Creation and pilot test results of the dermatology‐specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life
Background Until now, there was no validated dermatology‐specific health‐related quality of life (HRQoL) instrument to be used in youngest patients. Objective To create dermatology‐specific proxy instrument for HRQoL assessment in children from birth to 4 years. Methods International focus groups, i...
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| Veröffentlicht in: | Journal of the European Academy of Dermatology and Venereology 2018-12, Vol.32 (12), p.2288-2294 |
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| creator | Chernyshov, P. V. Boffa, M. J. Corso, R. Pustišek, N. Marinovic, B. Manolache, L. Salavastru, C. M. Tiplica, G. S. Kakourou, T. Alexopoulos, A. Nasi, L. Wojciechowska‐Zdrojowy, M. Seniuta, J. Szepietowski, J. C. Erkens, A. Fölster‐Holst, R. Sampogna, F. Chernyshov, A. V. Jemec, G. B. Esmann, S. Mazereeuw‐Hautier, J. Merlos, M. Tomas‐Aragones, L. Marron, S. E. |
| description | Background
Until now, there was no validated dermatology‐specific health‐related quality of life (HRQoL) instrument to be used in youngest patients.
Objective
To create dermatology‐specific proxy instrument for HRQoL assessment in children from birth to 4 years.
Methods
International focus groups, item selection and pilot tests were utilized. In order to avoid the problem of cross‐cultural inequivalence, focus group work and pilot tests were planned simultaneously in all national centres of the project. Comprehensibility, clarity, acceptance and internal consistency of new instrument were checked.
Results
The title ‘Infants and Toddlers Dermatology Quality of Life’ was chosen for our new instrument with the proposed acronym ‘InToDermQoL’. Focus group work was completed in seven national centres (Croatia, Germany, Greece, Malta, Poland, Romania and Ukraine). A total of 170 families of children with different skin diseases were interviewed, and a pilot version of the instrument was created. Centres from France, Denmark and Spain have joined the project at this stage. Parents of 125 children with skin diseases filled in the pilot versions of the instrument. Good comprehensibility, clarity, acceptance and internal consistency of the InToDermQoL were confirmed. The pilot test results showed that the InToDermQoL questionnaire well differentiates severity‐dependent differences. It was also checked and confirmed during the pilot test that no significant information was missed in the questionnaire. Three age‐specific versions of the InToDermQoL questionnaire with 10, 12 and 15 items, respectively, were approved for field tests.
Conclusion
The pilot test results showed that the InToDermQoL questionnaire has good comprehensibility, clarity, acceptance and internal consistency and well differentiates severity‐dependent differences. Further validation of the InToDermQoL during international field test will be performed. |
| doi_str_mv | 10.1111/jdv.15229 |
| format | Article |
