Usefulness of a Novel System for Feedback of Patient-Reported Outcome Measures in Children Recovering From Burns
Abstract The Burn Outcomes Questionnaire for children ages 5–18 years (BOQ5–18) is a widely used, reliable, and valid parent-reported outcome measure designed to assess children’s recovery from burn injuries in 12 physical and psychosocial domains. This study evaluated the feasibility, acceptability...
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Veröffentlicht in: | Journal of burn care & research 2019-10, Vol.40 (6), p.776-784 |
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creator | Riobueno-Naylor, Alexa Romo, Stephanie Kazis, Lewis Wang, Shirley Lydon, Martha Nelson, Judith Fowler, Laura Drexler, Alana Kogosov, Ann Haile, Haregnesh Ryan, Colleen M Chang, Philip Warner, Petra Palmieri, Tina L Lee, Austin F Stoddard, Frederick Murphy, J Michael Sheridan, Robert L |
description | Abstract
The Burn Outcomes Questionnaire for children ages 5–18 years (BOQ5–18) is a widely used, reliable, and valid parent-reported outcome measure designed to assess children’s recovery from burn injuries in 12 physical and psychosocial domains. This study evaluated the feasibility, acceptability, and usefulness of a feedback system that delivered BOQ and Pediatric Symptom Checklist (PSC-17; a widely used measure of psychosocial functioning) results to burn care clinicians prior to an outpatient appointment or a postoperative surgical encounter. The BOQ and the PSC-17 were administered to the parents of 147 children receiving outpatient or surgical care in two pediatric burn hospitals. Clinician and parent perceptions of the feedback system were evaluated using debriefing questionnaires. Over half of all patients were at-risk on at least one BOQ subscale, and risk on three or more BOQ domains was significantly associated with a higher likelihood of poor psychological scores on the PSC-17 (P < .001). Significant differences in BOQ scores were found between the two hospital sites on four BOQ subscales, three related to physical ability and one to psychosocial well-being. Parent ratings of the feedback system were positive, with 90% of parents in both settings agreeing that the BOQ tablet experience was easy and helpful. Clinician attitudes differed across the two settings with more positive clinician ratings of the system in the outpatient setting (P < .001). Clinician interviews revealed that the data was especially useful in bringing to light psychosocial aspects of functioning relevant to long-term recovery from burn injuries. |
doi_str_mv | 10.1093/jbcr/irz082 |
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The Burn Outcomes Questionnaire for children ages 5–18 years (BOQ5–18) is a widely used, reliable, and valid parent-reported outcome measure designed to assess children’s recovery from burn injuries in 12 physical and psychosocial domains. This study evaluated the feasibility, acceptability, and usefulness of a feedback system that delivered BOQ and Pediatric Symptom Checklist (PSC-17; a widely used measure of psychosocial functioning) results to burn care clinicians prior to an outpatient appointment or a postoperative surgical encounter. The BOQ and the PSC-17 were administered to the parents of 147 children receiving outpatient or surgical care in two pediatric burn hospitals. Clinician and parent perceptions of the feedback system were evaluated using debriefing questionnaires. Over half of all patients were at-risk on at least one BOQ subscale, and risk on three or more BOQ domains was significantly associated with a higher likelihood of poor psychological scores on the PSC-17 (P < .001). Significant differences in BOQ scores were found between the two hospital sites on four BOQ subscales, three related to physical ability and one to psychosocial well-being. Parent ratings of the feedback system were positive, with 90% of parents in both settings agreeing that the BOQ tablet experience was easy and helpful. Clinician attitudes differed across the two settings with more positive clinician ratings of the system in the outpatient setting (P < .001). Clinician interviews revealed that the data was especially useful in bringing to light psychosocial aspects of functioning relevant to long-term recovery from burn injuries.</description><identifier>ISSN: 1559-047X</identifier><identifier>EISSN: 1559-0488</identifier><identifier>DOI: 10.1093/jbcr/irz082</identifier><identifier>PMID: 31102446</identifier><language>eng</language><publisher>US: Oxford University Press</publisher><subject>Adolescent ; Burns - psychology ; Child ; Child, Preschool ; Computers, Handheld ; Feasibility Studies ; Feedback ; Female ; Hospitals, Special ; Humans ; Male ; Parents ; Patient Reported Outcome Measures ; Surveys and Questionnaires</subject><ispartof>Journal of burn care & research, 2019-10, Vol.40 (6), p.776-784</ispartof><rights>American Burn Association 2019. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com. 2019</rights><rights>American Burn Association 2019. