Usefulness of a Novel System for Feedback of Patient-Reported Outcome Measures in Children Recovering From Burns

Abstract The Burn Outcomes Questionnaire for children ages 5–18 years (BOQ5–18) is a widely used, reliable, and valid parent-reported outcome measure designed to assess children’s recovery from burn injuries in 12 physical and psychosocial domains. This study evaluated the feasibility, acceptability...

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Veröffentlicht in:Journal of burn care & research 2019-10, Vol.40 (6), p.776-784
Hauptverfasser: Riobueno-Naylor, Alexa, Romo, Stephanie, Kazis, Lewis, Wang, Shirley, Lydon, Martha, Nelson, Judith, Fowler, Laura, Drexler, Alana, Kogosov, Ann, Haile, Haregnesh, Ryan, Colleen M, Chang, Philip, Warner, Petra, Palmieri, Tina L, Lee, Austin F, Stoddard, Frederick, Murphy, J Michael, Sheridan, Robert L
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container_end_page 784
container_issue 6
container_start_page 776
container_title Journal of burn care & research
container_volume 40
creator Riobueno-Naylor, Alexa
Romo, Stephanie
Kazis, Lewis
Wang, Shirley
Lydon, Martha
Nelson, Judith
Fowler, Laura
Drexler, Alana
Kogosov, Ann
Haile, Haregnesh
Ryan, Colleen M
Chang, Philip
Warner, Petra
Palmieri, Tina L
Lee, Austin F
Stoddard, Frederick
Murphy, J Michael
Sheridan, Robert L
description Abstract The Burn Outcomes Questionnaire for children ages 5–18 years (BOQ5–18) is a widely used, reliable, and valid parent-reported outcome measure designed to assess children’s recovery from burn injuries in 12 physical and psychosocial domains. This study evaluated the feasibility, acceptability, and usefulness of a feedback system that delivered BOQ and Pediatric Symptom Checklist (PSC-17; a widely used measure of psychosocial functioning) results to burn care clinicians prior to an outpatient appointment or a postoperative surgical encounter. The BOQ and the PSC-17 were administered to the parents of 147 children receiving outpatient or surgical care in two pediatric burn hospitals. Clinician and parent perceptions of the feedback system were evaluated using debriefing questionnaires. Over half of all patients were at-risk on at least one BOQ subscale, and risk on three or more BOQ domains was significantly associated with a higher likelihood of poor psychological scores on the PSC-17 (P < .001). Significant differences in BOQ scores were found between the two hospital sites on four BOQ subscales, three related to physical ability and one to psychosocial well-being. Parent ratings of the feedback system were positive, with 90% of parents in both settings agreeing that the BOQ tablet experience was easy and helpful. Clinician attitudes differed across the two settings with more positive clinician ratings of the system in the outpatient setting (P < .001). Clinician interviews revealed that the data was especially useful in bringing to light psychosocial aspects of functioning relevant to long-term recovery from burn injuries.
doi_str_mv 10.1093/jbcr/irz082
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This study evaluated the feasibility, acceptability, and usefulness of a feedback system that delivered BOQ and Pediatric Symptom Checklist (PSC-17; a widely used measure of psychosocial functioning) results to burn care clinicians prior to an outpatient appointment or a postoperative surgical encounter. The BOQ and the PSC-17 were administered to the parents of 147 children receiving outpatient or surgical care in two pediatric burn hospitals. Clinician and parent perceptions of the feedback system were evaluated using debriefing questionnaires. Over half of all patients were at-risk on at least one BOQ subscale, and risk on three or more BOQ domains was significantly associated with a higher likelihood of poor psychological scores on the PSC-17 (P &lt; .001). Significant differences in BOQ scores were found between the two hospital sites on four BOQ subscales, three related to physical ability and one to psychosocial well-being. Parent ratings of the feedback system were positive, with 90% of parents in both settings agreeing that the BOQ tablet experience was easy and helpful. Clinician attitudes differed across the two settings with more positive clinician ratings of the system in the outpatient setting (P &lt; .001). 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Parent ratings of the feedback system were positive, with 90% of parents in both settings agreeing that the BOQ tablet experience was easy and helpful. Clinician attitudes differed across the two settings with more positive clinician ratings of the system in the outpatient setting (P &lt; .001). Clinician interviews revealed that the data was especially useful in bringing to light psychosocial aspects of functioning relevant to long-term recovery from burn injuries.</description><subject>Adolescent</subject><subject>Burns - psychology</subject><subject>Child</subject><subject>Child, Preschool</subject><subject>Computers, Handheld</subject><subject>Feasibility Studies</subject><subject>Feedback</subject><subject>Female</subject><subject>Hospitals, Special</subject><subject>Humans</subject><subject>Male</subject><subject>Parents</subject><subject>Patient Reported Outcome Measures</subject><subject>Surveys and Questionnaires</subject><issn>1559-047X</issn><issn>1559-0488</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2019</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kEtLxDAURoMoPkZX7iUrEaROXm3apQ6OCuqID3BX0uRGO7ZNTVph_PV2GJ2lq_vBPZzFQeiQkjNKMj6eF9qPS_9NUraBdmkcZxERabq53vJ1B-2FMCdECCLjbbTDKSVMiGQXtS8BbF81EAJ2Fit8776gwk-L0EGNrfN4CmAKpT-W7wfVldB00SO0zndg8KzvtKsB34EKvYeAywZP3svKeGjwI-hB5svmDU-9q_FF75uwj7asqgIc_N4ReplePk-uo9vZ1c3k_DbSTKZdpFIDSQIZtVZqo2IZ84SqRMvCFBKsZEKJJC2GYRhXMoslt5STTAqhCmsKPkInK2_r3WcPocvrMmioKtWA60POGGdExDxlA3q6QrV3IXiweevLWvlFTkm-TJwvE-erxAN99CvuixrMmv1rOgDHK8D17b-mHyK6huo</recordid><startdate>20191016</startdate><enddate>20191016</enddate><creator>Riobueno-Naylor, Alexa</creator><creator>Romo, Stephanie</creator><creator>Kazis, Lewis</creator><creator>Wang, Shirley</creator><creator>Lydon, Martha</creator><creator>Nelson, Judith</creator><creator>Fowler, Laura</creator><creator>Drexler, Alana</creator><creator>Kogosov, Ann</creator><creator>Haile, Haregnesh</creator><creator>Ryan, Colleen M</creator><creator>Chang, Philip</creator><creator>Warner, Petra</creator><creator>Palmieri, Tina L</creator><creator>Lee, Austin F</creator><creator>Stoddard, Frederick</creator><creator>Murphy, J Michael</creator><creator>Sheridan, Robert L</creator><general>Oxford University Press</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>20191016</creationdate><title>Usefulness of a Novel System for Feedback of Patient-Reported Outcome Measures in Children Recovering From Burns</title><author>Riobueno-Naylor, Alexa ; 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source Oxford University Press Journals All Titles (1996-Current); MEDLINE
subjects Adolescent
Burns - psychology
Child
Child, Preschool
Computers, Handheld
Feasibility Studies
Feedback
Female
Hospitals, Special
Humans
Male
Parents
Patient Reported Outcome Measures
Surveys and Questionnaires
title Usefulness of a Novel System for Feedback of Patient-Reported Outcome Measures in Children Recovering From Burns
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