Caregiver knowledge and preferences for gross motor function information in cerebral palsy

Aim To determine caregiver knowledge and preferences for gross motor information and examine differences across Gross Motor Function Classification System (GMFCS) levels. Method A questionnaire was developed. Respondents reported GMFCS knowledge, preference for knowledge, and experience with GMFCS a...

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Veröffentlicht in:Developmental medicine and child neurology 2018-12, Vol.60 (12), p.1264-1270
Hauptverfasser: Bailes, Amy F, Gannotti, Mary, Bellows, Danielle M, Shusterman, Michele, Lyman, Jennifer, Horn, Susan D
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Sprache:eng
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Zusammenfassung:Aim To determine caregiver knowledge and preferences for gross motor information and examine differences across Gross Motor Function Classification System (GMFCS) levels. Method A questionnaire was developed. Respondents reported GMFCS knowledge, preference for knowledge, and experience with GMFCS and motor curve information. Results In total, 303 caregivers of children with cerebral palsy (CP) (GMFCS level I: 22%; GMFCS level II: 16%; GMFCS level III: 15%; GMFCS level IV: 23%; GMFCS level V: 24%) completed the questionnaire. Forty‐five per cent of caregivers knew the GMFCS level at survey, and only 31% knew how their child's motor development compared with others of similar age and level. Caregiver education level was associated with knowledge (p
ISSN:0012-1622
1469-8749
DOI:10.1111/dmcn.13994