Assessment of atrial fibrillation patients' education needs from patient and clinician perspectives: A qualitative descriptive study
Patients' lack of knowledge is a key barrier to therapy adherence. We aimed to gather insights into atrial fibrillation (AF) patients' education needs from patient and clinician viewpoints. We conducted a qualitative descriptive study using purposive sampling and semi-structured interviews...
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| Veröffentlicht in: | Thrombosis research 2019-01, Vol.173, p.109-116 |
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| container_title | Thrombosis research |
| container_volume | 173 |
| creator | Salmasi, Shahrzad Kwan, Leanne MacGillivray, Jenny Bansback, Nick De Vera, Mary A. Barry, Arden R. Harrison, Mark J. Andrade, Jason Lynd, Larry D. Loewen, Peter |
| description | Patients' lack of knowledge is a key barrier to therapy adherence. We aimed to gather insights into atrial fibrillation (AF) patients' education needs from patient and clinician viewpoints.
We conducted a qualitative descriptive study using purposive sampling and semi-structured interviews with AF patients and clinicians recruited from AF clinics. Data from patients and clinicians were analyzed independently and iteratively through inductive qualitative thematic analysis.
Eleven clinicians and 10 patients were interviewed. Three themes emerged from analysis of clinician data: (1) patients' knowledge gaps and misconceptions, (2) clinicians' experiences teaching AF patients, and (3) clinicians' suggestions for AF education programs. Four themes emerged from the patient data: (1) emotional appraisal of the disease, (2) information seeking behavior, (3) knowledge gaps, and (4) education preferences. A key finding was identification of the need for education that addresses patients' unjustified anxieties by emphasizing that AF is not fatal, and that many patients with AF live a normal life. Risk communication was identified as the most challenging aspect of AF education. In synthesizing our findings, we developed evidence-based recommendations for educational strategies for AF.
We found that AF patients have many knowledge gaps and misconceptions, significant emotional education needs, and a positive attitude towards online and classroom education. In synthesizing our findings, we developed evidence-based recommendations which can inform the design of AF patient education programs and initiatives.
•Atrial fibrillation (AF) patients have many knowledge gaps and misconceptions.•AF patient education should address patients' emotional needs.•AF patients' risk communication preferences are variable.•AF patients frequently consult the internet to find information.•AF patients have a positive attitude towards online and classroom education. |
| doi_str_mv | 10.1016/j.thromres.2018.11.015 |
| format | Article |
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We conducted a qualitative descriptive study using purposive sampling and semi-structured interviews with AF patients and clinicians recruited from AF clinics. Data from patients and clinicians were analyzed independently and iteratively through inductive qualitative thematic analysis.
Eleven clinicians and 10 patients were interviewed. Three themes emerged from analysis of clinician data: (1) patients' knowledge gaps and misconceptions, (2) clinicians' experiences teaching AF patients, and (3) clinicians' suggestions for AF education programs. Four themes emerged from the patient data: (1) emotional appraisal of the disease, (2) information seeking behavior, (3) knowledge gaps, and (4) education preferences. A key finding was identification of the need for education that addresses patients' unjustified anxieties by emphasizing that AF is not fatal, and that many patients with AF live a normal life. Risk communication was identified as the most challenging aspect of AF education. In synthesizing our findings, we developed evidence-based recommendations for educational strategies for AF.
We found that AF patients have many knowledge gaps and misconceptions, significant emotional education needs, and a positive attitude towards online and classroom education. In synthesizing our findings, we developed evidence-based recommendations which can inform the design of AF patient education programs and initiatives.
