Keepsakes at the End of Life
Keepsakes are a relatively unexplored form of bereavement support that is frequently provided as part of the 3 Wishes Project (3WP). The 3WP is a palliative care intervention in which individualized wishes are implemented in the adult intensive care unit for dying patients and their families. We aim...
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Veröffentlicht in: | Journal of pain and symptom management 2020-11, Vol.60 (5), p.941-947 |
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creator | Neville, Thanh H. Clarke, France Takaoka, Alyson Sadik, Marina Vanstone, Meredith Phung, Peter Hjelmhaug, Kristen Hainje, Jessica Smith, Orla M. LeBlanc, Allana Hoad, Neala Tam, Benjamin Reeve, Brenda Cook, Deborah J. |
description | Keepsakes are a relatively unexplored form of bereavement support that is frequently provided as part of the 3 Wishes Project (3WP). The 3WP is a palliative care intervention in which individualized wishes are implemented in the adult intensive care unit for dying patients and their families.
We aimed to characterize and enumerate the keepsakes that were created as part of the 3WP and to understand their value from the perspective of bereaved family members.
We performed a secondary analysis of family interviews during a multicenter study on the 3WP and characterized all wishes that involved keepsakes. Sixty interviews with family members regarding the 3WP were reanalyzed using qualitative analysis to identify substantive themes related to keepsakes.
Of 730 patients, 345 (47%) received keepsakes as part of their participation in 3WP. Most keepsakes were either tangible items that served as reminders of the patient's presence (thumbprints and locks of hair) or technology-assisted items (photographs and word clouds). The median cost per keepsake wish was $8.50 (interquartile range $2.00–$25.00). Qualitative analysis revealed two major themes: keepsakes are tangible items that are highly valued by family members; and the creation of the keepsake with clinical staff is valued and viewed as a gesture of compassion.
Keepsakes are common wishes that clinicians in the intensive care unit are able to provide and sometimes cocreate with families when patients are dying. Both the offering to create the keepsake and receipt of the final product are perceived by family members as helpful. |
doi_str_mv | 10.1016/j.jpainsymman.2020.06.011 |
format | Article |
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We aimed to characterize and enumerate the keepsakes that were created as part of the 3WP and to understand their value from the perspective of bereaved family members.
We performed a secondary analysis of family interviews during a multicenter study on the 3WP and characterized all wishes that involved keepsakes. Sixty interviews with family members regarding the 3WP were reanalyzed using qualitative analysis to identify substantive themes related to keepsakes.
Of 730 patients, 345 (47%) received keepsakes as part of their participation in 3WP. Most keepsakes were either tangible items that served as reminders of the patient's presence (thumbprints and locks of hair) or technology-assisted items (photographs and word clouds). The median cost per keepsake wish was $8.50 (interquartile range $2.00–$25.00). Qualitative analysis revealed two major themes: keepsakes are tangible items that are highly valued by family members; and the creation of the keepsake with clinical staff is valued and viewed as a gesture of compassion.
Keepsakes are common wishes that clinicians in the intensive care unit are able to provide and sometimes cocreate with families when patients are dying. Both the offering to create the keepsake and receipt of the final product are perceived by family members as helpful.</description><identifier>ISSN: 0885-3924</identifier><identifier>EISSN: 1873-6513</identifier><identifier>DOI: 10.1016/j.jpainsymman.2020.06.011</identifier><language>eng</language><publisher>Madison: Elsevier Inc</publisher><subject>Bereavement ; Death & dying ; End of life ; End of life decisions ; Grief ; Hair ; Intensive care ; Intensive treatment ; Interviews ; keepsakes ; Memory ; Multicenter studies ; Palliative care ; Photography ; Qualitative research ; Relatives ; Reminders ; Sympathy ; Technology</subject><ispartof>Journal of pain and symptom management, 2020-11, Vol.60 (5), p.941-947</ispartof><rights>2020 American Academy of Hospice and Palliative Medicine</rights><rights>Copyright Elsevier Limited Nov 2020</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c503t-979486a2af8efba392609bda8ce6d1d45b71871e548c8137beb08cb65797c8933</citedby><cites>FETCH-LOGICAL-c503t-979486a2af8efba392609bda8ce6d1d45b71871e548c8137beb08cb65797c8933</cites><orcidid>0000-0002-7347-6259 ; 0000-0003-1442-080X</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.jpainsymman.2020.06.011$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>314,778,782,3539,27913,27914,30988,45984</link.rule.ids></links><search><creatorcontrib>Neville, Thanh H.</creatorcontrib><creatorcontrib>Clarke, France</creatorcontrib><creatorcontrib>Takaoka, Alyson</creatorcontrib><creatorcontrib>Sadik, Marina</creatorcontrib><creatorcontrib>Vanstone, Meredith</creatorcontrib><creatorcontrib>Phung, Peter</creatorcontrib><creatorcontrib>Hjelmhaug, Kristen</creatorcontrib><creatorcontrib>Hainje, Jessica</creatorcontrib><creatorcontrib>Smith, Orla M.</creatorcontrib><creatorcontrib>LeBlanc, Allana</creatorcontrib><creatorcontrib>Hoad, Neala</creatorcontrib><creatorcontrib>Tam, Benjamin</creatorcontrib><creatorcontrib>Reeve, Brenda</creatorcontrib><creatorcontrib>Cook, Deborah J.</creatorcontrib><title>Keepsakes at the End of Life</title><title>Journal of pain and symptom management</title><description>Keepsakes are a relatively unexplored form of bereavement support that is frequently provided as part of the 3 Wishes Project (3WP). The 3WP is a palliative care intervention in which individualized wishes are implemented in the adult intensive care unit for dying patients and their families.
