Data Linkage: Canadian and Australian Perspectives on a Valuable Methodology for Intellectual and Developmental Disability Research
Data linkage holds great promise for generating new information about people with intellectual and developmental disabilities (IDD) as a population, yet few centers have developed the infrastructure to utilize this methodology. Two examples, from Canada and Australia, describe their efforts in build...
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| Veröffentlicht in: | Intellectual and developmental disabilities 2019-10, Vol.57 (5), p.439-462 |
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| container_title | Intellectual and developmental disabilities |
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| creator | Balogh, Robert Leonard, Helen Bourke, Jenny Brameld, Kate Downs, Jenny Hansen, Michele Glasson, Emma Lin, Elizabeth Lloyd, Meghann Lunsky, Yona O'Donnell, Melissa Shooshtari, Shahin Wong, Kingsley Krahn, Gloria |
| description | Data linkage holds great promise for generating new information about people with intellectual and developmental disabilities (IDD) as a population, yet few centers have developed the infrastructure to utilize this methodology. Two examples, from Canada and Australia, describe their efforts in building data linkage capabilities, and how linked databases can be used to identify persons with IDD and used for population-based research. The value of data linkage is illustrated through new estimates of prevalence of IDD; health service utilization patterns; associations with sociodemographic characteristics, and with physical and mental health conditions (e.g., chronic diseases, injury, fertility, and depression); and findings on equity in medical treatments. Examples are provided of findings used for governmental policy and program planning. |
| doi_str_mv | 10.1352/1934-9556-57.5.439 |
| format | Article |
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| fulltext | fulltext |
| identifier | ISSN: 1934-9491 |
| ispartof | Intellectual and developmental disabilities, 2019-10, Vol.57 (5), p.439-462 |
| issn | 1934-9491 1934-9556 |
| language | eng |
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| source | MEDLINE; Education Source |
| subjects | Australia Autism Autism Spectrum Disorders Canada Canada Health Act Cerebral Palsy Chronic Disease Developmental disabilities Developmental Disabilities - epidemiology Disability Epidemiology Government (Administrative Body) Health care policy Health Insurance Health Services Health services utilization Humans Information Storage and Retrieval Infrastructure Intellectual disabilities Intellectual Disability Intellectual Disability - epidemiology Linked Data Medical Services Medicare Mental Health Physical Health Physicians Population Prevalence Program Development Public Administration Reproductive technologies Research Design Researchers Social Services |
| title | Data Linkage: Canadian and Australian Perspectives on a Valuable Methodology for Intellectual and Developmental Disability Research |
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