Informal caregivers’ well‐being and care recipients’ quality of life and community reintegration – findings from a stroke survivor sample

Background Stroke is highly debilitating and requires long‐term care. Informal caregivers of stroke survivors play important roles in stroke rehabilitation. Caring for stroke survivors can negatively affect the caregivers’ well‐being and may adversely impact on their caregiving quality and subsequen...

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Veröffentlicht in:Scandinavian journal of caring sciences 2019-09, Vol.33 (3), p.641-650
Hauptverfasser: Okoye, Emmanuel Chiebuka, Okoro, Sandra Chioma, Akosile, Christopher Olusanjo, Onwuakagba, Ifeoma Uchenna, Ihegihu, Ebere Yvonne, Ihegihu, Chima Collins
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container_issue 3
container_start_page 641
container_title Scandinavian journal of caring sciences
container_volume 33
creator Okoye, Emmanuel Chiebuka
Okoro, Sandra Chioma
Akosile, Christopher Olusanjo
Onwuakagba, Ifeoma Uchenna
Ihegihu, Ebere Yvonne
Ihegihu, Chima Collins
description Background Stroke is highly debilitating and requires long‐term care. Informal caregivers of stroke survivors play important roles in stroke rehabilitation. Caring for stroke survivors can negatively affect the caregivers’ well‐being and may adversely impact on their caregiving quality and subsequently on stroke survivors’ well‐being. There seems to be a dearth of research on the relationships between caregivers’ and stroke survivors’ well‐being. Aims and Objectives This study was designed to determine the relationships among informal caregivers’ burden and quality of life (QOL) and stroke survivors’ QOL and community reintegration. Methods This ethically certified cross‐sectional survey involved 82 stroke survivors (mean age = 60.48 ± 11.13 years) and their 82 primary caregivers (mean age = 36.13 ± 13.69 years) consecutively recruited from seven conveniently sampled tertiary hospitals in Nigeria. Caregivers Strain Index, Igbo‐culture adapted Maleka Stroke Community Reintegration Measure and Short‐Form 36‐item Health Survey questionnaires were used to assess the caregivers’ burden, survivors’ community reintegration and QOL (of survivors and caregivers), respectively. Data were analysed using descriptive statistics, Spearman rank, Mann–Whitney U and Kruskal–Wallis tests at alpha level of 0.05. Results The mean stroke survivors’ community reintegration and QOL were 34.05 ± 21.54% and 34.93 ± 16 ± 49%, respectively. The mean caregivers’ QOL and burden scores were 74.49 ± 12.61% and 9.13 ± 3.18, respectively. About 80.5% of the caregivers experienced significant burden. Stroke survivors’ QOL and community reintegration, and caregivers’ QOL and burden significantly correlated with one another (p 
doi_str_mv 10.1111/scs.12657
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Informal caregivers of stroke survivors play important roles in stroke rehabilitation. Caring for stroke survivors can negatively affect the caregivers’ well‐being and may adversely impact on their caregiving quality and subsequently on stroke survivors’ well‐being. There seems to be a dearth of research on the relationships between caregivers’ and stroke survivors’ well‐being. Aims and Objectives This study was designed to determine the relationships among informal caregivers’ burden and quality of life (QOL) and stroke survivors’ QOL and community reintegration. Methods This ethically certified cross‐sectional survey involved 82 stroke survivors (mean age = 60.48 ± 11.13 years) and their 82 primary caregivers (mean age = 36.13 ± 13.69 years) consecutively recruited from seven conveniently sampled tertiary hospitals in Nigeria. Caregivers Strain Index, Igbo‐culture adapted Maleka Stroke Community Reintegration Measure and Short‐Form 36‐item Health Survey questionnaires were used to assess the caregivers’ burden, survivors’ community reintegration and QOL (of survivors and caregivers), respectively. Data were analysed using descriptive statistics, Spearman rank, Mann–Whitney U and Kruskal–Wallis tests at alpha level of 0.05. Results The mean stroke survivors’ community reintegration and QOL were 34.05 ± 21.54% and 34.93 ± 16 ± 49%, respectively. The mean caregivers’ QOL and burden scores were 74.49 ± 12.61% and 9.13 ± 3.18, respectively. About 80.5% of the caregivers experienced significant burden. Stroke survivors’ QOL and community reintegration, and caregivers’ QOL and burden significantly correlated with one another (p &lt; 0.05). Poststroke duration, survivor–caregiver cohabitation duration, survivors’ community‐dwelling duration and daily care‐giving hours significantly correlated with each of stroke survivors’ community reintegration and QOL, and caregivers’ burden and QOL (p &lt; 0.05). Conclusions Stroke survivors’ community reintegration and QOL were poor while caregivers’ had moderate QOL and high prevalence of significant burden. Significant correlations exist between caregivers’ well‐being and stroke survivors’ QOL and community reintegration. Interventions targeted at reducing caregivers’ burden may help improve both caregivers and survivors’ well‐being.