Results of a pre-implementation analysis of Ethiopia’s National Pediatric Cancer Registry

In Ethiopia, cancer accounts for about 5.8% of total national mortality, with an estimated annual incidence of cancer of approximately 60,960 cases and an annual mortality of over 44,000 persons. This is likely an underestimation. Survival rates for pediatric malignancies are likewise suboptimal alt...

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Veröffentlicht in:Journal of oncology pharmacy practice 2021-12, Vol.27 (8), p.1940-1947, Article 1078155220980051
Hauptverfasser: Buhlinger, Kaitlyn M, Borlagdan, Jared, Agegnehu, Bemnat, Fentie, Atalay M, Bernstein, Adam T, Urick, Benjamin Y, Roberts, Megan, Weitzman, Sheila, Bekele, Wondwessen, Korones, David, Alexander, Thomas B, Broas, Julie, Shad, Aziza, Dinkiye, Ali Mamude, Clark, Stephen M, Adam, Hayleyesus, Hailu, Daniel, Muluneh, Benyam
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container_end_page 1947
container_issue 8
container_start_page 1940
container_title Journal of oncology pharmacy practice
container_volume 27
creator Buhlinger, Kaitlyn M
Borlagdan, Jared
Agegnehu, Bemnat
Fentie, Atalay M
Bernstein, Adam T
Urick, Benjamin Y
Roberts, Megan
Weitzman, Sheila
Bekele, Wondwessen
Korones, David
Alexander, Thomas B
Broas, Julie
Shad, Aziza
Dinkiye, Ali Mamude
Clark, Stephen M
Adam, Hayleyesus
Hailu, Daniel
Muluneh, Benyam
description In Ethiopia, cancer accounts for about 5.8% of total national mortality, with an estimated annual incidence of cancer of approximately 60,960 cases and an annual mortality of over 44,000 persons. This is likely an underestimation. Survival rates for pediatric malignancies are likewise suboptimal although exact figures are unknown since a national cancer registry is unavailable. The World Health Organization (WHO) provides recommendations for the creation of cancer registries to track such data. Here we describe our pharmacist-led, pre-implementation assessment of introducing an enhanced national pediatric cancer registry in Ethiopia. Our assessment project had three specific aims around which the methods were designed: 1) characterization of the current spreadsheet-based tool across participating sites, including which variables were being collected, how these variables compared to standards set by the WHO, and a description of how the data were entered and its completeness; 2) assessment of the perceptions of an enhanced registry from hospital staff; and 3) evaluation of workflow gaps regarding documentation. The hospital staff and leadership have generally positive perceptions of an enhanced pediatric cancer registry, which were further improved by our interactions. The workflow assessment revealed several gaps, which were addressed systematically using a three-phase implementation science approach. The assessment also demonstrated that the existing spreadsheet-based tool was missing WHO-recommended variables and had inconsistent completion due to the workflow gaps. A pediatric oncology summary sheet will be implemented in upcoming trips in patient charts to better summarize the patients’ journey starting from diagnosis. This document will be used by the data clerks in an enhanced-spreadsheet to have a more complete data set.
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This is likely an underestimation. Survival rates for pediatric malignancies are likewise suboptimal although exact figures are unknown since a national cancer registry is unavailable. The World Health Organization (WHO) provides recommendations for the creation of cancer registries to track such data. Here we describe our pharmacist-led, pre-implementation assessment of introducing an enhanced national pediatric cancer registry in Ethiopia. Our assessment project had three specific aims around which the methods were designed: 1) characterization of the current spreadsheet-based tool across participating sites, including which variables were being collected, how these variables compared to standards set by the WHO, and a description of how the data were entered and its completeness; 2) assessment of the perceptions of an enhanced registry from hospital staff; and 3) evaluation of workflow gaps regarding documentation. 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subjects Cancer
Child
Documentation
Ethiopia - epidemiology
Humans
Life Sciences & Biomedicine
Medical Oncology
Mortality
Neoplasms - epidemiology
Oncology
Patients
Pediatrics
Pharmacology & Pharmacy
Registries
Science & Technology
title Results of a pre-implementation analysis of Ethiopia’s National Pediatric Cancer Registry
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