| fullrecord | <record><control><sourceid>proquest_cross</sourceid><recordid>TN_cdi_proquest_miscellaneous_2098766497</recordid><sourceformat>XML</sourceformat><sourcesystem>PC</sourcesystem><sourcerecordid>2098766497</sourcerecordid><originalsourceid>FETCH-LOGICAL-c3259-42218b5e1a9056eb2a72d6bbccac731a43cea33d7a7b35ff49b7ca3d33aa9dde3</originalsourceid><addsrcrecordid>eNp1kMtu1DAUQC1ERYfSBT-AvIRFWj_yMjs0pS-NVFUq3UY39g24cuLBdgrZdcEH9Bv5EjKdlq7qzd2ce3R9CHnP2QGf3-GNuT3ghRDqFVnwvKwzyWr5miyYEmWmVKF2ydsYbxhjnBf1G7IrGS-VYmJB_iwDQrJ-oDAYurbOJ5owJhowji5F6juafiA1GHpI3vnv09-7-7hGbTur6Tr43xO1Q0xh7HFInx_gs6GDYd7dKK-8MQ5DpEfPBno5grNp2shXtsN3ZKcDF3H_ce6Rb8dfr5an2eri5Gz5ZZVpKQqV5ULwui2Qg2JFia2ASpiybbUGXUkOudQIUpoKqlYWXZerttIgjZQAyhiUe-Tj1juf_XOcf9n0Nmp0Dgb0Y2wEU3VVlrmqZvTTFtXBxxiwa9bB9hCmhrNmE72ZozcP0Wf2w6N2bHs0_8mnyjNwuAV-WYfTy6bm_Oh6q_wH2c2QEg</addsrcrecordid><sourcetype>Aggregation Database</sourcetype><iscdi>true</iscdi><recordtype>article</recordtype><pqid>2098766497</pqid></control><display><type>article</type><title>Creation and pilot test results of the dermatology‐specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life</title><source>MEDLINE</source><source>Wiley Online Library Journals Frontfile Complete</source><creator>Chernyshov, P. V. ; Boffa, M. J. ; Corso, R. ; Pustišek, N. ; Marinovic, B. ; Manolache, L. ; Salavastru, C. M. ; Tiplica, G. S. ; Kakourou, T. ; Alexopoulos, A. ; Nasi, L. ; Wojciechowska‐Zdrojowy, M. ; Seniuta, J. ; Szepietowski, J. C. ; Erkens, A. ; Fölster‐Holst, R. ; Sampogna, F. ; Chernyshov, A. V. ; Jemec, G. B. ; Esmann, S. ; Mazereeuw‐Hautier, J. ; Merlos, M. ; Tomas‐Aragones, L. ; Marron, S. E.</creator><creatorcontrib>Chernyshov, P. V. ; Boffa, M. J. ; Corso, R. ; Pustišek, N. ; Marinovic, B. ; Manolache, L. ; Salavastru, C. M. ; Tiplica, G. S. ; Kakourou, T. ; Alexopoulos, A. ; Nasi, L. ; Wojciechowska‐Zdrojowy, M. ; Seniuta, J. ; Szepietowski, J. C. ; Erkens, A. ; Fölster‐Holst, R. ; Sampogna, F. ; Chernyshov, A. V. ; Jemec, G. B. ; Esmann, S. ; Mazereeuw‐Hautier, J. ; Merlos, M. ; Tomas‐Aragones, L. ; Marron, S. E.</creatorcontrib><description>Background
Until now, there was no validated dermatology‐specific health‐related quality of life (HRQoL) instrument to be used in youngest patients.
Objective
To create dermatology‐specific proxy instrument for HRQoL assessment in children from birth to 4 years.
Methods
International focus groups, item selection and pilot tests were utilized. In order to avoid the problem of cross‐cultural inequivalence, focus group work and pilot tests were planned simultaneously in all national centres of the project. Comprehensibility, clarity, acceptance and internal consistency of new instrument were checked.
Results
The title ‘Infants and Toddlers Dermatology Quality of Life’ was chosen for our new instrument with the proposed acronym ‘InToDermQoL’. Focus group work was completed in seven national centres (Croatia, Germany, Greece, Malta, Poland, Romania and Ukraine). A total of 170 families of children with different skin diseases were interviewed, and a pilot version of the instrument was created. Centres from France, Denmark and Spain have joined the project at this stage. Parents of 125 children with skin diseases filled in the pilot versions of the instrument. Good comprehensibility, clarity, acceptance and internal consistency of the InToDermQoL were confirmed. The pilot test results showed that the InToDermQoL questionnaire well differentiates severity‐dependent differences. It was also checked and confirmed during the pilot test that no significant information was missed in the questionnaire. Three age‐specific versions of the InToDermQoL questionnaire with 10, 12 and 15 items, respectively, were approved for field tests.