•Atrial fibrillation (AF) patients have many knowledge gaps and misconceptions.•AF patient education should address patients' emotional needs.•AF patients' risk communication preferences are variable.•AF patients frequently consult the internet to find information.•AF patients have a positive attitude towards online and classroom education.</description><identifier>ISSN: 0049-3848</identifier><identifier>EISSN: 1879-2472</identifier><identifier>DOI: 10.1016/j.thromres.2018.11.015</identifier><identifier>PMID: 30502679</identifier><language>eng</language><publisher>United States: Elsevier Ltd</publisher><subject>Atrial fibrillation ; Education needs assessment ; Patient education</subject><ispartof>Thrombosis research, 2019-01, Vol.173, p.109-116</ispartof><rights>2018 Elsevier Ltd</rights><rights>Copyright © 2018 Elsevier Ltd. All rights reserved.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c368t-5c4bf1cffd60b4beb088a7d49f6d851709d793441f3bb19e00697a222c00c06a3</citedby><cites>FETCH-LOGICAL-c368t-5c4bf1cffd60b4beb088a7d49f6d851709d793441f3bb19e00697a222c00c06a3</cites><orcidid>0000-0003-1330-3388</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://www.sciencedirect.com/science/article/pii/S0049384818306108$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>314,776,780,3537,27901,27902,65306</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30502679$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Salmasi, Shahrzad</creatorcontrib><creatorcontrib>Kwan, Leanne</creatorcontrib><creatorcontrib>MacGillivray, Jenny</creatorcontrib><creatorcontrib>Bansback, Nick</creatorcontrib><creatorcontrib>De Vera, Mary A.</creatorcontrib><creatorcontrib>Barry, Arden R.</creatorcontrib><creatorcontrib>Harrison, Mark J.</creatorcontrib><creatorcontrib>Andrade, Jason</creatorcontrib><creatorcontrib>Lynd, Larry D.</creatorcontrib><creatorcontrib>Loewen, Peter</creatorcontrib><title>Assessment of atrial fibrillation patients' education needs from patient and clinician perspectives: A qualitative descriptive study</title><title>Thrombosis research</title><addtitle>Thromb Res</addtitle><description>Patients' lack of knowledge is a key barrier to therapy adherence. We aimed to gather insights into atrial fibrillation (AF) patients' education needs from patient and clinician viewpoints.
We conducted a qualitative descriptive study using purposive sampling and semi-structured interviews with AF patients and clinicians recruited from AF clinics. Data from patients and clinicians were analyzed independently and iteratively through inductive qualitative thematic analysis.
Eleven clinicians and 10 patients were interviewed. Three themes emerged from analysis of clinician data: (1) patients' knowledge gaps and misconceptions, (2) clinicians' experiences teaching AF patients, and (3) clinicians' suggestions for AF education programs. Four themes emerged from the patient data: (1) emotional appraisal of the disease, (2) information seeking behavior, (3) knowledge gaps, and (4) education preferences. A key finding was identification of the need for education that addresses patients' unjustified anxieties by emphasizing that AF is not fatal, and that many patients with AF live a normal life. Risk communication was identified as the most challenging aspect of AF education. In synthesizing our findings, we developed evidence-based recommendations for educational strategies for AF.
We found that AF patients have many knowledge gaps and misconceptions, significant emotional education needs, and a positive attitude towards online and classroom education. In synthesizing our findings, we developed evidence-based recommendations which can inform the design of AF patient education programs and initiatives.
•Atrial fibrillation (AF) patients have many knowledge gaps and misconceptions.•AF patient education should address patients' emotional needs.•AF patients' risk communication preferences are variable.•AF patients frequently consult the internet to find information.•AF patients have a positive attitude towards online and classroom education.</description><subject>Atrial fibrillation</subject><subject>Education needs assessment</subject><subject>Patient education</subject><issn>0049-3848</issn><issn>1879-2472</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2019</creationdate><recordtype>article</recordtype><recordid>eNqFUU1vFDEMjRAVXQp_ocoNLjM485GZcGJV0YJUiUs5R5nEEVnNV-NMpd754WTZLldOtuP37Pg9xq4FlAKE_HQo06-4TBGprED0pRAliPYV24m-U0XVdNVrtgNoVFH3TX_J3hIdAEQnVPuGXdbQQiU7tWO_90RINOGc-OK5STGYkfswxDCOJoVl5msOuU0fOLrNnt5mREfc5x-c29zMjtsxzMEGk0kYaUWbwhPSZ77nj5sZQzLHmjskG8P6N6e0ued37MKbkfD9S7xiP2-_Ptx8K-5_3H2_2d8XtpZ9KlrbDF5Y752EoRlwgL43nWuUl65vRQfKdapuGuHrYRAKAaTqTFVVFsCCNPUV-3iau8blcUNKegpkMR8647KRrkSjsri1rDJUnqA2LkQRvV5jmEx81gL00QF90GcH9NEBLYTODmTi9cuObZjQ_aOdJc-ALycA5kufAkZNNgto0YWYBdNuCf_b8QeTFJ6i</recordid><startdate>20190101</startdate><enddate>20190101</enddate><creator>Salmasi, Shahrzad</creator><creator>Kwan, Leanne</creator><creator>MacGillivray, Jenny</creator><creator>Bansback, Nick</creator><creator>De Vera, Mary A.