Emotional distress among parent caregivers of adolescents with sickle cell disease: Association with patients and caregivers variables
Evidence suggests that impairment in caregiver wellbeing can alter the quality of care in children with sickle cell disease. We examined 121 parent caregivers of adolescents with sickle cell disease for emotional distress and disruptions to caregiver lifestyle and interests. Participants were predom...
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| Veröffentlicht in: | Journal of health psychology 2021-12, Vol.26 (14), p.2851-2860 |
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| container_issue | 14 |
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| container_title | Journal of health psychology |
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| creator | Bioku, Ayodeji A Ohaeri, Jude U Oluwaniyi, Stephen O Olagunju, Tinuke O Chaimowitz, Gary A Olagunju, Andrew T |
| description | Evidence suggests that impairment in caregiver wellbeing can alter the quality of care in children with sickle cell disease. We examined 121 parent caregivers of adolescents with sickle cell disease for emotional distress and disruptions to caregiver lifestyle and interests. Participants were predominantly mothers 92(76%) with mean age, 43.59 (SD = 6.39) years. Four in every ten caregivers had emotional distress, and this was predicted by frequent hospital attendance and disruptions in caregiver lifestyle, relationships, and interests. Psychosocial support to promote resilience and adaptive coping-styles to deal with the stress from unforeseen crises, frequent hospital visits, and lifestyle disruptions are indicated to improve caregiver wellbeing. |
| doi_str_mv | 10.1177/1359105320935986 |
| format | Article |
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We examined 121 parent caregivers of adolescents with sickle cell disease for emotional distress and disruptions to caregiver lifestyle and interests. Participants were predominantly mothers 92(76%) with mean age, 43.59 (SD = 6.39) years. Four in every ten caregivers had emotional distress, and this was predicted by frequent hospital attendance and disruptions in caregiver lifestyle, relationships, and interests. 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We examined 121 parent caregivers of adolescents with sickle cell disease for emotional distress and disruptions to caregiver lifestyle and interests. Participants were predominantly mothers 92(76%) with mean age, 43.59 (SD = 6.39) years. Four in every ten caregivers had emotional distress, and this was predicted by frequent hospital attendance and disruptions in caregiver lifestyle, relationships, and interests. Psychosocial support to promote resilience and adaptive coping-styles to deal with the stress from unforeseen crises, frequent hospital visits, and lifestyle disruptions are indicated to improve caregiver wellbeing.</description><subject>Adaptation, Psychological</subject><subject>Adolescent</subject><subject>Adult</subject><subject>Anemia, Sickle Cell</subject><subject>Caregivers</subject><subject>Caregivers - psychology</subject><subject>Coping</subject><subject>Emotional distress</subject><subject>Female</subject><subject>Humans</subject><subject>Lifestyles</subject><subject>Mothers</subject><subject>Parents</subject><subject>Psychological Distress</subject><subject>Psychosocial factors</subject><subject>Psychosocial support</subject><subject>Quality of care</subject><subject>Quality of Life</subject><subject>Resilience</subject><subject>Sickle cell disease</subject><subject>Stress, Psychological - etiology</subject><subject>Well being</subject><issn>1359-1053</issn><issn>1461-7277</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2021</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7QJ</sourceid><recordid>eNp1kUtP3DAQgK0KVF69c0KWuPSS4vejN4QoICFxgXPkJJOtIYm3nuyi_oH-7npZWiqknmbk-ebz2EPIMWdfOLf2jEvtOdNSMF8yZz6Qfa4Mr6ywdqfk5bDa1PfIAeIjY0wbJz6SPSm0c8bwffLrckxzTFMYaBdxzoBIw5imBV2GDNNM2xIWcQ0Zaepp6NIA2JYC0uc4f6cY26cBaAvDiwACwld6jpjaGDbeLbUs-UtPmLp_jeuQY2iK8Yjs9mFA-PQaD8nDt8v7i-vq9u7q5uL8tmql0XOlhRLC9b4TTMnAte0teFBOK2F941torOucl9JzK1l5oihHXIheCckb38tD8nnrXeb0YwU412PEzfBhgrTCWijuuDBGqIKevkMf0yqXjyqUdsqoMowtFNtSbU6IGfp6meMY8s-as3qzo_r9jkrLyat41YzQ_W34s5QCVFsAwwLebv2v8DdBzJnC</recordid><startdate>202112</startdate><enddate>202112</enddate><creator>Bioku, Ayodeji