Work- and insurance-related issues among Asian adolescent and young-adult cancer survivors: a qualitative study
Purpose Work-related issues among Asian adolescent and young-adult (AYA) cancer survivors are poorly described in the literature. There has also been a paucity of reports regarding insurance-related concerns in this patient population. Focus groups were therefore carried out in Singapore to understa...
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| Veröffentlicht in: | Supportive care in cancer 2020-12, Vol.28 (12), p.5901-5909 |
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| container_title | Supportive care in cancer |
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| creator | Tan, Chia Jie Ke, Yu Ng, Tabitha Tan, Isabel Mei Jun Goh, Wei Lin Poon, Eileen Farid, Mohamad Neo, Patricia Soek Hui Srilatha, Balasubramaniam Chan, Alexandre |
| description | Purpose
Work-related issues among Asian adolescent and young-adult (AYA) cancer survivors are poorly described in the literature. There has also been a paucity of reports regarding insurance-related concerns in this patient population. Focus groups were therefore carried out in Singapore to understand survivorship issues related to work and insurance coverage among Asian AYA cancer survivors.
Methods
Twenty-three AYA survivors and 18 healthcare professionals (HCPs) who care for AYA cancer patients were recruited for 11 focus group sessions. Thematic content analysis was carried out to identify major themes that emerged.
Results
Similar themes emerged from AYA and HCP focus groups. The majority of AYA survivors were eager to return to work post-treatment. However, some survivors were worried about not keeping up with expectations and struggled with disclosure of their medical history. In contrast, several survivors leveraged on their experience with cancer to bolster job opportunities. Despite facing challenges due to complications from cancer and restrictions at work, AYA survivors preferred to be treated normally. AYA survivors also expressed concerns about inadequate insurance coverage and a lack of information on this topic.
Conclusion
Contrary to expectations, Asian AYA survivors are motivated to return to work and address work-related challenges. Inadequate insurance coverage remains a pressing concern despite the availability of public health insurance and subsidies. Career coaches and financial counselors should be incorporated into survivorship care to aid AYA survivors. |
| doi_str_mv | 10.1007/s00520-020-05430-z |
| format | Article |
| fullrecord | <record><control><sourceid>gale_proqu</sourceid><recordid>TN_cdi_proquest_miscellaneous_2388002572</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><galeid>A650995353</galeid><sourcerecordid>A650995353</sourcerecordid><originalsourceid>FETCH-LOGICAL-c442t-91740b086fab0ba5c631b733db7e69b7cf6ef21456a747354a4b1c1d8b1e61313</originalsourceid><addsrcrecordid>eNp9kV9rFDEUxYModq1-AR8k4IsvqTf_Jju-LaVWoeCL4mO4k8ksqbNJm8wsbD-9mW61KCLhErj3dw73cgh5zeGMA5j3BUALYLCUVhLY3ROy4kpKZqRsn5IVtIozJbU-IS9KuQbgxmjxnJxIIQxIDiuSvqf8g1GMPQ2xzBmj8yz7ESdfO6XMvlDcpbilmxIwUuzT6IvzcbrXHNIctwz7eZyoW7SZVpN92KdcPlCktzOOYcIp7D0t09wfXpJnA47Fv3r4T8m3jxdfzz-xqy-Xn883V8wpJSbWcqOgg3UzYAcdatdI3tWr-s74pu2MGxo_CK50g0YZqRWqjjverzvuGy65PCXvjr43Od3WIya7C3XtccTo01yskOs1gNBGVPTtX-h1mnOs21lRvYUA1TSP1BZHb0Mc0pTRLaZ202hoWy21rNTZP6j6er8LLkU_hNr_QyCOApdTKdkP9iaHHeaD5WCXlO0xZQtLLSnbuyp687Dx3O18_1vyK9YKyCNQ6ihufX486T-2PwHEOLGL</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2473220466</pqid></control><display><type>article</type><title>Work- and insurance-related issues among Asian adolescent and young-adult cancer survivors: a qualitative study</title><source>MEDLINE</source><source>Springer Nature - Complete Springer Journals</source><creator>Tan, Chia Jie ; Ke, Yu ; Ng, Tabitha ; Tan, Isabel Mei Jun ; Goh, Wei Lin ; Poon, Eileen ; Farid, Mohamad ; Neo, Patricia Soek Hui ; Srilatha, Balasubramaniam ; Chan, Alexandre</creator><creatorcontrib>Tan, Chia Jie ; Ke, Yu ; Ng, Tabitha ; Tan, Isabel Mei Jun ; Goh, Wei Lin ; Poon, Eileen ; Farid, Mohamad ; Neo, Patricia Soek Hui ; Srilatha, Balasubramaniam ; Chan, Alexandre</creatorcontrib><description>Purpose
Work-related issues among Asian adolescent and young-adult (AYA) cancer survivors are poorly described in the literature. There has also been a paucity of reports regarding insurance-related concerns in this patient population. Focus groups were therefore carried out in Singapore to understand survivorship issues related to work and insurance coverage among Asian AYA cancer survivors.