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><cites>FETCH-LOGICAL-c278t-a8de66e91ff7cda575361a6c7bdb7ef724a468bf72d23a79573f1309744abfdb3</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><link.rule.ids>314,776,780,1578,27901,27902</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/31102446$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Riobueno-Naylor, Alexa</creatorcontrib><creatorcontrib>Romo, Stephanie</creatorcontrib><creatorcontrib>Kazis, Lewis</creatorcontrib><creatorcontrib>Wang, Shirley</creatorcontrib><creatorcontrib>Lydon, Martha</creatorcontrib><creatorcontrib>Nelson, Judith</creatorcontrib><creatorcontrib>Fowler, Laura</creatorcontrib><creatorcontrib>Drexler, Alana</creatorcontrib><creatorcontrib>Kogosov, Ann</creatorcontrib><creatorcontrib>Haile, Haregnesh</creatorcontrib><creatorcontrib>Ryan, Colleen M</creatorcontrib><creatorcontrib>Chang, Philip</creatorcontrib><creatorcontrib>Warner, Petra</creatorcontrib><creatorcontrib>Palmieri, Tina L</creatorcontrib><creatorcontrib>Lee, Austin F</creatorcontrib><creatorcontrib>Stoddard, Frederick</creatorcontrib><creatorcontrib>Murphy, J Michael</creatorcontrib><creatorcontrib>Sheridan, Robert L</creatorcontrib><title>Usefulness of a Novel System for Feedback of Patient-Reported Outcome Measures in Children Recovering From Burns</title><title>Journal of burn care & research</title><addtitle>J Burn Care Res</addtitle><description>Abstract
The Burn Outcomes Questionnaire for children ages 5–18 years (BOQ5–18) is a widely used, reliable, and valid parent-reported outcome measure designed to assess children’s recovery from burn injuries in 12 physical and psychosocial domains. This study evaluated the feasibility, acceptability, and usefulness of a feedback system that delivered BOQ and Pediatric Symptom Checklist (PSC-17; a widely used measure of psychosocial functioning) results to burn care clinicians prior to an outpatient appointment or a postoperative surgical encounter. The BOQ and the PSC-17 were administered to the parents of 147 children receiving outpatient or surgical care in two pediatric burn hospitals. Clinician and parent perceptions of the feedback system were evaluated using debriefing questionnaires. Over half of all patients were at-risk on at least one BOQ subscale, and risk on three or more BOQ domains was significantly associated with a higher likelihood of poor psychological scores on the PSC-17 (P < .001). Significant differences in BOQ scores were found between the two hospital sites on four BOQ subscales, three related to physical ability and one to psychosocial well-being. Parent ratings of the feedback system were positive, with 90% of parents in both settings agreeing that the BOQ tablet experience was easy and helpful. Clinician attitudes differed across the two settings with more positive clinician ratings of the system in the outpatient setting (P < .001). Clinician interviews revealed that the data was especially useful in bringing to light psychosocial aspects of functioning relevant to long-term recovery from burn injuries.</description><subject>Adolescent</subject><subject>Burns - psychology</subject><subject>Child</subject><subject>Child, Preschool</subject><subject>Computers, Handheld</subject><subject>Feasibility Studies</subject><subject>Feedback</subject><subject>Female</subject><subject>Hospitals, Special</subject><subject>Humans</subject><subject>Male</subject><subject>Parents</subject><subject>Patient Reported Outcome Measures</subject><subject>Surveys and Questionnaires</subject><issn>1559-047X</issn><issn>1559-0488</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2019</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp9kEtLxDAURoMoPkZX7iUrEaROXm3apQ6OCuqID3BX0uRGO7ZNTVph_PV2GJ2lq_vBPZzFQeiQkjNKMj6eF9qPS_9NUraBdmkcZxERabq53vJ1B-2FMCdECCLjbbTDKSVMiGQXtS8BbF81EAJ2Fit8776gwk-L0EGNrfN4CmAKpT-W7wfVldB00SO0zndg8KzvtKsB34EKvYeAywZP3svKeGjwI-hB5svmDU-9q_FF75uwj7asqgIc_N4ReplePk-uo9vZ1c3k_DbSTKZdpFIDSQIZtVZqo2IZ84SqRMvCFBKsZEKJJC2GYRhXMoslt5STTAqhCmsKPkInK2_r3WcPocvrMmioKtWA60POGGdExDxlA3q6QrV3IXiweevLWvlFTkm-TJwvE-erxAN99CvuixrMmv1rOgDHK8D17b-mHyK6huo</recordid><startdate>20191016</startdate><enddate>20191016</enddate><creator>Riobueno-Naylor, Alexa</creator><creator>Romo, Stephanie</creator><creator>Kazis, Lewis</creator><creator>Wang, Shirley</creator><creator>Lydon, Martha</creator><creator>Nelson, Judith</creator><creator>Fowler, Laura</creator><creator>Drexler, Alana</creator><creator>Kogosov, Ann</creator><creator>Haile, Haregnesh</creator><creator>Ryan, Colleen M</creator><creator>Chang, Philip</creator><creator>Warner, Petra</creator><creator>Palmieri, Tina L</creator><creator>Lee, Austin F</creator><creator>Stoddard, Frederick</creator><creator>Murphy, J Michael</creator><creator>Sheridan, Robert L</creator><general>Oxford University Press</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope></search><sort><creationdate>20191016</creationdate><title>Usefulness of a Novel System for Feedback of Patient-Reported Outcome Measures in Children Recovering From