</creator><creator>Barry, Arden R.</creator><creator>Harrison, Mark J.</creator><creator>Andrade, Jason</creator><creator>Lynd, Larry D.</creator><creator>Loewen, Peter</creator><general>Elsevier Ltd</general><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0003-1330-3388</orcidid></search><sort><creationdate>20190101</creationdate><title>Assessment of atrial fibrillation patients' education needs from patient and clinician perspectives: A qualitative descriptive study</title><author>Salmasi, Shahrzad ; Kwan, Leanne ; MacGillivray, Jenny ; Bansback, Nick ; De Vera, Mary A. ; Barry, Arden R. ; Harrison, Mark J. ; Andrade, Jason ; Lynd, Larry D. ; Loewen, Peter</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c368t-5c4bf1cffd60b4beb088a7d49f6d851709d793441f3bb19e00697a222c00c06a3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2019</creationdate><topic>Atrial fibrillation</topic><topic>Education needs assessment</topic><topic>Patient education</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Salmasi, Shahrzad</creatorcontrib><creatorcontrib>Kwan, Leanne</creatorcontrib><creatorcontrib>MacGillivray, Jenny</creatorcontrib><creatorcontrib>Bansback, Nick</creatorcontrib><creatorcontrib>De Vera, Mary A.</creatorcontrib><creatorcontrib>Barry, Arden R.</creatorcontrib><creatorcontrib>Harrison, Mark J.</creatorcontrib><creatorcontrib>Andrade, Jason</creatorcontrib><creatorcontrib>Lynd, Larry D.</creatorcontrib><creatorcontrib>Loewen, Peter</creatorcontrib><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Thrombosis research</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Salmasi, Shahrzad</au><au>Kwan, Leanne</au><au>MacGillivray, Jenny</au><au>Bansback, Nick</au><au>De Vera, Mary A.</au><au>Barry, Arden R.</au><au>Harrison, Mark J.</au><au>Andrade, Jason</au><au>Lynd, Larry D.</au><au>Loewen, Peter</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Assessment of atrial fibrillation patients' education needs from patient and clinician perspectives: A qualitative descriptive study</atitle><jtitle>Thrombosis research</jtitle><addtitle>Thromb Res</addtitle><date>2019-01-01</date><risdate>2019</risdate><volume>173</volume><spage>109</spage><epage>116</epage><pages>109-116</pages><issn>0049-3848</issn><eissn>1879-2472</eissn><abstract>Patients' lack of knowledge is a key barrier to therapy adherence. We aimed to gather insights into atrial fibrillation (AF) patients' education needs from patient and clinician viewpoints.
We conducted a qualitative descriptive study using purposive sampling and semi-structured interviews with AF patients and clinicians recruited from AF clinics. Data from patients and clinicians were analyzed independently and iteratively through inductive qualitative thematic analysis.
Eleven clinicians and 10 patients were interviewed. Three themes emerged from analysis of clinician data: (1) patients' knowledge gaps and misconceptions, (2) clinicians' experiences teaching AF patients, and (3) clinicians' suggestions for AF education programs. Four themes emerged from the patient data: (1) emotional appraisal of the disease, (2) information seeking behavior, (3) knowledge gaps, and (4) education preferences. A key finding was identification of the need for education that addresses patients' unjustified anxieties by emphasizing that AF is not fatal, and that many patients with AF live a normal life. Risk communication was identified as the most challenging aspect of AF education. In synthesizing our findings, we developed evidence-based recommendations for educational strategies for AF.
We found that AF patients have many knowledge gaps and misconceptions, significant emotional education needs, and a positive attitude towards online and classroom education. In synthesizing our findings, we developed evidence-based recommendations which can inform the design of AF patient education programs and initiatives.
•Atrial fibrillation (AF) patients have many knowledge gaps and misconceptions.•AF patient education should address patients' emotional needs.•AF patients' risk communication preferences are variable.•AF patients frequently consult the internet to find information.•AF patients have a positive attitude towards online and classroom education.</abstract><cop>United States</cop><pub>Elsevier Ltd</pub><pmid>30502679</pmid><doi>10.1016/j.thromres.2018.11.015</doi><tpages>8</tpages><orcidid>https://orcid.org/0000-0003-1330-3388</orcidid></addata></record> |
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| subjects | Atrial fibrillation Education needs assessment Patient education |
| title | Assessment of atrial fibrillation patients' education needs from patient and clinician perspectives: A qualitative descriptive study |
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