Patient‐reported outcome measures and their utility in the management of patients with advanced chronic kidney disease
ABSTRACT Symptom and quality of life (QOL) measures in patients with advanced chronic kidney disease are recognized indicators of patient‐centred care and represent important research, quality and clinical measures. This study examined relationships between symptom burden, QOL and functional status...
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| Veröffentlicht in: | Nephrology (Carlton, Vic.) Vic.), 2019-08, Vol.24 (8), p.814-818 |
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| container_title | Nephrology (Carlton, Vic.) |
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| creator | Ducharlet, Kathryn Sundararajan, Vijaya Philip, Jennifer Weil, Jennifer Barker, Nuala Langham, Robyn G Burchell, Jodie Gock, Hilton |
| description | ABSTRACT
Symptom and quality of life (QOL) measures in patients with advanced chronic kidney disease are recognized indicators of patient‐centred care and represent important research, quality and clinical measures. This study examined relationships between symptom burden, QOL and functional status and associations of symptoms and mortality risk. A multisite longitudinal cohort analysis was undertaken in chronic kidney disease stage 4/5 (no dialysis) and dialysis patients. Patients completed symptom and QOL measures (Palliative Care Outcome Symptom Score renal), World Health Organisation QOL Brief Version) and Karnofsky Performance scale. Clinical and demographic data were recorded.
SUMMARY AT A GLANCE
Symptoms in patients with advanced kidney disease are common and are associated with reduced quality of life, health satisfaction and functional status. In addition to this, this study shows symptoms are associated with increased risk of mortality over 12 months suggesting a novel approach to consider symptoms in prognostic assessments. |
| doi_str_mv | 10.1111/nep.13509 |
| format | Article |
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Symptom and quality of life (QOL) measures in patients with advanced chronic kidney disease are recognized indicators of patient‐centred care and represent important research, quality and clinical measures. This study examined relationships between symptom burden, QOL and functional status and associations of symptoms and mortality risk. A multisite longitudinal cohort analysis was undertaken in chronic kidney disease stage 4/5 (no dialysis) and dialysis patients. Patients completed symptom and QOL measures (Palliative Care Outcome Symptom Score renal), World Health Organisation QOL Brief Version) and Karnofsky Performance scale. Clinical and demographic data were recorded.
SUMMARY AT A GLANCE
Symptoms in patients with advanced kidney disease are common and are associated with reduced quality of life, health satisfaction and functional status. In addition to this, this study shows symptoms are associated with increased risk of mortality over 12 months suggesting a novel approach to consider symptoms in prognostic assessments.</description><identifier>ISSN: 1320-5358</identifier><identifier>EISSN: 1440-1797</identifier><identifier>DOI: 10.1111/nep.13509</identifier><identifier>PMID: 30298638</identifier><language>eng</language><publisher>Melbourne: John Wiley & Sons Australia, Ltd</publisher><subject>Aged ; chronic kidney disease ; Cohort Studies ; Dialysis ; Female ; Humans ; Kidney diseases ; Longitudinal Studies ; Male ; Patient Reported Outcome Measures ; Patients ; Quality of Life ; quality of life, dialysis ; Renal Insufficiency, Chronic - diagnosis ; Renal Insufficiency, Chronic - mortality ; Renal Insufficiency, Chronic - physiopathology ; renal supportive care ; Severity of Illness Index ; symptoms</subject><ispartof>Nephrology (Carlton, Vic.), 2019-08, Vol.24 (8), p.814-818</ispartof><rights>2018 Asian Pacific Society of Nephrology</rights><rights>2018 Asian Pacific Society of Nephrology.</rights><rights>2019 Asian Pacific Society of Nephrology</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3889-dc54516c9497eb644ad299aedf8064d8c9c2a828beed932840767b90161abab83</citedby><cites>FETCH-LOGICAL-c3889-dc54516c9497eb644ad299aedf8064d8c9c2a828beed932840767b90161abab83</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fnep.13509$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fnep.13509$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30298638$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Ducharlet, Kathryn</creatorcontrib><creatorcontrib>Sundararajan, Vijaya</creatorcontrib><creatorcontrib>Philip, Jennifer</creatorcontrib><creatorcontrib>Weil, Jennifer</creatorcontrib><creatorcontrib>Barker, Nuala</creatorcontrib><creatorcontrib>Langham, Robyn G</creatorcontrib><creatorcontrib>Burchell, Jodie</creatorcontrib><creatorcontrib>Gock, Hilton</creatorcontrib><title>Patient‐reported outcome measures and their utility in the management of patients with advanced chronic kidney disease</title><title>Nephrology (Carlton, Vic.)</title><addtitle>Nephrology (Carlton)</addtitle><description>ABSTRACT
Symptom and quality of life (QOL) measures in patients with advanced chronic kidney disease are recognized indicators of patient‐centred care and represent important research, quality and clinical measures. This study examined relationships between symptom burden, QOL and functional status and associations of symptoms and mortality risk. A multisite longitudinal cohort analysis was undertaken in chronic kidney disease stage 4/5 (no dialysis) and dialysis patients. Patients completed symptom and QOL measures (Palliative Care Outcome Symptom Score renal), World Health Organisation QOL Brief Version) and Karnofsky Performance scale. Clinical and demographic data were recorded.