</description><identifier>ISSN: 0283-9318</identifier><identifier>EISSN: 1471-6712</identifier><identifier>DOI: 10.1111/scs.12657</identifier><identifier>PMID: 30734330</identifier><language>eng</language><publisher>Sweden: Wiley Subscription Services, Inc</publisher><subject>Adult ; Aged ; burden ; Caregiver burden ; Caregivers ; Caregivers - psychology ; Caregivers - statistics &amp; numerical data ; Caregiving ; Cohabitation ; Community ; community reintegration ; Comparative studies ; Cross-Sectional Studies ; Diuretics ; Female ; health ; Health surveys ; Hospitals ; Humans ; Informal care ; informal caregivers ; Male ; Middle Aged ; Nursing ; poststroke ; Quality of life ; Quality of Life - psychology ; Questionnaires ; Rehabilitation ; strain ; Stroke ; Stroke - psychology ; Stroke Rehabilitation - psychology ; Survivor ; survivors ; Well being</subject><ispartof>Scandinavian journal of caring sciences, 2019-09, Vol.33 (3), p.641-650</ispartof><rights>2019 Nordic College of Caring Science</rights><rights>2019 Nordic College of Caring Science.</rights><rights>Copyright © 2019 Nordic College of Caring Science</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c4197-28591cbe805f525f020451c122031dc6bc32a7c0b5fcbb3957ebd110ddb0aa963</citedby><cites>FETCH-LOGICAL-c4197-28591cbe805f525f020451c122031dc6bc32a7c0b5fcbb3957ebd110ddb0aa963</cites><orcidid>0000-0003-2244-6866 ; 0000-0002-3379-2134</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fscs.12657$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fscs.12657$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27901,27902,30976,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30734330$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Okoye, Emmanuel Chiebuka</creatorcontrib><creatorcontrib>Okoro, Sandra Chioma</creatorcontrib><creatorcontrib>Akosile, Christopher Olusanjo</creatorcontrib><creatorcontrib>Onwuakagba, Ifeoma Uchenna</creatorcontrib><creatorcontrib>Ihegihu, Ebere Yvonne</creatorcontrib><creatorcontrib>Ihegihu, Chima Collins</creatorcontrib><title>Informal caregivers’ well‐being and care recipients’ quality of life and community reintegration – findings from a stroke survivor sample</title><title>Scandinavian journal of caring sciences</title><addtitle>Scand J Caring Sci</addtitle><description>Background Stroke is highly debilitating and requires long‐term care. Informal caregivers of stroke survivors play important roles in stroke rehabilitation. Caring for stroke survivors can negatively affect the caregivers’ well‐being and may adversely impact on their caregiving quality and subsequently on stroke survivors’ well‐being. There seems to be a dearth of research on the relationships between caregivers’ and stroke survivors’ well‐being. Aims and Objectives This study was designed to determine the relationships among informal caregivers’ burden and quality of life (QOL) and stroke survivors’ QOL and community reintegration. Methods This ethically certified cross‐sectional survey involved 82 stroke survivors (mean age = 60.48 ± 11.13 years) and their 82 primary caregivers (mean age = 36.13 ± 13.69 years) consecutively recruited from seven conveniently sampled tertiary hospitals in Nigeria. Caregivers Strain Index, Igbo‐culture adapted Maleka Stroke Community Reintegration Measure and Short‐Form 36‐item Health Survey questionnaires were used to assess the caregivers’ burden, survivors’ community reintegration and QOL (of survivors and caregivers), respectively. Data were analysed using descriptive statistics, Spearman rank, Mann–Whitney U and Kruskal–Wallis tests at alpha level of 0.05. Results The mean stroke survivors’ community reintegration and QOL were 34.05 ± 21.54% and 34.93 ± 16 ± 49%, respectively. The mean caregivers’ QOL and burden scores were 74.49 ± 12.61% and 9.13 ± 3.18, respectively. About 80.5% of the caregivers experienced significant burden. Stroke survivors’ QOL and community reintegration, and caregivers’ QOL and burden significantly correlated with one another (p &lt; 0.05). Poststroke duration, survivor–caregiver cohabitation duration, survivors’ community‐dwelling duration and daily care‐giving hours significantly correlated with each of stroke survivors’ community reintegration and QOL, and caregivers’ burden and QOL (p &lt; 0.05). Conclusions Stroke survivors’ community reintegration and QOL were poor while caregivers’ had moderate QOL and high prevalence of significant burden. Significant correlations exist between caregivers’ well‐being and stroke survivors’ QOL and community reintegration. 