Methods
Twenty-three AYA survivors and 18 healthcare professionals (HCPs) who care for AYA cancer patients were recruited for 11 focus group sessions. Thematic content analysis was carried out to identify major themes that emerged.
Results
Similar themes emerged from AYA and HCP focus groups. The majority of AYA survivors were eager to return to work post-treatment. However, some survivors were worried about not keeping up with expectations and struggled with disclosure of their medical history. In contrast, several survivors leveraged on their experience with cancer to bolster job opportunities. Despite facing challenges due to complications from cancer and restrictions at work, AYA survivors preferred to be treated normally. AYA survivors also expressed concerns about inadequate insurance coverage and a lack of information on this topic.
Conclusion
Contrary to expectations, Asian AYA survivors are motivated to return to work and address work-related challenges. Inadequate insurance coverage remains a pressing concern despite the availability of public health insurance and subsidies. Career coaches and financial counselors should be incorporated into survivorship care to aid AYA survivors.</description><identifier>ISSN: 0941-4355</identifier><identifier>EISSN: 1433-7339</identifier><identifier>DOI: 10.1007/s00520-020-05430-z</identifier><identifier>PMID: 32270310</identifier><language>eng</language><publisher>Berlin/Heidelberg: Springer Berlin Heidelberg</publisher><subject>Adolescence ; Adolescent ; Adult ; Analysis ; Asian Continental Ancestry Group ; Cancer ; Cancer survivors ; Cancer Survivors - psychology ; Cancer Survivors - statistics & numerical data ; Employee motivation ; Employment ; Female ; Focus Groups ; Health Personnel - psychology ; Humans ; Insurance ; Insurance coverage ; Insurance, Health - statistics & numerical data ; Male ; Medicine ; Medicine & Public Health ; Neoplasms - psychology ; Neoplasms - therapy ; Nursing ; Nursing Research ; Oncology ; Oncology, Experimental ; Original Article ; Pain Medicine ; Qualitative Research ; Rehabilitation Medicine ; Return to Work - psychology ; Singapore ; Survivor ; Survivorship ; Teenagers ; Work Engagement ; Young Adult ; Young adults</subject><ispartof>Supportive care in cancer, 2020-12, Vol.28 (12), p.5901-5909</ispartof><rights>Springer-Verlag GmbH Germany, part of Springer Nature 2020</rights><rights>COPYRIGHT 2020 Springer</rights><rights>Springer-Verlag GmbH Germany, part of Springer Nature 2020.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c442t-91740b086fab0ba5c631b733db7e69b7cf6ef21456a747354a4b1c1d8b1e61313</citedby><cites>FETCH-LOGICAL-c442t-91740b086fab0ba5c631b733db7e69b7cf6ef21456a747354a4b1c1d8b1e61313</cites><orcidid>0000-0003-4391-4219 ; 0000-0001-7587-3015 ; 0000-0003-2452-0556</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s00520-020-05430-z$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s00520-020-05430-z$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,776,780,27901,27902,41464,42533,51294</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/32270310$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Tan, Chia Jie</creatorcontrib><creatorcontrib>Ke, Yu</creatorcontrib><creatorcontrib>Ng, Tabitha</creatorcontrib><creatorcontrib>Tan, Isabel Mei Jun</creatorcontrib><creatorcontrib>Goh, Wei Lin</creatorcontrib><creatorcontrib>Poon, Eileen</creatorcontrib><creatorcontrib>Farid, Mohamad</creatorcontrib><creatorcontrib>Neo, Patricia Soek Hui</creatorcontrib><creatorcontrib>Srilatha, Balasubramaniam</creatorcontrib><creatorcontrib>Chan, Alexandre</creatorcontrib><title>Work- and insurance-related issues among Asian adolescent and young-adult cancer survivors: a qualitative study</title><title>Supportive care in cancer</title><addtitle>Support Care Cancer</addtitle><addtitle>Support Care Cancer</addtitle><description>Purpose
Work-related issues among Asian adolescent and young-adult (AYA) cancer survivors are poorly described in the literature. There has also been a paucity of reports regarding insurance-related concerns in this patient population. Focus groups were therefore carried out in Singapore to understand survivorship issues related to work and insurance coverage among Asian AYA cancer survivors.
