Medical Assistance in Dying at a paediatric hospital
This article explores the ethical challenges of providing Medical Assistance in Dying (MAID) in a paediatric setting. More specifically, we focus on the theoretical questions that came to light when we were asked to develop a policy for responding to MAID requests at our tertiary paediatric institut...
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Veröffentlicht in: | Journal of medical ethics 2019-01, Vol.45 (1), p.60-67 |
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description | This article explores the ethical challenges of providing Medical Assistance in Dying (MAID) in a paediatric setting. More specifically, we focus on the theoretical questions that came to light when we were asked to develop a policy for responding to MAID requests at our tertiary paediatric institution. We illuminate a central point of conceptual confusion about the nature of MAID that emerges at the level of practice, and explore the various entailments for clinicians and patients that would flow from different understandings. Finally, we consider the ethical challenges of building policy on what is still an extremely controversial social practice. While MAID is currently available to capable patients in Canada who are 18 years or older—a small but important subsection of the population our hospital serves—we write our policy with an eye to the near future when capable young people may gain access to MAID. We propose that an opportunity exists for MAID-providing institutions to reduce social stigma surrounding this practice, but not without potentially serious consequences for practitioners and institutions themselves. Thus, this paper is intended as a road map through the still-emerging legal and ethical landscape of paediatric MAID. We offer a view of the roads taken and considered along the way, and our justifications for travelling the paths we chose. By providing a record of our in-progress thinking, we hope to stimulate wider discussion about the issues and questions encountered in this work. |
doi_str_mv | 10.1136/medethics-2018-104896 |
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More specifically, we focus on the theoretical questions that came to light when we were asked to develop a policy for responding to MAID requests at our tertiary paediatric institution. We illuminate a central point of conceptual confusion about the nature of MAID that emerges at the level of practice, and explore the various entailments for clinicians and patients that would flow from different understandings. Finally, we consider the ethical challenges of building policy on what is still an extremely controversial social practice. While MAID is currently available to capable patients in Canada who are 18 years or older—a small but important subsection of the population our hospital serves—we write our policy with an eye to the near future when capable young people may gain access to MAID. We propose that an opportunity exists for MAID-providing institutions to reduce social stigma surrounding this practice, but not without potentially serious consequences for practitioners and institutions themselves. Thus, this paper is intended as a road map through the still-emerging legal and ethical landscape of paediatric MAID. We offer a view of the roads taken and considered along the way, and our justifications for travelling the paths we chose. By providing a record of our in-progress thinking, we hope to stimulate wider discussion about the issues and questions encountered in this work.</description><identifier>ISSN: 0306-6800</identifier><identifier>EISSN: 1473-4257</identifier><identifier>DOI: 10.1136/medethics-2018-104896</identifier><identifier>PMID: 30242079</identifier><language>eng</language><publisher>England: BMJ Publishing Group Ltd and Institute of Medical Ethics</publisher><subject>Abortion ; Acquired immune deficiency syndrome ; Adults ; AIDS ; Assisted suicide ; Bioethics ; Canada ; capacity ; care of dying minors ; Child ; children ; Clinical decision making ; Decision making ; Ethics ; Extended essay ; Extended essays ; Guidebooks ; Health care ; HIV ; Hospitals ; Hospitals, Pediatric - ethics ; Human immunodeficiency virus ; Humans ; Jurisprudence ; Organizational Policy ; paediatrics ; Patients ; Pediatrics ; Policy Making ; Stigma ; Suicide, Assisted - ethics ; Suicide, Assisted - legislation & jurisprudence ; suicide/assisted suicide ; Suicides & suicide attempts ; Working groups</subject><ispartof>Journal of medical ethics, 2019-01, Vol.45 (1), p.60-67</ispartof><rights>Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.