A novel behavioral health program for family caregivers of children admitted to a transitional chronic ventilator unit

Background The care of mechanically ventilated pediatric patients is complex and burdensome. It is essential to adequately support the family caregivers of these children to optimize outcomes; however, there is no literature describing interventions for caregivers in this population. Research Questi...

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Veröffentlicht in:Pediatric pulmonology 2021-06, Vol.56 (6), p.1635-1643
Hauptverfasser: Borschuk, Adrienne P., Williams, Sara E., McClure, Jessica M., Kendall, Megan, Mack, Lisa, Coleman, Michelle, Gurbani, Neepa, Benscoter, Dan, Amin, Raouf, Stark, Lori J.
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container_end_page 1643
container_issue 6
container_start_page 1635
container_title Pediatric pulmonology
container_volume 56
creator Borschuk, Adrienne P.
Williams, Sara E.
McClure, Jessica M.
Kendall, Megan
Mack, Lisa
Coleman, Michelle
Gurbani, Neepa
Benscoter, Dan
Amin, Raouf
Stark, Lori J.
description Background The care of mechanically ventilated pediatric patients is complex and burdensome. It is essential to adequately support the family caregivers of these children to optimize outcomes; however, there is no literature describing interventions for caregivers in this population. Research Question This study described a novel behavioral health program and examined its impact on family caregiver engagement and psychological distress on a pediatric inpatient chronic ventilator unit. Study Design and Methods Electronic chart review was completed with retrospective and prospective participant enrollment for the purposes of longitudinal evaluation of caregiver engagement. For analytic purposes, participants were grouped into three categories: (1) preprogram, (2) postprogram, and (3) postprogram with completion of psychotherapy. Results The behavioral health program was associated with increased caregiver participation in rounds, t = 7.76, p = 
doi_str_mv 10.1002/ppul.25327
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It is essential to adequately support the family caregivers of these children to optimize outcomes; however, there is no literature describing interventions for caregivers in this population. Research Question This study described a novel behavioral health program and examined its impact on family caregiver engagement and psychological distress on a pediatric inpatient chronic ventilator unit. Study Design and Methods Electronic chart review was completed with retrospective and prospective participant enrollment for the purposes of longitudinal evaluation of caregiver engagement. For analytic purposes, participants were grouped into three categories: (1) preprogram, (2) postprogram, and (3) postprogram with completion of psychotherapy. Results The behavioral health program was associated with increased caregiver participation in rounds, t = 7.76, p = &lt; .001. Parents who completed a course of psychotherapy within the behavioral health program demonstrated reduced time to training completion (F = 5.89; p &lt; .01), higher staff‐rated caregiver engagement (F = 3.69; p &lt; .05), and significantly reduced levels of caregiver distress (t = 2.09; p &lt; .05).</description><identifier>ISSN: 8755-6863</identifier><identifier>EISSN: 1099-0496</identifier><identifier>DOI: 10.1002/ppul.25327</identifier><identifier>PMID: 33647193</identifier><language>eng</language><publisher>United States: Wiley Subscription Services, Inc</publisher><subject>Caregivers ; evidence‐based medicine &amp; outcomes ; mechanical ventilation ; Pediatrics ; Psychotherapy ; social dimensions of pulmonary medicine ; Ventilators</subject><ispartof>Pediatric pulmonology, 2021-06, Vol.56 (6), p.1635-1643</ispartof><rights>2021 Wiley Periodicals LLC</rights><rights>2021 Wiley Periodicals LLC.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3577-fa6f62b655d42182e13cad4322028da5074c4fcd445d7efb4460868f301131043</citedby><cites>FETCH-LOGICAL-c3577-fa6f62b655d42182e13cad4322028da5074c4fcd445d7efb4460868f301131043</cites><orcidid>0000-0002-9958-7205</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1002%2Fppul.25327$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1002%2Fppul.25327$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,780,784,1417,27923,27924,45573,45574</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33647193$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Borschuk, Adrienne P.</creatorcontrib><creatorcontrib>Williams, Sara E.</creatorcontrib><creatorcontrib>McClure, Jessica M.</creatorcontrib><creatorcontrib>Kendall, Megan</creatorcontrib><creatorcontrib>Mack, Lisa</creatorcontrib><creatorcontrib>Coleman, Michelle</creatorcontrib><creatorcontrib>Gurbani, Neepa</creatorcontrib><creatorcontrib>Benscoter, Dan</creatorcontrib><creatorcontrib>Amin, Raouf</creatorcontrib><creatorcontrib>Stark, Lori J.</creatorcontrib><title>A novel behavioral health program for family caregivers of children admitted to a transitional chronic ventilator unit</title><title>Pediatric pulmonology</title><addtitle>Pediatr Pulmonol</addtitle><description>Background The care of mechanically ventilated pediatric patients is complex and burdensome. It is essential to adequately support the family caregivers of these children to optimize outcomes; however, there is no literature describing interventions for caregivers in this population. Research Question This study described a novel behavioral health program and examined its impact on family caregiver engagement and psychological distress on a pediatric inpatient chronic ventilator unit. Study Design and Methods Electronic chart review was completed with retrospective and prospective participant enrollment for the purposes of longitudinal evaluation of caregiver engagement. For analytic purposes, participants were grouped into three categories: (1) preprogram, (2) postprogram, and (3) postprogram with completion of psychotherapy. Results The behavioral health program was associated with increased caregiver participation in rounds, t = 7.76, p = &lt; .001. 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It is essential to adequately support the family caregivers of these children to optimize outcomes; however, there is no literature describing interventions for caregivers in this population. Research Question This study described a novel behavioral health program and examined its impact on family caregiver engagement and psychological distress on a pediatric inpatient chronic ventilator unit. Study Design and Methods Electronic chart review was completed with retrospective and prospective participant enrollment for the purposes of longitudinal evaluation of caregiver engagement. For analytic purposes, participants were grouped into three categories: (1) preprogram, (2) postprogram, and (3) postprogram with completion of psychotherapy. Results The behavioral health program was associated with increased caregiver participation in rounds, t = 7.76, p = &lt; .001. 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source Wiley Online Library All Journals
subjects Caregivers
evidence‐based medicine & outcomes
mechanical ventilation
Pediatrics
Psychotherapy
social dimensions of pulmonary medicine
Ventilators
title A novel behavioral health program for family caregivers of children admitted to a transitional chronic ventilator unit
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