A</creator><creator>Ohaeri, Jude U</creator><creator>Oluwaniyi, Stephen O</creator><creator>Olagunju, Tinuke O</creator><creator>Chaimowitz, Gary A</creator><creator>Olagunju, Andrew T</creator><general>SAGE Publications</general><general>SAGE PUBLICATIONS, INC</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>8BJ</scope><scope>FQK</scope><scope>JBE</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0003-1736-9886</orcidid></search><sort><creationdate>202112</creationdate><title>Emotional distress among parent caregivers of adolescents with sickle cell disease: Association with patients and caregivers variables</title><author>Bioku, Ayodeji A ; Ohaeri, Jude U ; Oluwaniyi, Stephen O ; Olagunju, Tinuke O ; Chaimowitz, Gary A ; Olagunju, Andrew T</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c365t-524228f9d2043a157f7e9e4854279b9ceb78d8933917308862ceb122f4231b9f3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2021</creationdate><topic>Adaptation, Psychological</topic><topic>Adolescent</topic><topic>Adult</topic><topic>Anemia, Sickle Cell</topic><topic>Caregivers</topic><topic>Caregivers - psychology</topic><topic>Coping</topic><topic>Emotional distress</topic><topic>Female</topic><topic>Humans</topic><topic>Lifestyles</topic><topic>Mothers</topic><topic>Parents</topic><topic>Psychological Distress</topic><topic>Psychosocial factors</topic><topic>Psychosocial support</topic><topic>Quality of care</topic><topic>Quality of Life</topic><topic>Resilience</topic><topic>Sickle cell disease</topic><topic>Stress, Psychological - etiology</topic><topic>Well being</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Bioku, Ayodeji A</creatorcontrib><creatorcontrib>Ohaeri, Jude U</creatorcontrib><creatorcontrib>Oluwaniyi, Stephen O</creatorcontrib><creatorcontrib>Olagunju, Tinuke O</creatorcontrib><creatorcontrib>Chaimowitz, Gary A</creatorcontrib><creatorcontrib>Olagunju, Andrew T</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>International Bibliography of the Social Sciences (IBSS)</collection><collection>International Bibliography of the Social Sciences</collection><collection>International Bibliography of the Social Sciences</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of health psychology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Bioku, Ayodeji A</au><au>Ohaeri, Jude U</au><au>Oluwaniyi, Stephen O</au><au>Olagunju, Tinuke O</au><au>Chaimowitz, Gary A</au><au>Olagunju, Andrew T</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Emotional distress among parent caregivers of adolescents with sickle cell disease: Association with patients and caregivers variables</atitle><jtitle>Journal of health psychology</jtitle><addtitle>J Health Psychol</addtitle><date>2021-12</date><risdate>2021</risdate><volume>26</volume><issue>14</issue><spage>2851</spage><epage>2860</epage><pages>2851-2860</pages><issn>1359-1053</issn><eissn>1461-7277</eissn><abstract>Evidence suggests that impairment in caregiver wellbeing can alter the quality of care in children with sickle cell disease. 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| source | Applied Social Sciences Index & Abstracts (ASSIA); MEDLINE; SAGE Complete |
| subjects | Adaptation, Psychological Adolescent Adult Anemia, Sickle Cell Caregivers Caregivers - psychology Coping Emotional distress Female Humans Lifestyles Mothers Parents Psychological Distress Psychosocial factors Psychosocial support Quality of care Quality of Life Resilience Sickle cell disease Stress, Psychological - etiology Well being |
| title | Emotional distress among parent caregivers of adolescents with sickle cell disease: Association with patients and caregivers variables |
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