The readiness of pediatric rheumatology patients and their parents to transition to adult‐oriented treatment
Introduction Transition is a planned process of pediatric patients from child‐centered to adult‐oriented treatment. Transitional care for patients with chronic diseases is essential. The present study aimed to evaluate the readiness of patients with rheumatic diseases and their parents for transitio...
Gespeichert in:
| Veröffentlicht in: | International journal of rheumatic diseases 2021-03, Vol.24 (3), p.397-401 |
|---|---|
| Hauptverfasser: | , , , |
| Format: | Artikel |
| Sprache: | eng |
| Schlagworte: | |
| Online-Zugang: | Volltext |
| Tags: |
Tag hinzufügen
Keine Tags, Fügen Sie den ersten Tag hinzu!
|
| container_end_page | 401 |
|---|---|
| container_issue | 3 |
| container_start_page | 397 |
| container_title | International journal of rheumatic diseases |
| container_volume | 24 |
| creator | Sönmez, Hafize Emine Koç, Rahime Karadağ, Şerife Gül Aktay Ayaz, Nuray |
| description | Introduction
Transition is a planned process of pediatric patients from child‐centered to adult‐oriented treatment. Transitional care for patients with chronic diseases is essential. The present study aimed to evaluate the readiness of patients with rheumatic diseases and their parents for transition process.
Method
This is a cross‐sectional, single‐center study. All patients and their parents were questioned about their awareness of and willingness to undergo transitional care. Transition Readiness Assessment Questionnaire (TRAQ) was applied to all the participants. TRAQ is a tool for measuring readiness for transitional care in adolescents with chronic diseases. TRAQ includes 20 items that are divided into 2 domains: self‐management and self‐advocacy.
Results
A total of 157 (87 girls/70 boys) patients and their parents were enrolled. Of them 64 were diagnosed with familial Mediterranean fever, 52 with juvenile idiopathic arthritis, 21 with systemic lupus erythematosus, and 20 with Behçet's disease. The median age of the patients was 16 years (15‐18). However, all patients and parents accepted that transition to adult‐oriented care is necessary; only one‐third of them were aware about transitional care. Eighty (50.9%) patients and 147 (93.6%) of the parents stated that they were wishing to continue pediatric rheumatology treatment. The mean TRAQ self‐management domain and self‐advocacy domain total scores in the patients were 1.76 ± 0.51 and 1.72 ± 0.49, respectively (P = .48). The mean TRAQ total score was not different between patients and parents. When we assessed the factors affecting transition process, the TRAQ score was lower among patients with active disease, and requiring hospitalization during the previous year.
Conclusion
Assessment od the readiness of patients with chronic rheumatic diseases for transition care will increase the awareness of patients and their parents as well, and provide determination of the optimal time for transition. |
| doi_str_mv | 10.1111/1756-185X.14050 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_2478595946</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2478595946</sourcerecordid><originalsourceid>FETCH-LOGICAL-c3710-e37d8f01c0eae3167908eb9918de672007a8f0d23fad2f973c6b4ef9b09c30b3</originalsourceid><addsrcrecordid>eNqFkb1OwzAUhS0EolCY2VAkFpa2dpzE8VhV_EmVYOjAZjnxDXWVxMV2hLrxCDwjT4LTlg4sePH18XePrXMRuiJ4TMKaEJZmI5Knr2OS4BQfobODcnyoEzJA586tMM4IzdgpGlCapDGj_Ay1iyVEFqTSLTgXmSpag9LSW11GdgldI72pzdsmWkuvofUukq2K_BK0DZLdKt5E3srWaa9N25-k6mr__fllbN8CgQ8v-CbUF-ikkrWDy_0-RIv7u8XscTR_fniaTeejkjKCR0CZyitMSgwSKMkYxzkUnJNcQcZijJkM1yqmlVRxxRktsyKBiheYlxQXdIhud7Zra947cF402pVQ17IF0zkRJyxPecqTLKA3f9CV6WwbPifiFGNKc57wQE12VGmNcxYqsba6kXYjCBb9JESftehzF9tJhI7rvW9XNKAO_G_0AUh3wIeuYfOfn5i-zHfGP648lZE</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2500338949</pqid></control><display><type>article</type><title>The readiness of pediatric rheumatology patients and their parents to transition to adult‐oriented treatment</title><source>Wiley Online Library All Journals</source><creator>Sönmez, Hafize Emine ; Koç, Rahime ; Karadağ, Şerife Gül ; Aktay Ayaz, Nuray</creator><creatorcontrib>Sönmez, Hafize Emine ; Koç, Rahime ; Karadağ, Şerife Gül ; Aktay Ayaz, Nuray</creatorcontrib><description>Introduction
Transition is a planned process of pediatric patients from child‐centered to adult‐oriented treatment. Transitional care for patients with chronic diseases is essential. The present study aimed to evaluate the readiness of patients with rheumatic diseases and their parents for transition process.