Conclusion
The pilot test results showed that the InToDermQoL questionnaire has good comprehensibility, clarity, acceptance and internal consistency and well differentiates severity‐dependent differences. Further validation of the InToDermQoL during international field test will be performed.</description><identifier>ISSN: 0926-9959</identifier><identifier>EISSN: 1468-3083</identifier><identifier>DOI: 10.1111/jdv.15229</identifier><identifier>PMID: 30169902</identifier><language>eng</language><publisher>England</publisher><subject>Child, Preschool ; Comprehension ; Cultural Competency ; Europe ; Focus Groups ; Humans ; Infant ; Infant, Newborn ; Pilot Projects ; Proxy ; Quality of Life ; Severity of Illness Index ; Skin Diseases - complications ; Surveys and Questionnaires</subject><ispartof>Journal of the European Academy of Dermatology and Venereology, 2018-12, Vol.32 (12), p.2288-2294</ispartof><rights>2018 European Academy of Dermatology and Venereology</rights><rights>2018 European Academy of Dermatology and Venereology.</rights><lds50>peer_reviewed</lds50><woscitedreferencessubscribed>false</woscitedreferencessubscribed><citedby>FETCH-LOGICAL-c3259-42218b5e1a9056eb2a72d6bbccac731a43cea33d7a7b35ff49b7ca3d33aa9dde3</citedby><cites>FETCH-LOGICAL-c3259-42218b5e1a9056eb2a72d6bbccac731a43cea33d7a7b35ff49b7ca3d33aa9dde3</cites><orcidid>0000-0001-7275-4651</orcidid></display><links><openurl>$$Topenurl_article</openurl><openurlfulltext>$$Topenurlfull_article</openurlfulltext><thumbnail>$$Tsyndetics_thumb_exl</thumbnail><linktopdf>$$Uhttps://onlinelibrary.wiley.com/doi/pdf/10.1111%2Fjdv.15229$$EPDF$$P50$$Gwiley$$H</linktopdf><linktohtml>$$Uhttps://onlinelibrary.wiley.com/doi/full/10.1111%2Fjdv.15229$$EHTML$$P50$$Gwiley$$H</linktohtml><link.rule.ids>314,776,780,1411,27901,27902,45550,45551</link.rule.ids><backlink>$$Uhttps://www.ncbi.nlm.nih.gov/pubmed/30169902$$D View this record in MEDLINE/PubMed$$Hfree_for_read</backlink></links><search><creatorcontrib>Chernyshov, P. V.</creatorcontrib><creatorcontrib>Boffa, M. J.</creatorcontrib><creatorcontrib>Corso, R.</creatorcontrib><creatorcontrib>Pustišek, N.</creatorcontrib><creatorcontrib>Marinovic, B.</creatorcontrib><creatorcontrib>Manolache, L.</creatorcontrib><creatorcontrib>Salavastru, C. M.</creatorcontrib><creatorcontrib>Tiplica, G. S.</creatorcontrib><creatorcontrib>Kakourou, T.</creatorcontrib><creatorcontrib>Alexopoulos, A.</creatorcontrib><creatorcontrib>Nasi, L.</creatorcontrib><creatorcontrib>Wojciechowska‐Zdrojowy, M.</creatorcontrib><creatorcontrib>Seniuta, J.</creatorcontrib><creatorcontrib>Szepietowski, J. C.</creatorcontrib><creatorcontrib>Erkens, A.</creatorcontrib><creatorcontrib>Fölster‐Holst, R.</creatorcontrib><creatorcontrib>Sampogna, F.</creatorcontrib><creatorcontrib>Chernyshov, A. V.</creatorcontrib><creatorcontrib>Jemec, G. B.</creatorcontrib><creatorcontrib>Esmann, S.</creatorcontrib><creatorcontrib>Mazereeuw‐Hautier, J.</creatorcontrib><creatorcontrib>Merlos, M.</creatorcontrib><creatorcontrib>Tomas‐Aragones, L.</creatorcontrib><creatorcontrib>Marron, S. E.</creatorcontrib><title>Creation and pilot test results of the dermatology‐specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life</title><title>Journal of the European Academy of Dermatology and Venereology</title><addtitle>J Eur Acad Dermatol Venereol</addtitle><description>Background
Until now, there was no validated dermatology‐specific health‐related quality of life (HRQoL) instrument to be used in youngest patients.
Objective
To create dermatology‐specific proxy instrument for HRQoL assessment in children from birth to 4 years.
Methods
International focus groups, item selection and pilot tests were utilized. In order to avoid the problem of cross‐cultural inequivalence, focus group work and pilot tests were planned simultaneously in all national centres of the project. Comprehensibility, clarity, acceptance and internal consistency of new instrument were checked.