Burns</title><author>Riobueno-Naylor, Alexa ; Romo, Stephanie ; Kazis, Lewis ; Wang, Shirley ; Lydon, Martha ; Nelson, Judith ; Fowler, Laura ; Drexler, Alana ; Kogosov, Ann ; Haile, Haregnesh ; Ryan, Colleen M ; Chang, Philip ; Warner, Petra ; Palmieri, Tina L ; Lee, Austin F ; Stoddard, Frederick ; Murphy, J Michael ; Sheridan, Robert L</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c278t-a8de66e91ff7cda575361a6c7bdb7ef724a468bf72d23a79573f1309744abfdb3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2019</creationdate><topic>Adolescent</topic><topic>Burns - psychology</topic><topic>Child</topic><topic>Child, Preschool</topic><topic>Computers, Handheld</topic><topic>Feasibility Studies</topic><topic>Feedback</topic><topic>Female</topic><topic>Hospitals, Special</topic><topic>Humans</topic><topic>Male</topic><topic>Parents</topic><topic>Patient Reported Outcome Measures</topic><topic>Surveys and Questionnaires</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Riobueno-Naylor, Alexa</creatorcontrib><creatorcontrib>Romo, Stephanie</creatorcontrib><creatorcontrib>Kazis, Lewis</creatorcontrib><creatorcontrib>Wang, Shirley</creatorcontrib><creatorcontrib>Lydon, Martha</creatorcontrib><creatorcontrib>Nelson, Judith</creatorcontrib><creatorcontrib>Fowler, Laura</creatorcontrib><creatorcontrib>Drexler, Alana</creatorcontrib><creatorcontrib>Kogosov, Ann</creatorcontrib><creatorcontrib>Haile, Haregnesh</creatorcontrib><creatorcontrib>Ryan, Colleen M</creatorcontrib><creatorcontrib>Chang, Philip</creatorcontrib><creatorcontrib>Warner, Petra</creatorcontrib><creatorcontrib>Palmieri, Tina L</creatorcontrib><creatorcontrib>Lee, Austin F</creatorcontrib><creatorcontrib>Stoddard, Frederick</creatorcontrib><creatorcontrib>Murphy, J Michael</creatorcontrib><creatorcontrib>Sheridan, Robert L</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of burn care & research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Riobueno-Naylor, Alexa</au><au>Romo, Stephanie</au><au>Kazis, Lewis</au><au>Wang, Shirley</au><au>Lydon, Martha</au><au>Nelson, Judith</au><au>Fowler, Laura</au><au>Drexler, Alana</au><au>Kogosov, Ann</au><au>Haile, Haregnesh</au><au>Ryan, Colleen M</au><au>Chang, Philip</au><au>Warner, Petra</au><au>Palmieri, Tina L</au><au>Lee, Austin F</au><au>Stoddard, Frederick</au><au>Murphy, J Michael</au><au>Sheridan, Robert L</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Usefulness of a Novel System for Feedback of Patient-Reported Outcome Measures in Children Recovering From Burns</atitle><jtitle>Journal of burn care & research</jtitle><addtitle>J Burn Care Res</addtitle><date>2019-10-16</date><risdate>2019</risdate><volume>40</volume><issue>6</issue><spage>776</spage><epage>784</epage><pages>776-784</pages><issn>1559-047X</issn><eissn>1559-0488</eissn><abstract>Abstract
The Burn Outcomes Questionnaire for children ages 5–18 years (BOQ5–18) is a widely used, reliable, and valid parent-reported outcome measure designed to assess children’s recovery from burn injuries in 12 physical and psychosocial domains. This study evaluated the feasibility, acceptability, and usefulness of a feedback system that delivered BOQ and Pediatric Symptom Checklist (PSC-17; a widely used measure of psychosocial functioning) results to burn care clinicians prior to an outpatient appointment or a postoperative surgical encounter. The BOQ and the PSC-17 were administered to the parents of 147 children receiving outpatient or surgical care in two pediatric burn hospitals. Clinician and parent perceptions of the feedback system were evaluated using debriefing questionnaires. Over half of all patients were at-risk on at least one BOQ subscale, and risk on three or more BOQ domains was significantly associated with a higher likelihood of poor psychological scores on the PSC-17 (P < .001). Significant differences in BOQ scores were found between the two hospital sites on four BOQ subscales, three related to physical ability and one to psychosocial well-being. Parent ratings of the feedback system were positive, with 90% of parents in both settings agreeing that the BOQ tablet experience was easy and helpful. Clinician attitudes differed across the two settings with more positive clinician ratings of the system in the outpatient setting (P < .001). Clinician interviews revealed that the data was especially useful in bringing to light psychosocial aspects of functioning relevant to long-term recovery from burn injuries.</abstract><cop>US</cop><pub>Oxford University Press</pub><pmid>31102446</pmid><doi>10.1093/jbcr/irz082</doi><tpages>9</tpages></addata></record> |
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subjects | Adolescent Burns - psychology Child Child, Preschool Computers, Handheld Feasibility Studies Feedback Female Hospitals, Special Humans Male Parents Patient Reported Outcome Measures Surveys and Questionnaires |
title | Usefulness of a Novel System for Feedback of Patient-Reported Outcome Measures in Children Recovering From Burns |
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