Informal carers’ support needs when caring for a person with dementia – A scoping literature review
Background Informal carers of people with dementia report having unmet needs for support and few supportive interventions have been shown to be effective. There is a need to develop needs assessment instruments and supportive interventions with a holistic and person‐centred approach to meet the vari...
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| Veröffentlicht in: | Scandinavian journal of caring sciences 2021-09, Vol.35 (3), p.685-700 |
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| container_title | Scandinavian journal of caring sciences |
| container_volume | 35 |
| creator | Holt Clemmensen, Trine Hein Lauridsen, Henrik Andersen‐Ranberg, Karen Kaae Kristensen, Hanne |
| description | Background
Informal carers of people with dementia report having unmet needs for support and few supportive interventions have been shown to be effective. There is a need to develop needs assessment instruments and supportive interventions with a holistic and person‐centred approach to meet the various and complex needs of carers. The aim of this study was to provide an overview of carers’ support needs when caring for people with dementia with the objectives to map and synthesise knowledge on key concepts of carers’ support needs.
Methods
A scoping review methodology was used. A literature search was conducted in PsycINFO, CINAHL, PubMed and EMBASE between January 2007 and October 2019. Three authors independently selected articles meeting the inclusion criteria, and data were extracted using a matrix developed for that purpose. Inductive content analysis was used to synthesise key concepts of carers’ support needs.
Results
The search identified 2748 articles after removing duplicates, and 122 articles were included in the mapping of carers’ support needs. Synthesising carers’ support needs indicated that the full extent of support needs emerges in the interaction between the carer and the person cared for and that it is possible to categorise support needs into four key concepts related to: 1) the carer as a person, 2) managing being a carer, 3) providing care, and 4) knowledge of dementia.
Conclusion
The findings of this study help to map a framework describing carers’ support needs that may guide the development of future needs assessment instruments and supportive interventions. |
| doi_str_mv | 10.1111/scs.12898 |
| format | Article |
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Informal carers of people with dementia report having unmet needs for support and few supportive interventions have been shown to be effective. There is a need to develop needs assessment instruments and supportive interventions with a holistic and person‐centred approach to meet the various and complex needs of carers. The aim of this study was to provide an overview of carers’ support needs when caring for people with dementia with the objectives to map and synthesise knowledge on key concepts of carers’ support needs.
Methods
A scoping review methodology was used. A literature search was conducted in PsycINFO, CINAHL, PubMed and EMBASE between January 2007 and October 2019. Three authors independently selected articles meeting the inclusion criteria, and data were extracted using a matrix developed for that purpose. Inductive content analysis was used to synthesise key concepts of carers’ support needs.
Results
The search identified 2748 articles after removing duplicates, and 122 articles were included in the mapping of carers’ support needs. Synthesising carers’ support needs indicated that the full extent of support needs emerges in the interaction between the carer and the person cared for and that it is possible to categorise support needs into four key concepts related to: 1) the carer as a person, 2) managing being a carer, 3) providing care, and 4) knowledge of dementia.
Conclusion
The findings of this study help to map a framework describing carers’ support needs that may guide the development of future needs assessment instruments and supportive interventions.</description><identifier>ISSN: 0283-9318</identifier><identifier>EISSN: 1471-6712</identifier><identifier>DOI: 10.1111/scs.12898</identifier><identifier>PMID: 32781496</identifier><language>eng</language><publisher>Sweden: Wiley Subscription Services, Inc</publisher><subject>Alzheimer's disease ; Alzheimer’s ; Caregivers ; caregiving ; carer ; Content analysis ; Dementia ; Health education ; Intervention ; Knowledge ; Literature reviews ; Mapping ; Mental health ; Needs assessment ; Nurse patient relationships ; Nursing ; Nursing care ; Patient-centered care ; Quality of life ; scoping literature review ; support needs</subject><ispartof>Scandinavian journal of caring sciences, 2021-09, Vol.35 (3), p.685-700</ispartof><rights>2020 Nordic College of Caring Science</rights><rights>2020 Nordic College of Caring Science.</rights><rights>Copyright © 2021 Nordic College of Caring Science</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3888-270e7a364ebb6034c0f05324d7319d50ef70510cf7e85c52eef3326f1249ed3e3</citedby><cites>FETCH-LOGICAL-c3888-270e7a364ebb6034c0f05324d7319d50ef70510cf7e85c52eef3326f1249ed3e3</cites><orcidid>0000-0002-6080-8883 ; 0000-0002-9596-5571</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fscs.12898$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fscs.12898$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,780,784,1417,27924,27925,30999,45574,45575</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/32781496$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Holt Clemmensen, Trine</creatorcontrib><creatorcontrib>Hein Lauridsen, Henrik</creatorcontrib><creatorcontrib>Andersen‐Ranberg, Karen</creatorcontrib><creatorcontrib>Kaae Kristensen, Hanne</creatorcontrib><title>Informal carers’ support needs when caring for a person with dementia – A scoping literature review</title><title>Scandinavian journal of caring sciences</title><addtitle>Scand J Caring Sci</addtitle><description>Background
Informal carers of people with dementia report having unmet needs for support and few supportive interventions have been shown to be effective. There is a need to develop needs assessment instruments and supportive interventions with a holistic and person‐centred approach to meet the various and complex needs of carers. The aim of this study was to provide an overview of carers’ support needs when caring for people with dementia with the objectives to map and synthesise knowledge on key concepts of carers’ support needs.