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Abstracts (ASSIA)</collection><collection>British Nursing Index</collection><collection>British Nursing Index (BNI) (1985 to Present)</collection><collection>British Nursing Index</collection><collection>Nursing &amp; Allied Health Premium</collection><collection>MEDLINE - Academic</collection><jtitle>Scandinavian journal of caring sciences</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Okoye, Emmanuel Chiebuka</au><au>Okoro, Sandra Chioma</au><au>Akosile, Christopher Olusanjo</au><au>Onwuakagba, Ifeoma Uchenna</au><au>Ihegihu, Ebere Yvonne</au><au>Ihegihu, Chima Collins</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Informal caregivers’ well‐being and care recipients’ quality of life and community reintegration – findings from a stroke survivor sample</atitle><jtitle>Scandinavian journal of caring sciences</jtitle><addtitle>Scand J Caring Sci</addtitle><date>2019-09</date><risdate>2019</risdate><volume>33</volume><issue>3</issue><spage>641</spage><epage>650</epage><pages>641-650</pages><issn>0283-9318</issn><eissn>1471-6712</eissn><abstract>Background Stroke is highly debilitating and requires long‐term care. Informal caregivers of stroke survivors play important roles in stroke rehabilitation. Caring for stroke survivors can negatively affect the caregivers’ well‐being and may adversely impact on their caregiving quality and subsequently on stroke survivors’ well‐being. There seems to be a dearth of research on the relationships between caregivers’ and stroke survivors’ well‐being. Aims and Objectives This study was designed to determine the relationships among informal caregivers’ burden and quality of life (QOL) and stroke survivors’ QOL and community reintegration. Methods This ethically certified cross‐sectional survey involved 82 stroke survivors (mean age = 60.48 ± 11.13 years) and their 82 primary caregivers (mean age = 36.13 ± 13.69 years) consecutively recruited from seven conveniently sampled tertiary hospitals in Nigeria. Caregivers Strain Index, Igbo‐culture adapted Maleka Stroke Community Reintegration Measure and Short‐Form 36‐item Health Survey questionnaires were used to assess the caregivers’ burden, survivors’ community reintegration and QOL (of survivors and caregivers), respectively. Data were analysed using descriptive statistics, Spearman rank, Mann–Whitney U and Kruskal–Wallis tests at alpha level of 0.05. Results The mean stroke survivors’ community reintegration and QOL were 34.05 ± 21.54% and 34.93 ± 16 ± 49%, respectively. The mean caregivers’ QOL and burden scores were 74.49 ± 12.61% and 9.13 ± 3.18, respectively. About 80.5% of the caregivers experienced significant burden. Stroke survivors’ QOL and community reintegration, and caregivers’ QOL and burden significantly correlated with one another (p &lt; 0.05). Poststroke duration, survivor–caregiver cohabitation duration, survivors’ community‐dwelling duration and daily care‐giving hours significantly correlated with each of stroke survivors’ community reintegration and QOL, and caregivers’ burden and QOL (p &lt; 0.05). Conclusions Stroke survivors’ community reintegration and QOL were poor while caregivers’ had moderate QOL and high prevalence of significant burden. Significant correlations exist between caregivers’ well‐being and stroke survivors’ QOL and community reintegration. Interventions targeted at reducing caregivers’ burden may help improve both caregivers and survivors’ well‐being.</abstract><cop>Sweden</cop><pub>Wiley Subscription Services, Inc</pub><pmid>30734330</pmid><doi>10.1111/scs.12657</doi><tpages>10</tpages><orcidid>https://orcid.org/0000-0003-2244-6866</orcidid><orcidid>https://orcid.org/0000-0002-3379-2134</orcidid></addata></record>
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source Applied Social Sciences Index & Abstracts (ASSIA); MEDLINE; Wiley Online Library Journals Frontfile Complete
subjects Adult
Aged
burden
Caregiver burden
Caregivers
Caregivers - psychology
Caregivers - statistics & numerical data
Caregiving
Cohabitation
Community
community reintegration
Comparative studies
Cross-Sectional Studies
Diuretics
Female
health
Health surveys
Hospitals
Humans
Informal care
informal caregivers
Male
Middle Aged
Nursing
poststroke
Quality of life
Quality of Life - psychology
Questionnaires
Rehabilitation
strain
Stroke
Stroke - psychology
Stroke Rehabilitation - psychology
Survivor
survivors
Well being
title Informal caregivers’ well‐being and care recipients’ quality of life and community reintegration – findings from a stroke survivor sample
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