</rights><rights>Author(s) (or their employer(s)) 2019</rights><rights>2019 Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-b442t-c35c744f1516f97cce1c98a79cf5dccf9dfa5ec89ca9d51000558f4bd8746cf83</citedby><cites>FETCH-LOGICAL-b442t-c35c744f1516f97cce1c98a79cf5dccf9dfa5ec89ca9d51000558f4bd8746cf83</cites></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://www.jstor.org/stable/pdf/26884751$$EPDF$$P50$$Gjstor$$H</linktopdf><linktohtml>$$Uhttps://www.jstor.org/stable/26884751$$EHTML$$P50$$Gjstor$$H</linktohtml><link.rule.ids>314,776,780,799,27901,27902,57992,58225</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30242079$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>DeMichelis, Carey</creatorcontrib><creatorcontrib>Zlotnik Shaul, Randi</creatorcontrib><creatorcontrib>Rapoport, Adam</creatorcontrib><title>Medical Assistance in Dying at a paediatric hospital</title><title>Journal of medical ethics</title><addtitle>J Med Ethics</addtitle><addtitle>J Med Ethics</addtitle><description>This article explores the ethical challenges of providing Medical Assistance in Dying (MAID) in a paediatric setting. More specifically, we focus on the theoretical questions that came to light when we were asked to develop a policy for responding to MAID requests at our tertiary paediatric institution. We illuminate a central point of conceptual confusion about the nature of MAID that emerges at the level of practice, and explore the various entailments for clinicians and patients that would flow from different understandings. Finally, we consider the ethical challenges of building policy on what is still an extremely controversial social practice. While MAID is currently available to capable patients in Canada who are 18 years or older—a small but important subsection of the population our hospital serves—we write our policy with an eye to the near future when capable young people may gain access to MAID. We propose that an opportunity exists for MAID-providing institutions to reduce social stigma surrounding this practice, but not without potentially serious consequences for practitioners and institutions themselves. Thus, this paper is intended as a road map through the still-emerging legal and ethical landscape of paediatric MAID. We offer a view of the roads taken and considered along the way, and our justifications for travelling the paths we chose. By providing a record of our in-progress thinking, we hope to stimulate wider discussion about the issues and questions encountered in this work.</description><subject>Abortion</subject><subject>Acquired immune deficiency syndrome</subject><subject>Adults</subject><subject>AIDS</subject><subject>Assisted suicide</subject><subject>Bioethics</subject><subject>Canada</subject><subject>capacity</subject><subject>care of dying minors</subject><subject>Child</subject><subject>children</subject><subject>Clinical decision making</subject><subject>Decision making</subject><subject>Ethics</subject><subject>Extended essay</subject><subject>Extended essays</subject><subject>Guidebooks</subject><subject>Health care</subject><subject>HIV</subject><subject>Hospitals</subject><subject>Hospitals, Pediatric - ethics</subject><subject>Human immunodeficiency virus</subject><subject>Humans</subject><subject>Jurisprudence</subject><subject>Organizational Policy</subject><subject>paediatrics</subject><subject>Patients</subject><subject>Pediatrics</subject><subject>Policy Making</subject><subject>Stigma</subject><subject>Suicide, Assisted - 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We propose that an opportunity exists for MAID-providing institutions to reduce social stigma surrounding this practice, but not without potentially serious consequences for practitioners and institutions themselves. Thus, this paper is intended as a road map through the still-emerging legal and ethical landscape of paediatric MAID. We offer a view of the roads taken and considered along the way, and our justifications for travelling the paths we chose. By providing a record of our in-progress thinking, we hope to stimulate wider discussion about the issues and questions encountered in this work.</abstract><cop>England</cop><pub>BMJ Publishing Group Ltd and Institute of Medical Ethics</pub><pmid>30242079</pmid><doi>10.1136/medethics-2018-104896</doi><tpages>8</tpages></addata></record> |
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subjects | Abortion Acquired immune deficiency syndrome Adults AIDS Assisted suicide Bioethics Canada capacity care of dying minors Child children Clinical decision making Decision making Ethics Extended essay Extended essays Guidebooks Health care HIV Hospitals Hospitals, Pediatric - ethics Human immunodeficiency virus Humans Jurisprudence Organizational Policy paediatrics Patients Pediatrics Policy Making Stigma Suicide, Assisted - ethics Suicide, Assisted - legislation & jurisprudence suicide/assisted suicide Suicides & suicide attempts Working groups |
title | Medical Assistance in Dying at a paediatric hospital |
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