SUMMARY AT A GLANCE
Symptoms in patients with advanced kidney disease are common and are associated with reduced quality of life, health satisfaction and functional status. In addition to this, this study shows symptoms are associated with increased risk of mortality over 12 months suggesting a novel approach to consider symptoms in prognostic assessments.</description><subject>Aged</subject><subject>chronic kidney disease</subject><subject>Cohort Studies</subject><subject>Dialysis</subject><subject>Female</subject><subject>Humans</subject><subject>Kidney diseases</subject><subject>Longitudinal Studies</subject><subject>Male</subject><subject>Patient Reported Outcome Measures</subject><subject>Patients</subject><subject>Quality of Life</subject><subject>quality of life, dialysis</subject><subject>Renal Insufficiency, Chronic - diagnosis</subject><subject>Renal Insufficiency, Chronic - mortality</subject><subject>Renal Insufficiency, Chronic - physiopathology</subject><subject>renal supportive care</subject><subject>Severity of Illness Index</subject><subject>symptoms</subject><issn>1320-5358</issn><issn>1440-1797</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2019</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp1kctu1TAQhi0EohdY8ALIEhu6SOtbEnuJqrYgVbQLWFuOPYfjktjBdlrOjkfgGXkSXFJYINWbsUbffBrNj9ArSo5pfScB5mPKW6KeoH0qBGlor_qn9c8ZaVreyj10kPMNIbRnHX2O9jhhSnZc7qPv16Z4COXXj58J5pgKOByXYuMEeAKTlwQZm-Bw2YJPeCl-9GWHfbhv4MkE8wWmOo_jBs-rKuM7X7bYuFsTbNXZbYrBW_zVuwA77HyuXniBnm3MmOHlQz1En8_PPp2-by6vLj6cvrtsLJdSNc62oqWdVUL1MHRCGMeUMuA2knTCSassM5LJAcApzqQgfdcPitCOmsEMkh-it6t3TvHbArnoyWcL42gCxCVrRmnPFRFcVfTNf-hNXFKo22nGOtYKKTiv1NFK2RRzTrDRc_KTSTtNib6PQ9c49J84Kvv6wbgME7h_5N_7V-BkBe78CLvHTfrj2fWq_A16tpZm</recordid><startdate>201908</startdate><enddate>201908</enddate><creator>Ducharlet, Kathryn</creator><creator>Sundararajan, Vijaya</creator><creator>Philip, Jennifer</creator><creator>Weil, Jennifer</creator><creator>Barker, Nuala</creator><creator>Langham, Robyn G</creator><creator>Burchell, Jodie</creator><creator>Gock, Hilton</creator><general>John Wiley & Sons Australia, Ltd</general><general>Wiley Subscription Services, Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7QP</scope><scope>7X8</scope></search><sort><creationdate>201908</creationdate><title>Patient‐reported outcome measures and their utility in the management of patients with advanced chronic kidney disease</title><author>Ducharlet, Kathryn ; Sundararajan, Vijaya ; Philip, Jennifer ; Weil, Jennifer ; Barker, Nuala ; Langham, Robyn G ; Burchell, Jodie ; Gock, Hilton</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3889-dc54516c9497eb644ad299aedf8064d8c9c2a828beed932840767b90161abab83</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2019</creationdate><topic>Aged</topic><topic>chronic kidney disease</topic><topic>Cohort Studies</topic><topic>Dialysis</topic><topic>Female</topic><topic>Humans</topic><topic>Kidney diseases</topic><topic>Longitudinal Studies</topic><topic>Male</topic><topic>Patient Reported Outcome Measures</topic><topic>Patients</topic><topic>Quality of Life</topic><topic>quality of life, dialysis</topic><topic>Renal Insufficiency, Chronic - diagnosis</topic><topic>Renal Insufficiency, Chronic - mortality</topic><topic>Renal Insufficiency, Chronic - physiopathology</topic><topic>renal supportive care</topic><topic>Severity of Illness