The value of information and support; Experiences among patients with prostate cancer
Aims and objectives To explore and analyse prostate cancer survivors` experiences and critical reflections of information received during their cancer trajectory. Background Prostate cancer is one of the most prevalent cancers in men worldwide. Treatment causes side effects such as urinary incontine...
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Veröffentlicht in: | Journal of clinical nursing 2021-06, Vol.30 (11-12), p.1653-1664 |
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creator | Aunan, Siv Tove Wallgren, Gry Ciekals Hansen, Britt Sætre |
description | Aims and objectives
To explore and analyse prostate cancer survivors` experiences and critical reflections of information received during their cancer trajectory.
Background
Prostate cancer is one of the most prevalent cancers in men worldwide. Treatment causes side effects such as urinary incontinence, bowel changes and erection problems influencing sex life and manhood. Cancer pathways are designed to give patients and their relatives a predictable and as stress‐free as possible treatment trajectory and minimise waiting time.
Design
Qualitative, explorative research design.
Methods
Focus groups with 16 prostate cancer survivors after having participated in an educational programme. The COREQ checklist was followed to ensure rigour in the study.
Results
The main theme, ‘Help me stay in control’, and three subthemes, ‘To be met with interest and support, enough knowledge to understand what is happening and a plan to build the new life on’, emerged from qualitative analysis and highlighted the participants’ need for information and support, specially scheduled at critical times in the treatment trajectory: the diagnostic phase, the treatment phase and the life after treatment. They also highlighted the need for empathy and interest from healthcare professionals and highlighted the need for arenas to discuss vulnerable topics. Contact with peers was perceived as supportive and encouraging.
Conclusion
Healthcare professionals must support prostate cancer survivors with empathy, interest and information tailored to their needs in three different phases. Continuity in information flow may increase trust and satisfaction among the prostate cancer survivors.
Relevance to clinical practice
PCa patients’ need for information varied at critical times in their treatment trajectory. HCP should meet them with empathy and interest to be able to tailor their need for information and support. |
doi_str_mv | 10.1111/jocn.15719 |
format | Article |
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To explore and analyse prostate cancer survivors` experiences and critical reflections of information received during their cancer trajectory.
Background
Prostate cancer is one of the most prevalent cancers in men worldwide. Treatment causes side effects such as urinary incontinence, bowel changes and erection problems influencing sex life and manhood. Cancer pathways are designed to give patients and their relatives a predictable and as stress‐free as possible treatment trajectory and minimise waiting time.
Design
Qualitative, explorative research design.
Methods
Focus groups with 16 prostate cancer survivors after having participated in an educational programme. The COREQ checklist was followed to ensure rigour in the study.
Results
The main theme, ‘Help me stay in control’, and three subthemes, ‘To be met with interest and support, enough knowledge to understand what is happening and a plan to build the new life on’, emerged from qualitative analysis and highlighted the participants’ need for information and support, specially scheduled at critical times in the treatment trajectory: the diagnostic phase, the treatment phase and the life after treatment. They also highlighted the need for empathy and interest from healthcare professionals and highlighted the need for arenas to discuss vulnerable topics. Contact with peers was perceived as supportive and encouraging.
Conclusion
Healthcare professionals must support prostate cancer survivors with empathy, interest and information tailored to their needs in three different phases. Continuity in information flow may increase trust and satisfaction among the prostate cancer survivors.
