The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review
Participatory research carried out by or with children, has become a well-established and valuable part of the research landscape investigating children's lives, views and needs. So too has a critical agenda about its ethical implications and methodological complexities. One criticism is that t...
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description | Participatory research carried out by or with children, has become a well-established and valuable part of the research landscape investigating children's lives, views and needs. So too has a critical agenda about its ethical implications and methodological complexities. One criticism is that the involvement of children who may be considered ‘vulnerable’ or ‘marginalised’ has been slower to take root within mainstream participatory practice. This means that there has been less focus on how groups such as disabled children or children affected by abuse or neglect can shape and challenge adult-dominated types of knowledge and decision-making that are likely to affect them. This article reports on the findings of a qualitative systematic literature review of thirteen contemporary papers. The review was undertaken by a UK team in 2017. The included articles explored some core ethical and methodological issues involved in carrying out participatory research with vulnerable children and young people. It reports on three themes: 1) The extent to which participatory spaces could recalibrate opportunities and attention given to marginalised and silenced groups; 2) The ways in which these children and young people could develop skills and exercise political and moral agency through participatory activity, and, 3) How to facilitate meaningful engagement with individuals and groups and reconcile this with a critical appreciation of the important but limited nature of research as means of political and social change. The review provides a unique, contemporary analysis of participatory research with vulnerable children, illuminating in particular its conceptual complexities and contradictions, particularly regarding power, empowerment and voice. Its overall utility and interest is augmented by the disciplinary and geographical breadth of the included articles, rendering it relevant to many contexts and countries.
•Complexity is an inherent feature of participatory research with children and young people.•Power, empowerment and voice are useful concepts in critiquing participatory approaches.•Participatory spaces can recalibrate attention given to marginalised and silenced groups.•Vulnerable children and young people can exercise agency through participatory activity. |
doi_str_mv | 10.1016/j.socscimed.2018.08.038 |
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•Complexity is an inherent feature of participatory research with children and young people.•Power, empowerment and voice are useful concepts in critiquing participatory approaches.•Participatory spaces can recalibrate attention given to marginalised and silenced groups.•Vulnerable children and young people can exercise agency through participatory activity.</description><identifier>ISSN: 0277-9536</identifier><identifier>EISSN: 1873-5347</identifier><identifier>DOI: 10.1016/j.socscimed.2018.08.038</identifier><identifier>PMID: 30218806</identifier><language>eng</language><publisher>England: Elsevier Ltd</publisher><subject>Action research ; Adolescent ; Appreciation ; Child ; Child abuse & neglect ; Child, Preschool ; Children ; Children & youth ; Children with disabilities ; Co-research ; Collaboration ; Community-Based Participatory Research - methods ; Community-Based Participatory Research - standards ; Community-Based Participatory Research - trends ; Complexity ; Complexity theory ; Criticism ; Decision making ; Disabled Children - psychology ; Empowerment ; Engagement ; Ethics ; Humans ; Literature reviews ; Methodological problems ; Moral agency ; Participatory ; Participatory research ; Peer-research ; People with disabilities ; Political change ; Power ; Qualitative Research ; Social change ; Social exclusion ; Social research ; Systematic review ; Teams ; Vulnerability ; Vulnerable ; Vulnerable Populations - psychology ; Young people ; Youth</subject><ispartof>Social science & medicine (1982), 2018-10, Vol.215, p.80-91</ispartof><rights>2018 Elsevier Ltd</rights><rights>Copyright © 2018 Elsevier Ltd. All rights reserved.</rights><rights>Copyright Pergamon Press Inc. Oct 2018</rights><lds50>peer_reviewed</lds50><oa>free_for_read</oa><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c448t-f3858dedbf84a906698e3591905240ece4e08306b7cc3564b7c2941de43e17053</citedby><cites>FETCH-LOGICAL-c448t-f3858dedbf84a906698e3591905240ece4e08306b7cc3564b7c2941de43e17053</cites><orcidid>0000-0002-5237-6777</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktohtml>$$Uhttps://dx.doi.org/10.1016/j.socscimed.2018.08.038$$EHTML$$P50$$Gelsevier$$H</linktohtml><link.rule.ids>315,781,785,3551,27926,27927,33776,45997</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30218806$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Bradbury-Jones, Caroline</creatorcontrib><creatorcontrib>Isham, Louise</creatorcontrib><creatorcontrib>Taylor, Julie</creatorcontrib><title>The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review</title><title>Social science & medicine (1982)</title><addtitle>Soc Sci Med</addtitle><description>Participatory research carried out by or with children, has become a well-established and valuable part of the research landscape investigating children's lives, views and needs. So too has a critical agenda about its ethical implications and methodological complexities. One criticism is that the involvement of children who may be considered ‘vulnerable’ or ‘marginalised’ has been slower to take root within mainstream participatory practice. This means that there has been less focus on how groups such as disabled children or children affected by abuse or neglect can shape and challenge adult-dominated types of knowledge and decision-making that are likely to affect them. This article reports on the findings of a qualitative systematic literature review of thirteen contemporary papers. The review was undertaken by a UK team in 2017. The included articles explored some core ethical and methodological issues involved in carrying out participatory research with vulnerable children and young people. It reports on three themes: 1) The extent to which participatory spaces could recalibrate opportunities and attention given to marginalised and silenced groups; 2) The ways in which these children and young people could develop skills and exercise political and moral agency through participatory activity, and, 3) How to facilitate meaningful engagement with individuals and groups and reconcile this with a critical appreciation of the important but limited nature of research as means of political and social change. The review provides a unique, contemporary analysis of participatory research with vulnerable children, illuminating in particular its conceptual complexities and contradictions, particularly regarding power, empowerment and voice. Its overall utility and interest is augmented by the disciplinary and geographical breadth of the included articles, rendering it relevant to many contexts and countries.
