Quality of Life in School-Aged Youth Referred to an Autism Specialty Clinic: A Latent Profile Analysis
We examined whether different profiles of quality of life (QoL) existed among youth referred to an autism spectrum disorder (ASD) specialty clinic and, if present, determined if these groups were associated with different characteristics. Data were from parental report of 5–17 year-old youth (N = 47...
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| Veröffentlicht in: | Journal of autism and developmental disorders 2020-04, Vol.50 (4), p.1269-1280 |
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| container_title | Journal of autism and developmental disorders |
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| creator | Azad, Gazi F. Dillon, Emily Feuerstein, Julie Kalb, Luke Neely, Jason Landa, Rebecca |
| description | We examined whether different profiles of quality of life (QoL) existed among youth referred to an autism spectrum disorder (ASD) specialty clinic and, if present, determined if these groups were associated with different characteristics. Data were from parental report of 5–17 year-old youth (N = 476) who were scheduled to receive an evaluation at an ASD clinic. Parents completed questionnaires, including the Pediatric Quality of Life Inventory, assessing child and family functioning; providers reported diagnostic impressions. A latent profile analysis found five distinct groups: Low Risk, School Problems, Only Social Emotional Problems, and two Physical/Social Emotional Problems. The groups differed on clinical characteristics and family functioning. These findings have implications for more efficient and effective evaluations in service delivery systems serving complex patients. |
| doi_str_mv | 10.1007/s10803-019-04353-x |
| format | Article |
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Data were from parental report of 5–17 year-old youth (N = 476) who were scheduled to receive an evaluation at an ASD clinic. Parents completed questionnaires, including the Pediatric Quality of Life Inventory, assessing child and family functioning; providers reported diagnostic impressions. A latent profile analysis found five distinct groups: Low Risk, School Problems, Only Social Emotional Problems, and two Physical/Social Emotional Problems. The groups differed on clinical characteristics and family functioning. These findings have implications for more efficient and effective evaluations in service delivery systems serving complex patients.</description><identifier>ISSN: 0162-3257</identifier><identifier>EISSN: 1573-3432</identifier><identifier>DOI: 10.1007/s10803-019-04353-x</identifier><identifier>PMID: 31901118</identifier><language>eng</language><publisher>New York: Springer US</publisher><subject>Adolescents ; At Risk Persons ; Autism ; Behavioral Science and Psychology ; Child and School Psychology ; Children ; Clinical Diagnosis ; Clinics ; Complex patients ; Demographic aspects ; Diagnosis ; Disabled youth ; Emotional disturbances ; Emotions ; Family relations ; Health aspects ; Impressions ; Medical referral ; Neurosciences ; Original Paper ; Pediatric research ; Pediatrics ; Pervasive Developmental Disorders ; Psychiatric clinics ; Psychological aspects ; Psychology ; Public Health ; Quality of Life ; Questionnaires ; Referral ; Risk factors ; Specialization ; Statistics ; User statistics ; Youth</subject><ispartof>Journal of autism and developmental disorders, 2020-04, Vol.50 (4), p.1269-1280</ispartof><rights>Springer Science+Business Media, LLC, part of Springer Nature 2020</rights><rights>COPYRIGHT 2020 Springer</rights><rights>Journal of Autism and Developmental Disorders is a copyright of Springer, (2020). All Rights Reserved.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c536t-62bef57855b277eefae68fd165bee05ccc953ce000e314454a863ecee0734dc23</citedby><cites>FETCH-LOGICAL-c536t-62bef57855b277eefae68fd165bee05ccc953ce000e314454a863ecee0734dc23</cites><orcidid>0000-0003-0395-4355</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://link.springer.com/content/pdf/10.1007/s10803-019-04353-x$$EPDF$$P50$$Gspringer$$H</linktopdf><linktohtml>$$Uhttps://link.springer.com/10.1007/s10803-019-04353-x$$EHTML$$P50$$Gspringer$$H</linktohtml><link.rule.ids>314,776,780,12825,27901,27902,30976,41464,42533,51294</link.rule.ids><backlink>$$Uhttp://eric.ed.gov/ERICWebPortal/detail?accno=EJ1249687$$DView record in ERIC$$Hfree_for_read</backlink><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/31901118$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Azad, Gazi F.</creatorcontrib><creatorcontrib>Dillon, Emily</creatorcontrib><creatorcontrib>Feuerstein, Julie</creatorcontrib><creatorcontrib>Kalb, Luke</creatorcontrib><creatorcontrib>Neely, Jason</creatorcontrib><creatorcontrib>Landa, Rebecca</creatorcontrib><title>Quality of Life in School-Aged Youth Referred to an Autism Specialty Clinic: A Latent Profile Analysis</title><title>Journal of autism and developmental disorders</title><addtitle>J Autism Dev Disord</addtitle><addtitle>J Autism Dev Disord</addtitle><description>We examined whether different profiles of quality of life (QoL) existed among youth referred to an autism spectrum disorder (ASD) specialty clinic and, if present, determined if these groups were associated with different characteristics. Data were from parental report of 5–17 year-old youth (N = 476) who were scheduled to receive an evaluation at an ASD clinic. Parents completed questionnaires, including the Pediatric Quality of Life Inventory, assessing child and family functioning; providers reported diagnostic impressions. A latent profile analysis found five distinct groups: Low Risk, School Problems, Only Social Emotional Problems, and two Physical/Social Emotional Problems. The groups differed on clinical characteristics and family functioning. These findings have implications for more efficient and effective evaluations in service delivery systems serving complex patients.</description><subject>Adolescents</subject><subject>At Risk Persons</subject><subject>Autism</subject><subject>Behavioral Science and Psychology</subject><subject>Child and School Psychology</subject><subject>Children</subject><subject>Clinical Diagnosis</subject><subject>Clinics</subject><subject>Complex patients</subject><subject>Demographic aspects</subject><subject>Diagnosis</subject><subject>Disabled youth</subject><subject>Emotional disturbances</subject><subject>Emotions</subject><subject>Family relations</subject><subject>Health aspects</subject><subject>Impressions</subject><subject>Medical referral</subject><subject>Neurosciences</subject><subject>Original Paper</subject><subject>Pediatric research</subject><subject>Pediatrics</subject><subject>Pervasive Developmental Disorders</subject><subject>Psychiatric clinics</subject><subject>Psychological aspects</subject><subject>Psychology</subject><subject>Public Health</subject><subject>Quality of Life</subject><subject>Questionnaires</subject><subject>Referral</subject><subject>Risk factors</subject><subject>Specialization</subject><subject>Statistics</subject><subject>User 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| ispartof | Journal of autism and developmental disorders, 2020-04, Vol.50 (4), p.1269-1280 |
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| source | Applied Social Sciences Index & Abstracts (ASSIA); Springer Nature; EBSCOhost Education Source |
| subjects | Adolescents At Risk Persons Autism Behavioral Science and Psychology Child and School Psychology Children Clinical Diagnosis Clinics Complex patients Demographic aspects Diagnosis Disabled youth Emotional disturbances Emotions Family relations Health aspects Impressions Medical referral Neurosciences Original Paper Pediatric research Pediatrics Pervasive Developmental Disorders Psychiatric clinics Psychological aspects Psychology Public Health Quality of Life Questionnaires Referral Risk factors Specialization Statistics User statistics Youth |
| title | Quality of Life in School-Aged Youth Referred to an Autism Specialty Clinic: A Latent Profile Analysis |
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