Relevance to clinical practice
PCa patients’ need for information varied at critical times in their treatment trajectory. HCP should meet them with empathy and interest to be able to tailor their need for information and support.</description><identifier>ISSN: 0962-1067</identifier><identifier>EISSN: 1365-2702</identifier><identifier>DOI: 10.1111/jocn.15719</identifier><identifier>PMID: 33590945</identifier><language>eng</language><publisher>England: Wiley Subscription Services, Inc</publisher><subject>cancer pathway ; Cancer therapies ; care ; communication ; Coping ; Empathy ; experiences ; information ; Nursing ; Nursing care ; oncology nursing ; Patient care planning ; Patient education ; Patient satisfaction ; Prostate cancer ; psychosocial needs ; quality of life ; support ; well‐being</subject><ispartof>Journal of clinical nursing, 2021-06, Vol.30 (11-12), p.1653-1664</ispartof><rights>2021 The Authors. Journal of Clinical Nursing published by John Wiley & Sons Ltd.</rights><rights>2021. This article is published under http://creativecommons.org/licenses/by/4.0/ (the “License”). Notwithstanding the ProQuest Terms and Conditions, you may use this content in accordance with the terms of the License.</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3939-a49d94e7d00b0e045c5f6a7f43744334b5992fb84e31d7a1db46de114a5401683</citedby><cites>FETCH-LOGICAL-c3939-a49d94e7d00b0e045c5f6a7f43744334b5992fb84e31d7a1db46de114a5401683</cites><orcidid>0000-0002-9789-9774 ; 0000-0003-4345-4718</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fjocn.15719$$EPDF$$P50$$Gwiley$$Hfree_for_read</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fjocn.15719$$EHTML$$P50$$Gwiley$$Hfree_for_read</linktohtml><link.rule.ids>314,780,784,1416,27915,27916,45565,45566</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33590945$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Aunan, Siv Tove</creatorcontrib><creatorcontrib>Wallgren, Gry Ciekals</creatorcontrib><creatorcontrib>Hansen, Britt Sætre</creatorcontrib><title>The value of information and support; Experiences among patients with prostate cancer</title><title>Journal of clinical nursing</title><addtitle>J Clin Nurs</addtitle><description>Aims and objectives
To explore and analyse prostate cancer survivors` experiences and critical reflections of information received during their cancer trajectory.
Background
Prostate cancer is one of the most prevalent cancers in men worldwide. Treatment causes side effects such as urinary incontinence, bowel changes and erection problems influencing sex life and manhood. Cancer pathways are designed to give patients and their relatives a predictable and as stress‐free as possible treatment trajectory and minimise waiting time.
Design
Qualitative, explorative research design.
Methods
Focus groups with 16 prostate cancer survivors after having participated in an educational programme. The COREQ checklist was followed to ensure rigour in the study.
Results
The main theme, ‘Help me stay in control’, and three subthemes, ‘To be met with interest and support, enough knowledge to understand what is happening and a plan to build the new life on’, emerged from qualitative analysis and highlighted the participants’ need for information and support, specially scheduled at critical times in the treatment trajectory: the diagnostic phase, the treatment phase and the life after treatment. They also highlighted the need for empathy and interest from healthcare professionals and highlighted the need for arenas to discuss vulnerable topics. Contact with peers was perceived as supportive and encouraging.
Conclusion
Healthcare professionals must support prostate cancer survivors with empathy, interest and information tailored to their needs in three different phases. Continuity in information flow may increase trust and satisfaction among the prostate cancer survivors.
Relevance to clinical practice
PCa patients’ need for information varied at critical times in their treatment trajectory. HCP should meet them with empathy and interest to be able to tailor their need for information and support.</description><subject>cancer pathway</subject><subject>Cancer therapies</subject><subject>care</subject><subject>communication</subject><subject>Coping</subject><subject>Empathy</subject><subject>experiences</subject><subject>information</subject><subject>Nursing</subject><subject>Nursing care</subject><subject>oncology nursing</subject><subject>Patient care planning</subject><subject>Patient education</subject><subject>Patient satisfaction</subject><subject>Prostate cancer</subject><subject>psychosocial needs</subject><subject>quality of life</subject><subject>support</subject><subject>well‐being</subject><issn>0962-1067</issn><issn>1365-2702</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>24P</sourceid><sourceid>WIN</sourceid><recordid>eNp90LtOwzAUBmALgWgpLDwAssSCkAK-JrWYUMVVFSx0tpzkhKZK7GAnQN8eQ4GBgbN4-fT7nB-hQ0rOaJzzlSvsGZUZVVtoTHkqE5YRto3GRKUsoSTNRmgvhBUhlDPGd9GIc6mIEnKMFk9LwK-mGQC7Cte2cr41fe0sNrbEYeg65_sLfPXega_BFhCwaZ19xl1UYPuA3-p-iTvvQm96wIWJxu-jnco0AQ6-3wlaXF89zW6T-ePN3exynhRccZUYoUolICsJyQkQIQtZpSarBM-E4FzkUilW5VMBnJaZoWUu0hIoFUYKQtMpn6CTTW78_2WA0Ou2DgU0jbHghqCZUPFmIpSI9PgPXbnB27idZpKlkk_VlEV1ulFFPCh4qHTn69b4taZEf5atP8vWX2VHfPQdOeQtlL_0p90I6Aa81Q2s_4nS94-zh03oB_w4iNo</recordid><startdate>202106</startdate><enddate>202106</enddate><creator>Aunan, Siv