We aimed to characterize and enumerate the keepsakes that were created as part of the 3WP and to understand their value from the perspective of bereaved family members.
We performed a secondary analysis of family interviews during a multicenter study on the 3WP and characterized all wishes that involved keepsakes. Sixty interviews with family members regarding the 3WP were reanalyzed using qualitative analysis to identify substantive themes related to keepsakes.
Of 730 patients, 345 (47%) received keepsakes as part of their participation in 3WP. Most keepsakes were either tangible items that served as reminders of the patient's presence (thumbprints and locks of hair) or technology-assisted items (photographs and word clouds). The median cost per keepsake wish was $8.50 (interquartile range $2.00–$25.00). Qualitative analysis revealed two major themes: keepsakes are tangible items that are highly valued by family members; and the creation of the keepsake with clinical staff is valued and viewed as a gesture of compassion.
Keepsakes are common wishes that clinicians in the intensive care unit are able to provide and sometimes cocreate with families when patients are dying. Both the offering to create the keepsake and receipt of the final product are perceived by family members as helpful.</description><subject>Bereavement</subject><subject>Death & dying</subject><subject>End of life</subject><subject>End of life decisions</subject><subject>Grief</subject><subject>Hair</subject><subject>Intensive care</subject><subject>Intensive treatment</subject><subject>Interviews</subject><subject>keepsakes</subject><subject>Memory</subject><subject>Multicenter studies</subject><subject>Palliative care</subject><subject>Photography</subject><subject>Qualitative research</subject><subject>Relatives</subject><subject>Reminders</subject><subject>Sympathy</subject><subject>Technology</subject><issn>0885-3924</issn><issn>1873-6513</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2020</creationdate><recordtype>article</recordtype><sourceid>7QJ</sourceid><recordid>eNqNkD1PwzAQhi0EEqXwDxiCWFgSznHs2COqyoeoxAKz5TgX4dB8YKdI_fe4CgNiYrrluffeewi5opBRoOK2zdrRuD7su870WQ45ZCAyoPSILKgsWSo4ZcdkAVLylKm8OCVnIbQAwJlgC3L5jDgG84EhMVMyvWOy7utkaJKNa_CcnDRmG_DiZy7J2_36dfWYbl4enlZ3m9RyYFOqSlVIYXLTSGwqE68IUFVtpEVR07rgVRmrUOSFtJKyssIKpK0EL1VppWJsSW7m3NEPnzsMk-5csLjdmh6HXdB5QYUqhKAH9PoP2g4738d2kRK5KBkvaKTUTFk_hOCx0aN3nfF7TUEfvOlW__KmD940CB29xd3VvIvx4y-HXgfrsLdYO4920vXg_pHyDbCjeVg</recordid><startdate>20201101</startdate><enddate>20201101</enddate><creator>Neville, Thanh H.</creator><creator>Clarke, France</creator><creator>Takaoka, Alyson</creator><creator>Sadik, Marina</creator><creator>Vanstone, Meredith</creator><creator>Phung, Peter</creator><creator>Hjelmhaug, Kristen</creator><creator>Hainje, Jessica</creator><creator>Smith, Orla M.</creator><creator>LeBlanc, Allana</creator><creator>Hoad, Neala</creator><creator>Tam, Benjamin</creator><creator>Reeve, Brenda</creator><creator>Cook, Deborah J.</creator><general>Elsevier Inc</general><general>Elsevier Limited</general><scope>AAYXX</scope><scope>CITATION</scope><scope>7QJ</scope><scope>ASE</scope><scope>FPQ</scope><scope>K6X</scope><scope>K9.</scope><scope>NAPCQ</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-7347-6259</orcidid><orcidid>https://orcid.org/0000-0003-1442-080X</orcidid></search><sort><creationdate>20201101</creationdate><title>Keepsakes at the End of Life</title><author>Neville, Thanh H. ; Clarke, France ; Takaoka, Alyson ; Sadik, Marina ; Vanstone, Meredith ; Phung, Peter ; Hjelmhaug, Kristen ; Hainje, Jessica ; Smith, Orla M. ; LeBlanc, Allana ; Hoad, Neala ; Tam, Benjamin ; Reeve, Brenda ; Cook, Deborah J.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c503t-979486a2af8efba392609bda8ce6d1d45b71871e548c8137beb08cb65797c8933</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2020</creationdate><topic>Bereavement</topic><topic>Death & dying</topic><topic>End of life</topic><topic>End of life decisions</topic><topic>Grief</topic><topic>Hair</topic><topic>Intensive care</topic><topic>Intensive treatment</topic><topic>Interviews</topic><topic>keepsakes</topic><topic>Memory</topic><topic>Multicenter studies</topic><topic>Palliative care</topic><topic>Photography</topic><topic>Qualitative research</topic><topic>Relatives</topic><topic>Reminders</topic><topic>Sympathy</topic><topic>Technology</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Neville, Thanh H.