Valuation of Life With Disability: An International Comparison Study in Vietnam, Peru, and Haiti
The authors measured perceived quality of life for 4 disabilities among 450 adults in 3 resource-limited countries, measuring mean utilities using time trade-off, and surveying participants on 35 sociocultural characteristics to compare utilities for disabilities by country and examine associated so...
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| Veröffentlicht in: | Journal of child neurology 2021-06, Vol.36 (7), p.556-567 |
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| container_end_page | 567 |
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| container_issue | 7 |
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| container_title | Journal of child neurology |
| container_volume | 36 |
| creator | Spiegel, Elizabeth Nesbit, Kathryn C. Altenor, Ketly Nguyen, Hoa Thi Tran, Ly Hermosa, Angela Quiñonez Martin, Holly Oettingen, Julia von Treleaven, Emily Partridge, John Colin |
| description | The authors measured perceived quality of life for 4 disabilities among 450 adults in 3 resource-limited countries, measuring mean utilities using time trade-off, and surveying participants on 35 sociocultural characteristics to compare utilities for disabilities by country and examine associated sociocultural characteristics. Mean utilities were >0 for mild and moderate, but |
| doi_str_mv | 10.1177/0883073820983262 |
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Mean utilities were >0 for mild and moderate, but <0 for severe and profound. Utilities differed across countries (P = .007, .000, .017, .000 for mild, moderate, severe, profound, respectively). Vietnamese utilities correlated with residence (P = .03, moderate), education (P = .03, severe), and number of children (P = .03, moderate). Peruvian utilities correlated with education (P = .05, mild; P = .05, severe), experience with disability (P = .001, mild), gender (P = .04, moderate; P = .03, profound), number of hospitalizations (P = .04, severe). In Haiti, the only correlate was rejection (P = .02, moderate). Culture-specific variables differentially shape perceptions of disability in developing countries, thereby affecting cost-effectiveness calculations. Given substantially negative perceptions, reducing major disability would improve cost-effectiveness of health-policy decisions more than reducing mortality.</description><identifier>ISSN: 0883-0738</identifier><identifier>EISSN: 1708-8283</identifier><identifier>DOI: 10.1177/0883073820983262</identifier><identifier>PMID: 33432857</identifier><language>eng</language><publisher>Los Angeles, CA: SAGE Publications</publisher><subject>Adolescent ; Adult ; Cross-Sectional Studies ; Disability Evaluation ; Disabled Persons - psychology ; Female ; Haiti ; Health Services Accessibility ; Humans ; Male ; Middle Aged ; Peru ; Quality of Life ; Self Concept ; Sociodemographic Factors ; Socioeconomic Factors ; Surveys and Questionnaires ; Vietnam ; Young Adult</subject><ispartof>Journal of child neurology, 2021-06, Vol.36 (7), p.556-567</ispartof><rights>The Author(s) 2021</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c290t-69cf19e13f7fda0a0af43005b1bcdc1d5745ac1c9d4529b0bc92fa839639816e3</cites><orcidid>0000-0003-2409-0664</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://journals.sagepub.com/doi/pdf/10.1177/0883073820983262$$EPDF$$P50$$Gsage$$H</linktopdf><linktohtml>$$Uhttps://journals.sagepub.com/doi/10.1177/0883073820983262$$EHTML$$P50$$Gsage$$H</linktohtml><link.rule.ids>314,776,780,21798,27901,27902,43597,43598</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/33432857$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Spiegel, Elizabeth</creatorcontrib><creatorcontrib>Nesbit, Kathryn C.