Tove</creator><creator>Wallgren, Gry Ciekals</creator><creator>Hansen, Britt Sætre</creator><general>Wiley Subscription Services, Inc</general><scope>24P</scope><scope>WIN</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-9789-9774</orcidid><orcidid>https://orcid.org/0000-0003-4345-4718</orcidid></search><sort><creationdate>202106</creationdate><title>The value of information and support; Experiences among patients with prostate cancer</title><author>Aunan, Siv Tove ; Wallgren, Gry Ciekals ; Hansen, Britt Sætre</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3939-a49d94e7d00b0e045c5f6a7f43744334b5992fb84e31d7a1db46de114a5401683</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>cancer pathway</topic><topic>Cancer therapies</topic><topic>care</topic><topic>communication</topic><topic>Coping</topic><topic>Empathy</topic><topic>experiences</topic><topic>information</topic><topic>Nursing</topic><topic>Nursing care</topic><topic>oncology nursing</topic><topic>Patient care planning</topic><topic>Patient education</topic><topic>Patient satisfaction</topic><topic>Prostate cancer</topic><topic>psychosocial needs</topic><topic>quality of life</topic><topic>support</topic><topic>well‐being</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Aunan, Siv Tove</creatorcontrib><creatorcontrib>Wallgren, Gry Ciekals</creatorcontrib><creatorcontrib>Hansen, Britt Sætre</creatorcontrib><collection>Wiley Online Library Open Access</collection><collection>Wiley Free Content</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of clinical nursing</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Aunan, Siv Tove</au><au>Wallgren, Gry Ciekals</au><au>Hansen, Britt Sætre</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The value of information and support; Experiences among patients with prostate cancer</atitle><jtitle>Journal of clinical nursing</jtitle><addtitle>J Clin Nurs</addtitle><date>2021-06</date><risdate>2021</risdate><volume>30</volume><issue>11-12</issue><spage>1653</spage><epage>1664</epage><pages>1653-1664</pages><issn>0962-1067</issn><eissn>1365-2702</eissn><abstract>Aims and objectives
To explore and analyse prostate cancer survivors` experiences and critical reflections of information received during their cancer trajectory.
Background
Prostate cancer is one of the most prevalent cancers in men worldwide. Treatment causes side effects such as urinary incontinence, bowel changes and erection problems influencing sex life and manhood. Cancer pathways are designed to give patients and their relatives a predictable and as stress‐free as possible treatment trajectory and minimise waiting time.
Design
Qualitative, explorative research design.
Methods
Focus groups with 16 prostate cancer survivors after having participated in an educational programme. The COREQ checklist was followed to ensure rigour in the study.
Results
The main theme, ‘Help me stay in control’, and three subthemes, ‘To be met with interest and support, enough knowledge to understand what is happening and a plan to build the new life on’, emerged from qualitative analysis and highlighted the participants’ need for information and support, specially scheduled at critical times in the treatment trajectory: the diagnostic phase, the treatment phase and the life after treatment. They also highlighted the need for empathy and interest from healthcare professionals and highlighted the need for arenas to discuss vulnerable topics. Contact with peers was perceived as supportive and encouraging.
Conclusion
Healthcare professionals must support prostate cancer survivors with empathy, interest and information tailored to their needs in three different phases. Continuity in information flow may increase trust and satisfaction among the prostate cancer survivors.
Relevance to clinical practice
PCa patients’ need for information varied at critical times in their treatment trajectory. HCP should meet them with empathy and interest to be able to tailor their need for information and support.</abstract><cop>England</cop><pub>Wiley Subscription Services, Inc</pub><pmid>33590945</pmid><doi>10.1111/jocn.15719</doi><tpages>12</tpages><orcidid>https://orcid.org/0000-0002-9789-9774</orcidid><orcidid>https://orcid.org/0000-0003-4345-4718</orcidid><oa>free_for_read</oa></addata></record> |
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subjects | cancer pathway Cancer therapies care communication Coping Empathy experiences information Nursing Nursing care oncology nursing Patient care planning Patient education Patient satisfaction Prostate cancer psychosocial needs quality of life support well‐being |
title | The value of information and support; Experiences among patients with prostate cancer |
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