Methods
A scoping review methodology was used. A literature search was conducted in PsycINFO, CINAHL, PubMed and EMBASE between January 2007 and October 2019. Three authors independently selected articles meeting the inclusion criteria, and data were extracted using a matrix developed for that purpose. Inductive content analysis was used to synthesise key concepts of carers’ support needs.
Results
The search identified 2748 articles after removing duplicates, and 122 articles were included in the mapping of carers’ support needs. Synthesising carers’ support needs indicated that the full extent of support needs emerges in the interaction between the carer and the person cared for and that it is possible to categorise support needs into four key concepts related to: 1) the carer as a person, 2) managing being a carer, 3) providing care, and 4) knowledge of dementia.
Conclusion
The findings of this study help to map a framework describing carers’ support needs that may guide the development of future needs assessment instruments and supportive interventions.</description><subject>Alzheimer's disease</subject><subject>Alzheimer’s</subject><subject>Caregivers</subject><subject>caregiving</subject><subject>carer</subject><subject>Content analysis</subject><subject>Dementia</subject><subject>Health education</subject><subject>Intervention</subject><subject>Knowledge</subject><subject>Literature reviews</subject><subject>Mapping</subject><subject>Mental health</subject><subject>Needs assessment</subject><subject>Nurse patient relationships</subject><subject>Nursing</subject><subject>Nursing care</subject><subject>Patient-centered care</subject><subject>Quality of life</subject><subject>scoping literature review</subject><subject>support needs</subject><issn>0283-9318</issn><issn>1471-6712</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><recordid>eNp10LtKBDEYhuEgiq6rhTcgARstRnOcZEpZPIFgodYhm_lnd2ROJjMudt6DlbfnlZh1VwvBNCny8BFehA4oOaXxnAUXTinTmd5AIyoUTVJF2SYaEaZ5knGqd9BuCE-EECkJ3UY7nClNRZaO0OymKVpf2wo768GHz7cPHIaua32PG4A84MUcmuVj2cxwpNjiLrq2wYuyn-Mcamj60uLPt3d8joNruyWsyh687QcP2MNLCYs9tFXYKsD--h6jx8uLh8l1cnt3dTM5v00c11onTBFQlqcCptOUcOFIQSRnIlecZrkkUCgiKXGFAi2dZAAF5ywtKBMZ5Bz4GB2vdjvfPg8QelOXwUFV2QbaIRgmohexg4r06A99agffxN8ZJlOqBVWSR3WyUs63IXgoTOfL2vpXQ4lZ1jexvvmuH-3henGY1pD_yp_cEZytwKKs4PX_JXM_uV9NfgFa9Y-4</recordid><startdate>202109</startdate><enddate>202109</enddate><creator>Holt Clemmensen, Trine</creator><creator>Hein Lauridsen, Henrik</creator><creator>Andersen‐Ranberg, Karen</creator><creator>Kaae Kristensen, Hanne</creator><general>Wiley Subscription Services, Inc</general><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>NAPCQ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-6080-8883</orcidid><orcidid>https://orcid.org/0000-0002-9596-5571</orcidid></search><sort><creationdate>202109</creationdate><title>Informal carers’ support needs when caring for a person with dementia – A scoping literature review</title><author>Holt Clemmensen, Trine ; Hein Lauridsen, Henrik ; Andersen‐Ranberg, Karen ; Kaae Kristensen, Hanne</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3888-270e7a364ebb6034c0f05324d7319d50ef70510cf7e85c52eef3326f1249ed3e3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Alzheimer's disease</topic><topic>Alzheimer’s</topic><topic>Caregivers</topic><topic>caregiving</topic><topic>carer</topic><topic>Content analysis</topic><topic>Dementia</topic><topic>Health education</topic><topic>Intervention</topic><topic>Knowledge</topic><topic>Literature reviews</topic><topic>Mapping</topic><topic>Mental health</topic><topic>Needs assessment</topic><topic>Nurse patient relationships</topic><topic>Nursing</topic><topic>Nursing care</topic><topic>Patient-centered care</topic><topic>Quality of life</topic><topic>scoping