Results
The title ‘Infants and Toddlers Dermatology Quality of Life’ was chosen for our new instrument with the proposed acronym ‘InToDermQoL’. Focus group work was completed in seven national centres (Croatia, Germany, Greece, Malta, Poland, Romania and Ukraine). A total of 170 families of children with different skin diseases were interviewed, and a pilot version of the instrument was created. Centres from France, Denmark and Spain have joined the project at this stage. Parents of 125 children with skin diseases filled in the pilot versions of the instrument. Good comprehensibility, clarity, acceptance and internal consistency of the InToDermQoL were confirmed. The pilot test results showed that the InToDermQoL questionnaire well differentiates severity‐dependent differences. It was also checked and confirmed during the pilot test that no significant information was missed in the questionnaire. Three age‐specific versions of the InToDermQoL questionnaire with 10, 12 and 15 items, respectively, were approved for field tests.
Conclusion
The pilot test results showed that the InToDermQoL questionnaire has good comprehensibility, clarity, acceptance and internal consistency and well differentiates severity‐dependent differences. Further validation of the InToDermQoL during international field test will be performed.</description><subject>Child, Preschool</subject><subject>Comprehension</subject><subject>Cultural Competency</subject><subject>Europe</subject><subject>Focus Groups</subject><subject>Humans</subject><subject>Infant</subject><subject>Infant, Newborn</subject><subject>Pilot Projects</subject><subject>Proxy</subject><subject>Quality of Life</subject><subject>Severity of Illness Index</subject><subject>Skin Diseases - complications</subject><subject>Surveys and Questionnaires</subject><issn>0926-9959</issn><issn>1468-3083</issn><fulltext>true</fulltext><rsrctype>article</rsrctype><creationdate>2018</creationdate><recordtype>article</recordtype><sourceid>EIF</sourceid><recordid>eNp1kMtu1DAUQC1ERYfSBT-AvIRFWj_yMjs0pS-NVFUq3UY39g24cuLBdgrZdcEH9Bv5EjKdlq7qzd2ce3R9CHnP2QGf3-GNuT3ghRDqFVnwvKwzyWr5miyYEmWmVKF2ydsYbxhjnBf1G7IrGS-VYmJB_iwDQrJ-oDAYurbOJ5owJhowji5F6juafiA1GHpI3vnv09-7-7hGbTur6Tr43xO1Q0xh7HFInx_gs6GDYd7dKK-8MQ5DpEfPBno5grNp2shXtsN3ZKcDF3H_ce6Rb8dfr5an2eri5Gz5ZZVpKQqV5ULwui2Qg2JFia2ASpiybbUGXUkOudQIUpoKqlYWXZerttIgjZQAyhiUe-Tj1juf_XOcf9n0Nmp0Dgb0Y2wEU3VVlrmqZvTTFtXBxxiwa9bB9hCmhrNmE72ZozcP0Wf2w6N2bHs0_8mnyjNwuAV-WYfTy6bm_Oh6q_wH2c2QEg</recordid><startdate>201812</startdate><enddate>201812</enddate><creator>Chernyshov, P. V.</creator><creator>Boffa, M. J.</creator><creator>Corso, R.</creator><creator>Pustišek, N.</creator><creator>Marinovic, B.</creator><creator>Manolache, L.</creator><creator>Salavastru, C. M.</creator><creator>Tiplica, G. S.</creator><creator>Kakourou, T.</creator><creator>Alexopoulos, A.</creator><creator>Nasi, L.</creator><creator>Wojciechowska‐Zdrojowy, M.</creator><creator>Seniuta, J.</creator><creator>Szepietowski, J. C.</creator><creator>Erkens, A.</creator><creator>Fölster‐Holst, R.</creator><creator>Sampogna, F.</creator><creator>Chernyshov, A. V.</creator><creator>Jemec, G. B.</creator><creator>Esmann, S.</creator><creator>Mazereeuw‐Hautier, J.</creator><creator>Merlos, M.</creator><creator>Tomas‐Aragones, L.</creator><creator>Marron, S. E.