Methods
Twenty-three AYA survivors and 18 healthcare professionals (HCPs) who care for AYA cancer patients were recruited for 11 focus group sessions. Thematic content analysis was carried out to identify major themes that emerged.
Results
Similar themes emerged from AYA and HCP focus groups. The majority of AYA survivors were eager to return to work post-treatment. However, some survivors were worried about not keeping up with expectations and struggled with disclosure of their medical history. In contrast, several survivors leveraged on their experience with cancer to bolster job opportunities. Despite facing challenges due to complications from cancer and restrictions at work, AYA survivors preferred to be treated normally. AYA survivors also expressed concerns about inadequate insurance coverage and a lack of information on this topic.
Conclusion
Contrary to expectations, Asian AYA survivors are motivated to return to work and address work-related challenges. Inadequate insurance coverage remains a pressing concern despite the availability of public health insurance and subsidies. Career coaches and financial counselors should be incorporated into survivorship care to aid AYA survivors.</description><subject>Adolescence</subject><subject>Adolescent</subject><subject>Adult</subject><subject>Analysis</subject><subject>Asian Continental Ancestry Group</subject><subject>Cancer</subject><subject>Cancer survivors</subject><subject>Cancer Survivors - psychology</subject><subject>Cancer Survivors - statistics & numerical data</subject><subject>Employee motivation</subject><subject>Employment</subject><subject>Female</subject><subject>Focus Groups</subject><subject>Health Personnel - psychology</subject><subject>Humans</subject><subject>Insurance</subject><subject>Insurance coverage</subject><subject>Insurance, Health - statistics & numerical data</subject><subject>Male</subject><subject>Medicine</subject><subject>Medicine & Public Health</subject><subject>Neoplasms - psychology</subject><subject>Neoplasms - therapy</subject><subject>Nursing</subject><subject>Nursing Research</subject><subject>Oncology</subject><subject>Oncology, Experimental</subject><subject>Original Article</subject><subject>Pain Medicine</subject><subject>Qualitative Research</subject><subject>Rehabilitation Medicine</subject><subject>Return to Work - psychology</subject><subject>Singapore</subject><subject>Survivor</subject><subject>Survivorship</subject><subject>Teenagers</subject><subject>Work Engagement</subject><subject>Young Adult</subject><subject>Young adults</subject><issn>0941-4355</issn><issn>1433-7339</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2020</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>BENPR</sourceid><recordid>eNp9kV9rFDEUxYModq1-AR8k4IsvqTf_Jju-LaVWoeCL4mO4k8ksqbNJm8wsbD-9mW61KCLhErj3dw73cgh5zeGMA5j3BUALYLCUVhLY3ROy4kpKZqRsn5IVtIozJbU-IS9KuQbgxmjxnJxIIQxIDiuSvqf8g1GMPQ2xzBmj8yz7ESdfO6XMvlDcpbilmxIwUuzT6IvzcbrXHNIctwz7eZyoW7SZVpN92KdcPlCktzOOYcIp7D0t09wfXpJnA47Fv3r4T8m3jxdfzz-xqy-Xn883V8wpJSbWcqOgg3UzYAcdatdI3tWr-s74pu2MGxo_CK50g0YZqRWqjjverzvuGy65PCXvjr43Od3WIya7C3XtccTo01yskOs1gNBGVPTtX-h1mnOs21lRvYUA1TSP1BZHb0Mc0pTRLaZ202hoWy21rNTZP6j6er8LLkU_hNr_QyCOApdTKdkP9iaHHeaD5WCXlO0xZQtLLSnbuyp687Dx3O18_1vyK9YKyCNQ6ihufX486T-2PwHEOLGL</recordid><startdate>20201201</startdate><enddate>20201201</enddate><creator>Tan, Chia Jie</creator><creator>Ke, Yu</creator><creator>Ng, Tabitha</creator><creator>Tan, Isabel Mei Jun</creator><creator>Goh, Wei Lin</creator><creator>Poon, Eileen</creator><creator>Farid, Mohamad</creator><creator>Neo, Patricia Soek Hui</creator><creator>Srilatha, Balasubramaniam</creator><creator>Chan, Alexandre</creator><general>Springer Berlin Heidelberg</general><general>Springer</general><general>Springer Nature B.V</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>0-V</scope><scope>3V.</scope><scope>7RV</scope><scope>7X7</scope><scope>7XB</scope><scope>88E</scope><scope>88J</scope><scope>8AO</scope><scope>8FI</scope><scope>8FJ</scope><scope>8FK</scope><scope>ABUWG</scope><scope>AFKRA</scope><scope>ALSLI</scope><scope>AZQEC</scope><scope>BENPR</scope><scope>CCPQU</scope><scope>DWQXO</scope><scope>FYUFA</scope><scope>GHDGH</scope><scope>GNUQQ</scope><scope>HEHIP</scope><scope>K9.