literature review</topic><topic>support needs</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Holt Clemmensen, Trine</creatorcontrib><creatorcontrib>Hein Lauridsen, Henrik</creatorcontrib><creatorcontrib>Andersen‐Ranberg, Karen</creatorcontrib><creatorcontrib>Kaae Kristensen, Hanne</creatorcontrib><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Scandinavian journal of caring sciences</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Holt Clemmensen, Trine</au><au>Hein Lauridsen, Henrik</au><au>Andersen‐Ranberg, Karen</au><au>Kaae Kristensen, Hanne</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Informal carers’ support needs when caring for a person with dementia – A scoping literature review</atitle><jtitle>Scandinavian journal of caring sciences</jtitle><addtitle>Scand J Caring Sci</addtitle><date>2021-09</date><risdate>2021</risdate><volume>35</volume><issue>3</issue><spage>685</spage><epage>700</epage><pages>685-700</pages><issn>0283-9318</issn><eissn>1471-6712</eissn><abstract>Background
Informal carers of people with dementia report having unmet needs for support and few supportive interventions have been shown to be effective. There is a need to develop needs assessment instruments and supportive interventions with a holistic and person‐centred approach to meet the various and complex needs of carers. The aim of this study was to provide an overview of carers’ support needs when caring for people with dementia with the objectives to map and synthesise knowledge on key concepts of carers’ support needs.
Methods
A scoping review methodology was used. A literature search was conducted in PsycINFO, CINAHL, PubMed and EMBASE between January 2007 and October 2019. Three authors independently selected articles meeting the inclusion criteria, and data were extracted using a matrix developed for that purpose. Inductive content analysis was used to synthesise key concepts of carers’ support needs.
Results
The search identified 2748 articles after removing duplicates, and 122 articles were included in the mapping of carers’ support needs. Synthesising carers’ support needs indicated that the full extent of support needs emerges in the interaction between the carer and the person cared for and that it is possible to categorise support needs into four key concepts related to: 1) the carer as a person, 2) managing being a carer, 3) providing care, and 4) knowledge of dementia.
Conclusion
The findings of this study help to map a framework describing carers’ support needs that may guide the development of future needs assessment instruments and supportive interventions.</abstract><cop>Sweden</cop><pub>Wiley Subscription Services, Inc</pub><pmid>32781496</pmid><doi>10.1111/scs.12898</doi><tpages>16</tpages><orcidid>https://orcid.org/0000-0002-6080-8883</orcidid><orcidid>https://orcid.org/0000-0002-9596-5571</orcidid><oa>free_for_read</oa></addata></record> |
| fulltext | fulltext |
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| ispartof | Scandinavian journal of caring sciences, 2021-09, Vol.35 (3), p.685-700 |
| issn | 0283-9318 1471-6712 |
| language | eng |
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| source | Applied Social Sciences Index & Abstracts (ASSIA); Wiley Online Library All Journals |
| subjects | Alzheimer's disease Alzheimer’s Caregivers caregiving carer Content analysis Dementia Health education Intervention Knowledge Literature reviews Mapping Mental health Needs assessment Nurse patient relationships Nursing Nursing care Patient-centered care Quality of life scoping literature review support needs |
| title | Informal carers’ support needs when caring for a person with dementia – A scoping literature review |
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