Method
This is a cross‐sectional, single‐center study. All patients and their parents were questioned about their awareness of and willingness to undergo transitional care. Transition Readiness Assessment Questionnaire (TRAQ) was applied to all the participants. TRAQ is a tool for measuring readiness for transitional care in adolescents with chronic diseases. TRAQ includes 20 items that are divided into 2 domains: self‐management and self‐advocacy.
Results
A total of 157 (87 girls/70 boys) patients and their parents were enrolled. Of them 64 were diagnosed with familial Mediterranean fever, 52 with juvenile idiopathic arthritis, 21 with systemic lupus erythematosus, and 20 with Behçet's disease. The median age of the patients was 16 years (15‐18). However, all patients and parents accepted that transition to adult‐oriented care is necessary; only one‐third of them were aware about transitional care. Eighty (50.9%) patients and 147 (93.6%) of the parents stated that they were wishing to continue pediatric rheumatology treatment. The mean TRAQ self‐management domain and self‐advocacy domain total scores in the patients were 1.76 ± 0.51 and 1.72 ± 0.49, respectively (P = .48). The mean TRAQ total score was not different between patients and parents. When we assessed the factors affecting transition process, the TRAQ score was lower among patients with active disease, and requiring hospitalization during the previous year.
Conclusion
Assessment od the readiness of patients with chronic rheumatic diseases for transition care will increase the awareness of patients and their parents as well, and provide determination of the optimal time for transition.</description><identifier>ISSN: 1756-1841</identifier><identifier>EISSN: 1756-185X</identifier><identifier>DOI: 10.1111/1756-185X.14050</identifier><identifier>PMID: 33452739</identifier><language>eng</language><publisher>England: Wiley Subscription Services, Inc</publisher><subject>Arthritis ; Behcet's syndrome ; Chronic illnesses ; Familial Mediterranean fever ; Patients ; Pediatrics ; Rheumatic diseases ; Rheumatology ; Systemic lupus erythematosus ; transition care ; Transition Readiness Assessment Questionnaire</subject><ispartof>International journal of rheumatic diseases, 2021-03, Vol.24 (3), p.397-401</ispartof><rights>2021 Asia Pacific League of Associations for Rheumatology and John Wiley & Sons Australia, Ltd</rights><rights>2021 Asia Pacific League of Associations for Rheumatology and John Wiley & Sons Australia, Ltd.</rights><rights>International Journal of Rheumatic Diseases © 2021 Asia Pacific League of Associations for Rheumatology and John Wiley & Sons Australia, Ltd</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3710-e37d8f01c0eae3167908eb9918de672007a8f0d23fad2f973c6b4ef9b09c30b3</citedby><cites>FETCH-LOGICAL-c3710-e37d8f01c0eae3167908eb9918de672007a8f0d23fad2f973c6b4ef9b09c30b3</cites><orcidid>0000-0002-9186-3068 ; 0000-0003-3594-7387</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2F1756-185X.14050$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2F1756-185X.14050$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,777,781,1412,27905,27906,45555,45556</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33452739$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Sönmez, Hafize Emine</creatorcontrib><creatorcontrib>Koç, Rahime</creatorcontrib><creatorcontrib>Karadağ, Şerife Gül</creatorcontrib><creatorcontrib>Aktay Ayaz, Nuray</creatorcontrib><title>The readiness of pediatric rheumatology patients and their parents to transition to adult‐oriented treatment</title><title>International journal of rheumatic diseases</title><addtitle>Int J Rheum Dis</addtitle><description>Introduction
Transition is a planned process of pediatric patients from child‐centered to adult‐oriented treatment. Transitional care for patients with chronic diseases is essential. The present study aimed to evaluate the readiness of patients with rheumatic diseases and their parents for transition process.
Method
This is a cross‐sectional, single‐center study. All patients and their parents were questioned about their awareness of and willingness to undergo transitional care. Transition Readiness Assessment Questionnaire (TRAQ) was applied to all the participants. TRAQ is a tool for measuring readiness for transitional care in adolescents with chronic diseases. TRAQ includes 20 items that are divided into 2 domains: self‐management and self‐advocacy.