</scope><scope>KB0</scope><scope>M0S</scope><scope>M1P</scope><scope>M2R</scope><scope>M2S</scope><scope>NAPCQ</scope><scope>PQEST</scope><scope>PQQKQ</scope><scope>PQUKI</scope><scope>PRINS</scope><scope>Q9U</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0003-4391-4219</orcidid><orcidid>https://orcid.org/0000-0001-7587-3015</orcidid><orcidid>https://orcid.org/0000-0003-2452-0556</orcidid></search><sort><creationdate>20201201</creationdate><title>Work- and insurance-related issues among Asian adolescent and young-adult cancer survivors: a qualitative study</title><author>Tan, Chia Jie ; Ke, Yu ; Ng, Tabitha ; Tan, Isabel Mei Jun ; Goh, Wei Lin ; Poon, Eileen ; Farid, Mohamad ; Neo, Patricia Soek Hui ; Srilatha, Balasubramaniam ; Chan, Alexandre</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c442t-91740b086fab0ba5c631b733db7e69b7cf6ef21456a747354a4b1c1d8b1e61313</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2020</creationdate><topic>Adolescence</topic><topic>Adolescent</topic><topic>Adult</topic><topic>Analysis</topic><topic>Asian Continental Ancestry Group</topic><topic>Cancer</topic><topic>Cancer survivors</topic><topic>Cancer Survivors - psychology</topic><topic>Cancer Survivors - statistics & numerical data</topic><topic>Employee motivation</topic><topic>Employment</topic><topic>Female</topic><topic>Focus Groups</topic><topic>Health Personnel - psychology</topic><topic>Humans</topic><topic>Insurance</topic><topic>Insurance coverage</topic><topic>Insurance, Health - statistics & numerical data</topic><topic>Male</topic><topic>Medicine</topic><topic>Medicine & Public Health</topic><topic>Neoplasms - psychology</topic><topic>Neoplasms - therapy</topic><topic>Nursing</topic><topic>Nursing Research</topic><topic>Oncology</topic><topic>Oncology, Experimental</topic><topic>Original Article</topic><topic>Pain Medicine</topic><topic>Qualitative Research</topic><topic>Rehabilitation Medicine</topic><topic>Return to Work - psychology</topic><topic>Singapore</topic><topic>Survivor</topic><topic>Survivorship</topic><topic>Teenagers</topic><topic>Work Engagement</topic><topic>Young Adult</topic><topic>Young adults</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Tan, Chia Jie</creatorcontrib><creatorcontrib>Ke, Yu</creatorcontrib><creatorcontrib>Ng, Tabitha</creatorcontrib><creatorcontrib>Tan, Isabel Mei Jun</creatorcontrib><creatorcontrib>Goh, Wei Lin</creatorcontrib><creatorcontrib>Poon, Eileen</creatorcontrib><creatorcontrib>Farid, Mohamad</creatorcontrib><creatorcontrib>Neo, Patricia Soek Hui</creatorcontrib><creatorcontrib>Srilatha, Balasubramaniam</creatorcontrib><creatorcontrib>Chan, Alexandre</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>ProQuest Social Sciences Premium Collection</collection><collection>ProQuest Central (Corporate)</collection><collection>Nursing & Allied Health Database</collection><collection>Health & Medical Collection</collection><collection>ProQuest Central (purchase pre-March 2016)</collection><collection>Medical Database (Alumni Edition)</collection><collection>Social Science Database (Alumni Edition)</collection><collection>ProQuest Pharma Collection</collection><collection>Hospital Premium Collection</collection><collection>Hospital Premium Collection (Alumni Edition)</collection><collection>ProQuest Central (Alumni) (purchase pre-March 2016)</collection><collection>ProQuest Central (Alumni Edition)</collection><collection>ProQuest Central UK/Ireland</collection><collection>Social Science Premium Collection</collection><collection>ProQuest Central Essentials</collection><collection>ProQuest Central</collection><collection>ProQuest One Community College</collection><collection>ProQuest Central Korea</collection><collection>Health Research Premium Collection</collection><collection>Health Research Premium Collection (Alumni)</collection><collection>ProQuest Central Student</collection><collection>Sociology Collection</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Nursing & Allied Health Database (Alumni Edition)</collection><collection>Health & Medical Collection (Alumni Edition)</collection><collection>Medical Database</collection><collection>Social Science Database</collection><collection>Sociology