</creatorcontrib><creatorcontrib>Clarke, France</creatorcontrib><creatorcontrib>Takaoka, Alyson</creatorcontrib><creatorcontrib>Sadik, Marina</creatorcontrib><creatorcontrib>Vanstone, Meredith</creatorcontrib><creatorcontrib>Phung, Peter</creatorcontrib><creatorcontrib>Hjelmhaug, Kristen</creatorcontrib><creatorcontrib>Hainje, Jessica</creatorcontrib><creatorcontrib>Smith, Orla M.</creatorcontrib><creatorcontrib>LeBlanc, Allana</creatorcontrib><creatorcontrib>Hoad, Neala</creatorcontrib><creatorcontrib>Tam, Benjamin</creatorcontrib><creatorcontrib>Reeve, Brenda</creatorcontrib><creatorcontrib>Cook, Deborah J.</creatorcontrib><collection>CrossRef</collection><collection>Applied Social Sciences Index & Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of pain and symptom management</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Neville, Thanh H.</au><au>Clarke, France</au><au>Takaoka, Alyson</au><au>Sadik, Marina</au><au>Vanstone, Meredith</au><au>Phung, Peter</au><au>Hjelmhaug, Kristen</au><au>Hainje, Jessica</au><au>Smith, Orla M.</au><au>LeBlanc, Allana</au><au>Hoad, Neala</au><au>Tam, Benjamin</au><au>Reeve, Brenda</au><au>Cook, Deborah J.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Keepsakes at the End of Life</atitle><jtitle>Journal of pain and symptom management</jtitle><date>2020-11-01</date><risdate>2020</risdate><volume>60</volume><issue>5</issue><spage>941</spage><epage>947</epage><pages>941-947</pages><issn>0885-3924</issn><eissn>1873-6513</eissn><abstract>Keepsakes are a relatively unexplored form of bereavement support that is frequently provided as part of the 3 Wishes Project (3WP). The 3WP is a palliative care intervention in which individualized wishes are implemented in the adult intensive care unit for dying patients and their families.
We aimed to characterize and enumerate the keepsakes that were created as part of the 3WP and to understand their value from the perspective of bereaved family members.
We performed a secondary analysis of family interviews during a multicenter study on the 3WP and characterized all wishes that involved keepsakes. Sixty interviews with family members regarding the 3WP were reanalyzed using qualitative analysis to identify substantive themes related to keepsakes.
Of 730 patients, 345 (47%) received keepsakes as part of their participation in 3WP. Most keepsakes were either tangible items that served as reminders of the patient's presence (thumbprints and locks of hair) or technology-assisted items (photographs and word clouds). The median cost per keepsake wish was $8.50 (interquartile range $2.00–$25.00). Qualitative analysis revealed two major themes: keepsakes are tangible items that are highly valued by family members; and the creation of the keepsake with clinical staff is valued and viewed as a gesture of compassion.
Keepsakes are common wishes that clinicians in the intensive care unit are able to provide and sometimes cocreate with families when patients are dying. Both the offering to create the keepsake and receipt of the final product are perceived by family members as helpful.</abstract><cop>Madison</cop><pub>Elsevier Inc</pub><doi>10.1016/j.jpainsymman.2020.06.011</doi><tpages>7</tpages><orcidid>https://orcid.org/0000-0002-7347-6259</orcidid><orcidid>https://orcid.org/0000-0003-1442-080X</orcidid><oa>free_for_read</oa></addata></record> |
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subjects | Bereavement Death & dying End of life End of life decisions Grief Hair Intensive care Intensive treatment Interviews keepsakes Memory Multicenter studies Palliative care Photography Qualitative research Relatives Reminders Sympathy Technology |
title | Keepsakes at the End of Life |
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