Results
A total of 157 (87 girls/70 boys) patients and their parents were enrolled. Of them 64 were diagnosed with familial Mediterranean fever, 52 with juvenile idiopathic arthritis, 21 with systemic lupus erythematosus, and 20 with Behçet's disease. The median age of the patients was 16 years (15‐18). However, all patients and parents accepted that transition to adult‐oriented care is necessary; only one‐third of them were aware about transitional care. Eighty (50.9%) patients and 147 (93.6%) of the parents stated that they were wishing to continue pediatric rheumatology treatment. The mean TRAQ self‐management domain and self‐advocacy domain total scores in the patients were 1.76 ± 0.51 and 1.72 ± 0.49, respectively (P = .48). The mean TRAQ total score was not different between patients and parents. When we assessed the factors affecting transition process, the TRAQ score was lower among patients with active disease, and requiring hospitalization during the previous year.
Conclusion
Assessment od the readiness of patients with chronic rheumatic diseases for transition care will increase the awareness of patients and their parents as well, and provide determination of the optimal time for transition.</description><subject>Arthritis</subject><subject>Behcet's syndrome</subject><subject>Chronic illnesses</subject><subject>Familial Mediterranean fever</subject><subject>Patients</subject><subject>Pediatrics</subject><subject>Rheumatic diseases</subject><subject>Rheumatology</subject><subject>Systemic lupus erythematosus</subject><subject>transition care</subject><subject>Transition Readiness Assessment Questionnaire</subject><issn>1756-1841</issn><issn>1756-185X</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><recordid>eNqFkb1OwzAUhS0EolCY2VAkFpa2dpzE8VhV_EmVYOjAZjnxDXWVxMV2hLrxCDwjT4LTlg4sePH18XePrXMRuiJ4TMKaEJZmI5Knr2OS4BQfobODcnyoEzJA586tMM4IzdgpGlCapDGj_Ay1iyVEFqTSLTgXmSpag9LSW11GdgldI72pzdsmWkuvofUukq2K_BK0DZLdKt5E3srWaa9N25-k6mr__fllbN8CgQ8v-CbUF-ikkrWDy_0-RIv7u8XscTR_fniaTeejkjKCR0CZyitMSgwSKMkYxzkUnJNcQcZijJkM1yqmlVRxxRktsyKBiheYlxQXdIhud7Zra947cF402pVQ17IF0zkRJyxPecqTLKA3f9CV6WwbPifiFGNKc57wQE12VGmNcxYqsba6kXYjCBb9JESftehzF9tJhI7rvW9XNKAO_G_0AUh3wIeuYfOfn5i-zHfGP648lZE</recordid><startdate>202103</startdate><enddate>202103</enddate><creator>Sönmez, Hafize Emine</creator><creator>Koç, Rahime</creator><creator>Karadağ, Şerife Gül</creator><creator>Aktay Ayaz, Nuray</creator><general>Wiley Subscription Services, Inc</general><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QP</scope><scope>7T5</scope><scope>H94</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-9186-3068</orcidid><orcidid>https://orcid.org/0000-0003-3594-7387</orcidid></search><sort><creationdate>202103</creationdate><title>The readiness of pediatric rheumatology patients and their parents to transition to adult‐oriented treatment</title><author>Sönmez, Hafize Emine ; Koç, Rahime ; Karadağ, Şerife Gül ; Aktay Ayaz, Nuray</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3710-e37d8f01c0eae3167908eb9918de672007a8f0d23fad2f973c6b4ef9b09c30b3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Arthritis</topic><topic>Behcet's syndrome</topic><topic>Chronic illnesses</topic><topic>Familial Mediterranean fever</topic><topic>Patients</topic><topic>Pediatrics</topic><topic>Rheumatic diseases</topic><topic>Rheumatology</topic><topic>Systemic lupus erythematosus</topic><topic>transition care</topic><topic>Transition Readiness Assessment Questionnaire</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Sönmez, Hafize Emine</creatorcontrib><creatorcontrib>Koç, Rahime</creatorcontrib><creatorcontrib>Karadağ, Şerife Gül</creatorcontrib><creatorcontrib>Aktay Ayaz, Nuray</creatorcontrib><collection>PubMed</collection><collection>CrossRef</collection><collection>Calcium & Calcified Tissue Abstracts</collection><collection>Immunology Abstracts</collection><collection>AIDS and Cancer Research Abstracts</collection><collection>MEDLINE - Academic</collection><jtitle>International journal of rheumatic diseases</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Sönmez, Hafize Emine</au><au>Koç, Rahime</au><au>Karadağ, Şerife Gül</au><au>Aktay Ayaz, Nuray</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The readiness of pediatric rheumatology patients and their parents to transition to adult‐oriented treatment</atitle><jtitle>International journal of rheumatic diseases</jtitle><addtitle>Int J Rheum Dis</addtitle><date>2021-03</date><risdate>2021</risdate><volume>24</volume><issue>3</issue><spage>397</spage><epage>401</epage><pages>397-401</pages><issn>1756-1841</issn><eissn>1756-185X</eissn><abstract>Introduction
Transition is a planned process of pediatric patients from child‐centered to adult‐oriented treatment. Transitional care for patients with chronic diseases is essential. The present study aimed to evaluate the readiness of patients with rheumatic diseases and their parents for transition process.