Database</collection><collection>Nursing & Allied Health Premium</collection><collection>ProQuest One Academic Eastern Edition (DO NOT USE)</collection><collection>ProQuest One Academic</collection><collection>ProQuest One Academic UKI Edition</collection><collection>ProQuest Central China</collection><collection>ProQuest Central Basic</collection><collection>MEDLINE - Academic</collection><jtitle>Supportive care in cancer</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Tan, Chia Jie</au><au>Ke, Yu</au><au>Ng, Tabitha</au><au>Tan, Isabel Mei Jun</au><au>Goh, Wei Lin</au><au>Poon, Eileen</au><au>Farid, Mohamad</au><au>Neo, Patricia Soek Hui</au><au>Srilatha, Balasubramaniam</au><au>Chan, Alexandre</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Work- and insurance-related issues among Asian adolescent and young-adult cancer survivors: a qualitative study</atitle><jtitle>Supportive care in cancer</jtitle><stitle>Support Care Cancer</stitle><addtitle>Support Care Cancer</addtitle><date>2020-12-01</date><risdate>2020</risdate><volume>28</volume><issue>12</issue><spage>5901</spage><epage>5909</epage><pages>5901-5909</pages><issn>0941-4355</issn><eissn>1433-7339</eissn><abstract>Purpose
Work-related issues among Asian adolescent and young-adult (AYA) cancer survivors are poorly described in the literature. There has also been a paucity of reports regarding insurance-related concerns in this patient population. Focus groups were therefore carried out in Singapore to understand survivorship issues related to work and insurance coverage among Asian AYA cancer survivors.
Methods
Twenty-three AYA survivors and 18 healthcare professionals (HCPs) who care for AYA cancer patients were recruited for 11 focus group sessions. Thematic content analysis was carried out to identify major themes that emerged.
Results
Similar themes emerged from AYA and HCP focus groups. The majority of AYA survivors were eager to return to work post-treatment. However, some survivors were worried about not keeping up with expectations and struggled with disclosure of their medical history. In contrast, several survivors leveraged on their experience with cancer to bolster job opportunities. Despite facing challenges due to complications from cancer and restrictions at work, AYA survivors preferred to be treated normally. AYA survivors also expressed concerns about inadequate insurance coverage and a lack of information on this topic.
Conclusion
Contrary to expectations, Asian AYA survivors are motivated to return to work and address work-related challenges. Inadequate insurance coverage remains a pressing concern despite the availability of public health insurance and subsidies. Career coaches and financial counselors should be incorporated into survivorship care to aid AYA survivors.</abstract><cop>Berlin/Heidelberg</cop><pub>Springer Berlin Heidelberg</pub><pmid>32270310</pmid><doi>10.1007/s00520-020-05430-z</doi><tpages>9</tpages><orcidid>https://orcid.org/0000-0003-4391-4219</orcidid><orcidid>https://orcid.org/0000-0001-7587-3015</orcidid><orcidid>https://orcid.org/0000-0003-2452-0556</orcidid></addata></record> |
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| ispartof | Supportive care in cancer, 2020-12, Vol.28 (12), p.5901-5909 |
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| source | MEDLINE; Springer Nature - Complete Springer Journals |
| subjects | Adolescence Adolescent Adult Analysis Asian Continental Ancestry Group Cancer Cancer survivors Cancer Survivors - psychology Cancer Survivors - statistics & numerical data Employee motivation Employment Female Focus Groups Health Personnel - psychology Humans Insurance Insurance coverage Insurance, Health - statistics & numerical data Male Medicine Medicine & Public Health Neoplasms - psychology Neoplasms - therapy Nursing Nursing Research Oncology Oncology, Experimental Original Article Pain Medicine Qualitative Research Rehabilitation Medicine Return to Work - psychology Singapore Survivor Survivorship Teenagers Work Engagement Young Adult Young adults |
| title | Work- and insurance-related issues among Asian adolescent and young-adult cancer survivors: a qualitative study |
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