</creatorcontrib><creatorcontrib>Altenor, Ketly</creatorcontrib><creatorcontrib>Nguyen, Hoa Thi</creatorcontrib><creatorcontrib>Tran, Ly</creatorcontrib><creatorcontrib>Hermosa, Angela Quiñonez</creatorcontrib><creatorcontrib>Martin, Holly</creatorcontrib><creatorcontrib>Oettingen, Julia von</creatorcontrib><creatorcontrib>Treleaven, Emily</creatorcontrib><creatorcontrib>Partridge, John Colin</creatorcontrib><title>Valuation of Life With Disability: An International Comparison Study in Vietnam, Peru, and Haiti</title><title>Journal of child neurology</title><addtitle>J Child Neurol</addtitle><description>The authors measured perceived quality of life for 4 disabilities among 450 adults in 3 resource-limited countries, measuring mean utilities using time trade-off, and surveying participants on 35 sociocultural characteristics to compare utilities for disabilities by country and examine associated sociocultural characteristics. Mean utilities were >0 for mild and moderate, but <0 for severe and profound. Utilities differed across countries (P = .007, .000, .017, .000 for mild, moderate, severe, profound, respectively). Vietnamese utilities correlated with residence (P = .03, moderate), education (P = .03, severe), and number of children (P = .03, moderate). Peruvian utilities correlated with education (P = .05, mild; P = .05, severe), experience with disability (P = .001, mild), gender (P = .04, moderate; P = .03, profound), number of hospitalizations (P = .04, severe). In Haiti, the only correlate was rejection (P = .02, moderate). Culture-specific variables differentially shape perceptions of disability in developing countries, thereby affecting cost-effectiveness calculations. Given substantially negative perceptions, reducing major disability would improve cost-effectiveness of health-policy decisions more than reducing mortality.</description><subject>Adolescent</subject><subject>Adult</subject><subject>Cross-Sectional Studies</subject><subject>Disability Evaluation</subject><subject>Disabled Persons - psychology</subject><subject>Female</subject><subject>Haiti</subject><subject>Health Services Accessibility</subject><subject>Humans</subject><subject>Male</subject><subject>Middle Aged</subject><subject>Peru</subject><subject>Quality of Life</subject><subject>Self Concept</subject><subject>Sociodemographic Factors</subject><subject>Socioeconomic Factors</subject><subject>Surveys and Questionnaires</subject><subject>Vietnam</subject><subject>Young Adult</subject><issn>0883-0738</issn><issn>1708-8283</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp1kDtPwzAUhS0EoqWwMyGPDA1c20lss6HyaKVKIAFlDI5jg6s8SuwM_fektDAgoTvc4XznDB9CpwQuCOH8EoRgwJmgIAWjKd1DQ8JBRIIKto-Gmzja5AN05P0SAEQi4RANGIsZFQkforeFKjsVXFPjxuK5swa_uvCBb5xXuStdWF_h6xrP6mDa-ptTJZ401Uq1zvelp9AVa-xqvHAm1Koa40fTdmOs6gJPlQvuGB1YVXpzsvsj9HJ3-zyZRvOH-9nkeh5pKiFEqdSWSEOY5bZQ0J-NGUCSk1wXmhQJjxOliZZFnFCZQ64ltUowmTIpSGrYCJ1vd1dt89kZH7LKeW3KUtWm6XxGY85pCiyOexS2qG4b71tjs1XrKtWuMwLZxmv212tfOdutd3llit_Cj8geiLaAV-8mWzZdb6v0_w9-AS2qfws</recordid><startdate>202106</startdate><enddate>202106</enddate><creator>Spiegel, Elizabeth</creator><creator>Nesbit, Kathryn C.</creator><creator>Altenor, Ketly</creator><creator>Nguyen, Hoa Thi</creator><creator>Tran, Ly</creator><creator>Hermosa, Angela Quiñonez</creator><creator>Martin, Holly</creator><creator>Oettingen, Julia von</creator><creator>Treleaven, Emily</creator><creator>Partridge, John Colin</creator><general>SAGE Publications</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0003-2409-0664</orcidid></search><sort><creationdate>202106</creationdate><title>Valuation of Life With Disability: An International Comparison Study in Vietnam, Peru, and Haiti</title><author>Spiegel, Elizabeth ; Nesbit, Kathryn C. ; Altenor, Ketly ; Nguyen, Hoa Thi ; Tran, Ly ; Hermosa, Angela Quiñonez ; Martin, Holly ; Oettingen, Julia von ; Treleaven, Emily ; Partridge, John Colin</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c290t-69cf19e13f7fda0a0af43005b1bcdc1d5745ac1c9d4529b0bc92fa839639816e3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Adolescent</topic><topic>Adult</topic><topic>Cross-Sectional Studies</topic><topic>Disability Evaluation</topic><topic>Disabled Persons - psychology</topic><topic>Female</topic><topic>Haiti</topic><topic>Health Services Accessibility</topic><topic>Humans</topic><topic>Male</topic><topic>Middle Aged</topic><topic>Peru</topic><topic>Quality of Life</topic><topic>Self Concept</topic><topic>Sociodemographic Factors</topic><topic>Socioeconomic Factors</topic><topic>Surveys and Questionnaires</topic><topic>Vietnam</topic><topic>Young Adult</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Spiegel, Elizabeth</creatorcontrib><creatorcontrib>Nesbit, Kathryn C.</creatorcontrib><creatorcontrib>Altenor, Ketly</creatorcontrib><creatorcontrib>Nguyen, Hoa Thi</creatorcontrib><creatorcontrib>Tran, Ly</creatorcontrib><creatorcontrib>Hermosa, Angela Quiñonez</creatorcontrib><creatorcontrib>Martin, Holly</creatorcontrib><creatorcontrib>Oettingen, Julia von</creatorcontrib><creatorcontrib>Treleaven, Emily</creatorcontrib><creatorcontrib>Partridge, John Colin</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of child neurology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Spiegel, Elizabeth</au><au>Nesbit, Kathryn C.</au><au>Altenor, Ketly</au><au>Nguyen, Hoa Thi</au><au>Tran, Ly</au><au>Hermosa, Angela Quiñonez</au><au>Martin, Holly</au><au>Oettingen, Julia von</au><au>Treleaven, Emily</au><au>Partridge, John Colin</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Valuation of Life With Disability: An International Comparison Study in Vietnam, Peru, and Haiti</atitle><jtitle>Journal of child neurology</jtitle><addtitle>J Child Neurol</addtitle><date>2021-06</date><risdate>2021</risdate><volume>36</volume><issue>7</issue><spage>556</spage><epage>567</epage><pages>556-567</pages><issn>0883-0738</issn><eissn>1708-8283</eissn><abstract>The authors measured perceived quality of life for 4 disabilities among 450 adults in 3 resource-limited countries, measuring mean utilities using time trade-off, and surveying participants on 35 sociocultural characteristics to compare utilities for disabilities by country and examine associated sociocultural characteristics. Mean utilities were >0 for mild and moderate, but <0 for severe and profound. Utilities differed across countries (P = .007, .000, .017, .000 for mild, moderate, severe, profound, respectively). Vietnamese utilities correlated with residence (P = .03, moderate), education (P = .03, severe), and number of children (P = .03, moderate). Peruvian utilities correlated with education (P = .05, mild; P = .05, severe), experience with disability (P = .001, mild), gender (P = .04, moderate; P = .03, profound), number of hospitalizations (P = .04, severe). In Haiti, the only correlate was rejection (P = .02, moderate). Culture-specific variables differentially shape perceptions of disability in developing countries, thereby affecting cost-effectiveness calculations. 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| subjects | Adolescent Adult Cross-Sectional Studies Disability Evaluation Disabled Persons - psychology Female Haiti Health Services Accessibility Humans Male Middle Aged Peru Quality of Life Self Concept Sociodemographic Factors Socioeconomic Factors Surveys and Questionnaires Vietnam Young Adult |
| title | Valuation of Life With Disability: An International Comparison Study in Vietnam, Peru, and Haiti |
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