•Complexity is an inherent feature of participatory research with children and young people.•Power, empowerment and voice are useful concepts in critiquing participatory approaches.•Participatory spaces can recalibrate attention given to marginalised and silenced groups.•Vulnerable children and young people can exercise agency through participatory activity.</description><subject>Action research</subject><subject>Adolescent</subject><subject>Appreciation</subject><subject>Child</subject><subject>Child abuse & neglect</subject><subject>Child, Preschool</subject><subject>Children</subject><subject>Children & youth</subject><subject>Children with disabilities</subject><subject>Co-research</subject><subject>Collaboration</subject><subject>Community-Based Participatory Research - methods</subject><subject>Community-Based Participatory Research - standards</subject><subject>Community-Based Participatory Research - trends</subject><subject>Complexity</subject><subject>Complexity theory</subject><subject>Criticism</subject><subject>Decision making</subject><subject>Disabled Children - psychology</subject><subject>Empowerment</subject><subject>Engagement</subject><subject>Ethics</subject><subject>Humans</subject><subject>Literature reviews</subject><subject>Methodological problems</subject><subject>Moral agency</subject><subject>Participatory</subject><subject>Participatory research</subject><subject>Peer-research</subject><subject>People with disabilities</subject><subject>Political change</subject><subject>Power</subject><subject>Qualitative Research</subject><subject>Social change</subject><subject>Social exclusion</subject><subject>Social research</subject><subject>Systematic review</subject><subject>Teams</subject><subject>Vulnerability</subject><subject>Vulnerable</subject><subject>Vulnerable Populations - psychology</subject><subject>Young people</subject><subject>Youth</subject><issn>0277-9536</issn><issn>1873-5347</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><sourceid>7UB</sourceid><sourceid>BHHNA</sourceid><recordid>eNqFkcFuEzEQQC0EoqHwC2CJC5cN47V318stqiggVeJSzpbjnRBHG3tre1PyB3w2k6blwAVppLHsN8_2DGPvBCwFiPbjbpmjy87vcVjWIPQSKKR-xhZCd7JqpOqeswXUXVf1jWwv2KucdwAgQMuX7EJCLbSGdsF-326Ru7ifRvzli8fMbRhoI5RkB--KjyFzH_hkU_HOT7bEdOQJM9rktvzely0_zGPAZNcjmbZ-HBKGB8sxzuEnnzCS_BNf8bvZjr7Y4g_I8zEX3NPakezg8f41e7GxY8Y3j_mS_bj-fHv1tbr5_uXb1eqmckrpUm2kbvSAw3qjle2hbXuNsulFD02tAB0qpC9Cu-6ck02rKNe9EgMqiaKDRl6yD2fvlOLdjLmYvc8Ox9EGjHM2tYAGlNBNR-j7f9BdnFOg1xFFclAaBFHdmXIp5pxwY6bk9zYdjQBzGpbZmb_DMqdhGaCQmirfPvrn9ensqe5pOgSszgBSQ6hJyZAFg8PBJ3TFDNH_95I_gYesTw</recordid><startdate>201810</startdate><enddate>201810</enddate><creator>Bradbury-Jones, Caroline</creator><creator>Isham, Louise</creator><creator>Taylor, Julie</creator><general>Elsevier Ltd</general><general>Pergamon Press Inc</general><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7U3</scope><scope>7U4</scope><scope>7UB</scope><scope>8BJ</scope><scope>BHHNA</scope><scope>DWI</scope><scope>FQK</scope><scope>JBE</scope><scope>K9.</scope><scope>WZK</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0002-5237-6777</orcidid></search><sort><creationdate>201810</creationdate><title>The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review</title><author>Bradbury-Jones, Caroline ; Isham, Louise ; Taylor, Julie</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c448t-f3858dedbf84a906698e3591905240ece4e08306b7cc3564b7c2941de43e17053</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2018</creationdate><topic>Action research</topic><topic>Adolescent</topic><topic>Appreciation</topic><topic>Child</topic><topic>Child abuse & neglect</topic><topic>Child, Preschool</topic><topic>Children</topic><topic>Children & youth</topic><topic>Children with disabilities</topic><topic>Co-research</topic><topic>Collaboration</topic><topic>Community-Based Participatory Research - methods</topic><topic>Community-Based Participatory Research - standards</topic><topic>Community-Based Participatory Research - trends</topic><topic>Complexity</topic><topic>Complexity theory</topic><topic>Criticism</topic><topic>Decision making</topic><topic>Disabled Children - psychology</topic><topic>Empowerment</topic><topic>Engagement</topic><topic>Ethics</topic><topic>Humans</topic><topic>Literature reviews</topic><topic>Methodological problems</topic><topic>Moral agency</topic><topic>Participatory</topic><topic>Participatory research</topic><topic>Peer-research</topic><topic>People with disabilities</topic><topic>Political change</topic><topic>Power</topic><topic>Qualitative Research</topic><topic>Social change</topic><topic>Social exclusion</topic><topic>Social research</topic><topic>Systematic review</topic><topic>Teams</topic><topic>Vulnerability</topic><topic>Vulnerable</topic><topic>Vulnerable Populations - psychology</topic><topic>Young