The Palliative Care Information Needs of Patients with Amyotrophic Lateral Sclerosis and their Informal Caregivers: A Scoping Review

Amyotrophic Lateral Sclerosis (ALS) is a fatal neurodegenerative disease, associated with impaired quality of life for patients and caregivers. As treatment is largely supportive, early involvement of palliative care (PC) is recommended as standard of care. Despite this, literature surrounding PC in...

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Veröffentlicht in:	Journal of pain and symptom management 2021-10, Vol.62 (4), p.848-862
Hauptverfasser:	Gillespie, Jacqueline, Przybylak-Brouillard, Antoine, Watt, Christine L
Format:	Artikel
Sprache:	eng
Schlagworte:	Amyotrophic lateral sclerosis Bereavement Caregivers Decision making Health care Information needs Literature reviews Medical personnel Medical prognosis Medical screening Palliative care Patients Quality of life thematic synthesis Treatment preferences
Online-Zugang:	Volltext
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