</creator><scope>CGR</scope><scope>CUY</scope><scope>CVF</scope><scope>ECM</scope><scope>EIF</scope><scope>NPM</scope><scope>AAYXX</scope><scope>CITATION</scope><scope>7X8</scope><orcidid>https://orcid.org/0000-0001-7275-4651</orcidid></search><sort><creationdate>201812</creationdate><title>Creation and pilot test results of the dermatology‐specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life</title><author>Chernyshov, P. V. ; Boffa, M. J. ; Corso, R. ; Pustišek, N. ; Marinovic, B. ; Manolache, L. ; Salavastru, C. M. ; Tiplica, G. S. ; Kakourou, T. ; Alexopoulos, A. ; Nasi, L. ; Wojciechowska‐Zdrojowy, M. ; Seniuta, J. ; Szepietowski, J. C. ; Erkens, A. ; Fölster‐Holst, R. ; Sampogna, F. ; Chernyshov, A. V. ; Jemec, G. B. ; Esmann, S. ; Mazereeuw‐Hautier, J. ; Merlos, M. ; Tomas‐Aragones, L. ; Marron, S. E.</author></sort><facets><frbrtype>5</frbrtype><frbrgroupid>cdi_FETCH-LOGICAL-c3259-42218b5e1a9056eb2a72d6bbccac731a43cea33d7a7b35ff49b7ca3d33aa9dde3</frbrgroupid><rsrctype>articles</rsrctype><prefilter>articles</prefilter><language>eng</language><creationdate>2018</creationdate><topic>Child, Preschool</topic><topic>Comprehension</topic><topic>Cultural Competency</topic><topic>Europe</topic><topic>Focus Groups</topic><topic>Humans</topic><topic>Infant</topic><topic>Infant, Newborn</topic><topic>Pilot Projects</topic><topic>Proxy</topic><topic>Quality of Life</topic><topic>Severity of Illness Index</topic><topic>Skin Diseases - complications</topic><topic>Surveys and Questionnaires</topic><toplevel>peer_reviewed</toplevel><toplevel>online_resources</toplevel><creatorcontrib>Chernyshov, P. V.</creatorcontrib><creatorcontrib>Boffa, M. J.</creatorcontrib><creatorcontrib>Corso, R.</creatorcontrib><creatorcontrib>Pustišek, N.</creatorcontrib><creatorcontrib>Marinovic, B.</creatorcontrib><creatorcontrib>Manolache, L.</creatorcontrib><creatorcontrib>Salavastru, C. M.</creatorcontrib><creatorcontrib>Tiplica, G. S.</creatorcontrib><creatorcontrib>Kakourou, T.</creatorcontrib><creatorcontrib>Alexopoulos, A.</creatorcontrib><creatorcontrib>Nasi, L.</creatorcontrib><creatorcontrib>Wojciechowska‐Zdrojowy, M.</creatorcontrib><creatorcontrib>Seniuta, J.</creatorcontrib><creatorcontrib>Szepietowski, J. C.</creatorcontrib><creatorcontrib>Erkens, A.</creatorcontrib><creatorcontrib>Fölster‐Holst, R.</creatorcontrib><creatorcontrib>Sampogna, F.</creatorcontrib><creatorcontrib>Chernyshov, A. V.</creatorcontrib><creatorcontrib>Jemec, G. B.</creatorcontrib><creatorcontrib>Esmann, S.</creatorcontrib><creatorcontrib>Mazereeuw‐Hautier, J.</creatorcontrib><creatorcontrib>Merlos, M.</creatorcontrib><creatorcontrib>Tomas‐Aragones, L.</creatorcontrib><creatorcontrib>Marron, S. E.</creatorcontrib><collection>Medline</collection><collection>MEDLINE</collection><collection>MEDLINE (Ovid)</collection><collection>MEDLINE</collection><collection>MEDLINE</collection><collection>PubMed</collection><collection>CrossRef</collection><collection>MEDLINE - Academic</collection><jtitle>Journal of the European Academy of Dermatology and Venereology</jtitle></facets><delivery><delcategory>Remote Search Resource</delcategory><fulltext>fulltext</fulltext></delivery><addata><au>Chernyshov, P. V.</au><au>Boffa, M. J.</au><au>Corso, R.</au><au>Pustišek, N.</au><au>Marinovic, B.</au><au>Manolache, L.</au><au>Salavastru, C. M.</au><au>Tiplica, G. S.</au><au>Kakourou, T.</au><au>Alexopoulos, A.</au><au>Nasi, L.</au><au>Wojciechowska‐Zdrojowy, M.</au><au>Seniuta, J.</au><au>Szepietowski, J. C.</au><au>Erkens, A.</au><au>Fölster‐Holst, R.</au><au>Sampogna, F.</au><au>Chernyshov, A. V.</au><au>Jemec, G. B.</au><au>Esmann, S.