Anthropometric measurement standardization for a multicenter nutrition survey in children with spinal muscular atrophy
Spinal muscular atrophy (SMA) is a neuromuscular disease associated with nutritional status derangement and altered body composition. New drugs are changing the natural history of the disease, so now more than ever is important to focus on the correct assessment of nutritional status in SMA. We impl...
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| Veröffentlicht in: | European journal of clinical nutrition 2019-12, Vol.73 (12), p.1646-1648 |
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| creator | Bertoli, Simona Foppiani, Andrea De Amicis, Ramona Leone, Alessandro Mastella, Chiara Bassano, Michela Giaquinto, Ester Baranello, Giovanni Battezzati, Alberto |
| description | Spinal muscular atrophy (SMA) is a neuromuscular disease associated with nutritional status derangement and altered body composition. New drugs are changing the natural history of the disease, so now more than ever is important to focus on the correct assessment of nutritional status in SMA. We implemented a standardization process for the anthropometric measurement as part of our ongoing longitudinal study of growth patterns in SMA patients. It features a procedural manual, included in this communication, observers training and reliability assessment, of which we publish the values obtained in our pilot study. The standardization process was able to produce inter-observer reliability values in agreement with the literature and a procedure manual is now available for multicentre studies of nutritional status and body composition in SMA and possibly other pediatric neuromuscular disorders. |
| doi_str_mv | 10.1038/s41430-019-0392-2 |
| format | Article |
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New drugs are changing the natural history of the disease, so now more than ever is important to focus on the correct assessment of nutritional status in SMA. We implemented a standardization process for the anthropometric measurement as part of our ongoing longitudinal study of growth patterns in SMA patients. It features a procedural manual, included in this communication, observers training and reliability assessment, of which we publish the values obtained in our pilot study. 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| subjects | 692/699/375 692/700/2814 Anthropometry Atrophy Body composition Body measurements Brief Communication Clinical Nutrition Correlation analysis Epidemiology Growth patterns Health surveys Internal Medicine Longitudinal studies Medical research Medicine Medicine & Public Health Medicine, Experimental Metabolic Diseases Neuromuscular diseases Nutrition Nutrition assessment Nutrition research Nutrition surveys Nutritional status Physiological aspects Public Health Reliability analysis Spinal muscular atrophy Standardization Surveys |
| title | Anthropometric measurement standardization for a multicenter nutrition survey in children with spinal muscular atrophy |
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