>Axial Spondyloarthritis - diagnosis</subject><subject>Axial Spondyloarthritis - epidemiology</subject><subject>Axial Spondyloarthritis - psychology</subject><subject>Benchmarking</subject><subject>Comparative analysis</subject><subject>Cost of Illness</subject><subject>Cross-Sectional Studies</subject><subject>Delayed Diagnosis</subject><subject>diagnostic delay</subject><subject>employment status</subject><subject>Female</subject><subject>Health Services Needs and Demand</subject><subject>Histocompatibility antigen HLA</subject><subject>Humans</subject><subject>Inflammatory diseases</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Needs Assessment</subject><subject>Orthopedics</subject><subject>patient‐reported outcomes</subject><subject>psychological distress</subject><subject>Quality of Life</subject><subject>Referral and Consultation</subject><subject>Rheumatic diseases</subject><subject>Risk Assessment</subject><subject>Risk Factors</subject><subject>Severity of Illness Index</subject><subject>Spain - epidemiology</subject><subject>Stress, Psychological - diagnosis</subject><subject>Stress, Psychological - epidemiology</subject><subject>Stress, Psychological - psychology</subject><subject>Training</subject><subject>Unemployment</subject><issn>1756-1841</issn><issn>1756-185X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>24P</sourceid><sourceid>WIN</sourceid><sourceid>EIF</sourceid><recordid>eNqFkUFvFCEYhonR2Fo9ezMkXuphtwMMzHCcblbbZJs2ribeCDMDLpWFEQZ1f59_TGa37qGJkQN8fDzvy5e8ALxGxRzldYEqymaopl_mqEQVeQJOj52nx7pEJ-BFjPdFwRBh1XNwQkrM6rrmp-B3Ay-V6zZbGb4Z9xWux9Tv4PKHtEmOU6P5ZaSF68G7fme9DOMmmNFEeJlCrxw0Lr_JvEvXw9txowJcpuAHJR1c-OTGYFScw48qJjtGqIPfwkxNImfiBjajlXEvnrpH6Y0coNf__Px8edOs3-2HzfYvwTMtbVSvHs4z8Pn98tPiara6_XC9aFazrkSYzErKK4IpVpRLUuMWV6VuCZEdrlukUME6QlXBWddpnS8YMVorrNuCY804kuQMnB98h-C_JxVHsTWxU9ZKp3yKAlOKOS85wxl9-wi99ym4PF2mWMVrxkuaqYsD1QUfY1BaDMHkJHYCFWLKV0wJiilNsc83K948-KZ2q_oj_zfQDNAD8NNYtfufn2juVgfjPzADsVk</recordid><startdate>202109</startdate><enddate>202109</enddate><creator>Garrido‐Cumbrera, Marco</creator><creator>Gratacós, Jordi</creator><creator>Collantes‐Estevez, Eduardo</creator><creator>Zarco‐Montejo, Pedro</creator><creator>Sastre, Carlos</creator><creator>Christen, Laura</creator><creator>Sanz‐Gómez, Sergio</creator><creator>Correa‐Fernández, José</creator><creator>Navarro‐Compán, Victoria</creator><general>Wiley Subscription Services, Inc</general><scope>24P</scope><scope>WIN</scope><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QP</scope><scope>7T5</scope><scope>H94</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-1577-7838</orcidid><orcidid>https://orcid.org/0000-0002-7647-6289</orcidid><orcidid>https://orcid.org/0000-0001-6801-0836</orcidid><orcidid>https://orcid.org/0000-0003-4007-4103</orcidid><orcidid>https://orcid.org/0000-0001-9727-1189</orcidid><orcidid>https://orcid.org/0000-0002-3039-187X</orcidid><orcidid>https://orcid.org/0000-0002-4527-852X</orcidid><orcidid>https://orcid.org/0000-0002-7788-5391</orcidid></search><sort><creationdate>202109</creationdate><title>A Benchmarking Study Evaluating Axial Spondyloarthritis Burden in Spain and Other European Countries. Results from the Spanish Atlas and the European Map of Axial Spondyloarthritis (EMAS) Studies</title><author>Garrido‐Cumbrera, Marco ; Gratacós, Jordi ; Collantes‐Estevez, Eduardo ; Zarco‐Montejo, Pedro ; Sastre, Carlos ; Christen, Laura ; Sanz‐Gómez, Sergio ; Correa‐Fernández, José ; Navarro‐Compán, Victoria</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c4123-45973252e59a382b274fb33ac28b1e106c35e096ccff06c21658e2fb092f691a3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Adult</topic><topic>Ankylosing spondylitis</topic><topic>Arthritis</topic><topic>axial spondyloarthritis</topic><topic>Axial Spondyloarthritis - diagnosis</topic><topic>Axial Spondyloarthritis - epidemiology</topic><topic>Axial Spondyloarthritis - psychology</topic><topic>Benchmarking</topic><topic>Comparative analysis</topic><topic>Cost of Illness</topic><topic>Cross-Sectional Studies</topic><topic>Delayed Diagnosis</topic><topic>diagnostic delay</topic><topic>employment status</topic><topic>Female</topic><topic>Health Services Needs and Demand</topic><topic>Histocompatibility antigen HLA</topic><topic>Humans</topic><topic>Inflammatory diseases</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Needs Assessment</topic><topic>Orthopedics</topic><topic>patient‐reported outcomes</topic><topic>psychological distress</topic><topic>Quality of Life</topic><topic>Referral and Consultation</topic><topic>Rheumatic diseases</topic><topic>Risk Assessment</topic><topic>Risk Factors</topic><topic>Severity of Illness Index</topic><topic>Spain - epidemiology</topic><topic>Stress, Psychological - diagnosis</topic><topic>Stress, Psychological - epidemiology</topic><topic>Stress, Psychological - psychology</topic><topic>Training</topic><topic>Unemployment</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Garrido‐Cumbrera, Marco</creatorcontrib><creatorcontrib>Gratacós, Jordi</creatorcontrib><creatorcontrib>Collantes‐Estevez, Eduardo</creatorcontrib><creatorcontrib>Zarco‐Montejo, Pedro</creatorcontrib><creatorcontrib>Sastre, Carlos</creatorcontrib><creatorcontrib>Christen, Laura</creatorcontrib><creatorcontrib>Sanz‐Gómez, Sergio</creatorcontrib><creatorcontrib>Correa‐Fernández, José</creatorcontrib><creatorcontrib>Navarro‐Compán, Victoria</creatorcontrib><collection>Wiley Online Library Open Access</collection><collection>Wiley Online Library Free Content</collection><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Calcium & Calcified Tissue Abstracts</collection><collection>Immunology Abstracts</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>MEDLINE - Academic</collection><jtitle>International journal of rheumatic diseases</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Garrido‐Cumbrera, Marco</au><au>Gratacós, Jordi</au><au>Collantes‐Estevez, Eduardo</au><au>Zarco‐Montejo, Pedro</au><au>Sastre, Carlos</au><au>Christen, Laura</au><au>Sanz‐Gómez, Sergio</au><au>Correa‐Fernández, José</au><au>Navarro‐Compán, Victoria</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>A Benchmarking Study Evaluating Axial Spondyloarthritis Burden in Spain and Other European Countries. Results from the Spanish Atlas and the European Map of Axial Spondyloarthritis (EMAS) Studies</atitle><jtitle>International journal of rheumatic diseases</jtitle><addtitle>Int J Rheum Dis</addtitle><date>2021-09</date><risdate>2021</risdate><volume>24</volume><issue>9</issue><spage>1127</spage><epage>1136</epage><pages>1127-1136</pages><issn>1756-1841</issn><eissn>1756-185X</eissn><abstract><![CDATA[Aim
To compare the burden of disease in Spanish patients with axial spondyloarthritis (axSpA) vs other European countries (OEC).