</au><au>Mazereeuw‐Hautier, J.</au><au>Merlos, M.</au><au>Tomas‐Aragones, L.</au><au>Marron, S. E.</au><format>journal</format><genre>article</genre><ristype>JOUR</ristype><atitle>Creation and pilot test results of the dermatology‐specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life</atitle><jtitle>Journal of the European Academy of Dermatology and Venereology</jtitle><addtitle>J Eur Acad Dermatol Venereol</addtitle><date>2018-12</date><risdate>2018</risdate><volume>32</volume><issue>12</issue><spage>2288</spage><epage>2294</epage><pages>2288-2294</pages><issn>0926-9959</issn><eissn>1468-3083</eissn><abstract>Background
Until now, there was no validated dermatology‐specific health‐related quality of life (HRQoL) instrument to be used in youngest patients.
Objective
To create dermatology‐specific proxy instrument for HRQoL assessment in children from birth to 4 years.
Methods
International focus groups, item selection and pilot tests were utilized. In order to avoid the problem of cross‐cultural inequivalence, focus group work and pilot tests were planned simultaneously in all national centres of the project. Comprehensibility, clarity, acceptance and internal consistency of new instrument were checked.
Results
The title ‘Infants and Toddlers Dermatology Quality of Life’ was chosen for our new instrument with the proposed acronym ‘InToDermQoL’. Focus group work was completed in seven national centres (Croatia, Germany, Greece, Malta, Poland, Romania and Ukraine). A total of 170 families of children with different skin diseases were interviewed, and a pilot version of the instrument was created. Centres from France, Denmark and Spain have joined the project at this stage. Parents of 125 children with skin diseases filled in the pilot versions of the instrument. Good comprehensibility, clarity, acceptance and internal consistency of the InToDermQoL were confirmed. The pilot test results showed that the InToDermQoL questionnaire well differentiates severity‐dependent differences. It was also checked and confirmed during the pilot test that no significant information was missed in the questionnaire. Three age‐specific versions of the InToDermQoL questionnaire with 10, 12 and 15 items, respectively, were approved for field tests.
Conclusion
The pilot test results showed that the InToDermQoL questionnaire has good comprehensibility, clarity, acceptance and internal consistency and well differentiates severity‐dependent differences. Further validation of the InToDermQoL during international field test will be performed.</abstract><cop>England</cop><pmid>30169902</pmid><doi>10.1111/jdv.15229</doi><tpages>7</tpages><orcidid>https://orcid.org/0000-0001-7275-4651</orcidid></addata></record> |
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| ispartof | Journal of the European Academy of Dermatology and Venereology, 2018-12, Vol.32 (12), p.2288-2294 |
| issn | 0926-9959 1468-3083 |
| language | eng |
| recordid | cdi_proquest_miscellaneous_2098766497 |
| source | MEDLINE; Wiley Online Library Journals Frontfile Complete |
| subjects | Child, Preschool Comprehension Cultural Competency Europe Focus Groups Humans Infant Infant, Newborn Pilot Projects Proxy Quality of Life Severity of Illness Index Skin Diseases - complications Surveys and Questionnaires |
| title | Creation and pilot test results of the dermatology‐specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life |
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