Index</topic><topic>symptoms</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Ducharlet, Kathryn</creatorcontrib><creatorcontrib>Sundararajan, Vijaya</creatorcontrib><creatorcontrib>Philip, Jennifer</creatorcontrib><creatorcontrib>Weil, Jennifer</creatorcontrib><creatorcontrib>Barker, Nuala</creatorcontrib><creatorcontrib>Langham, Robyn G</creatorcontrib><creatorcontrib>Burchell, Jodie</creatorcontrib><creatorcontrib>Gock, Hilton</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Calcium & Calcified Tissue Abstracts</collection><collection>MEDLINE - Academic</collection><jtitle>Nephrology (Carlton, Vic.)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Ducharlet, Kathryn</au><au>Sundararajan, Vijaya</au><au>Philip, Jennifer</au><au>Weil, Jennifer</au><au>Barker, Nuala</au><au>Langham, Robyn G</au><au>Burchell, Jodie</au><au>Gock, Hilton</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Patient‐reported outcome measures and their utility in the management of patients with advanced chronic kidney disease</atitle><jtitle>Nephrology (Carlton, Vic.)</jtitle><addtitle>Nephrology (Carlton)</addtitle><date>2019-08</date><risdate>2019</risdate><volume>24</volume><issue>8</issue><spage>814</spage><epage>818</epage><pages>814-818</pages><issn>1320-5358</issn><eissn>1440-1797</eissn><abstract>ABSTRACT
Symptom and quality of life (QOL) measures in patients with advanced chronic kidney disease are recognized indicators of patient‐centred care and represent important research, quality and clinical measures. This study examined relationships between symptom burden, QOL and functional status and associations of symptoms and mortality risk. A multisite longitudinal cohort analysis was undertaken in chronic kidney disease stage 4/5 (no dialysis) and dialysis patients. Patients completed symptom and QOL measures (Palliative Care Outcome Symptom Score renal), World Health Organisation QOL Brief Version) and Karnofsky Performance scale. Clinical and demographic data were recorded.
SUMMARY AT A GLANCE
Symptoms in patients with advanced kidney disease are common and are associated with reduced quality of life, health satisfaction and functional status. In addition to this, this study shows symptoms are associated with increased risk of mortality over 12 months suggesting a novel approach to consider symptoms in prognostic assessments.</abstract><cop>Melbourne</cop><pub>John Wiley & Sons Australia, Ltd</pub><pmid>30298638</pmid><doi>10.1111/nep.13509</doi><tpages>5</tpages><oa>free_for_read</oa></addata></record> |
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| ispartof | Nephrology (Carlton, Vic.), 2019-08, Vol.24 (8), p.814-818 |
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| source | MEDLINE; Wiley Online Library Journals Frontfile Complete |
| subjects | Aged chronic kidney disease Cohort Studies Dialysis Female Humans Kidney diseases Longitudinal Studies Male Patient Reported Outcome Measures Patients Quality of Life quality of life, dialysis Renal Insufficiency, Chronic - diagnosis Renal Insufficiency, Chronic - mortality Renal Insufficiency, Chronic - physiopathology renal supportive care Severity of Illness Index symptoms |
| title | Patient‐reported outcome measures and their utility in the management of patients with advanced chronic kidney disease |
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