Spanish translation and validation of the Neuromuscular Module of the Pediatric Quality of Life Inventory (PedsQL): evaluation of the quality of life perceived by 5-7 years old children with neuromuscular disorders and by their parents

The recent advances in the therapies for some neuromuscular disorders imply a better prognosis. As a consequence, health-related quality of life has emerged as a core outcome. It is particularly important to know both the self-perceived health-related quality of life by children, as soon as possible...

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Veröffentlicht in:	Revista de neurologiá 2019-12, Vol.69 (11), p.442-452
Hauptverfasser:	Girabent-Farrés, M, Bagur-Calafat, C, Amor-Barbosa, M, Natera-de Benito, D, Medina-Rincón, A, Fagoaga, J
Format:	Artikel
Sprache:	spa
Online-Zugang:	Volltext
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