Methods
Data from 2846 unselected patients from the European Map of Axial Spondyloarthritis (EMAS) and the Atlas of Axial Spondyloarthritis in Spain (Atlas) were collected through online surveys. Comparative analysis was carried out between Spanish patients (2016) and patients from 12 OEC ( 2017‐2018). Socio‐demographic characteristics, life habits, and patient‐reported outcomes (Bath Ankylosing Spondylitis Disease Activity Index 0‐10, spinal stiffness 3‐12, functional limitation 0‐54, the 12‐Item General Health Questionnaire [GHQ‐12] for psychological distress 0‐12) were compared. Chi‐square and Mann‐Whitney tests were used for qualitative and quantitative variables respectively.
Results
680 (23.9%) Spanish axSpA patients were compared to 2166 axSpA patients (76.1%) from OEC. Compared to Spain, the OEC group had a higher percentage of females (64.1% vs 52.5%; P < .001) and university‐educated participants (51.7% vs 36.9%; P < .001). Spanish patients showed a greater diagnostic delay (8.5 ± 7.7 vs 7.2 ± 8.6 years; P < .001), visits to orthopedic specialists before diagnosis (56.9% vs 25.3%; P < .001), human leukocyte antigen‐B27 carriership (77.1% vs 70.1%; P = .003), disease activity (5.7 ± 2.0 vs 5.4 ± 2.0; P = .024), and higher unemployment rates (21.7% vs 9.2%; P < .001). Despite lower rates of diagnosed anxiety and depression, Spanish patients were at higher risk of psychological distress according to the GHQ‐12 (5.7 ± 4.5 vs 4.8 ± 4.0; P < .001).
Conclusion
Compared to European axSpA patients, Spanish patients experience a longer diagnostic delay and greater psychological distress. Being wrongly referred to orthopedic specialists and facing a more precarious labor scenario appear as possible causal factors, highlighting the need to increase the number of rheumatologists, the training of healthcare professionals, and improving axSpA patients' working conditions.]]></abstract><cop>England</cop><pub>Wiley Subscription Services, Inc</pub><pmid>34268889</pmid><doi>10.1111/1756-185X.14173</doi><tpages>10</tpages><orcidid>https://orcid.org/0000-0002-1577-7838</orcidid><orcidid>https://orcid.org/0000-0002-7647-6289</orcidid><orcidid>https://orcid.org/0000-0001-6801-0836</orcidid><orcidid>https://orcid.org/0000-0003-4007-4103</orcidid><orcidid>https://orcid.org/0000-0001-9727-1189</orcidid><orcidid>https://orcid.org/0000-0002-3039-187X</orcidid><orcidid>https://orcid.org/0000-0002-4527-852X</orcidid><orcidid>https://orcid.org/0000-0002-7788-5391</orcidid><oa>free_for_read</oa></addata></record> |
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| identifier | ISSN: 1756-1841 |
| ispartof | International journal of rheumatic diseases, 2021-09, Vol.24 (9), p.1127-1136 |
| issn | 1756-1841 1756-185X |
| language | eng |
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| source | MEDLINE; Wiley Online Library Journals Frontfile Complete |
| subjects | Adult Ankylosing spondylitis Arthritis axial spondyloarthritis Axial Spondyloarthritis - diagnosis Axial Spondyloarthritis - epidemiology Axial Spondyloarthritis - psychology Benchmarking Comparative analysis Cost of Illness Cross-Sectional Studies Delayed Diagnosis diagnostic delay employment status Female Health Services Needs and Demand Histocompatibility antigen HLA Humans Inflammatory diseases Male Middle Aged Needs Assessment Orthopedics patient‐reported outcomes psychological distress Quality of Life Referral and Consultation Rheumatic diseases Risk Assessment Risk Factors Severity of Illness Index Spain - epidemiology Stress, Psychological - diagnosis Stress, Psychological - epidemiology Stress, Psychological - psychology Training Unemployment |
| title | A Benchmarking Study Evaluating Axial Spondyloarthritis Burden in Spain and Other European Countries. Results from the Spanish Atlas and the European Map of Axial Spondyloarthritis (EMAS) Studies |
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