people</topic><topic>Youth</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Bradbury-Jones, Caroline</creatorcontrib><creatorcontrib>Isham, Louise</creatorcontrib><creatorcontrib>Taylor, Julie</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>Social Services Abstracts</collection><collection>Sociological Abstracts (pre-2017)</collection><collection>Worldwide Political Science Abstracts</collection><collection>International Bibliography of the Social Sciences (IBSS)</collection><collection>Sociological Abstracts</collection><collection>Sociological Abstracts</collection><collection>International Bibliography of the Social Sciences</collection><collection>International Bibliography of the Social Sciences</collection><collection>ProQuest Health & Medical Complete (Alumni)</collection><collection>Sociological Abstracts (Ovid)</collection><collection>MEDLINE - Academic</collection><jtitle>Social science & medicine (1982)</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Bradbury-Jones, Caroline</au><au>Isham, Louise</au><au>Taylor, Julie</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review</atitle><jtitle>Social science & medicine (1982)</jtitle><addtitle>Soc Sci Med</addtitle><date>2018-10</date><risdate>2018</risdate><volume>215</volume><spage>80</spage><epage>91</epage><pages>80-91</pages><issn>0277-9536</issn><eissn>1873-5347</eissn><abstract>Participatory research carried out by or with children, has become a well-established and valuable part of the research landscape investigating children's lives, views and needs. So too has a critical agenda about its ethical implications and methodological complexities. One criticism is that the involvement of children who may be considered ‘vulnerable’ or ‘marginalised’ has been slower to take root within mainstream participatory practice. This means that there has been less focus on how groups such as disabled children or children affected by abuse or neglect can shape and challenge adult-dominated types of knowledge and decision-making that are likely to affect them. This article reports on the findings of a qualitative systematic literature review of thirteen contemporary papers. The review was undertaken by a UK team in 2017. The included articles explored some core ethical and methodological issues involved in carrying out participatory research with vulnerable children and young people. It reports on three themes: 1) The extent to which participatory spaces could recalibrate opportunities and attention given to marginalised and silenced groups; 2) The ways in which these children and young people could develop skills and exercise political and moral agency through participatory activity, and, 3) How to facilitate meaningful engagement with individuals and groups and reconcile this with a critical appreciation of the important but limited nature of research as means of political and social change. The review provides a unique, contemporary analysis of participatory research with vulnerable children, illuminating in particular its conceptual complexities and contradictions, particularly regarding power, empowerment and voice. Its overall utility and interest is augmented by the disciplinary and geographical breadth of the included articles, rendering it relevant to many contexts and countries.
•Complexity is an inherent feature of participatory research with children and young people.•Power, empowerment and voice are useful concepts in critiquing participatory approaches.•Participatory spaces can recalibrate attention given to marginalised and silenced groups.•Vulnerable children and young people can exercise agency through participatory activity.</abstract><cop>England</cop><pub>Elsevier Ltd</pub><pmid>30218806</pmid><doi>10.1016/j.socscimed.2018.08.038</doi><tpages>12</tpages><orcidid>https://orcid.org/0000-0002-5237-6777</orcidid><oa>free_for_read</oa></addata></record> |
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subjects | Action research Adolescent Appreciation Child Child abuse & neglect Child, Preschool Children Children & youth Children with disabilities Co-research Collaboration Community-Based Participatory Research - methods Community-Based Participatory Research - standards Community-Based Participatory Research - trends Complexity Complexity theory Criticism Decision making Disabled Children - psychology Empowerment Engagement Ethics Humans Literature reviews Methodological problems Moral agency Participatory Participatory research Peer-research People with disabilities Political change Power Qualitative Research Social change Social exclusion Social research Systematic review Teams Vulnerability Vulnerable Vulnerable Populations - psychology Young people Youth |
title | The complexities and contradictions in participatory research with vulnerable children and young people: A qualitative systematic review |
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