Method
This is a cross‐sectional, single‐center study. All patients and their parents were questioned about their awareness of and willingness to undergo transitional care. Transition Readiness Assessment Questionnaire (TRAQ) was applied to all the participants. TRAQ is a tool for measuring readiness for transitional care in adolescents with chronic diseases. TRAQ includes 20 items that are divided into 2 domains: self‐management and self‐advocacy.
Results
A total of 157 (87 girls/70 boys) patients and their parents were enrolled. Of them 64 were diagnosed with familial Mediterranean fever, 52 with juvenile idiopathic arthritis, 21 with systemic lupus erythematosus, and 20 with Behçet's disease. The median age of the patients was 16 years (15‐18). However, all patients and parents accepted that transition to adult‐oriented care is necessary; only one‐third of them were aware about transitional care. Eighty (50.9%) patients and 147 (93.6%) of the parents stated that they were wishing to continue pediatric rheumatology treatment. The mean TRAQ self‐management domain and self‐advocacy domain total scores in the patients were 1.76 ± 0.51 and 1.72 ± 0.49, respectively (P = .48). The mean TRAQ total score was not different between patients and parents. When we assessed the factors affecting transition process, the TRAQ score was lower among patients with active disease, and requiring hospitalization during the previous year.
Conclusion
Assessment od the readiness of patients with chronic rheumatic diseases for transition care will increase the awareness of patients and their parents as well, and provide determination of the optimal time for transition.</abstract><cop>England</cop><pub>Wiley Subscription Services, Inc</pub><pmid>33452739</pmid><doi>10.1111/1756-185X.14050</doi><tpages>5</tpages><orcidid>https://orcid.org/0000-0002-9186-3068</orcidid><orcidid>https://orcid.org/0000-0003-3594-7387</orcidid></addata></record> |
| fulltext | fulltext |
| identifier | ISSN: 1756-1841 |
| ispartof | International journal of rheumatic diseases, 2021-03, Vol.24 (3), p.397-401 |
| issn | 1756-1841 1756-185X |
| language | eng |
| recordid | cdi_proquest_miscellaneous_2478595946 |
| source | Wiley Online Library All Journals |
| subjects | Arthritis Behcet's syndrome Chronic illnesses Familial Mediterranean fever Patients Pediatrics Rheumatic diseases Rheumatology Systemic lupus erythematosus transition care Transition Readiness Assessment Questionnaire |
| title | The readiness of pediatric rheumatology patients and their parents to transition to adult‐oriented treatment |
| url | https://sfx.bib-bvb.de/sfx_tum?ctx_ver=Z39.88-2004&ctx_enc=info:ofi/enc:UTF-8&ctx_tim=2025-01-17T12%3A51%3A57IST&url_ver=Z39.88-2004&url_ctx_fmt=infofi/fmt:kev:mtx:ctx&rfr_id=info:sid/primo.exlibrisgroup.com:primo3-Article-proquest_cross&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.genre=article&rft.atitle=The%20readiness%20of%20pediatric%20rheumatology%20patients%20and%20their%20parents%20to%20transition%20to%20adult%E2%80%90oriented%20treatment&rft.jtitle=International%20journal%20of%20rheumatic%20diseases&rft.au=S%C3%B6nmez,%20Hafize%20Emine&rft.date=2021-03&rft.volume=24&rft.issue=3&rft.spage=397&rft.epage=401&rft.pages=397-401&rft.issn=1756-1841&rft.eissn=1756-185X&rft_id=info:doi/10.1111/1756-185X.14050&rft_dat=%3Cproquest_cross%3E2478595946%3C/proquest_cross%3E%3Curl%3E%3C/url%3E&disable_directlink=true&sfx.directlink=off&sfx.report_link=0&rft_id=info:oai/&rft_pqid=2500338949&rft_id=info:pmid/33452739&rfr_iscdi=true |